Civic Intelligence

Coalition for Usher Syndrome Research

990EZ • Fiscal year 2021 • EIN 26-4560897

Jan 01, 2021 to Dec 31, 2021 • Filed on Nov 11, 2022

9 Cornerstone Square STE 400-224Westford, MA 01886

(615) 361-9445

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

62nd percentile

0.01x

Higher debt load relative to assets than 62% of similar nonprofits.

2021 filings • 501(c)3 • <$500k nonprofits • Source year 2021

Liabilities / Revenue

62nd percentile

0.01x

Higher debt load relative to revenue than 62% of similar nonprofits.

2021 filings • 501(c)3 • <$500k nonprofits • Source year 2021

Net Margin

33rd percentile

-1.3%

Higher net margin than 33% of similar nonprofits.

2021 filings • 501(c)3 • <$500k nonprofits • Source year 2021

Top Officer Pay

96th percentile

$72,500

Higher top officer pay than 96% of similar nonprofits.

Top officer pay equals 38.3% of source-year revenue.

2021 filings • 501(c)3 • <$500k nonprofits • Source year 2021

Asset Growth

38th percentile

-1.0%

Faster asset growth than 38% of similar nonprofits.

2021 filings • 501(c)3 • <$500k nonprofits • Annualized from 2020 to 2021

Revenue Growth

31st percentile

-20%

Faster revenue growth than 31% of similar nonprofits.

2021 filings • 501(c)3 • <$500k nonprofits • Annualized from 2020 to 2021

Assets

Up

$197,279

Up $61,616 (+45%) from 2019

Net Assets

Up

$196,089

Up $61,486 (+46%) from 2019

Liabilities

Up

$1,190

Up $130 (+12%) from 2019

Revenue

Down

$189,377

Down $90,683 (-32%) from 2019

Expenses

Down

$191,898

Down $77,923 (-29%) from 2019

Net Income

Down

-$2,521

Down $12,760 (-125%) from 2019

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2010: $25,000Liabilities 2010: $0Net Assets 2010: $25,0002010Assets 2011: $35,095Liabilities 2011: $0Net Assets 2011: $35,0952011Assets 2012: $194,537Liabilities 2012: $0Net Assets 2012: $194,5372012Assets 2013: $118,015Liabilities 2013: $2,737Net Assets 2013: $115,2782013Assets 2014: $87,419Liabilities 2014: $1,130Net Assets 2014: $86,2892014Assets 2016: $164,922Liabilities 2016: $1,484Net Assets 2016: $163,4382016Assets 2017: $120,146Liabilities 2017: $12,153Net Assets 2017: $107,9932017Assets 2018: $125,293Liabilities 2018: $929Net Assets 2018: $124,3642018Assets 2019: $135,663Liabilities 2019: $1,060Net Assets 2019: $134,6032019Assets 2021: $197,279Liabilities 2021: $1,190Net Assets 2021: $196,0892021Assets 2022: $286,985Liabilities 2022: $3,764Net Assets 2022: $283,2212022Assets 2024: $188,331Liabilities 2024: $8,002Net Assets 2024: $180,3292024

Highlighted filing

2021

Assets$197,279
Liabilities$1,190
Net Assets$196,089

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2010: $25,000Expenses 2010: $0Net Income 2010: $25,0002010Revenue 2011: $14,262Expenses 2011: $4,167Net Income 2011: $10,0952011Expenses 2012: $24,7562012Revenue 2013: $15,154Expenses 2013: $94,413Net Income 2013: -$79,2592013Revenue 2014: $103,895Expenses 2014: $132,884Net Income 2014: -$28,9892014Revenue 2016: $278,702Expenses 2016: $244,596Net Income 2016: $34,1062016Revenue 2017: $234,881Expenses 2017: $290,326Net Income 2017: -$55,4452017Revenue 2018: $199,273Expenses 2018: $182,902Net Income 2018: $16,3712018Revenue 2019: $280,060Expenses 2019: $269,821Net Income 2019: $10,2392019Revenue 2021: $189,377Expenses 2021: $191,898Net Income 2021: -$2,5212021Revenue 2022: $502,883Expenses 2022: $415,751Net Income 2022: $87,1322022Revenue 2024: $378,430Expenses 2024: $436,862Net Income 2024: -$58,4322024

Highlighted filing

2021

Revenue$189,377
Expenses$191,898
Net Income-$2,521
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Nov 11, 2022
Return Version
2021v4.2
Gross Receipts
$189,377
Mission and Program Overview

Mission

Raise awareness and accelerate research for the most common cause of combined deafness and blindness. Provide information and support to individuals and families affected by usher syndrome.

Awareness and Research for Usher Syndrome

Program Services

DescriptionGrantsExpenses
Raise awareness and accelerate research for the most common cause of combined deafness and blindness. Provide information and support to individuals and families affected by Usher syndrome.-$154,397
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Krista VasiSecretary / Executive DirectorFT$72,500-$72,500
Lanya McKittrick PhDPresident / Treasurer-$0--
David AlexanderDirector-$0--
Elaine TrestDirector-$0--
Kathleen Thompson PhDDirector-$0--
Kelley StiddDirector-$0--
Margaret Kenna MD MPHDirector-$0--
Monte Westerfield PhDDirector-$0--
Nancy CordermanDirector-$0--
William Kimberling PhDDirector-$0--
Filing and Contact Details

Filer

Filer Name
Coalition For Usher Syndrome Research
EIN
26-4560897
Address
9 Cornerstone Square STE 400-224, Westford, MA 01886

Signing Officer

Name
Lanya McKittrick
Title
President
Signed
2022-11-11
Discuss with paid preparer
Yes

