Civic Intelligence

Coalition for Usher Syndrome Research

990 • Fiscal year 2019 • EIN 26-4560897

Jan 01, 2019 to Dec 31, 2019 • Filed on Aug 14, 2020

Organization ProfileWWW.USHER-SYNDROME.ORG
63 Great Road Suite 207Maynard, MA 01754

(978) 637-2625

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

63rd percentile

0.01x

Higher debt load relative to assets than 63% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Liabilities / Revenue

61st percentile

0.00x

Higher debt load relative to revenue than 61% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Net Margin

51st percentile

3.7%

Higher net margin than 51% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Top Officer Pay

93rd percentile

$55,313

Higher top officer pay than 93% of similar nonprofits.

Top officer pay equals 19.8% of source-year revenue.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Asset Growth

60th percentile

8.3%

Faster asset growth than 60% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Annualized from 2018 to 2019

Revenue Growth

83rd percentile

41%

Faster revenue growth than 83% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets63rd percentile

Assets

Up

$135,663

Up $10,370 (+8.3%) from 2018

Net Assets

Up

$134,603

Up $10,239 (+8.2%) from 2018

Liabilities

Up

$1,060

Up $131 (+14%) from 2018

Revenue And Expenses
Liabilities / Revenue61st percentileNet Margin51st percentile

Revenue

Up

$280,060

Up $80,787 (+41%) from 2018

Expenses

Up

$269,821

Up $86,919 (+48%) from 2018

Net Income

Down

$10,239

Down $6,132 (-37%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth60th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2010: $25,000Liabilities 2010: $0Net Assets 2010: $25,0002010Assets 2011: $35,095Liabilities 2011: $0Net Assets 2011: $35,0952011Assets 2012: $194,537Liabilities 2012: $0Net Assets 2012: $194,5372012Assets 2013: $118,015Liabilities 2013: $2,737Net Assets 2013: $115,2782013Assets 2014: $87,419Liabilities 2014: $1,130Net Assets 2014: $86,2892014Assets 2016: $164,922Liabilities 2016: $1,484Net Assets 2016: $163,4382016Assets 2017: $120,146Liabilities 2017: $12,153Net Assets 2017: $107,9932017Assets 2018: $125,293Liabilities 2018: $929Net Assets 2018: $124,3642018Assets 2019: $135,663Liabilities 2019: $1,060Net Assets 2019: $134,6032019Assets 2021: $197,279Liabilities 2021: $1,190Net Assets 2021: $196,0892021Assets 2022: $286,985Liabilities 2022: $3,764Net Assets 2022: $283,2212022Assets 2024: $188,331Liabilities 2024: $8,002Net Assets 2024: $180,3292024

Highlighted filing

2019

Assets$135,663
Liabilities$1,060
Net Assets$134,603
Open 2019 Filing

Operations Trend

Revenue Growth83rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2010: $25,000Expenses 2010: $0Net Income 2010: $25,0002010Revenue 2011: $14,262Expenses 2011: $4,167Net Income 2011: $10,0952011Expenses 2012: $24,7562012Revenue 2013: $15,154Expenses 2013: $94,413Net Income 2013: -$79,2592013Revenue 2014: $103,895Expenses 2014: $132,884Net Income 2014: -$28,9892014Revenue 2016: $278,702Expenses 2016: $244,596Net Income 2016: $34,1062016Revenue 2017: $234,881Expenses 2017: $290,326Net Income 2017: -$55,4452017Revenue 2018: $199,273Expenses 2018: $182,902Net Income 2018: $16,3712018Revenue 2019: $280,060Expenses 2019: $269,821Net Income 2019: $10,2392019Revenue 2021: $189,377Expenses 2021: $191,898Net Income 2021: -$2,5212021Revenue 2022: $502,883Expenses 2022: $415,751Net Income 2022: $87,1322022Revenue 2024: $378,430Expenses 2024: $436,862Net Income 2024: -$58,4322024

Highlighted filing

2019

Revenue$280,060
Expenses$269,821
Net Income$10,239
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Aug 14, 2020
Return Version
2019v5.0
Gross Receipts
$280,060
Mission and Program Overview

