Civic Intelligence

Everylife Foundation for Rare Diseases

990 • Fiscal year 2011 • EIN 26-4614274

Jan 01, 2011 to Dec 31, 2011 • Filed on Nov 13, 2012

Organization ProfileWWW.EVERYLIFEFOUNDATION.ORG

View Organization Page

77 Digital Drive No 21094949
Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

23rd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2011 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2011

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2011

Net Margin

Score unavailable

No value available

Net margin requires both revenue and expenses on this filing.

Source year 2011

Top Officer Pay

Score unavailable

No value available

This filing does not contain officer compensation rows.

Source year 2011

Asset Growth

83rd percentile

27%

Faster asset growth than 83% of similar nonprofits.

2011 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2010 to 2011

Revenue Growth

Score unavailable

No value available

No valid filing value is available for this score.

Balance Sheet
Liabilities / Assets23rd percentile

Assets

Up

$213,321

Up $45,717 (+27%) from 2010

Net Assets

Up

$213,321

Up $45,717 (+27%) from 2010

Liabilities

Flat

$0

Flat from 2010

Revenue And Expenses
Liabilities / RevenueScore unavailableNet MarginScore unavailable

Revenue

-

No earlier filing loaded for comparison.

Expenses

Down

$711,654

Down $215,520 (-23%) from 2010

Net Income

-

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth83rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $167,604Liabilities 2010: $0Net Assets 2010: $167,6042010Assets 2011: $213,321Liabilities 2011: $0Net Assets 2011: $213,3212011Assets 2014: $436,978Liabilities 2014: $59,429Net Assets 2014: $377,5492014Assets 2015: $516,371Liabilities 2015: $50,898Net Assets 2015: $465,4732015Assets 2016: $651,805Liabilities 2016: $171,140Net Assets 2016: $480,6652016Assets 2020: $4,267,657Liabilities 2020: $1,261,967Net Assets 2020: $3,005,6902020Assets 2021: $4,550,600Liabilities 2021: $1,161,900Net Assets 2021: $3,388,7002021Assets 2022: $4,495,405Liabilities 2022: $1,254,443Net Assets 2022: $3,240,9622022Assets 2023: $5,806,862Liabilities 2023: $1,807,815Net Assets 2023: $3,999,0472023Assets 2024: $6,217,588Liabilities 2024: $2,009,473Net Assets 2024: $4,208,1152024

Highlighted filing

2011

Assets$213,321
Liabilities$0
Net Assets$213,321
Open 2011 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0-$2.0MExpenses 2010: $927,1742010Expenses 2011: $711,6542011Revenue 2014: $1,351,627Expenses 2014: $1,214,362Net Income 2014: $137,2652014Revenue 2015: $1,787,563Expenses 2015: $1,699,639Net Income 2015: $87,9242015Revenue 2016: $2,222,355Expenses 2016: $2,207,163Net Income 2016: $15,1922016Revenue 2020: $4,425,797Expenses 2020: $4,005,266Net Income 2020: $420,5312020Revenue 2021: $5,479,237Expenses 2021: $5,088,034Net Income 2021: $391,2032021Revenue 2022: $5,789,261Expenses 2022: $5,792,631Net Income 2022: -$3,3702022Revenue 2023: $6,794,644Expenses 2023: $6,057,115Net Income 2023: $737,5292023Revenue 2024: $7,031,574Expenses 2024: $6,841,685Net Income 2024: $189,8892024

Highlighted filing

2011

Revenue-
Expenses$711,654
Net Income-
Open 2011 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2011 to Dec 31, 2011
Signed
Nov 13, 2012
Return Version
2011v1.2
Gross Receipts
$810,534
Mission and Program Overview

Mission

Information regarding the foundation's programs can be obtained at www.everylifefoundation.org.

Major Activities

Activity 2
Scientific advisory council:began work on developing new statistical models, studied designs and biomarker guidance specifically addressing rare disease drug development issues.
Activity 3
Research into stalled drug programs and investment patterns for rare disease products with the assistance of a medical intern, outside consultants and primary and tertiary research projects.
Filing and Contact Details

Filer

EIN
26-4614274
Raw XML AppendixShowing 400 of 454 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/GeneralExplanation/Explanation0JENNY SORIANO, A DIRECTOR, IS THE WIFE OF EMIL KAKKIS, THE PRESIDENT.
IRS990ScheduleO/GeneralExplanation/Explanation1FINAL REVIEW OF THIS FORM 990 IS PERFORMED BY THE SECETARY/TREASURER AND THE PRESIDENT.
IRS990ScheduleO/GeneralExplanation/Explanation2OFFICERS ARE ASKED AT ANNUAL BOARD MEETINGS TO DISCLOSE ANY CONFLICTS OF INTEREST.
IRS990ScheduleO/GeneralExplanation/Explanation3THE CEO/PRESIDENT DOES NOT RECEIVE ANY COMPENSATION. FOR OTHER KEY EMPLOYEES, THE PAY SCALE IS COMPARED WITH ONLINE SALARY GUIDES AND INDUSTRY PEERS.
IRS990ScheduleO/GeneralExplanation/Explanation4THESE DOCUMENTS ARE CURRENTLY NOT AVAILABLE TO THE PUBLIC.
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IRS990/TotalAssetsBOY0167604
IRS990/TotalAssets/EOY0213321
IRS990/TotalAssetsEOY0213321
IRS990/TotalCompGT150K00
IRS990/TotalContributions0739576
IRS990/TotalExpensesCurrentYear0711654
IRS990/TotalExpensesPriorYear0927174
IRS990/TotalFunctionalExpenses/Fundraising083099
IRS990/TotalFunctionalExpenses/ManagementAndGeneral055746
IRS990/TotalFunctionalExpenses/ProgramServices0572809
IRS990/TotalFunctionalExpenses/Total0711654
IRS990/TotalFundrsngExpCurrentYear083099
IRS990/TotalGrossUBI00
IRS990/TotalLiabilities/BOY00
IRS990/TotalLiabilitiesBOY00
IRS990/TotalLiabilities/EOY00
IRS990/TotalLiabilitiesEOY00
IRS990/TotalLiabNetAssetsFundBalances/BOY0167604
IRS990/TotalLiabNetAssetsFundBalances/EOY0213321
IRS990/TotalNbrEmployees04
IRS990/TotalNbrVolunteers030

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2011 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$213,321
Liabilities
$0
Net assets
$213,321
Revenue
-
Expenses
$711,654
Net income
-
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$6.22$2.01$4.21$7.03$6.84$0.19
2023Detailed filing. Detailed filing data is available for this year.$5.81$1.81$4.00$6.79$6.06$0.74
2022Detailed filing. Detailed filing data is available for this year.$4.50$1.25$3.24$5.79$5.79$0.00
2021Detailed filing. Detailed filing data is available for this year.$4.55$1.16$3.39$5.48$5.09$0.39
2020Detailed filing. Detailed filing data is available for this year.$4.27$1.26$3.01$4.43$4.01$0.42
2016Detailed filing. Detailed filing data is available for this year.$0.65$0.17$0.48$2.22$2.21$0.02
2015Detailed filing. Detailed filing data is available for this year.$0.52$0.05$0.47$1.79$1.70$0.09
2014Detailed filing. Detailed filing data is available for this year.$0.44$0.06$0.38$1.35$1.21$0.14
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.21$0.00$0.21$0.71
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.17$0.00$0.17$0.93