Civic Intelligence

Coalition for Usher Syndrome Research

990 • Fiscal year 2016 • EIN 26-4560897

Jan 01, 2016 to Dec 31, 2016 • Filed on Oct 24, 2017

Organization ProfileWWW.USHER-SYNDROME.ORG
2 Mill And Main Place Suite 418Maynard, MA 01754

(978) 637-2625

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

62nd percentile

0.01x

Higher debt load relative to assets than 62% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Liabilities / Revenue

60th percentile

0.01x

Higher debt load relative to revenue than 60% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Net Margin

67th percentile

12%

Higher net margin than 67% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Top Officer Pay

95th percentile

$60,326

Higher top officer pay than 95% of similar nonprofits.

Top officer pay equals 21.6% of source-year revenue.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Asset Growth

76th percentile

26%

Faster asset growth than 76% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Revenue Growth

89th percentile

64%

Faster revenue growth than 89% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets62nd percentile

Assets

Up

$164,922

Up $77,503 (+89%) from 2014

Net Assets

Up

$163,438

Up $77,149 (+89%) from 2014

Liabilities

Up

$1,484

Up $354 (+31%) from 2014

Revenue And Expenses
Liabilities / Revenue60th percentileNet Margin67th percentile

Revenue

Up

$278,702

Up $174,807 (+168%) from 2014

Expenses

Up

$244,596

Up $111,712 (+84%) from 2014

Net Income

Up

$34,106

Up $63,095 (+218%) from 2014

Historical Trend

Balance Sheet Trend

Asset Growth76th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2010: $25,000Liabilities 2010: $0Net Assets 2010: $25,0002010Assets 2011: $35,095Liabilities 2011: $0Net Assets 2011: $35,0952011Assets 2012: $194,537Liabilities 2012: $0Net Assets 2012: $194,5372012Assets 2013: $118,015Liabilities 2013: $2,737Net Assets 2013: $115,2782013Assets 2014: $87,419Liabilities 2014: $1,130Net Assets 2014: $86,2892014Assets 2016: $164,922Liabilities 2016: $1,484Net Assets 2016: $163,4382016Assets 2017: $120,146Liabilities 2017: $12,153Net Assets 2017: $107,9932017Assets 2018: $125,293Liabilities 2018: $929Net Assets 2018: $124,3642018Assets 2019: $135,663Liabilities 2019: $1,060Net Assets 2019: $134,6032019Assets 2021: $197,279Liabilities 2021: $1,190Net Assets 2021: $196,0892021Assets 2022: $286,985Liabilities 2022: $3,764Net Assets 2022: $283,2212022Assets 2024: $188,331Liabilities 2024: $8,002Net Assets 2024: $180,3292024

Highlighted filing

2016

Assets$164,922
Liabilities$1,484
Net Assets$163,438
Open 2016 Filing

Operations Trend

Revenue Growth89th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2010: $25,000Expenses 2010: $0Net Income 2010: $25,0002010Revenue 2011: $14,262Expenses 2011: $4,167Net Income 2011: $10,0952011Expenses 2012: $24,7562012Revenue 2013: $15,154Expenses 2013: $94,413Net Income 2013: -$79,2592013Revenue 2014: $103,895Expenses 2014: $132,884Net Income 2014: -$28,9892014Revenue 2016: $278,702Expenses 2016: $244,596Net Income 2016: $34,1062016Revenue 2017: $234,881Expenses 2017: $290,326Net Income 2017: -$55,4452017Revenue 2018: $199,273Expenses 2018: $182,902Net Income 2018: $16,3712018Revenue 2019: $280,060Expenses 2019: $269,821Net Income 2019: $10,2392019Revenue 2021: $189,377Expenses 2021: $191,898Net Income 2021: -$2,5212021Revenue 2022: $502,883Expenses 2022: $415,751Net Income 2022: $87,1322022Revenue 2024: $378,430Expenses 2024: $436,862Net Income 2024: -$58,4322024