Mission

Raise awareness and accelerate research for the most common cause of combined deafness and blindness. Provide information and support to individuals and families affected by usher syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$104,501$114,867▲ $10,366
Savings and Temporary Cash Investments$20,792$20,796▲ $4
Total Assets$125,293$135,663▲ $10,370
Liabilities
Other Liabilities$929$1,060▲ $131
Total Liabilities$929$1,060▲ $131
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$88,864$99,103▲ $10,239
Net Assets With Donor Restrictions$35,500$35,500→ $0
Total Net Assets Fund Balance$124,364$134,603▲ $10,239
Total Liabilities and Net Assets / Fund Balance$125,293$135,663▲ $10,370
Compensation and Service Providers
Top Officer Pay93rd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Krista VasiExecutive DiFT$55,313$55,313

Board Members and Trustees

NameTitle
Mark DunningPresident
Danay TrestDirector
David AlexanderDirector
Kadie TraugerDirector
Kathleen ThompsonDirector
Kelley StiddDirector
Kevin RichmondDirector
Lanya MckittrickDirector
Margaret KennaDirector
Monte WesterfieldDirector
Nancy CordermanDirector
Stephen PerraultDirector
William KimberlingDirector
Karmen TrzupekTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$221,168
Program Service Revenue
$58,888
Investment Income
$4
Other Revenue
$0
All Other Contributions
$171,716
Change in Net Assets
$10,239
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$184,191
Salaries, Compensation, and Employee Benefits$85,630
Total Fundraising Expense$10,631
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$74,217--$74,217
Other Salaries and Wages$52,481$12,885$8,297$73,663
Occupancy$8,386--$8,386
Information Technology$7,471-$529$8,000
Other Employee Benefits$4,432$950$950$6,332
All Other Expenses$2,936$2,617$220$5,773
Payroll Taxes$4,015$985$635$5,635
Other Expenses$4,930--$4,930
Advertising$3,284--$3,284
Office Expenses$2,239$259-$2,498
Fees for Services Accounting-$1,600-$1,600
Travel$1,006--$1,006
Insurance$920--$920
Total Functional Expenses$239,894$19,296$10,631$269,821
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Annual Appeal O$49,452---
Total Events$49,452---
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Capital One$680
Chase Master Card$380
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“A copy of the form 990 is reviewed by the president and executive director before it is signed.”

Form 990, Page 6, Part VI, Line 12C

“Board members are provided and must return signed conflict of interest disclosure forms annually.”

Form 990, Page 6, Part VI, Line 19

“A copy of the form 990 is available upon request.”

Filing and Contact Details

Filer

Filer Name
Coalition for Usher Syndrome
EIN
26-4560897
Phone
9786372625
Address
63 GREAT ROAD SUITE 207, MAYNARD, MA 01754

Signing Officer

Name
Mark Dunning
Title
President
Phone
9784612582
Signed
2020-08-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mark Dunning
Formed
2009
Legal Domicile
Ma
Voting Board Members
14
Independent Board Members
14
Employees
2

Preparer

Firm
Kesner Godes & Morrissey LLC
Address
15 PACELLA PARK DR STE 200, RANDOLPH, MA 02368
Preparer
Michael Morrissey
Phone
7819612900
Supplemental Narrative

Additional Explanations

Form 990, Page 2, Part III, Line 4D

“Raise awareness and accelerate research for the most common cause of combined deafness and blindness. Provide information and support to individuals and families affected by usher syndrome.”

