Civic Intelligence

Research Down Syndrome

EIN 27-0477191 • 501(c)3 • Grayslake, IL

Revoked

Profile

The mission of Research Down Syndrome is

Revocation date: May 15, 2018

115 Parker DriveGrayslake, IL 60030

www.researchds.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

75th percentile

0.20x

Higher debt load relative to assets than 75% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2014

Liabilities / Revenue

74th percentile

0.14x

Higher debt load relative to revenue than 74% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2014

Net Margin

22nd percentile

-11%

Higher net margin than 22% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2014

Top Officer Pay

87th percentile

$103,000

Higher top officer pay than 87% of similar nonprofits.

Top officer pay equals 20.2% of source-year revenue.

501(c)3 • $500k-$1M nonprofits • Source year 2014

Asset Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2014

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2014

Balance Sheet
Liabilities / Assets75th percentile

Assets

$361,164

No earlier filing loaded for comparison.

Liabilities

$73,526

No earlier filing loaded for comparison.

Net Assets

$287,638

No earlier filing loaded for comparison.

Operations
Liabilities / Revenue74th percentileNet Margin22nd percentile

Revenue

$510,000

No earlier filing loaded for comparison.

Expenses

$567,519

No earlier filing loaded for comparison.

Net Income

-$57,519

No earlier filing loaded for comparison.

Trend Graphs

Balance Sheet Trend

Asset GrowthScore unavailable

Grouped bars show assets, liabilities, and net assets across loaded filings.

$400K$300K$200K$100K$0Assets 2014: $361,164Liabilities 2014: $73,526Net Assets 2014: $287,6382014

Highlighted filing

2014

Assets$361,164
Liabilities$73,526
Net Assets$287,638
Open 2014 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income by year, with the latest filing highlighted.

$600K$400K$200K$0-$200KRevenue 2014: $510,000Expenses 2014: $567,519Net Income 2014: -$57,5192014

Highlighted filing

2014

Revenue$510,000
Expenses$567,519
Net Income-$57,519
Open 2014 Filing

Filings

Most recent year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$361,164
Liabilities
$73,526
Net assets
$287,638
Revenue
$510,000
Expenses
$567,519
Net income
-$57,519
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2014Detailed filing. Detailed filing data is available for this year.$3.61$0.74$2.88$5.10$5.68$0.58
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
Aug 12, 2015
Return Version
2014v5.0
Gross Receipts
$688,800
Mission and Program Overview

Mission

The mission of Research Down Syndrome is

The mission of Research Down Syndrome is to raise awareness of and fund scientific research directed towards the development of safe and effective drug therapies that will improve memory, learning and communication in persons with Down syndrome and address the increased likelihood for Alzheimer's disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$214,272$298,217▲ $83,945
Pledges and Grants Receivable$100,000--
Cash and Non-Interest-Bearing Accounts$16,558$47,772▲ $31,214
Accounts Receivable$22,503$15,175▼ $7,328
Total Assets$353,333$361,164▲ $7,831
Liabilities
Accounts Payable and Accrued Expenses$8,176$73,526▲ $65,350
Total Liabilities$8,176$73,526▲ $65,350
Net Assets / Fund Balance
Unrestricted Net Assets$245,157$287,638▲ $42,481
Temporarily Rstr Net Assets$100,000--
Total Net Assets Fund Balance$345,157$287,638▼ $57,519
Total Liabilities and Net Assets / Fund Balance$353,333$361,164▲ $7,831
Compensation and Service Providers
Top Officer Pay87th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Robert SchoenDirector/presidentFT$103,000$103,000

Board Members and Trustees

NameTitle
Patricia White FlatleyDirector
Mary Beth SchoenDirector/secretary
Daniel K FlatleyDirector/treasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$653,722
Program Service Revenue
$0
Investment Income
$378
Other Revenue
$-144,100
All Other Contributions
$325,622
Change in Net Assets
$-57,519
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$315,000
Salaries, Compensation, and Employee Benefits$147,758
Other Expenses$104,761
Total Fundraising Expense$97,178
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$315,000--$315,000
Current Officers, Directors, Trustees, and Key Employees$72,100$15,450$15,450$103,000
Other Salaries and Wages$0$10,590$21,212$31,802
Advertising$12,693$1,144$16,757$30,594
Fees for Services Other$0$0$17,605$17,605
Fees for Services Accounting$0$10,744$0$10,744
Payroll Taxes$5,548$1,980$2,785$10,313
Office Expenses$2,878$2,518$1,798$7,194
Occupancy$3,000$1,500$1,500$6,000
Travel$3,795$0$1,627$5,422
Information Technology$1,683$0$1,683$3,366
Conferences and Meetings$3,251$0$0$3,251
Other Employee Benefits$0$880$1,763$2,643
Insurance$0$2,382$0$2,382
Other Expenses$387$775$387$1,549
Total Functional Expenses$421,335$49,006$97,178$567,519
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of California San DiegoLa Jolla, CA-See Sch I, Part IV$85,000
Emory University School of MedicineAtlanta, GA-See Sch I, Part IV$60,000
University of ArizonaTucson, AZ-See Sch I, Part IV$55,000
Johns Hopkins UniversityBaltimore, MD-See Sch I, Part IV$50,000
Stanford UniversityStanford, CA-See Sch I, Part IV$32,500
VA Palo Alto Health Care SystemPalo Alto, CA-See Sch I, Part IV$32,500
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$178,800
Fundraising Gross Income$34,700
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Tribute 21$219,609$22,800$91,268$-68,468
Dallas Golf Classic$107,721$5,000$5,249$-249
Total Events$362,800$34,700$178,800$-144,100
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No
Filing and Contact Details

