Civic Intelligence

Coalition for Usher Syndrome Research

990 • Fiscal year 2015 • EIN 26-4560897

Jan 01, 2015 to Dec 31, 2015 • Filed on Jun 29, 2016

Organization ProfileWWW.USHER-SYNDROME.ORG
2 Clock Tower Place - Suite 418Maynard, MA 01754

(978) 637-2625

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

62nd percentile

0.01x

Higher debt load relative to assets than 62% of similar nonprofits.

2015 filings • 501(c)3 • <$500k nonprofits • Source year 2015

Liabilities / Revenue

62nd percentile

0.01x

Higher debt load relative to revenue than 62% of similar nonprofits.

2015 filings • 501(c)3 • <$500k nonprofits • Source year 2015

Net Margin

81st percentile

25%

Higher net margin than 81% of similar nonprofits.

2015 filings • 501(c)3 • <$500k nonprofits • Source year 2015

Top Officer Pay

75th percentile

$0

Higher top officer pay than 75% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2015 filings • 501(c)3 • <$500k nonprofits • Source year 2015

Asset Growth

84th percentile

50%

Faster asset growth than 84% of similar nonprofits.

2015 filings • 501(c)3 • <$500k nonprofits • Annualized from 2014 to 2015

Revenue Growth

89th percentile

63%

Faster revenue growth than 89% of similar nonprofits.

2015 filings • 501(c)3 • <$500k nonprofits • Annualized from 2014 to 2015

Balance Sheet
Liabilities / Assets62nd percentile

Assets

Up

$130,698

Up $43,279 (+50%) from 2014

Net Assets

Up

$129,332

Up $43,043 (+50%) from 2014

Liabilities

Up

$1,366

Up $236 (+21%) from 2014

Revenue And Expenses
Liabilities / Revenue62nd percentileNet Margin81st percentile

Revenue

Up

$169,727

Up $65,832 (+63%) from 2014

Expenses

Down

$126,684

Down $6,200 (-4.7%) from 2014

Net Income

Up

$43,043

Up $72,032 (+248%) from 2014

Historical Trend

Balance Sheet Trend

Asset Growth84th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2010: $25,000Liabilities 2010: $0Net Assets 2010: $25,0002010Assets 2011: $35,095Liabilities 2011: $0Net Assets 2011: $35,0952011Assets 2012: $194,537Liabilities 2012: $0Net Assets 2012: $194,5372012Assets 2013: $118,015Liabilities 2013: $2,737Net Assets 2013: $115,2782013Assets 2014: $87,419Liabilities 2014: $1,130Net Assets 2014: $86,2892014Assets 2015: $130,698Liabilities 2015: $1,366Net Assets 2015: $129,3322015Assets 2016: $164,922Liabilities 2016: $1,484Net Assets 2016: $163,4382016Assets 2017: $120,146Liabilities 2017: $12,153Net Assets 2017: $107,9932017Assets 2018: $125,293Liabilities 2018: $929Net Assets 2018: $124,3642018Assets 2019: $135,663Liabilities 2019: $1,060Net Assets 2019: $134,6032019Assets 2021: $197,279Liabilities 2021: $1,190Net Assets 2021: $196,0892021Assets 2022: $286,985Liabilities 2022: $3,764Net Assets 2022: $283,2212022Assets 2024: $188,331Liabilities 2024: $8,002Net Assets 2024: $180,3292024

Highlighted filing

2015

Assets$130,698
Liabilities$1,366
Net Assets$129,332
Open 2015 Filing

Operations Trend

Revenue Growth89th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2010: $25,000Expenses 2010: $0Net Income 2010: $25,0002010Revenue 2011: $14,262Expenses 2011: $4,167Net Income 2011: $10,0952011Expenses 2012: $24,7562012Revenue 2013: $15,154Expenses 2013: $94,413Net Income 2013: -$79,2592013Revenue 2014: $103,895Expenses 2014: $132,884Net Income 2014: -$28,9892014Revenue 2015: $169,727Expenses 2015: $126,684Net Income 2015: $43,0432015Revenue 2016: $278,702Expenses 2016: $244,596Net Income 2016: $34,1062016Revenue 2017: $234,881Expenses 2017: $290,326Net Income 2017: -$55,4452017Revenue 2018: $199,273Expenses 2018: $182,902Net Income 2018: $16,3712018Revenue 2019: $280,060Expenses 2019: $269,821Net Income 2019: $10,2392019Revenue 2021: $189,377Expenses 2021: $191,898Net Income 2021: -$2,5212021Revenue 2022: $502,883Expenses 2022: $415,751Net Income 2022: $87,1322022Revenue 2024: $378,430Expenses 2024: $436,862Net Income 2024: -$58,4322024