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IRS990/ProgSrvcAccomActyOtherGrp/Desc0RAISE AWARENESS AND ACCELERATE RESEARCH FOR THE MOST COMMON CAUSE OF COMBINED DEAFNESS AND BLINDNESS. PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS AND FAMILIES AFFECTED BY USHER SYNDROME.
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0199266
IRS990/PYExcessBenefitTransInd0false
IRS990/PYInvestmentIncomeAmt07
IRS990/PYOtherExpensesAmt0106656
IRS990/PYRevenuesLessExpensesAmt016371
IRS990/PYSalariesCompEmpBnftPaidAmt076246
IRS990/PYTotalExpensesAmt0182902
IRS990/PYTotalRevenueAmt0199273
IRS990/ReconcilationRevenueExpnssAmt010239
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0true
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt058888
IRS990/SavingsAndTempCashInvstGrp/BOYAmt020792
IRS990/SavingsAndTempCashInvstGrp/EOYAmt020796
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0221168
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0199266
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0198001
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0256038
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0169710
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt01044183
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt04
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt07
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt05
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt017
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt033
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt058892
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt036875
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt022664
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt0118431
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt04
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt07
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt05
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt017
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt033
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IRS990ScheduleA/InvestmentIncomePYPct00.00000
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct01.00000
IRS990ScheduleA/PublicSupportPY509Pct00.99480
IRS990ScheduleA/PublicSupportTotal509Amt01162614
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IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0280060
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IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0278702
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0169710
IRS990ScheduleA/Total509Grp/TotalAmt01162614
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0280064
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0199273
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0234881
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0278702
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0169727
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01162647
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt0680
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt1380
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0CAPITAL ONE
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc1CHASE MASTER CARD
IRS990ScheduleD/TotalLiabilityAmt01060
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt049452
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt049452
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0ANNUAL APPEAL O
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt049452
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt049452
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0RAISE AWARENESS AND ACCELERATE RESEARCH FOR THE MOST COMMON CAUSE OF COMBINED DEAFNESS AND BLINDNESS. PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS AND FAMILIES AFFECTED BY USHER SYNDROME.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1A COPY OF THE FORM 990 IS REVIEWED BY THE PRESIDENT AND EXECUTIVE DIRECTOR BEFORE IT IS SIGNED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2BOARD MEMBERS ARE PROVIDED AND MUST RETURN SIGNED CONFLICT OF INTEREST DISCLOSURE FORMS ANNUALLY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3A COPY OF THE FORM 990 IS AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PAGE 2, PART III, LINE 4D
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 19
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IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0125293
IRS990/TotalAssetsEOYAmt0135663
IRS990/TotalAssetsGrp/BOYAmt0125293
IRS990/TotalAssetsGrp/EOYAmt0135663
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0221168
IRS990/TotalEmployeeCnt02
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt010631
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt019296
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0239894
IRS990/TotalFunctionalExpensesGrp/TotalAmt0269821
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt0929
IRS990/TotalLiabilitiesEOYAmt01060
IRS990/TotalLiabilitiesGrp/BOYAmt0929
IRS990/TotalLiabilitiesGrp/EOYAmt01060
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0124364
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0134603
IRS990/TotalProgramServiceExpensesAmt0239894
IRS990/TotalProgramServiceRevenueAmt058888
IRS990/TotalReportableCompFromOrgAmt055313
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt058892
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0280060
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0125293
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0135663
IRS990/TravelGrp/ProgramServicesAmt01006
IRS990/TravelGrp/TotalAmt01006
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
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IRS990/USAddress/CityNm0CONCORD
IRS990/USAddress/StateAbbreviationCd0MA
IRS990/USAddress/ZIPCd001742

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$135,663
Liabilities
$1,060
Net assets
$134,603
Revenue
$280,060
Expenses
$269,821
Net income
$10,239
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.88$0.08$1.80$3.78$4.37$0.58
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.87$0.04$2.83$5.03$4.16$0.87
2021Detailed filing. Detailed filing data is available for this year.$1.97$0.01$1.96$1.89$1.92$0.03
2019Detailed filing. Detailed filing data is available for this year.$1.36$0.01$1.35$2.80$2.70$0.10
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.25$0.01$1.24$1.99$1.83$0.16
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.20$0.12$1.08$2.35$2.90$0.55
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.65$0.01$1.63$2.79$2.45$0.34
2014Detailed filing. Detailed filing data is available for this year.$0.87$0.01$0.86$1.04$1.33$0.29
2013Detailed filing. Detailed filing data is available for this year.$1.18$0.03$1.15$0.15$0.94$0.79
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.95$0.00$1.95$0.25
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.35$0.00$0.35$0.14$0.04$0.10
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.25$0.00$0.25$0.25$0.00$0.25