Civic Intelligence

Coalition for Usher Syndrome Research

990 • Fiscal year 2013 • EIN 26-4560897

Jan 01, 2013 to Dec 31, 2013 • Filed on May 01, 2014

Organization ProfileWWW.USHER-SYNDROME.ORG
2 Clock Tower Place01754

(978) 461-2582

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

66th percentile

0.02x

Higher debt load relative to assets than 66% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

Liabilities / Revenue

86th percentile

0.18x

Higher debt load relative to revenue than 86% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

Net Margin

1st percentile

-523%

Higher net margin than 1% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

Top Officer Pay

73rd percentile

$0

Higher top officer pay than 73% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2013 filings • 501(c)3 • <$500k nonprofits • Source year 2013

Asset Growth

11th percentile

-39%

Faster asset growth than 11% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Annualized from 2012 to 2013

Revenue Growth

52nd percentile

3.1%

Faster revenue growth than 52% of similar nonprofits.

2013 filings • 501(c)3 • <$500k nonprofits • Annualized from 2011 to 2013

Balance Sheet
Liabilities / Assets66th percentile

Assets

Down

$118,015

Down $76,522 (-39%) from 2012

Net Assets

Down

$115,278

Down $79,259 (-41%) from 2012

Liabilities

Up

$2,737

Up $2,737 from 2012

Revenue And Expenses
Liabilities / Revenue86th percentileNet Margin1st percentile

Revenue

$15,154

No earlier filing loaded for comparison.

Expenses

Up

$94,413

Up $69,657 (+281%) from 2012

Net Income

-$79,259

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth11th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$300K$200K$100K$0Assets 2010: $25,000Liabilities 2010: $0Net Assets 2010: $25,0002010Assets 2011: $35,095Liabilities 2011: $0Net Assets 2011: $35,0952011Assets 2012: $194,537Liabilities 2012: $0Net Assets 2012: $194,5372012Assets 2013: $118,015Liabilities 2013: $2,737Net Assets 2013: $115,2782013Assets 2014: $87,419Liabilities 2014: $1,130Net Assets 2014: $86,2892014Assets 2016: $164,922Liabilities 2016: $1,484Net Assets 2016: $163,4382016Assets 2017: $120,146Liabilities 2017: $12,153Net Assets 2017: $107,9932017Assets 2018: $125,293Liabilities 2018: $929Net Assets 2018: $124,3642018Assets 2019: $135,663Liabilities 2019: $1,060Net Assets 2019: $134,6032019Assets 2021: $197,279Liabilities 2021: $1,190Net Assets 2021: $196,0892021Assets 2022: $286,985Liabilities 2022: $3,764Net Assets 2022: $283,2212022Assets 2024: $188,331Liabilities 2024: $8,002Net Assets 2024: $180,3292024

Highlighted filing

2013

Assets$118,015
Liabilities$2,737
Net Assets$115,278
Open 2013 Filing

Operations Trend

Revenue Growth52nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2010: $25,000Expenses 2010: $0Net Income 2010: $25,0002010Revenue 2011: $14,262Expenses 2011: $4,167Net Income 2011: $10,0952011Expenses 2012: $24,7562012Revenue 2013: $15,154Expenses 2013: $94,413Net Income 2013: -$79,2592013Revenue 2014: $103,895Expenses 2014: $132,884Net Income 2014: -$28,9892014Revenue 2016: $278,702Expenses 2016: $244,596Net Income 2016: $34,1062016Revenue 2017: $234,881Expenses 2017: $290,326Net Income 2017: -$55,4452017Revenue 2018: $199,273Expenses 2018: $182,902Net Income 2018: $16,3712018Revenue 2019: $280,060Expenses 2019: $269,821Net Income 2019: $10,2392019Revenue 2021: $189,377Expenses 2021: $191,898Net Income 2021: -$2,5212021Revenue 2022: $502,883Expenses 2022: $415,751Net Income 2022: $87,1322022Revenue 2024: $378,430Expenses 2024: $436,862Net Income 2024: -$58,4322024

Highlighted filing

2013

Revenue$15,154
Expenses$94,413
Net Income-$79,259
Open 2013 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2013 to Dec 31, 2013
Signed
May 1, 2014
Return Version
2013v3.1
Gross Receipts
$15,154
Mission and Program Overview

Mission

Raise awareness and accelerate research for the most common cause of combined deafness and blindness. Provide information and support to individuals and families affected by usher syndrome.

