Civic Intelligence

Coalition for Usher Syndrome Research

990 • Fiscal year 2017 • EIN 26-4560897

Jan 01, 2017 to Dec 31, 2017 • Filed on Jun 30, 2018

Organization ProfileWWW.USHER-SYNDROME.ORG
63 Great Road Suite 207Maynard, MA 01754

(978) 637-2625

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

78th percentile

0.10x

Higher debt load relative to assets than 78% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Liabilities / Revenue

77th percentile

0.05x

Higher debt load relative to revenue than 77% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Net Margin

14th percentile

-24%

Higher net margin than 14% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Top Officer Pay

95th percentile

$64,615

Higher top officer pay than 95% of similar nonprofits.

Top officer pay equals 27.5% of source-year revenue.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Asset Growth

16th percentile

-27%

Faster asset growth than 16% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Revenue Growth

27th percentile

-16%

Faster revenue growth than 27% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets78th percentile

Assets

Down

$120,146

Down $44,776 (-27%) from 2016

Net Assets

Down

$107,993

Down $55,445 (-34%) from 2016

Liabilities

Up

$12,153

Up $10,669 (+719%) from 2016

Revenue And Expenses
Liabilities / Revenue77th percentileNet Margin14th percentile

Revenue

Down

$234,881

Down $43,821 (-16%) from 2016

Expenses

Up

$290,326

Up $45,730 (+19%) from 2016

Net Income

Down

-$55,445

Down $89,551 (-263%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth16th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2010: $25,000Liabilities 2010: $0Net Assets 2010: $25,0002010Assets 2011: $35,095Liabilities 2011: $0Net Assets 2011: $35,0952011Assets 2012: $194,537Liabilities 2012: $0Net Assets 2012: $194,5372012Assets 2013: $118,015Liabilities 2013: $2,737Net Assets 2013: $115,2782013Assets 2014: $87,419Liabilities 2014: $1,130Net Assets 2014: $86,2892014Assets 2016: $164,922Liabilities 2016: $1,484Net Assets 2016: $163,4382016Assets 2017: $120,146Liabilities 2017: $12,153Net Assets 2017: $107,9932017Assets 2018: $125,293Liabilities 2018: $929Net Assets 2018: $124,3642018Assets 2019: $135,663Liabilities 2019: $1,060Net Assets 2019: $134,6032019Assets 2021: $197,279Liabilities 2021: $1,190Net Assets 2021: $196,0892021Assets 2022: $286,985Liabilities 2022: $3,764Net Assets 2022: $283,2212022Assets 2024: $188,331Liabilities 2024: $8,002Net Assets 2024: $180,3292024

Highlighted filing

2017

Assets$120,146
Liabilities$12,153
Net Assets$107,993
Open 2017 Filing

Operations Trend

Revenue Growth27th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2010: $25,000Expenses 2010: $0Net Income 2010: $25,0002010Revenue 2011: $14,262Expenses 2011: $4,167Net Income 2011: $10,0952011Expenses 2012: $24,7562012Revenue 2013: $15,154Expenses 2013: $94,413Net Income 2013: -$79,2592013Revenue 2014: $103,895Expenses 2014: $132,884Net Income 2014: -$28,9892014Revenue 2016: $278,702Expenses 2016: $244,596Net Income 2016: $34,1062016Revenue 2017: $234,881Expenses 2017: $290,326Net Income 2017: -$55,4452017Revenue 2018: $199,273Expenses 2018: $182,902Net Income 2018: $16,3712018Revenue 2019: $280,060Expenses 2019: $269,821Net Income 2019: $10,2392019Revenue 2021: $189,377Expenses 2021: $191,898Net Income 2021: -$2,5212021Revenue 2022: $502,883Expenses 2022: $415,751Net Income 2022: $87,1322022Revenue 2024: $378,430Expenses 2024: $436,862Net Income 2024: -$58,4322024

Highlighted filing

2017

Revenue$234,881
Expenses$290,326
Net Income-$55,445
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Jun 30, 2018
Return Version
2017v2.3
Gross Receipts
$234,881
Mission and Program Overview

Mission

Raise awareness and accelerate research for the most common cause of combined deafness and blindness. Provide information and support to individuals and families affected by usher syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$134,142$89,362▼ $44,780
Savings and Temporary Cash Investments$30,780$30,784▲ $4
Total Assets$164,922$120,146▼ $44,776
Liabilities
Other Liabilities$1,484$12,153▲ $10,669
Total Liabilities$1,484$12,153▲ $10,669
Net Assets / Fund Balance
Unrestricted Net Assets$163,438$72,493▼ $90,945
Temporarily Rstr Net Assets-$35,500-
Total Net Assets Fund Balance$163,438$107,993▼ $55,445
Total Liabilities and Net Assets / Fund Balance$164,922$120,146▼ $44,776
Compensation and Service Providers
Top Officer Pay95th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Krista VasiExecutive DiFT$64,615$64,615