Highlighted filing

2016

Revenue$278,702
Expenses$244,596
Net Income$34,106
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Oct 24, 2017
Return Version
2016v3.0
Gross Receipts
$278,702
Mission and Program Overview

Mission

Raise awareness and accelerate research for the most common cause of combined deafness and blindness. Provide information and support to individuals and families affected by usher syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$67,932$134,142▲ $66,210
Savings and Temporary Cash Investments$62,766$30,780▼ $31,986
Total Assets$130,698$164,922▲ $34,224
Liabilities
Other Liabilities$1,366$1,484▲ $118
Total Liabilities$1,366$1,484▲ $118
Net Assets / Fund Balance
Unrestricted Net Assets$129,332$163,438▲ $34,106
Total Net Assets Fund Balance$129,332$163,438▲ $34,106
Total Liabilities and Net Assets / Fund Balance$130,698$164,922▲ $34,224
Compensation and Service Providers
Top Officer Pay95th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Krista VasiExecutive DiFT$55,000$5,326$60,326

Board Members and Trustees

NameTitle
Mark DunningPresident
Moira M SheaVice Chair
Danay TrestDirector
David AlexanderDirector
Elise FaucheauxDirector
Margaret KennaDirector
Martha SteeleDirector
Megan KennedyDirector
Melissa ChaikofDirector
Susie TrotochaudDirector
William KimberlingDirector
Krista VasiSecretary
Karmen TrzupekTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$256,038
Program Service Revenue
$22,650
Investment Income
$14
Other Revenue
$0
All Other Contributions
$125,364
Change in Net Assets
$34,106
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$167,936
Salaries, Compensation, and Employee Benefits$76,660
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$71,850--$71,850
Current Officers, Directors, Trustees, and Key Employees$41,250$13,750-$55,000
Other Salaries and Wages$11,265--$11,265
Occupancy$9,340--$9,340
Information Technology$7,422--$7,422
Other Employee Benefits$3,994$1,332-$5,326
Payroll Taxes$4,017$1,052-$5,069
Office Expenses$3,687--$3,687
Travel$3,079--$3,079
Fees for Services Accounting-$1,100-$1,100
Other Expenses$772$202-$974
Insurance$915--$915
All Other Expenses$729--$729
Advertising$119--$119
Total Functional Expenses$225,624$18,972$0$244,596
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Own the Equinox$72,677---
Annual Appeal O$57,997---
Total Events$130,674---
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Capital One$832
Chase Master Card$652
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“A copy of the form 990 is reviewed by the chairman and executive director before it is signed.”

Form 990, Page 6, Part VI, Line 12C

“Board members are provided and must return signed conflict of interest disclosure forms annually.”

Form 990, Page 6, Part VI, Line 19

“A copy of the form 990 is available upon request.”

Filing and Contact Details

Filer

Filer Name
Coalition for Usher Syndrome
EIN
26-4560897
Phone
9786372625
Address
2 MILL AND MAIN PLACE SUITE 418, MAYNARD, MA 01754

Signing Officer

Name
Mark Dunning
Title
President
Phone
6176508173
Signed
2017-10-24
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mark Dunning
Formed
2009
Legal Domicile
Ma
Voting Board Members
13
Independent Board Members
13
Employees
2
Volunteers
4

