Civic Intelligence

Foundation for Angelman Syndrome Therapeutics

990 • Fiscal year 2014 • EIN 26-3160079

Jan 01, 2014 to Dec 31, 2014 • Filed on Nov 16, 2015

Organization ProfileWWW.CUREANGELMAN.ORG
PO Box 608Downers Grove, IL 60515

(866) 783-0078

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

48th percentile

0.10x

Higher debt load relative to assets than 48% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Liabilities / Revenue

48th percentile

0.10x

Higher debt load relative to revenue than 48% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Net Margin

79th percentile

21%

Higher net margin than 79% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Top Officer Pay

34th percentile

$0

Higher top officer pay than 34% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Asset Growth

90th percentile

42%

Faster asset growth than 90% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Revenue Growth

91st percentile

73%

Faster revenue growth than 91% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Balance Sheet
Liabilities / Assets48th percentile

Assets

Up

$1,571,929

Up $462,940 (+42%) from 2013

Net Assets

Up

$1,421,929

Up $320,440 (+29%) from 2013

Liabilities

Up

$150,000

Up $142,500 (+1900%) from 2013

Revenue And Expenses
Liabilities / Revenue48th percentileNet Margin79th percentile

Revenue

Up

$1,528,780

Up $647,078 (+73%) from 2013

Expenses

Up

$1,208,340

Up $260,888 (+28%) from 2013

Net Income

Up

$320,440

Up $386,190 (+587%) from 2013

Historical Trend

Balance Sheet Trend

Asset Growth90th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$80M$60M$40M$20M$0Assets 2013: $1,108,989Liabilities 2013: $7,500Net Assets 2013: $1,101,4892013Assets 2014: $1,571,929Liabilities 2014: $150,000Net Assets 2014: $1,421,9292014Assets 2015: $1,194,959Liabilities 2015: $0Net Assets 2015: $1,194,9592015Assets 2016: $2,221,539Liabilities 2016: $80,000Net Assets 2016: $2,141,5392016Assets 2017: $7,713,003Liabilities 2017: $2,465,595Net Assets 2017: $5,247,4082017Assets 2018: $8,901,866Liabilities 2018: $1,328,133Net Assets 2018: $7,573,7332018Assets 2019: $12,005,469Liabilities 2019: $3,254,432Net Assets 2019: $8,751,0372019Assets 2020: $18,338,531Liabilities 2020: $2,419,923Net Assets 2020: $15,918,6082020Assets 2021: $17,749,994Liabilities 2021: $3,354,892Net Assets 2021: $14,395,1022021Assets 2022: $63,075,354Liabilities 2022: $7,259,713Net Assets 2022: $55,815,6412022Assets 2023: $58,430,242Liabilities 2023: $18,609,384Net Assets 2023: $39,820,8582023Assets 2024: $44,915,881Liabilities 2024: $4,707,817Net Assets 2024: $40,208,0642024

Highlighted filing

2014

Assets$1,571,929
Liabilities$150,000
Net Assets$1,421,929
Open 2014 Filing

Operations Trend

Revenue Growth91st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$60M$40M$20M$0-$20MRevenue 2013: $881,702Expenses 2013: $947,452Net Income 2013: -$65,7502013Revenue 2014: $1,528,780Expenses 2014: $1,208,340Net Income 2014: $320,4402014Revenue 2015: $1,078,473Expenses 2015: $1,305,387Net Income 2015: -$226,9142015Revenue 2016: $4,397,320Expenses 2016: $3,450,740Net Income 2016: $946,5802016Revenue 2017: $8,749,699Expenses 2017: $5,643,830Net Income 2017: $3,105,8692017Revenue 2018: $5,274,393Expenses 2018: $2,948,068Net Income 2018: $2,326,3252018Revenue 2019: $5,739,183Expenses 2019: $4,561,879Net Income 2019: $1,177,3042019Revenue 2020: $9,357,654Expenses 2020: $3,052,395Net Income 2020: $6,305,2592020Revenue 2021: $3,977,487Expenses 2021: $5,835,365Net Income 2021: -$1,857,8782021Revenue 2022: $52,477,819Expenses 2022: $8,933,021Net Income 2022: $43,544,7982022Revenue 2023: $6,525,815Expenses 2023: $23,229,158Net Income 2023: -$16,703,3432023Revenue 2024: $5,388,260Expenses 2024: $10,391,969Net Income 2024: -$5,003,7092024

Highlighted filing

2014

Revenue$1,528,780
Expenses$1,208,340
Net Income$320,440
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
Nov 16, 2015
Return Version
2014v5.0
Gross Receipts
$1,597,045
Mission and Program Overview

Mission

Angelman syndrome (as) is a neurodevelopmental disorder characterized by global development delays and severe speech impairment. A few individuals with as develop functional speech, but most communicate through a mixture of gestures, eye gaze, adapted sign language and augumentative communication devices. Individuals with as have development delay and intellectual disabilities. Current research suggests that neuronal development occurs correctly in as, but neuronal functioning is impaired. This neuronal impairment impacts the individual's ability to learn in that skills are acquired less rapidly than in age-matched peers. The foundation for angelman syndrome therapeutics is an organization of families and professionals dedicated to finding a cure for as and related disorders through the funding of an agressive research agenda, education, advocacy, and community support. Fast is committed to assisting individuals living with as to realize their full potential and quality of life.