Highlighted filing

2015

Revenue$169,727
Expenses$126,684
Net Income$43,043
Open 2015 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2015 to Dec 31, 2015
Signed
Jun 29, 2016
Return Version
2015v2.1
Gross Receipts
$169,727
Mission and Program Overview

Mission

Raise awareness and accelerate research for the most common cause of combined deafness and blindness. Provide information and support to individuals and families affected by usher syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$34,670$67,932▲ $33,262
Savings and Temporary Cash Investments$52,749$62,766▲ $10,017
Total Assets$87,419$130,698▲ $43,279
Liabilities
Other Liabilities$1,130$1,366▲ $236
Total Liabilities$1,130$1,366▲ $236
Net Assets / Fund Balance
Unrestricted Net Assets$86,289$129,332▲ $43,043
Total Net Assets Fund Balance$86,289$129,332▲ $43,043
Total Liabilities and Net Assets / Fund Balance$87,419$130,698▲ $43,279
Compensation and Service Providers
Top Officer Pay75th percentile

Board Members and Trustees

NameTitle
Mark DunningChairman
Moira M SheaVice Chair
David AlexanderDirector
Elise FaucheauxDirector
Margaret KennaDirector
Martha SteeleDirector
Megan KennedyDirector
Melissa ChaikofDirector
Susie TrotochaudDirector
William KimberlingDirector
Karmen TrzupekTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$169,710
Program Service Revenue
$0
Investment Income
$17
Other Revenue
$0
All Other Contributions
$169,710
Change in Net Assets
$43,043
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$66,609
Other Expenses$60,075
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$49,997$13,269-$63,266
Conferences and Meetings$24,487--$24,487
Occupancy$13,697--$13,697
Information Technology$8,538--$8,538
Payroll Taxes$2,642$701-$3,343
Travel$2,429--$2,429
Office Expenses$1,338$427-$1,765
Fees for Services Accounting-$750-$750
Insurance$671--$671
All Other Expenses$519--$519
Other Expenses$500$193-$500
Total Functional Expenses$109,446$17,238$0$126,684
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Chase Master Card$1,366
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“A copy of the form 990 is reviewed by the chairman and executive director before it is signed.”

Form 990, Page 6, Part VI, Line 12C

“Board members are provided and must return signed conflict of interest disclosure forms annually.”

Form 990, Page 6, Part VI, Line 19

“A copy of the form 990 is available upon request.”

Filing and Contact Details

Filer

Filer Name
Coalition for Usher Syndrome
EIN
26-4560897
Phone
9786372625
Address
2 CLOCK TOWER PLACE - SUITE 418, MAYNARD, MA 01754

Signing Officer

Name
Mark Dunning
Title
Chairman
Phone
6176508173
Signed
2016-06-29
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mark Dunning
Formed
2009
Legal Domicile
Ma
Voting Board Members
11
Independent Board Members
11
Employees
2