Preparer

Firm
Kesner Godes & Morrissey LLC
Address
15 PACELLA PARK DR STE 200, RANDOLPH, MA 02368
Preparer
Michael Morrissey
Phone
7819612900
Raw XML AppendixShowing 400 of 418 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0true
IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0RAISE AWARENESS AND ACCELERATE RESEARCH FOR THE MOST COMMON CAUSE OF COMBINED DEAFNESS AND BLINDNESS. PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS AND FAMILIES AFFECTED BY USHER SYNDROME.
IRS990/AddressChangeInd0X
IRS990/AdvertisingGrp/ProgramServicesAmt0119
IRS990/AdvertisingGrp/TotalAmt0119
IRS990/AllOtherContributionsAmt0125364
IRS990/AllOtherExpensesGrp/ProgramServicesAmt0729
IRS990/AllOtherExpensesGrp/TotalAmt0729
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/AuditCommitteeInd0true
IRS990/BackupWthldComplianceInd0true
IRS990/BooksInCareOfDetail/PersonNm0MARK DUNNING
IRS990/BooksInCareOfDetail/PhoneNum06716508173
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt024 LOWELL ROAD
IRS990/BooksInCareOfDetail/USAddress/CityNm0CONCORD
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0MA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd001742
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOfficerEntInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt067932
IRS990/CashNonInterestBearingGrp/EOYAmt0134142
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt013750
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt041250
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt055000
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0false
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt071850
IRS990/ConferencesMeetingsGrp/TotalAmt071850
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/ContriRptFundraisingEventAmt0130674
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0256038
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt014
IRS990/CYOtherExpensesAmt0167936
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt022650
IRS990/CYRevenuesLessExpensesAmt034106
IRS990/CYSalariesCompEmpBnftPaidAmt076660
IRS990/CYTotalExpensesAmt0244596
IRS990/CYTotalFundraisingExpenseAmt00
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0278702
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/Desc0RAISE AWARENESS AND ACCELERATE RESEARCH FOR THE MOST COMMON CAUSE OF COMBINED DEAFNESS AND BLINDNESS. PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS AND FAMILIES AFFECTED BY USHER SYNDROME.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DonorAdvisedFundInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt02
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt0225624
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt01100
IRS990/FeesForServicesAccountingGrp/TotalAmt01100
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignOfficeInd0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt040.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt12.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt22.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt32.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt42.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt52.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt62.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt72.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt82.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt92.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1010.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1110.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1210.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt132.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt05326
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/PersonNm0KRISTA VASI
IRS990/Form990PartVIISectionAGrp/PersonNm1DAVID ALEXANDER
IRS990/Form990PartVIISectionAGrp/PersonNm2MELISSA CHAIKOF
IRS990/Form990PartVIISectionAGrp/PersonNm3ELISE FAUCHEAUX
IRS990/Form990PartVIISectionAGrp/PersonNm4MARGARET KENNA
IRS990/Form990PartVIISectionAGrp/PersonNm5MEGAN KENNEDY
IRS990/Form990PartVIISectionAGrp/PersonNm6WILLIAM KIMBERLING
IRS990/Form990PartVIISectionAGrp/PersonNm7MARTHA STEELE
IRS990/Form990PartVIISectionAGrp/PersonNm8SUSIE TROTOCHAUD
IRS990/Form990PartVIISectionAGrp/PersonNm9DANAY TREST
IRS990/Form990PartVIISectionAGrp/PersonNm10MARK DUNNING
IRS990/Form990PartVIISectionAGrp/PersonNm11MOIRA M SHEA
IRS990/Form990PartVIISectionAGrp/PersonNm12KARMEN TRZUPEK
IRS990/Form990PartVIISectionAGrp/PersonNm13KRISTA VASI
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt055000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/TitleTxt0EXECUTIVE DI
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt11VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt12TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt13SECRETARY
IRS990/Form990ProvidedToGvrnBodyInd0false
IRS990/FormationYr02009
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedInd0false
IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingAmt0130674
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt013
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0false