The foundation for angelman syndrome therapeutics (fast) is dedicated to finding a cure for angelman syndrome (as) and related disorders through the funding of an agressive research agenda, education, awareness, and advocacy.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$854,250$1,375,102▲ $520,852
Cash and Non-Interest-Bearing Accounts$254,739$196,827▼ $57,912
Total Assets$1,108,989$1,571,929▲ $462,940
Liabilities
Grants Payable$7,500$150,000▲ $142,500
Total Liabilities$7,500$150,000▲ $142,500
Net Assets / Fund Balance
Unrestricted Net Assets$925,728$1,406,068▲ $480,340
Temporarily Rstr Net Assets$175,761$15,861▼ $159,900
Total Net Assets Fund Balance$1,101,489$1,421,929▲ $320,440
Total Liabilities and Net Assets / Fund Balance$1,108,989$1,571,929▲ $462,940
Compensation and Service Providers
Top Officer Pay34th percentile

Board Members and Trustees

NameTitle
Debbie GuagliardoCo Vice Chairperson
Maiddy DuniganCo Vice Chairperson
Bryan ThompsonDirector
Kristy DixonDirector
Sam MaydewDirector
Scott BackerDirector
Paula EvansChaiperson
Rebecca BurdineChief Science Officer
Meagan CrossCommunications Officer
Danielle PindersEvents Coordinator
Terence SullivanFinancial Officer
Sharon Weil-chalkerScience Officer
Sharon ClaridgeSecretary
Kena RichertTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,558,523
Program Service Revenue
$0
Investment Income
$3,473
Other Revenue
$-33,216
All Other Contributions
$1,243,811
Change in Net Assets
$320,440

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,528,780
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$48,046
Total Revenue per Audited Statements
$1,576,826
Total Revenue per Form 990
$1,528,780
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,042,667
Other Expenses$165,673
Total Fundraising Expense$30,075
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,022,667--$1,022,667
Conferences and Meetings$112,293--$112,293
Advertising--$28,247$28,247
Foreign Grants$20,000--$20,000
Travel-$6,485$1,828$8,313
Fees for Services Accounting-$8,000-$8,000
Office Expenses-$2,173-$2,173
Other Expenses-$960-$960
All Other Expenses-$41-$41
Total Functional Expenses$1,154,960$23,305$30,075$1,208,340

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,256,386
Expenses per Audited Statements$1,208,340
Total Expenses per Form 990$1,208,340
Expenses Not Reported on Form 990$48,046
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of South FloridaTampa, FL115(1)Identification and Characterization of Novel Therapeutics for Angelman Syndrome$797,468
Texas Agrilife ResearchCollege Station, TX115(1)Production of a Pig Model for Angelman Syndrome Research$150,000
Texas Agrilife ResearchCollege Station, TX115(1)Epigenetic Repression of the Paternal Ube3a Allele in Neurons$56,000
University of MiamiCoral Gambles, FL115(1)To Study Potential Angelman Syndrome Therapeutics.$56,000

International Summary

Offices
0
Employees
0
Spending
$20,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North AmericaProgram Services and Grants to Foreign OrganizationsLiteracy and Advancing Adventures in Communicating Camp for Individuals With Angelman Syndrome and Their Families.00$20,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$48,046
Fundraising Gross Income$14,830
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Annual Gala$329,542$14,830$6,749$8,081
Total Events$329,542$14,830$48,046$-33,216
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 8B

“The foundation does not currently have any committees with the authority to act on behalf of the governing body.”

Form 990, Part VI, Section B, Line 11

“The books and records are maintained by fast's treasurer and reviewed by the cfo and the co-vice chairpersons. Fast's treasurer gives fast's books and records to an outside cpa firm to prepare fast's form 990. Once completed the form 990 is provided to the treasurer, cfo and co-vice chairpersons for review. The treasurer, cfo and co-vice chairpersons review the return in great detail, asking clarifying questions and suggesting changes. Once the recommended changes have been incorporated into the return, the form 990 is distributed to all board members for questions, comments, and recommended changes. Once the board members questions have been answered and any changes incorporated into the return, the form 990 is filed.”

Form 990, Part VI, Section B, Line 12C

“Board members are required to certify on an annual basis any interest that could give rise to a conflict. If a conflict appears to have arisen, fast board of directors meet to discuss the potential conflict of interest and consult legal counsel and other applicable third-party experts as deemed necessary.”

