Civic Intelligence

Wake Up Narcolepsy Inc

EIN 26-3768711 • 501(c)3 • Worcester, MA

Profile

Wake Up Narcolepsy is a 501(c)(3) not-for-profit organization dedicated to supporting narcolepsy awareness and research to find a cure.

PO Box 60293Worcester, MA 01606

www.wakeupnarcolepsy.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

37th percentile

0.02x

Higher debt load relative to assets than 37% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

28th percentile

0.01x

Higher debt load relative to revenue than 28% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

38th percentile

-0.3%

Higher net margin than 38% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

32nd percentile

-1.8%

Faster asset growth than 32% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2024

Revenue Growth

87th percentile

60%

Faster revenue growth than 87% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2024

Balance Sheet
Liabilities / Assets37th percentile

Assets

Down

$619,318

Down $2,995 (-0.5%) from 2023

Liabilities

Up

$12,313

Up $1,514 (+14%) from 2023

Net Assets

Down

$607,005

Down $4,509 (-0.7%) from 2023

Operations
Liabilities / Revenue28th percentileNet Margin38th percentile

Revenue

Up

$1,370,014

Up $602,199 (+78%) from 2023

Expenses

Up

$1,374,620

Up $603,036 (+78%) from 2023

Net Income

Down

-$4,606

Down $837 (-22%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth32nd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$800K$600K$400K$200K$0Assets 2010: $23,808Liabilities 2010: $0Net Assets 2010: $23,8082010Assets 2011: $20,048Liabilities 2011: $0Net Assets 2011: $20,0482011Assets 2012: $157,748Liabilities 2012: $0Net Assets 2012: $157,7482012Assets 2013: $136,701Liabilities 2013: $0Net Assets 2013: $136,7012013Assets 2014: $111,758Liabilities 2014: $13,827Net Assets 2014: $97,9312014Assets 2015: $131,374Liabilities 2015: $0Net Assets 2015: $131,3742015Assets 2016: $216,636Liabilities 2016: $0Net Assets 2016: $216,6362016Assets 2017: $257,733Liabilities 2017: $1,712Net Assets 2017: $256,0212017Assets 2018: $337,797Liabilities 2018: $600Net Assets 2018: $337,1972018Assets 2019: $259,796Liabilities 2019: $1,548Net Assets 2019: $258,2482019Assets 2020: $435,669Liabilities 2020: $13,327Net Assets 2020: $422,3422020Assets 2021: $596,931Liabilities 2021: $16,383Net Assets 2021: $580,5482021Assets 2022: $642,220Liabilities 2022: $25,483Net Assets 2022: $616,7372022Assets 2023: $622,313Liabilities 2023: $10,799Net Assets 2023: $611,5142023Assets 2024: $619,318Liabilities 2024: $12,313Net Assets 2024: $607,0052024

Highlighted filing

2024

Assets$619,318
Liabilities$12,313
Net Assets$607,005
Open 2024 Filing

Operations Trend

Revenue Growth87th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2010: $45,459Expenses 2010: $31,039Net Income 2010: $14,4202010Revenue 2011: $65,678Expenses 2011: $69,438Net Income 2011: -$3,7602011Expenses 2012: $166,1762012Revenue 2013: $389,189Expenses 2013: $410,236Net Income 2013: -$21,0472013Revenue 2014: $507,196Expenses 2014: $545,966Net Income 2014: -$38,7702014Revenue 2015: $315,476Expenses 2015: $282,033Net Income 2015: $33,4432015Revenue 2016: $250,479Expenses 2016: $165,217Net Income 2016: $85,2622016Revenue 2017: $199,332Expenses 2017: $159,947Net Income 2017: $39,3852017Revenue 2018: $462,139Expenses 2018: $380,963Net Income 2018: $81,1762018Revenue 2019: $373,279Expenses 2019: $452,228Net Income 2019: -$78,9492019Revenue 2020: $453,917Expenses 2020: $289,823Net Income 2020: $164,0942020Revenue 2021: $498,207Expenses 2021: $340,001Net Income 2021: $158,2062021Revenue 2022: $535,258Expenses 2022: $499,286Net Income 2022: $35,9722022Revenue 2023: $767,815Expenses 2023: $771,584Net Income 2023: -$3,7692023Revenue 2024: $1,370,014Expenses 2024: $1,374,620Net Income 2024: -$4,6062024