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0278702
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt013
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ProgramServicesAmt07422
IRS990/InformationTechnologyGrp/TotalAmt07422
IRS990/InsuranceGrp/ProgramServicesAmt0915
IRS990/InsuranceGrp/TotalAmt0915
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt014
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt014
IRS990/InvestmentInJointVentureInd0false
IRS990/IRPDocumentCnt019
IRS990/IRPDocumentW2GCnt019
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingCashInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0RAISE AWARENESS AND ACCELERATE RESEARCH FOR THE MOST COMMON CAUSE OF COMBINED DEAFNESS AND BLINDNESS. PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS AND FAMILIES AFFECTED BY USHER SYNDROME.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0129332
IRS990/NetAssetsOrFundBalancesEOYAmt0163438
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/ProgramServicesAmt09340
IRS990/OccupancyGrp/TotalAmt09340
IRS990/OfficeExpensesGrp/ProgramServicesAmt03687
IRS990/OfficeExpensesGrp/TotalAmt03687
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt01332
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt03994
IRS990/OtherEmployeeBenefitsGrp/TotalAmt05326
IRS990/OtherExpensesGrp/Desc0CONSULTING
IRS990/OtherExpensesGrp/Desc1OUTREACH
IRS990/OtherExpensesGrp/Desc2CREDIT CARD FEES
IRS990/OtherExpensesGrp/Desc3PAYROLL FEE
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01536
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1202
IRS990/OtherExpensesGrp/ProgramServicesAmt064276
IRS990/OtherExpensesGrp/ProgramServicesAmt12909
IRS990/OtherExpensesGrp/ProgramServicesAmt2772
IRS990/OtherExpensesGrp/TotalAmt064276
IRS990/OtherExpensesGrp/TotalAmt12909
IRS990/OtherExpensesGrp/TotalAmt21536
IRS990/OtherExpensesGrp/TotalAmt3974
IRS990/OtherLiabilitiesGrp/BOYAmt01366
IRS990/OtherLiabilitiesGrp/EOYAmt01484
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt011265
IRS990/OtherSalariesAndWagesGrp/TotalAmt011265
IRS990/PartialLiquidationInd0false
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01052
IRS990/PayrollTaxesGrp/ProgramServicesAmt04017
IRS990/PayrollTaxesGrp/TotalAmt05069
IRS990/PoliticalCampaignActyInd0false
IRS990/PrincipalOfficerNm0MARK DUNNING
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCE FEES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt022650
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt022650
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0169710
IRS990/PYExcessBenefitTransInd0false
IRS990/PYInvestmentIncomeAmt017
IRS990/PYOtherExpensesAmt060075
IRS990/PYRevenuesLessExpensesAmt043043
IRS990/PYSalariesCompEmpBnftPaidAmt066609
IRS990/PYTotalExpensesAmt0126684
IRS990/PYTotalRevenueAmt0169727
IRS990/ReconcilationRevenueExpnssAmt034106
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0true
IRS990/ReportProgramRelatedInvstInd0false
IRS990/SavingsAndTempCashInvstGrp/BOYAmt062766
IRS990/SavingsAndTempCashInvstGrp/EOYAmt030780
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0MISCELLANEOUS INCOME 8,250
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0PART III, LINE 12
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0256038
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0169710
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt098827
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt011853
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0180379
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt0716807
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt017
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt018
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt0101
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt03819
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt03955
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt022664
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt022664
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt017
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt018
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt0101
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt03819
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt03955
IRS990ScheduleA/InvestmentIncomeCYPct00.01000
IRS990ScheduleA/InvestmentIncomePYPct00.01000
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus2YearsAmt05050
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus3YearsAmt03200
IRS990ScheduleA/OtherIncome509Grp/TotalAmt08250
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.98380
IRS990ScheduleA/PublicSupportPY509Pct00.97490
IRS990ScheduleA/PublicSupportTotal509Amt0739471
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0278702
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0169710
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt098827
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt011853
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0180379
IRS990ScheduleA/Total509Grp/TotalAmt0739471
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0278702
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0169727
