Civic Intelligence

Familial Dysautonomia Now Foundation

EIN 26-3531031 • 501(c)3 • Buffalo Grove, IL

Pub. 78 Eligible

Profile

To discover new treatments and cures for patients with familial dysautonomia, a rare, fatal, genetic neurological disease present at birth

1170 Green Knolls DriveBuffalo Grove, IL 60089

www.fdnow.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

19th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Liabilities / Revenue

20th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Net Margin

72nd percentile

19%

Higher net margin than 72% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Top Officer Pay

40th percentile

$0

Higher top officer pay than 40% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2025

Asset Growth

56th percentile

5.7%

Faster asset growth than 56% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2024 to 2025

Revenue Growth

31st percentile

-3.3%

Faster revenue growth than 31% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / Assets19th percentile

Assets

Up

$1,146,133

Up $61,817 (+5.7%) from 2024

Liabilities

Flat

$0

Flat from 2024

Net Assets

Up

$1,146,133

Up $61,817 (+5.7%) from 2024

Operations
Liabilities / Revenue20th percentileNet Margin72nd percentile

Revenue

Down

$289,025

Down $9,930 (-3.3%) from 2024

Expenses

Down

$233,939

Down $1,163 (-0.5%) from 2024

Net Income

Down

$55,086

Down $8,767 (-14%) from 2024

Trend Graphs

Balance Sheet Trend

Asset Growth56th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.5M$1.0M$500K$0Assets 2020: $783,451Liabilities 2020: $0Net Assets 2020: $783,4512020Assets 2021: $811,730Liabilities 2021: $0Net Assets 2021: $811,7302021Assets 2022: $882,138Liabilities 2022: $0Net Assets 2022: $882,1382022Assets 2023: $1,031,053Liabilities 2023: $0Net Assets 2023: $1,031,0532023Assets 2024: $1,084,316Liabilities 2024: $0Net Assets 2024: $1,084,3162024Assets 2025: $1,146,133Liabilities 2025: $0Net Assets 2025: $1,146,1332025

Highlighted filing

2025

Assets$1,146,133
Liabilities$0
Net Assets$1,146,133
Open 2025 Filing

Operations Trend

Revenue Growth31st percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$400K$300K$200K$100K$0-$100KRevenue 2020: $198,758Expenses 2020: $206,405Net Income 2020: -$7,6472020Revenue 2021: $230,833Expenses 2021: $203,083Net Income 2021: $27,7502021Revenue 2022: $293,462Expenses 2022: $226,342Net Income 2022: $67,1202022Revenue 2023: $363,863Expenses 2023: $226,852Net Income 2023: $137,0112023Revenue 2024: $298,955Expenses 2024: $235,102Net Income 2024: $63,8532024Revenue 2025: $289,025Expenses 2025: $233,939Net Income 2025: $55,0862025

Highlighted filing

2025

Revenue$289,025
Expenses$233,939
Net Income$55,086
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,146,133
Liabilities
$0
Net assets
$1,146,133
Revenue
$289,025
Expenses
$233,939
Net income
$55,086
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$1.15$0.00$1.15$0.29$0.23$0.06
2024Detailed filing. Detailed filing data is available for this year.$1.08$0.00$1.08$0.30$0.24$0.06
2023Detailed filing. Detailed filing data is available for this year.$1.03$0.00$1.03$0.36$0.23$0.14
2022Detailed filing. Detailed filing data is available for this year.$0.88$0.00$0.88$0.29$0.23$0.07
2021Detailed filing. Detailed filing data is available for this year.$0.81$0.00$0.81$0.23$0.20$0.03
2020Detailed filing. Detailed filing data is available for this year.$0.78$0.00$0.78$0.20$0.21$0.01
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Aug 1, 2024 to Jul 31, 2025
Signed
Dec 11, 2025
Return Version
2024v5.2
Gross Receipts
$328,184
Mission and Program Overview

Mission

To discover new treatments and cures for patients with familial dysautonomia, a rare, fatal, genetic neurological disease present at birth

To discover new treatments and cures for patients with famalial dysautonomia, a rare, fatal, genetic disease present at birth