Board Members and Trustees

NameTitle
Mark DunningPresident
Moira M SheaVice Chair
Danay TrestDirector
David AlexanderDirector
Margaret KennaDirector
Martha SteeleDirector
Megan KennedyDirector
William KimberlingDirector
Karmen TrzupekTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$198,001
Program Service Revenue
$36,875
Investment Income
$5
Other Revenue
$0
All Other Contributions
$61,185
Change in Net Assets
$-55,445
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$196,361
Salaries, Compensation, and Employee Benefits$93,965
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$84,560--$84,560
Other Salaries and Wages$64,364$16,154-$80,518
Information Technology$14,714--$14,714
Occupancy$12,201--$12,201
Payroll Taxes$5,359$1,786-$7,145
Other Employee Benefits$4,726$1,576-$6,302
Fees for Services Accounting-$4,600-$4,600
Office Expenses$2,504--$2,504
Travel$1,506--$1,506
Other Expenses$800$257-$800
Insurance$740--$740
All Other Expenses$542--$542
Interest$213--$213
Advertising$119--$119
Total Functional Expenses$262,815$27,511$0$290,326
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Annual Appeal O$100,041---
Own the Equinox$34,510---
Total Events$134,551---
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
American Express Credit Card$10,390
Chase Master Card$1,457
Capital One$306
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“A copy of the form 990 is reviewed by the chairman and executive director before it is signed.”

Form 990, Page 6, Part VI, Line 12C

“Board members are provided and must return signed conflict of interest disclosure forms annually.”

Form 990, Page 6, Part VI, Line 19

“A copy of the form 990 is available upon request.”

Filing and Contact Details

Filer

Filer Name
Coalition for Usher Syndrome
EIN
26-4560897
Phone
9786372625
Address
63 GREAT ROAD SUITE 207, MAYNARD, MA 01754

Signing Officer

Name
Mark Dunning
Title
President
Phone
9784612582
Signed
2018-06-30
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mark Dunning
Formed
2009
Legal Domicile
Ma
Voting Board Members
9
Independent Board Members
9
Employees
2
Volunteers
5

Preparer

Firm
Kesner Godes & Morrissey LLC
Address
15 PACELLA PARK DR STE 200, RANDOLPH, MA 02368
Preparer
Michael Morrissey
Phone
7819612900
Supplemental Narrative

Additional Explanations

Form 990, Page 2, Part III, Line 2

“N/A”

Form 990, Page 2, Part III, Line 3

“N/A”

Form 990, Page 2, Part III, Line 4D

“Raise awareness and accelerate research for the most common cause of combined deafness and blindness. Provide information and support to individuals and families affected by usher syndrome.”

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0N/A
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1N/A
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2RAISE AWARENESS AND ACCELERATE RESEARCH FOR THE MOST COMMON CAUSE OF COMBINED DEAFNESS AND BLINDNESS. PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS AND FAMILIES AFFECTED BY USHER SYNDROME.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3A COPY OF THE FORM 990 IS REVIEWED BY THE CHAIRMAN AND EXECUTIVE DIRECTOR BEFORE IT IS SIGNED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4BOARD MEMBERS ARE PROVIDED AND MUST RETURN SIGNED CONFLICT OF INTEREST DISCLOSURE FORMS ANNUALLY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5A COPY OF THE FORM 990 IS AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PAGE 2, PART III, LINE 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 2, PART III, LINE 3
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 2, PART III, LINE 4D
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PAGE 6, PART VI, LINE 19
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IRS990/VotingMembersIndependentCnt09
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ReturnHeader/BusinessOfficerGrp/PersonNm0MARK DUNNING
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum09784612582
ReturnHeader/BusinessOfficerGrp/SignatureDt02018-06-30
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0COALITION FOR USHER SYNDROME
ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt0RESEARCH INCORPORATED
ReturnHeader/Filer/BusinessNameControlTxt0COAL
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ReturnHeader/Filer/USAddress/AddressLine1Txt063 GREAT ROAD SUITE 207
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ReturnHeader/FilingSecurityInformation/IPDt02018-07-03
ReturnHeader/FilingSecurityInformation/IPTimezoneCd0CD
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ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0KESNER GODES & MORRISSEY LLC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt015 PACELLA PARK DR STE 200
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Document Assets

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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$120,146
Liabilities
$12,153
Net assets
$107,993
Revenue
$234,881
Expenses
$290,326
Net income
-$55,445
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.88$0.08$1.80$3.78$4.37$0.58
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.87$0.04$2.83$5.03$4.16$0.87
2021Detailed filing. Detailed filing data is available for this year.$1.97$0.01$1.96$1.89$1.92$0.03
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.36$0.01$1.35$2.80$2.70$0.10
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.25$0.01$1.24$1.99$1.83$0.16
2017Detailed filing. Detailed filing data is available for this year.$1.20$0.12$1.08$2.35$2.90$0.55
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.65$0.01$1.63$2.79$2.45$0.34
2014Detailed filing. Detailed filing data is available for this year.$0.87$0.01$0.86$1.04$1.33$0.29
2013Detailed filing. Detailed filing data is available for this year.$1.18$0.03$1.15$0.15$0.94$0.79
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.95$0.00$1.95$0.25
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.35$0.00$0.35$0.14$0.04$0.10
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.25$0.00$0.25$0.25$0.00$0.25
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2017 filings • 501(c)3 • <$500k nonprofits