Highlighted filing

2024

Revenue$1,370,014
Expenses$1,374,620
Net Income-$4,606
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$619,318
Liabilities
$12,313
Net assets
$607,005
Revenue
$1,370,014
Expenses
$1,374,620
Net income
-$4,606
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.62$0.01$0.61$1.37$1.37$0.00
2023Detailed filing. Detailed filing data is available for this year.$0.62$0.01$0.61$0.77$0.77$0.00
2022Detailed filing. Detailed filing data is available for this year.$0.64$0.03$0.62$0.54$0.50$0.04
2021Detailed filing. Detailed filing data is available for this year.$0.60$0.02$0.58$0.50$0.34$0.16
2020Detailed filing. Detailed filing data is available for this year.$0.44$0.01$0.42$0.45$0.29$0.16
2019Detailed filing. Detailed filing data is available for this year.$0.26$0.00$0.26$0.37$0.45$0.08
2018Detailed filing. Detailed filing data is available for this year.$0.34$0.00$0.34$0.46$0.38$0.08
2017Detailed filing. Detailed filing data is available for this year.$0.26$0.00$0.26$0.20$0.16$0.04
2016Detailed filing. Detailed filing data is available for this year.$0.22$0.00$0.22$0.25$0.17$0.09
2015Detailed filing. Detailed filing data is available for this year.$0.13$0.00$0.13$0.32$0.28$0.03
2014Detailed filing. Detailed filing data is available for this year.$0.11$0.01$0.10$0.51$0.55$0.04
2013Detailed filing. Detailed filing data is available for this year.$0.14$0.00$0.14$0.39$0.41$0.02
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.16$0.00$0.16$0.17
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.02$0.00$0.02$0.07$0.07$0.00
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.02$0.00$0.02$0.05$0.03$0.01
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Oct 21, 2025
Return Version
2024v5.2
Gross Receipts
$1,370,014
Mission and Program Overview

Mission

Wake Up Narcolepsy is a 501(c)(3) not-for-profit organization dedicated to supporting narcolepsy awareness and research to find a cure.

Wake Up Narcolepsy (WUN) is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research towards improved treatments and a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$404,680$357,267▼ $47,413
Cash and Non-Interest-Bearing Accounts$143,026$235,994▲ $92,968
Pledges and Grants Receivable$21,000--
Prepaid Expenses and Deferred Charges$38,676$14,859▼ $23,817
Intangible Assets$14,931$11,198▼ $3,733
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$622,313$619,318▼ $2,995
Liabilities
Accounts Payable and Accrued Expenses$10,799$12,313▲ $1,514
Total Liabilities$10,799$12,313▲ $1,514
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$611,514$607,005▼ $4,509
Total Net Assets Fund Balance$611,514$607,005▼ $4,509
Total Liabilities and Net Assets / Fund Balance$622,313$619,318▼ $2,995

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$0$2,600$2,600
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseTotal
Tammy AndersonExecutive DirectorFT$60,125$60,125
Monica GowFormer Executive DirectorFT$36,630$36,630

Board Members and Trustees

NameTitle
Mary Beth GuckianBoard Chair
Lynn GriscoVice Chair
Anne SamarawickramaDirector
David GowDirector
Gregg LevethanDirector
Kelsey BiddleDirector
Nicole JerayDirector
Prasanna SamarawickramaDirector
Todd GriscoDirector
Gordon GowEmeritus
Kimberly CassidySecretary
Kevin GuckianTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,307,674
Program Service Revenue
$34,850
Investment Income
$27,490
Other Revenue
$0
All Other Contributions
$919,225
Change in Net Assets
$-4,606

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,370,014
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$97
Total Revenue per Audited Statements
$1,370,111
Total Revenue per Form 990
$1,370,014
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$874,740
Total Fundraising Expense$536,427
Salaries, Compensation, and Employee Benefits$264,880
Grants and Similar Amounts Paid$235,000
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$205,000--$205,000
Advertising$133,825-$19,683$153,508
Other Salaries and Wages$67,581$10,762$68,841$147,184
Current Officers, Directors, Trustees, and Key Employees$53,215-$43,540$96,755
Fees for Services Legal$370$31,209$7,835$39,414
Foreign Grants$30,000--$30,000
Payroll Taxes$934$20,007-$20,941
Information Technology$12,870$1,565$5,397$19,832
Conferences and Meetings$14,695--$14,695
Other Expenses$45$13,210$942$14,197
Office Expenses$7,011$2,407$2,915$12,333
All Other Expenses$550$5,003$36$5,589
Depreciation Depletion-$3,733-$3,733
Insurance$11$520-$531
Total Functional Expenses$735,767$102,426$536,427$1,374,620

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$1,374,620
Total Expenses per Audited Statements$1,374,620
Total Expenses per Form 990$1,374,620
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Beth Israel Deaconess MedicalHarvardBoston, MA-Research$50,000
Stanford Center for Narcolepsy ResearchRedwood City, CA-Research$50,000
Stanford Center for Narcolepsy ResearchRedwood City, CA-Research$40,000
CH Neurological Foundation IncBoston, MA-Research$30,000
American Academy of Sleep Medicine FoundDarien, IL-Research$25,000
University of ArizonaTucson, AZ-Research$5,000
University of UtahSalt Lake City, UT-Research$5,000

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Annual Gala$324,810---
Year End Campaign$48,412---
Total Events$388,449---
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, line 2

“David Gow (Director) and Monica Gow (Former Executive Director) are married.”