Preparer

Firm
Kesner Godes & Morrissey LLC
Address
15 PACELLA PARK DR STE 200, RANDOLPH, MA 02368
Preparer
Michael Morrissey
Phone
7819612900
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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0103895
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt015154
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0184198
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt014262
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt0487236
IRS990/ScheduleBRequiredInd0false
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt01366
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0CHASE MASTER CARD
IRS990ScheduleD/TotalLiabilityAmt01366
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0A COPY OF THE FORM 990 IS REVIEWED BY THE CHAIRMAN AND EXECUTIVE DIRECTOR BEFORE IT IS SIGNED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1BOARD MEMBERS ARE PROVIDED AND MUST RETURN SIGNED CONFLICT OF INTEREST DISCLOSURE FORMS ANNUALLY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2A COPY OF THE FORM 990 IS AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0MA
IRS990/SubjectToProxyTaxInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TempOrPermanentEndowmentsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt087419
IRS990/TotalAssetsEOYAmt0130698
IRS990/TotalAssetsGrp/BOYAmt087419
IRS990/TotalAssetsGrp/EOYAmt0130698
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0169710
IRS990/TotalEmployeeCnt02
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt017238
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0109446
IRS990/TotalFunctionalExpensesGrp/TotalAmt0126684
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt01130
IRS990/TotalLiabilitiesEOYAmt01366
IRS990/TotalLiabilitiesGrp/BOYAmt01130
IRS990/TotalLiabilitiesGrp/EOYAmt01366
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt086289
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0129332
IRS990/TotalProgramServiceExpensesAmt0109446
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt017
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0169727
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt087419
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0130698
IRS990/TravelGrp/ProgramServicesAmt02429
IRS990/TravelGrp/TotalAmt02429
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UnrestrictedNetAssetsGrp/BOYAmt086289
IRS990/UnrestrictedNetAssetsGrp/EOYAmt0129332
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt024 LOWELL ROAD
IRS990/USAddress/CityNm0CONCORD
IRS990/USAddress/StateAbbreviationCd0MA
IRS990/USAddress/ZIPCd001742
IRS990/VotingMembersGoverningBodyCnt011
IRS990/VotingMembersIndependentCnt011
IRS990/WebsiteAddressTxt0WWW.USHER-SYNDROME.ORG
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02016-09-27 15:27:22Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0MARK DUNNING
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0CHAIRMAN
ReturnHeader/BusinessOfficerGrp/PhoneNum06176508173
ReturnHeader/BusinessOfficerGrp/SignatureDt02016-06-29
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0COALITION FOR USHER SYNDROME
ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt0RESEARCH INCORPORATED
ReturnHeader/Filer/BusinessNameControlTxt0COAL
ReturnHeader/Filer/EIN0264560897
ReturnHeader/Filer/PhoneNum09786372625
ReturnHeader/Filer/USAddress/AddressLine1Txt02 CLOCK TOWER PLACE - SUITE 418
ReturnHeader/Filer/USAddress/CityNm0MAYNARD
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MA
ReturnHeader/Filer/USAddress/ZIPCd001754
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0043534389
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0KESNER GODES & MORRISSEY LLC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt015 PACELLA PARK DR STE 200
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0RANDOLPH
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd002368
ReturnHeader/PreparerPersonGrp/PhoneNum07819612900
ReturnHeader/PreparerPersonGrp/PreparationDt02016-07-15
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0MICHAEL MORRISSEY
ReturnHeader/ReturnTs02016-07-15T11:06:59-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02015-01-01
ReturnHeader/TaxPeriodEndDt02015-12-31
ReturnHeader/TaxYr02015

Document Assets

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Filings

Displayed year

2015 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$130,698
Liabilities
$1,366
Net assets
$129,332
Revenue
$169,727
Expenses
$126,684
Net income
$43,043
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.88$0.08$1.80$3.78$4.37$0.58
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.87$0.04$2.83$5.03$4.16$0.87
2021Detailed filing. Detailed filing data is available for this year.$1.97$0.01$1.96$1.89$1.92$0.03
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.36$0.01$1.35$2.80$2.70$0.10
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.25$0.01$1.24$1.99$1.83$0.16
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.20$0.12$1.08$2.35$2.90$0.55
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.65$0.01$1.63$2.79$2.45$0.34
2015Detailed filing. Detailed filing data is available for this year.$1.31$0.01$1.29$1.70$1.27$0.43
2014Detailed filing. Detailed filing data is available for this year.$0.87$0.01$0.86$1.04$1.33$0.29
2013Detailed filing. Detailed filing data is available for this year.$1.18$0.03$1.15$0.15$0.94$0.79
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.95$0.00$1.95$0.25
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.35$0.00$0.35$0.14$0.04$0.10
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.25$0.00$0.25$0.25$0.00$0.25