Helping families cope with usher syndrome while working diligently to find a cure

Balance Sheet Detail
LineBeginningEndChange
Assets
Rtn Earn Endowment Incm Other Fnds$194,537$115,278▼ $79,259
Savings and Temporary Cash Investments$185,696$90,731▼ $94,965
Cash and Non-Interest-Bearing Accounts$8,841$27,284▲ $18,443
Total Assets$194,537$118,015▼ $76,522
Liabilities
Other Liabilities-$2,737-
Total Liabilities$0$2,737▲ $2,737
Net Assets / Fund Balance
Total Net Assets Fund Balance$194,537$115,278▼ $79,259
Total Liabilities and Net Assets / Fund Balance$194,537$118,015▼ $76,522
Compensation and Service Providers
Top Officer Pay73rd percentile

Board Members and Trustees

NameTitle
Mark DunningPresident
Moira M SheaVice Chair
Brittany ZolotasDirector
Edward CohnDirector
Elise FaucheauxDirector
Heidi L RehmDirector
Jennifer PhillipsDirector
John RoyDirector
Lynn DonnellyDirector
Margaret KennaDirector
Martha SteeleDirector
Melissa ChaikofDirector
Susie TrotochaudDirector
Theresa CacciatoreDirector
William KimberlingDirector
Gail MackinnonClerk
Karmen TrzupexTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$11,853
Program Service Revenue
$0
Investment Income
$101
Other Revenue
$3,200
All Other Contributions
$11,853
Change in Net Assets
$-79,259
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$48,824
Salaries, Compensation, and Employee Benefits$45,589
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$38,462--$38,462
Conferences and Meetings$10,386--$10,386
Office Expenses$9,384--$9,384
Occupancy$8,100--$8,100
Advertising$5,016--$5,016
Other Employee Benefits$4,185--$4,185
Payroll Taxes$2,942--$2,942
All Other Expenses$2,843--$2,843
Information Technology$2,495--$2,495
Travel$2,241--$2,241
Insurance$782--$782
Fees for Services Accounting$600--$600
Other Expenses$550--$550
Total Functional Expenses$94,413$0$0$94,413
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Chase Master Card$2,737
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990 governing body review Part VI line 11

“Form 990 is available to the members upon request”

Governing documents etc available to public Part VI line 19

“Available at the organization's office upon request of the member.”

Filing and Contact Details

Filer

EIN
26-4560897

Signing Officer

Name
Mark Dunning
Title
President
Phone
9784612582
Signed
2014-05-01
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mark Dunning
Formed
2009
Legal Domicile
Ma
Voting Board Members
16
Independent Board Members
16
Employees
0

