Civic Intelligence

Coalition for Usher Syndrome Research

990 • Fiscal year 2020 • EIN 26-4560897

Jan 01, 2020 to Dec 31, 2020 • Filed on Aug 17, 2021

Organization ProfileWWW.USHER-SYNDROME.ORG
63 Great Road Suite 207Westford, MA 01886

(978) 637-2625

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.00x

Higher debt load relative to assets than 58% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Liabilities / Revenue

57th percentile

0.00x

Higher debt load relative to revenue than 57% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Net Margin

76th percentile

27%

Higher net margin than 76% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Top Officer Pay

93rd percentile

$54,688

Higher top officer pay than 93% of similar nonprofits.

Top officer pay equals 23.1% of source-year revenue.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Asset Growth

79th percentile

47%

Faster asset growth than 79% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Annualized from 2019 to 2020

Revenue Growth

48th percentile

-15%

Faster revenue growth than 48% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets58th percentile

Assets

Up

$199,232

Up $63,569 (+47%) from 2019

Net Assets

Up

$198,610

Up $64,007 (+48%) from 2019

Liabilities

Down

$622

Down $438 (-41%) from 2019

Revenue And Expenses
Liabilities / Revenue57th percentileNet Margin76th percentile

Revenue

Down

$236,754

Down $43,306 (-15%) from 2019

Expenses

Down

$172,747

Down $97,074 (-36%) from 2019

Net Income

Up

$64,007

Up $53,768 (+525%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth79th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2010: $25,000Liabilities 2010: $0Net Assets 2010: $25,0002010Assets 2011: $35,095Liabilities 2011: $0Net Assets 2011: $35,0952011Assets 2012: $194,537Liabilities 2012: $0Net Assets 2012: $194,5372012Assets 2013: $118,015Liabilities 2013: $2,737Net Assets 2013: $115,2782013Assets 2014: $87,419Liabilities 2014: $1,130Net Assets 2014: $86,2892014Assets 2016: $164,922Liabilities 2016: $1,484Net Assets 2016: $163,4382016Assets 2017: $120,146Liabilities 2017: $12,153Net Assets 2017: $107,9932017Assets 2018: $125,293Liabilities 2018: $929Net Assets 2018: $124,3642018Assets 2019: $135,663Liabilities 2019: $1,060Net Assets 2019: $134,6032019Assets 2020: $199,232Liabilities 2020: $622Net Assets 2020: $198,6102020Assets 2021: $197,279Liabilities 2021: $1,190Net Assets 2021: $196,0892021Assets 2022: $286,985Liabilities 2022: $3,764Net Assets 2022: $283,2212022Assets 2024: $188,331Liabilities 2024: $8,002Net Assets 2024: $180,3292024

Highlighted filing

2020

Assets$199,232
Liabilities$622
Net Assets$198,610
Open 2020 Filing

Operations Trend

Revenue Growth48th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2010: $25,000Expenses 2010: $0Net Income 2010: $25,0002010Revenue 2011: $14,262Expenses 2011: $4,167Net Income 2011: $10,0952011Expenses 2012: $24,7562012Revenue 2013: $15,154Expenses 2013: $94,413Net Income 2013: -$79,2592013Revenue 2014: $103,895Expenses 2014: $132,884Net Income 2014: -$28,9892014Revenue 2016: $278,702Expenses 2016: $244,596Net Income 2016: $34,1062016Revenue 2017: $234,881Expenses 2017: $290,326Net Income 2017: -$55,4452017Revenue 2018: $199,273Expenses 2018: $182,902Net Income 2018: $16,3712018Revenue 2019: $280,060Expenses 2019: $269,821Net Income 2019: $10,2392019Revenue 2020: $236,754Expenses 2020: $172,747Net Income 2020: $64,0072020Revenue 2021: $189,377Expenses 2021: $191,898Net Income 2021: -$2,5212021Revenue 2022: $502,883Expenses 2022: $415,751Net Income 2022: $87,1322022Revenue 2024: $378,430Expenses 2024: $436,862Net Income 2024: -$58,4322024

Highlighted filing

2020

Revenue$236,754
Expenses$172,747
Net Income$64,007
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Aug 17, 2021
Return Version
2020v4.0
Gross Receipts
$236,754
Mission and Program Overview

Mission

Raise awareness and accelerate research for the most common cause of combined deafness and blindness. Provide information and support to individuals and families affected by usher syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$114,867$168,583▲ $53,716
Savings and Temporary Cash Investments$20,796$20,799▲ $3
Total Assets$135,663$199,232▲ $63,569
Other Assets Total-$9,850-
Liabilities
Other Liabilities$1,060$622▼ $438
Total Liabilities$1,060$622▼ $438
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$99,103$163,110▲ $64,007
Net Assets With Donor Restrictions$35,500$35,500→ $0
Total Net Assets Fund Balance$134,603$198,610▲ $64,007
Total Liabilities and Net Assets / Fund Balance$135,663$199,232▲ $63,569
Compensation and Service Providers
Top Officer Pay93rd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Krista VasiExecutive DiFT$54,688$54,688