Filer

Filer Name
Research Down Syndrome
EIN
27-0477191
Phone
8778632121
Address
115 PARKER DRIVE, GRAYSLAKE, IL 60030

Signing Officer

Name
Robert Schoen
Title
President
Phone
8778632121
Signed
2015-08-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Robert Schoen
Formed
2009
Legal Domicile
Il
Voting Board Members
4
Independent Board Members
3
Employees
2
Volunteers
25

Preparer

Firm
Firak Accounting & Co
Address
10933 CONCORD LN, HUNTLEY, IL 60142
Preparer
Jason Firak
Phone
8473475403
Supplemental Narrative

Additional Explanations

Pt VI, Line 2

“A family relationship exists between director Robert Schoen and Mary Beth Schoen who are brother and sister. A family relationship also exists between director Daniel Flatley and Patricia White Flatley who are husband and wife.”

Pt VI, Line 8B

“No committee's exist with the authority to act on behalf of the governing body. All meetings of the governing body and actions undertaken by the governing body were documented.”

Pt VI, Line 11B

“Form 990 is provided to all directors and members of the governing body of Research Down Syndrome to review before it is filed, and a meeting between the Chairman/Treasurer, President/Director, and the Form 990 preparer takes place before Form 990 is filed.”

Pt VI, Line 12C

“The Board of Directors of Research Down Syndrome reviews the written conflict of interest policy and disclosures annually, and conducts periodic reviews to insure compliance with the written policy.”

Pt VI, Line 15A

“The compensation of the Executive Director/President of Research Down Syndrome is determined by the Board of Directors, and all deliberations and decisions of the board regarding compensation are documented. Compensation is determined based on a number of factors including current trends in non-profit salaries of similar organizations across the country and budget figures for the 2014 calendar year. During 2014, no other officers or key employees received compensation from Research Down Syndrome so question 15b in Part VI does not apply for 2014.”

Pt VI, Line 19

“The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0See Sch I, Part IV
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1See Sch I, Part IV
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2See Sch I, Part IV
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3See Sch I, Part IV
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4See Sch I, Part IV
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt5See Sch I, Part IV
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0University of Arizona
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1Stanford University
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2University of California San Diego
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3Johns Hopkins University
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4VA Palo Alto Health Care System
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt5Emory University School of Medicine
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IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0A final project progress report must be submitted by grantees no later than eight (8) weeks following the date a grant is terminated. Research Down Syndrome (RDS) may require additional progress reports at any time during an award period as a condition of continuing the award. Each Progress Report should include a nontechnical summary, as well as a detailed scientific report of the progress of the research under the RDS Research Grant. The Progress Report should clearly identify and describe specific research, associated results, and their significance as supported by the RDS Research Grant funds.
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt1Part II Line 1, Section (h): The purpose of all grants made in 2014 was to support Down syndrome cognitive research.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0A family relationship exists between director Robert Schoen and Mary Beth Schoen who are brother and sister. A family relationship also exists between director Daniel Flatley and Patricia White Flatley who are husband and wife.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1No committee's exist with the authority to act on behalf of the governing body. All meetings of the governing body and actions undertaken by the governing body were documented.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Form 990 is provided to all directors and members of the governing body of Research Down Syndrome to review before it is filed, and a meeting between the Chairman/Treasurer, President/Director, and the Form 990 preparer takes place before Form 990 is filed.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The Board of Directors of Research Down Syndrome reviews the written conflict of interest policy and disclosures annually, and conducts periodic reviews to insure compliance with the written policy.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4The compensation of the Executive Director/President of Research Down Syndrome is determined by the Board of Directors, and all deliberations and decisions of the board regarding compensation are documented. Compensation is determined based on a number of factors including current trends in non-profit salaries of similar organizations across the country and budget figures for the 2014 calendar year. During 2014, no other officers or key employees received compensation from Research Down Syndrome so question 15b in Part VI does not apply for 2014.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request.
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