Preparer

Preparer
John Diminico
Phone
7812450611
Raw XML AppendixShowing 400 of 420 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0HELPING FAMILIES COPE WITH USHER SYNDROME WHILE WORKING DILIGENTLY TO FIND A CURE
IRS990/AddressChangeInd0X
IRS990/AdvertisingGrp/ProgramServicesAmt05016
IRS990/AdvertisingGrp/TotalAmt05016
IRS990/AllOtherContributionsAmt011853
IRS990/AllOtherExpensesGrp/ProgramServicesAmt02843
IRS990/AllOtherExpensesGrp/TotalAmt02843
IRS990/BackupWthldComplianceInd0true
IRS990/BooksInCareOfDetail/PersonNm0MARK DUNNING
IRS990/BooksInCareOfDetail/PhoneNum09784612582
IRS990/BooksInCareOfDetail/USAddress/AddressLine10241 RED ACRE ROAD
IRS990/BooksInCareOfDetail/USAddress/City0Stow
IRS990/BooksInCareOfDetail/USAddress/State0MA
IRS990/BooksInCareOfDetail/USAddress/ZIPCode001775
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOfficerEntInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt08841
IRS990/CashNonInterestBearingGrp/EOYAmt027284
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0false
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt010386
IRS990/ConferencesMeetingsGrp/TotalAmt010386
IRS990/ConflictOfInterestPolicyInd0false
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt011853
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt0101
IRS990/CYOtherExpensesAmt048824
IRS990/CYOtherRevenueAmt03200
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0-79259
IRS990/CYSalariesCompEmpBnftPaidAmt045589
IRS990/CYTotalExpensesAmt094413
IRS990/CYTotalFundraisingExpenseAmt00
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt015154
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/Desc0HELPING FAMILIES COPE WITH USHER SYNDROME WHILE WORKING DILIGENTLYTO FIND A CURE
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DonorAdvisedFundInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt094413
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt0600
IRS990/FeesForServicesAccountingGrp/TotalAmt0600
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignOfficeInd0false
IRS990/Form1098CFiledInd0false
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form8899Filedind0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt70.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt80.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt90.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt100.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt110.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt120.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt130.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt140.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt150.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt160.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt02.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt12.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt22.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt32.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt42.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt52.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt62.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt72.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt82.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt92.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt102.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt112.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt122.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1310.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1410.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1510.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt162.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/PersonNm0THERESA CACCIATORE
IRS990/Form990PartVIISectionAGrp/PersonNm1MELISSA CHAIKOF
IRS990/Form990PartVIISectionAGrp/PersonNm2EDWARD COHN
IRS990/Form990PartVIISectionAGrp/PersonNm3LYNN DONNELLY
IRS990/Form990PartVIISectionAGrp/PersonNm4ELISE FAUCHEAUX
IRS990/Form990PartVIISectionAGrp/PersonNm5MARGARET KENNA
IRS990/Form990PartVIISectionAGrp/PersonNm6WILLIAM KIMBERLING
IRS990/Form990PartVIISectionAGrp/PersonNm7JENNIFER PHILLIPS
IRS990/Form990PartVIISectionAGrp/PersonNm8HEIDI L REHM
IRS990/Form990PartVIISectionAGrp/PersonNm9JOHN ROY
IRS990/Form990PartVIISectionAGrp/PersonNm10MARTHA STEELE
IRS990/Form990PartVIISectionAGrp/PersonNm11SUSIE TROTOCHAUD
IRS990/Form990PartVIISectionAGrp/PersonNm12BRITTANY ZOLOTAS
IRS990/Form990PartVIISectionAGrp/PersonNm13MARK DUNNING
IRS990/Form990PartVIISectionAGrp/PersonNm14KARMEN TRZUPEX
IRS990/Form990PartVIISectionAGrp/PersonNm15GAIL MACKINNON
IRS990/Form990PartVIISectionAGrp/PersonNm16MOIRA M SHEA
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt14TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt15CLERK
IRS990/Form990PartVIISectionAGrp/TitleTxt16VICE CHAIR
IRS990/Form990ProvidedToGvrnBodyInd0false
IRS990/FormationYr02009
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedInd0false
IRS990/FundraisingActivitiesInd0false
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt016
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0false
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt015154
IRS990/GrossRentsGrp/RealAmt03200
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt016
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/ProgramServicesAmt02495
IRS990/InformationTechnologyGrp/TotalAmt02495
IRS990/InsuranceGrp/ProgramServicesAmt0782
IRS990/InsuranceGrp/TotalAmt0782
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt0101
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0101
IRS990/InvestmentInJointVentureInd0false
IRS990/IRPDocumentCnt01
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0MA
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingCashInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0HELPING FAMILIES COPE WITH USHER SYNDROME WHILE WORKING DILIGENTLY TO FIND A CURE
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0194537
IRS990/NetAssetsOrFundBalancesEOYAmt0115278
IRS990/NetRentalIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt03200
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt03200
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/ProgramServicesAmt08100
IRS990/OccupancyGrp/TotalAmt08100
IRS990/OfficeExpensesGrp/ProgramServicesAmt09384
IRS990/OfficeExpensesGrp/TotalAmt09384
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrgDoesNotFollowSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt04185
IRS990/OtherEmployeeBenefitsGrp/TotalAmt04185
IRS990/OtherExpensesGrp/Desc0UTILITIES
IRS990/OtherExpensesGrp/Desc1PAYROLL PREPERATION
IRS990/OtherExpensesGrp/Desc2SUBCONTRACTORS