Board Members and Trustees

NameTitle
Lanya MckittrickPresident
Danay TrestDirector
David AlexanderDirector
Kathleen Thompson PhdDirector
Kelley StiddDirector
Margaret Kenna Md MphDirector
Monte Westerfield PhdDirector
Nancy CordermanDirector
William Kimberling PhdDirector
Karmen TrzupekTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$192,723
Program Service Revenue
$28,681
Investment Income
$3
Other Revenue
$15,347
All Other Contributions
$143,606
Change in Net Assets
$64,007
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$94,872
Salaries, Compensation, and Employee Benefits$77,875
Total Fundraising Expense$9,423
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$46,552$11,053$7,453$65,058
Conferences and Meetings$18,808--$18,808
Occupancy$8,495--$8,495
Information Technology$7,980--$7,980
Other Employee Benefits$4,968$1,064$1,064$7,096
Payroll Taxes$4,100$994$627$5,721
Fees for Services Accounting-$5,200-$5,200
Insurance$2,574--$2,574
Office Expenses$1,957--$1,957
Travel$604--$604
Other Expenses$580$1,733$279$580
All Other Expenses$450$68-$518
Advertising$250--$250
Total Functional Expenses$142,768$20,556$9,423$172,747
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Annual Appeal O$49,117---
Total Events$49,117---
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Credit Cards Payable$622
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“A copy of the form 990 is reviewed by the president and executive director before it is signed.”

Form 990, Page 6, Part VI, Line 12C

“Board members are provided and must return signed conflict of interest disclosure forms annually.”

Form 990, Page 6, Part VI, Line 19

“The governing documents, conflict of interest policies and the financial statements are available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Coalition for Usher Syndrome
EIN
26-4560897
Phone
9786372625
Address
63 GREAT ROAD SUITE 207, WESTFORD, MA 01886

Signing Officer

Name
Lanya Mckittrick
Title
President
Phone
9784612582
Signed
2021-08-17
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Lanya Mckittrick
Formed
2009
Legal Domicile
Ma
Voting Board Members
9
Independent Board Members
9
Employees
3

Preparer

Firm
Kesner Godes & Morrissey LLC
Address
15 PACELLA PARK DR STE 200, RANDOLPH, MA 02368
Preparer
Michael Morrissey
Phone
7819612900
Supplemental Narrative

Additional Explanations

Form 990, Page 2, Part III, Line 4D

“Raise awareness and accelerate research for the most common cause of combined deafness and blindness. Provide information and support to individuals and families affected by usher syndrome.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0RAISE AWARENESS AND ACCELERATE RESEARCH FOR THE MOST COMMON CAUSE OF COMBINED DEAFNESS AND BLINDNESS. PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS AND FAMILIES AFFECTED BY USHER SYNDROME.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1A COPY OF THE FORM 990 IS REVIEWED BY THE PRESIDENT AND EXECUTIVE DIRECTOR BEFORE IT IS SIGNED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2BOARD MEMBERS ARE PROVIDED AND MUST RETURN SIGNED CONFLICT OF INTEREST DISCLOSURE FORMS ANNUALLY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICIES AND THE FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST.
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ReturnHeader/BuildTS02022-09-23 18:48:47Z
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ReturnHeader/BusinessOfficerGrp/SignatureDt02021-08-17
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ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt0RESEARCH INCORPORATED
ReturnHeader/Filer/BusinessNameControlTxt0COAL
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ReturnHeader/Filer/USAddress/AddressLine1Txt063 GREAT ROAD SUITE 207
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ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0KESNER GODES & MORRISSEY LLC

Document Assets

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$199,232
Liabilities
$622
Net assets
$198,610
Revenue
$236,754
Expenses
$172,747
Net income
$64,007
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.88$0.08$1.80$3.78$4.37$0.58
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.87$0.04$2.83$5.03$4.16$0.87
2021Detailed filing. Detailed filing data is available for this year.$1.97$0.01$1.96$1.89$1.92$0.03
2020Detailed filing. Detailed filing data is available for this year.$1.99$0.01$1.99$2.37$1.73$0.64
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.36$0.01$1.35$2.80$2.70$0.10
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.25$0.01$1.24$1.99$1.83$0.16
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.20$0.12$1.08$2.35$2.90$0.55
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.65$0.01$1.63$2.79$2.45$0.34
2014Detailed filing. Detailed filing data is available for this year.$0.87$0.01$0.86$1.04$1.33$0.29
2013Detailed filing. Detailed filing data is available for this year.$1.18$0.03$1.15$0.15$0.94$0.79
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.95$0.00$1.95$0.25
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.35$0.00$0.35$0.14$0.04$0.10
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.25$0.00$0.25$0.25$0.00$0.25
Peer Organizations

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