Form 990, Part VI, Section B, line 11B

“The BOD receives a draft of the Form 990 and approves the return before filing.”

Form 990, Part VI, Section B, line 12C

“Wake Up monitors compliance with its conflict of interest policy and is directed to any directors, officers, or member of a committee with Board of Directors who has a direrct or indirect financial interest to the Organization.”

Form 990, Part VI, Section B, line 15

“Wake Up Narcolepsy considers the growth, revenue of WUN, and reviews other nonprofits salaries of similar size to determine the salary of the Executive Director. The salary is presented to the Board Chair and then goes to the Board for vote along with the appointment.”

Form 990, Part VI, Section C, line 19

“Governing documents, conflict of interest policy, and financial statements are available to the public upon reasonable request.”

Form 990, Part VII Contact Addresses for Officers, Directors, Etc

“Gordon Gow - 20 Collier St #510, Toronto, Ontario, CANADA. David Gow - 19 Hancock Hill Drive, Worcester, MA 01609.”

Filing and Contact Details

Filer

Filer Name
Wake Up Narcolepsy Inc
EIN
26-3768711
Phone
3308401913
Address
PO Box 60293, Worcester, MA 01606

Signing Officer

Name
Tammy Anderson
Title
Executive Director
Phone
9732941993
Signed
2025-10-21
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kevin Guckian
Formed
2008
Legal Domicile
Ma
Voting Board Members
11
Independent Board Members
11
Employees
6
Volunteers
100

Preparer

Firm
Crr Llp
Address
545 Salem Street, Wakefield, MA 01880
Preparer
Richard P Daigle CPA
Phone
7812797788
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C:

“There have been no changes during the tax year.”

Financial Statement Notes

Part X, Line 2:

“Management has evaluated significant tax positions against the criteria established by professional standards and believes there are no such tax positions requiring accounting recognition in the financial statements. Management does not believe its evaluation of tax positions will significantly change within twelve months of December 31, 2024. Any changes in tax positions will be recorded when the ultimate outcomes become known. The Organizations information returns are subject to examination by taxing authorities generally for the years ended December 31, 2024, 2023 and 2022.”

Raw XML AppendixShowing 400 of 591 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm12Tammy Anderson
IRS990/Form990PartVIISectionAGrp/PersonNm13Monica Gow
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IRS990/Form990PartVIISectionAGrp/TitleTxt3Director
IRS990/Form990PartVIISectionAGrp/TitleTxt4Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt5Director
IRS990/Form990PartVIISectionAGrp/TitleTxt6Board Chair
IRS990/Form990PartVIISectionAGrp/TitleTxt7Director
IRS990/Form990PartVIISectionAGrp/TitleTxt8Vice Chair
IRS990/Form990PartVIISectionAGrp/TitleTxt9Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt10Director
IRS990/Form990PartVIISectionAGrp/TitleTxt11Director
IRS990/Form990PartVIISectionAGrp/TitleTxt12Executive Director
IRS990/Form990PartVIISectionAGrp/TitleTxt13Former Executive Director
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IRS990/InsuranceGrp/ProgramServicesAmt011
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IRS990/MissionDesc0Wake Up Narcolepsy (WUN) is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research towards improved treatments and a cure.
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IRS990/OtherExpensesGrp/Desc3Bank Fees
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IRS990/OtherExpensesGrp/FundraisingAmt179139
IRS990/OtherExpensesGrp/FundraisingAmt2942
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt014010
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IRS990/OtherExpensesGrp/TotalAmt1113877
IRS990/OtherExpensesGrp/TotalAmt247039
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IRS990/ProgSrvcAccomActy2Grp/Desc0Increasing awareness of Narcolepsy.Decreasing time-lapse from symptom onset to proper diagnosis.Providing supportive resources for people with Narcolepsy and their families.
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0Management has evaluated significant tax positions against the criteria established by professional standards and believes there are no such tax positions requiring accounting recognition in the financial statements. Management does not believe its evaluation of tax positions will significantly change within twelve months of December 31, 2024. Any changes in tax positions will be recorded when the ultimate outcomes become known. The Organizations information returns are subject to examination by taxing authorities generally for the years ended December 31, 2024, 2023 and 2022.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Part X, Line 2:
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IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt10
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0Awarded to the Department of Cell
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt1Fixing Orexin Signaling by Histaminergic Neuron Gene Therapy
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0North America - Canada and Mexico, but not the United States
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt1Europe (Including Iceland & Greenland)
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