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$880,364$1,126,050▲ $245,686
Savings and Temporary Cash Investments$199,870--
Cash and Non-Interest-Bearing Accounts$4,082$20,083▲ $16,001
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$1,084,316$1,146,133▲ $61,817
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,084,316$1,146,133▲ $61,817
Total Net Assets Fund Balance$1,084,316$1,146,133▲ $61,817
Total Liabilities and Net Assets / Fund Balance$1,084,316$1,146,133▲ $61,817

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$901$901
Compensation and Service Providers
Top Officer Pay40th percentile

Board Members and Trustees

NameTitle
Ann Slaw JdPresident
Ken Slaw PhdVice President
Ruth Woodruff JdAdvisory Board
Terry finesmith horwich jdaDVISORY BOARD
pat whiteadvisory board
Carol Alterman Rnfl regional representative
Tara D Schimmel Ms EdNy Regional Representative
Andrea GreenfieldTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$244,764
Program Service Revenue
$0
Investment Income
$44,207
Other Revenue
$54
All Other Contributions
$109,231
Change in Net Assets
$55,086
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$176,400
Other Expenses$57,539
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$176,400--$176,400
Fees for Services Other$34,731--$34,731
Office Expenses-$13,226-$13,226
Travel$2,252--$2,252
Information Technology$2,119--$2,119
Insurance$1,257--$1,257
Other Expenses$26$2,798-$26
Total Functional Expenses$217,915$16,024$0$233,939
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
fordham universitybronx, NY501-c-3lab for fd research$176,400
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$39,158
Fundraising Gross Income$39,158
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
FD Event$174,691$39,158$39,158$0
Total Events$174,691$39,158$39,158$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, line 2

“the board president and vice-president are wife and husband. their son has fd and provided the inspiration for the formation of fd now”

Form 990, Part VI, Section B, line 11B

“a draft copy of form 990 is provided to the board before filing”

Form 990, Part VI, Section B, line 12C

“conflict of interest statements are required annually”

Form 990, Part VI, Section C, line 18

“Fd now makes the 990 available upon request and on guidestar”

Form 990, Part VI, Section C, line 19

“fd now makes the information available upon request”

Filing and Contact Details

Filer

Filer Name
Familial Dysautonomia Now Foundation
EIN
26-3531031
Phone
8479130455
Address
1170 Green Knolls Drive, Buffalo Grove, IL 60089

Signing Officer

Name
Ann Slaw
Title
President
Phone
8479130455
Signed
2025-12-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Ann Slaw
Formed
2009
Legal Domicile
Il
Voting Board Members
8
Independent Board Members
8
Employees
0
Volunteers
8

Preparer

Firm
Desmond & Ahern Ltd
Address
10827 S WESTERN AVENUE, CHICAGO, IL 60643-3206
Preparer
Mel Padillo
Phone
7737794720
Supplemental Narrative