IRS990/OtherExpensesGrp/Desc3DONATIONS
IRS990/OtherExpensesGrp/ProgramServicesAmt04628
IRS990/OtherExpensesGrp/ProgramServicesAmt1609
IRS990/OtherExpensesGrp/ProgramServicesAmt21190
IRS990/OtherExpensesGrp/ProgramServicesAmt3550
IRS990/OtherExpensesGrp/TotalAmt04628
IRS990/OtherExpensesGrp/TotalAmt1609
IRS990/OtherExpensesGrp/TotalAmt21190
IRS990/OtherExpensesGrp/TotalAmt3550
IRS990/OtherLiabilitiesGrp/EOYAmt02737
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt038462
IRS990/OtherSalariesAndWagesGrp/TotalAmt038462
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/ProgramServicesAmt02942
IRS990/PayrollTaxesGrp/TotalAmt02942
IRS990/PoliticalCampaignActyInd0false
IRS990/PrincipalOfficerNm0MARK DUNNING
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0180379
IRS990/PYExcessBenefitTransInd0false
IRS990/PYInvestmentIncomeAmt03819
IRS990/PYOtherExpensesAmt024756
IRS990/PYRevenuesLessExpensesAmt0159442
IRS990/PYTotalExpensesAmt024756
IRS990/PYTotalRevenueAmt0184198
IRS990/QuidProQuoContributionsInd0false
IRS990/ReconcilationRevenueExpnssAmt0-79259
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/RentalIncomeOrLossGrp/RealAmt03200
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0true
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RtnEarnEndowmentIncmOthFndsGrp/BOYAmt0194537
IRS990/RtnEarnEndowmentIncmOthFndsGrp/EOYAmt0115278
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0185696
IRS990/SavingsAndTempCashInvstGrp/EOYAmt090731
IRS990ScheduleA/First5Years509Ind0X
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt011853
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0180379
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt014248
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt025000
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt0231480
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt0101
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt03819
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt014
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt03934
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt0101
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt03819
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt014
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt03934
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearAmt03200
IRS990ScheduleA/OtherIncome509Grp/TotalAmt03200
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportTotal509Amt0231480
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt011853
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0180379
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt014248
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt025000
IRS990ScheduleA/Total509Grp/TotalAmt0231480
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt015154
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0184198
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt014262
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt025000
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt00
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt0238614
IRS990/ScheduleBRequiredInd0false
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt02737
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0CHASE MASTER CARD
IRS990ScheduleD/TotalLiabilityAmt02737
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0FORM 990 IS AVAILABLE TO THE MEMBERS UPON REQUEST
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1AVAILABLE AT THE ORGANIZATION'S OFFICE UPON REQUEST OF THE MEMBER.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Governing documents etc available to public Part VI line 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0MA
IRS990/SubjectToProxyTaxInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TempOrPermanentEndowmentsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0194537
IRS990/TotalAssetsEOYAmt0118015
IRS990/TotalAssetsGrp/BOYAmt0194537
IRS990/TotalAssetsGrp/EOYAmt0118015
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt011853
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt00
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt094413
IRS990/TotalFunctionalExpensesGrp/TotalAmt094413
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt02737
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt02737
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0194537
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0115278
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt094413
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt03301
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt015154
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0194537
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0118015
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/ProgramServicesAmt02241
IRS990/TravelGrp/TotalAmt02241
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine10241 RED ACRE ROAD
IRS990/USAddress/City0Stow
IRS990/USAddress/State0MA
IRS990/USAddress/ZIPCode001775
IRS990/VotingMembersGoverningBodyCnt016
IRS990/VotingMembersIndependentCnt016
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02015-11-30 17:44:51Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0MARK DUNNING
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum09784612582
ReturnHeader/BusinessOfficerGrp/SignatureDt02014-05-01

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2013 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$118,015
Liabilities
$2,737
Net assets
$115,278
Revenue
$15,154
Expenses
$94,413
Net income
-$79,259
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.88$0.08$1.80$3.78$4.37$0.58
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.87$0.04$2.83$5.03$4.16$0.87
2021Detailed filing. Detailed filing data is available for this year.$1.97$0.01$1.96$1.89$1.92$0.03
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.36$0.01$1.35$2.80$2.70$0.10
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.25$0.01$1.24$1.99$1.83$0.16
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.20$0.12$1.08$2.35$2.90$0.55
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.65$0.01$1.63$2.79$2.45$0.34
2014Detailed filing. Detailed filing data is available for this year.$0.87$0.01$0.86$1.04$1.33$0.29
2013Detailed filing. Detailed filing data is available for this year.$1.18$0.03$1.15$0.15$0.94$0.79
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.95$0.00$1.95$0.25
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.35$0.00$0.35$0.14$0.04$0.10
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.25$0.00$0.25$0.25$0.00$0.25
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2013 filings • 501(c)3 • <$500k nonprofits