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0103895
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt015154
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0184198
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt0751676
IRS990/ScheduleBRequiredInd0false
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt0832
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt1652
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0CAPITAL ONE
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc1CHASE MASTER CARD
IRS990ScheduleD/TotalLiabilityAmt01484
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0130674
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt072677
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt057997
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0OWN THE EQUINOX
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0ANNUAL APPEAL O
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt072677
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt057997
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0130674
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0A COPY OF THE FORM 990 IS REVIEWED BY THE CHAIRMAN AND EXECUTIVE DIRECTOR BEFORE IT IS SIGNED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1BOARD MEMBERS ARE PROVIDED AND MUST RETURN SIGNED CONFLICT OF INTEREST DISCLOSURE FORMS ANNUALLY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2A COPY OF THE FORM 990 IS AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0MA
IRS990/SubjectToProxyTaxInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TempOrPermanentEndowmentsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0130698
IRS990/TotalAssetsEOYAmt0164922
IRS990/TotalAssetsGrp/BOYAmt0130698
IRS990/TotalAssetsGrp/EOYAmt0164922
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0256038
IRS990/TotalEmployeeCnt02
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt018972
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0225624
IRS990/TotalFunctionalExpensesGrp/TotalAmt0244596
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt01366
IRS990/TotalLiabilitiesEOYAmt01484
IRS990/TotalLiabilitiesGrp/BOYAmt01366
IRS990/TotalLiabilitiesGrp/EOYAmt01484
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0129332
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0163438
IRS990/TotalOtherCompensationAmt05326
IRS990/TotalProgramServiceExpensesAmt0225624
IRS990/TotalProgramServiceRevenueAmt022650
IRS990/TotalReportableCompFromOrgAmt055000
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt022664
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0278702
IRS990/TotalVolunteersCnt04
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0130698
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0164922
IRS990/TravelGrp/ProgramServicesAmt03079
IRS990/TravelGrp/TotalAmt03079
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UnrestrictedNetAssetsGrp/BOYAmt0129332
IRS990/UnrestrictedNetAssetsGrp/EOYAmt0163438
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt024 LOWELL ROAD
IRS990/USAddress/CityNm0CONCORD
IRS990/USAddress/StateAbbreviationCd0MA
IRS990/USAddress/ZIPCd001742
IRS990/VotingMembersGoverningBodyCnt013
IRS990/VotingMembersIndependentCnt013
IRS990/WebsiteAddressTxt0WWW.USHER-SYNDROME.ORG
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02017-02-10 21:41:12Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0MARK DUNNING
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum06176508173
ReturnHeader/BusinessOfficerGrp/SignatureDt02017-10-24
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0COALITION FOR USHER SYNDROME
ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt0RESEARCH INCORPORATED
ReturnHeader/Filer/BusinessNameControlTxt0COAL
ReturnHeader/Filer/EIN0264560897
ReturnHeader/Filer/PhoneNum09786372625
ReturnHeader/Filer/USAddress/AddressLine1Txt02 MILL AND MAIN PLACE SUITE 418
ReturnHeader/Filer/USAddress/CityNm0MAYNARD

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$164,922
Liabilities
$1,484
Net assets
$163,438
Revenue
$278,702
Expenses
$244,596
Net income
$34,106
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.88$0.08$1.80$3.78$4.37$0.58
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.87$0.04$2.83$5.03$4.16$0.87
2021Detailed filing. Detailed filing data is available for this year.$1.97$0.01$1.96$1.89$1.92$0.03
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.36$0.01$1.35$2.80$2.70$0.10
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.25$0.01$1.24$1.99$1.83$0.16
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.20$0.12$1.08$2.35$2.90$0.55
2016Detailed filing. Detailed filing data is available for this year.$1.65$0.01$1.63$2.79$2.45$0.34
2014Detailed filing. Detailed filing data is available for this year.$0.87$0.01$0.86$1.04$1.33$0.29
2013Detailed filing. Detailed filing data is available for this year.$1.18$0.03$1.15$0.15$0.94$0.79
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.95$0.00$1.95$0.25
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.35$0.00$0.35$0.14$0.04$0.10
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.25$0.00$0.25$0.25$0.00$0.25