Additional Explanations

Form 990, Part IX, line 11G

“Contract Services: Program service expenses 34,731. Management and general expenses 0. Fundraising expenses 0. Total expenses 34,731.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/EquipmentGrp/BookValueAmt00
IRS990ScheduleD/EquipmentGrp/DepreciationAmt0901
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt0901
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleG/AgrmtProfFundraisingActyInd00
IRS990ScheduleG/EmailSolicitationsInd0X
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0135533
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0135533
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt039158
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0FD Event
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0174691
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0174691
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt039158
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt039158
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt00
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt039158
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt039158
IRS990ScheduleG/InPersonSolicitationsInd0X
IRS990ScheduleG/LicensedStatesCd0AL
IRS990ScheduleG/LicensedStatesCd1AK
IRS990ScheduleG/LicensedStatesCd2AZ
IRS990ScheduleG/LicensedStatesCd3AR
IRS990ScheduleG/LicensedStatesCd4CA
IRS990ScheduleG/LicensedStatesCd5CO
IRS990ScheduleG/LicensedStatesCd6CT
IRS990ScheduleG/LicensedStatesCd7DE
IRS990ScheduleG/LicensedStatesCd8FL
IRS990ScheduleG/LicensedStatesCd9GA
IRS990ScheduleG/LicensedStatesCd10HI
IRS990ScheduleG/LicensedStatesCd11ID
IRS990ScheduleG/LicensedStatesCd12IL
IRS990ScheduleG/LicensedStatesCd13IN
IRS990ScheduleG/LicensedStatesCd14IA
IRS990ScheduleG/LicensedStatesCd15KS
IRS990ScheduleG/LicensedStatesCd16KY
IRS990ScheduleG/LicensedStatesCd17LA
IRS990ScheduleG/LicensedStatesCd18ME
IRS990ScheduleG/LicensedStatesCd19MD
IRS990ScheduleG/LicensedStatesCd20MA
IRS990ScheduleG/LicensedStatesCd21MI
IRS990ScheduleG/LicensedStatesCd22MN
IRS990ScheduleG/LicensedStatesCd23MS
IRS990ScheduleG/LicensedStatesCd24MO
IRS990ScheduleG/LicensedStatesCd25MT
IRS990ScheduleG/LicensedStatesCd26NE
IRS990ScheduleG/LicensedStatesCd27NV
IRS990ScheduleG/LicensedStatesCd28NH
IRS990ScheduleG/LicensedStatesCd29NJ
IRS990ScheduleG/LicensedStatesCd30NM
IRS990ScheduleG/LicensedStatesCd31NY
IRS990ScheduleG/LicensedStatesCd32NC
IRS990ScheduleG/LicensedStatesCd33ND
IRS990ScheduleG/LicensedStatesCd34OH
IRS990ScheduleG/LicensedStatesCd35OK
IRS990ScheduleG/LicensedStatesCd36OR
IRS990ScheduleG/LicensedStatesCd37PA
IRS990ScheduleG/LicensedStatesCd38RI
IRS990ScheduleG/LicensedStatesCd39SC
IRS990ScheduleG/LicensedStatesCd40SD
IRS990ScheduleG/LicensedStatesCd41TN
IRS990ScheduleG/LicensedStatesCd42TX
IRS990ScheduleG/LicensedStatesCd43UT
IRS990ScheduleG/LicensedStatesCd44VT
IRS990ScheduleG/LicensedStatesCd45VA
IRS990ScheduleG/LicensedStatesCd46WA
IRS990ScheduleG/LicensedStatesCd47WV
IRS990ScheduleG/LicensedStatesCd48WI
IRS990ScheduleG/LicensedStatesCd49WY
IRS990ScheduleG/MailSolicitationsInd0X
IRS990ScheduleG/PhoneSolicitationsInd0X
IRS990ScheduleG/SolicitationOfGovtGrantsInd0X
IRS990ScheduleG/SolicitationOfNonGovtGrantsInd0X
IRS990ScheduleG/SpecialFundraisingEventsInd0X
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt0176400
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501-c-3
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0lab for fd research
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0fordham university
IRS990ScheduleI/RecipientTable/RecipientEIN0131740451
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0441 e fordham rd
IRS990ScheduleI/RecipientTable/USAddress/CityNm0bronx
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0NY
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd010458
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0organization receives reports from grantee
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0Part I, Line 2:
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0the board president and vice-president are wife and husband. their son has fd and provided the inspiration for the formation of fd now
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1a draft copy of form 990 is provided to the board before filing
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2conflict of interest statements are required annually
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3FD NOW MAKES THE 990 AVAILABLE UPON REQUEST AND ON GUIDESTAR
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4fd now makes the information available upon request
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5Contract Services: Program service expenses 34,731. Management and general expenses 0. Fundraising expenses 0. Total expenses 34,731.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section B, line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section B, line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section C, line 18
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part VI, Section C, line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Form 990, Part IX, line 11g
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0IL
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt01084316
IRS990/TotalAssetsEOYAmt01146133
IRS990/TotalAssetsGrp/BOYAmt01084316
IRS990/TotalAssetsGrp/EOYAmt01146133
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0244764
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt016024
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0217915
IRS990/TotalFunctionalExpensesGrp/TotalAmt0233939
IRS990/TotalGrossUBIAmt00

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