Preparer

Firm
Foundation Group Inc
Address
2451 Atrium Way Suite 300, Nashville, TN 37214
Preparer
Andrew D Payne EA
Phone
6153619445
Supplemental Narrative

Additional Explanations

Form 990-EZ, Part I, Line 16, Other Expenses

Travel 31

Form 990-EZ, Part I, Line 16, Other Expenses

Meals and entertainment 87

Form 990-EZ, Part I, Line 16, Other Expenses

Advertising Promotion 430

Form 990-EZ, Part I, Line 16, Other Expenses

Bank Service Charges 1,530

Form 990-EZ, Part I, Line 16, Other Expenses

Insurance 2,694

Form 990-EZ, Part I, Line 16, Other Expenses

IT -- Software 140

Form 990-EZ, Part I, Line 16, Other Expenses

IT -- Website 2,648

Form 990-EZ, Part I, Line 16, Other Expenses

Licenses, Fees, Dues 166

Form 990-EZ, Part I, Line 16, Other Expenses

Office Supplies and Administrative 1,916

Form 990-EZ, Part I, Line 16, Other Expenses

Program Expense Conferences and Workshops 27,799

Form 990-EZ, Part I, Line 16, Other Expenses

Program Expense Registry Development 46,205

Form 990-EZ, Part I, Line 16, Other Expenses

Registration Fees and Outreach 200

Form 990-EZ, Part I, Line 16, Other Expenses

Video Recording 127

Form 990-EZ, Part I, Line 20, Net Assets

The previously reported cash balance was understated by 37,819. 37,819

Form 990-EZ, Part I, Line 20, Net Assets

The previously reported undeposited funds balance was understated by 15,900. 15,900

Form 990-EZ, Part I, Line 20, Net Assets

The previously reported accounts receivable balance was understated by 9,850. 9,850

Form 990-EZ, Part I, Line 20, Net Assets

The previously reported other liabilities balance was overstated by 438 438

Form 990-EZ, Part II, Line 24, Other Assets

Accounts Receivable Beginning of year 0, End of year 9,850

Form 990-EZ, Part II, Line 26, Liabilities

Other Liabilities Beginning of year 1,060, End of year 1,190

Raw XML Appendix234 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt00
IRS990ScheduleA/OtherIncome509Grp/TotalAmt00
IRS990ScheduleA/Post1975UBTIGrp/TotalAmt00
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Travel 31
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Meals and entertainment 87
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Advertising Promotion 430
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Bank Service Charges 1,530
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Insurance 2,694
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5IT -- Software 140
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6IT -- Website 2,648
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt7Licenses, Fees, Dues 166
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt8Office Supplies and Administrative 1,916
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt9Program Expense Conferences and Workshops 27,799
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt10Program Expense Registry Development 46,205
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt11Registration Fees and Outreach 200
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt12Video Recording 127
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt13The previously reported cash balance was understated by 37,819. 37,819
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt14The previously reported undeposited funds balance was understated by 15,900. 15,900
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt15The previously reported accounts receivable balance was understated by 9,850. 9,850
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt16The previously reported other liabilities balance was overstated by 438 438
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt17Accounts Receivable Beginning of year 0, End of year 9,850
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt18Other Liabilities Beginning of year 1,060, End of year 1,190
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc6Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc7Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc8Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc9Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc10Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc11Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc12Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc13Form 990-EZ, Part I, Line 20, Net Assets
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc14Form 990-EZ, Part I, Line 20, Net Assets
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc15Form 990-EZ, Part I, Line 20, Net Assets
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc16Form 990-EZ, Part I, Line 20, Net Assets
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc17Form 990-EZ, Part II, Line 24, Other Assets
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc18Form 990-EZ, Part II, Line 26, Liabilities
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd0AAL1
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ReturnHeader/BuildTS02022-09-23 18:48:47Z
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ReturnHeader/BusinessOfficerGrp/PersonNm0Lanya McKittrick
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0President
ReturnHeader/BusinessOfficerGrp/SignatureDt02022-11-11
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Coalition For Usher Syndrome Research
ReturnHeader/Filer/BusinessNameControlTxt0COAL
ReturnHeader/Filer/EIN0264560897
ReturnHeader/Filer/USAddress/AddressLine1Txt09 Cornerstone Square STE 400-224
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ReturnHeader/Filer/USAddress/StateAbbreviationCd0MA
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ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0621813735
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ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0TN
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd037214
ReturnHeader/PreparerPersonGrp/PhoneNum06153619445
ReturnHeader/PreparerPersonGrp/PreparationDt02022-11-15
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Andrew D Payne EA
ReturnHeader/ReturnTs02022-11-15T06:59:19-00:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0Lanya
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0McKittrick
ReturnHeader/TaxPeriodBeginDt02021-01-01
ReturnHeader/TaxPeriodEndDt02021-12-31
ReturnHeader/TaxYr02021

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.88$0.08$1.80$3.78$4.37$0.58
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.87$0.04$2.83$5.03$4.16$0.87
2021Detailed filing. Detailed filing data is available for this year.$1.97$0.01$1.96$1.89$1.92$0.03
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.36$0.01$1.35$2.80$2.70$0.10
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.25$0.01$1.24$1.99$1.83$0.16
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.20$0.12$1.08$2.35$2.90$0.55
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.65$0.01$1.63$2.79$2.45$0.34
2014Detailed filing. Detailed filing data is available for this year.$0.87$0.01$0.86$1.04$1.33$0.29
2013Detailed filing. Detailed filing data is available for this year.$1.18$0.03$1.15$0.15$0.94$0.79
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.95$0.00$1.95$0.25
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.35$0.00$0.35$0.14$0.04$0.10
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.25$0.00$0.25$0.25$0.00$0.25
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2021 filings • 501(c)3 • <$500k nonprofits