Form 990, Part VI, Section B, Line 15

“All board of directors, officers, and scientific advisory board members are non-compensated volunteers.”

Form 990, Part VI, Section C, Line 19

“Governing documents, the conflict of interest policy, and the financial statements are available upon request.”

Filing and Contact Details

Filer

Filer Name
Foundation for Angelman Syndrome Therapeutics
EIN
26-3160079
Phone
8667830078
Address
PO BOX 608, DOWNERS GROVE, IL 60515

Signing Officer

Name
Paula Evans
Title
Chairperson
Phone
8667830078
Signed
2015-11-16
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Paula Evans
Formed
2008
Legal Domicile
Il
Voting Board Members
13
Independent Board Members
13
Employees
0
Volunteers
165

Preparer

Firm
Hegre Mcmahon & Schimmel LLC
Address
600 ENTERPRISE DRIVE STE 109, OAK BROOK, IL 60523
Preparer
Sean Mcmahon
Phone
3123456200
Supplemental Narrative

Financial Statement Notes

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Direct expenses from fundraising events (page 9, part viii, line 8b)”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Direct expenses from fundraising events (page 9, part viii, line 8b)”

Form 990, Schedule D, Part XI, Line 2D and Part XII, Line 2D

“Part xi, line 2d - direct expenses from fundraising events included on page 9, part viii, line 8b. Part xii, line 2d - direct expenses from fundraising events included on page 9, part viii, line 8b.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InvestmentIncomeGrp/ExclusionAmt02136
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt02136
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt07
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0IL
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt020219
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd00
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0ANGELMAN SYNDROME (AS) IS A NEURODEVELOPMENTAL DISORDER CHARACTERIZED BY GLOBAL DEVELOPMENT DELAYS AND SEVERE SPEECH IMPAIRMENT. A FEW INDIVIDUALS WITH AS DEVELOP FUNCTIONAL SPEECH, BUT MOST COMMUNICATE THROUGH A MIXTURE OF GESTURES, EYE GAZE, ADAPTED SIGN LANGUAGE AND AUGUMENTATIVE COMMUNICATION DEVICES. INDIVIDUALS WITH AS HAVE DEVELOPMENT DELAY AND INTELLECTUAL DISABILITIES. CURRENT RESEARCH SUGGESTS THAT NEURONAL DEVELOPMENT OCCURS CORRECTLY IN AS, BUT NEURONAL FUNCTIONING IS IMPAIRED. THIS NEURONAL IMPAIRMENT IMPACTS THE INDIVIDUAL'S ABILITY TO LEARN IN THAT SKILLS ARE ACQUIRED LESS RAPIDLY THAN IN AGE-MATCHED PEERS. THE FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS IS AN ORGANIZATION OF FAMILIES AND PROFESSIONALS DEDICATED TO FINDING A CURE FOR AS AND RELATED DISORDERS THROUGH THE FUNDING OF AN AGRESSIVE RESEARCH AGENDA, EDUCATION, ADVOCACY, AND COMMUNITY SUPPORT. FAST IS COMMITTED TO ASSISTING INDIVIDUALS LIVING WITH AS TO REALIZE THEIR FULL POTENTIAL AND QUALITY OF LIFE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt01101489
IRS990/NetAssetsOrFundBalancesEOYAmt01421929
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt01337
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt01337
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-33216
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-33216
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NoncashContributionsAmt020219
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt02173
IRS990/OfficeExpensesGrp/TotalAmt02173
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0TELEPHONE AND TELECOMMU
IRS990/OtherExpensesGrp/Desc1WEBSITE
IRS990/OtherExpensesGrp/Desc2POSTAGE AND DELIVERY
IRS990/OtherExpensesGrp/Desc3FILING FEES AND REGISTR
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt03297
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11203
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt21146
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt3960
IRS990/OtherExpensesGrp/TotalAmt03297
IRS990/OtherExpensesGrp/TotalAmt11203
IRS990/OtherExpensesGrp/TotalAmt21146
IRS990/OtherExpensesGrp/TotalAmt3960
IRS990/PartialLiquidationInd00
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0PAULA EVANS
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0AS AS IS A RARE DISORDER, THE COMMUNITY OF PARENTS AND CAREGIVERS OF INDIVIDUALS WITH AS RELY HEAVILY ON SOCIAL NETWORKING TO BECOME INFORMED AND SEEK ADVICE AND GUIDANCE ON THE CHALLENGES WHICH THE DISORDER PRESENTS. ITS IS ONE OF FAST'S OBJECTIVES TO EDUCATE, SUPPORT, AND STRENGTHEN THIS COMMUNITY. IN DECEMBER 2014, FAST BROUGHT TOGETHER 527 PARENTS/CAREGIVERS TO HEAR ABOUT THE LATEST RESEARCH ON AS, THE GOALS AND OBJECTIVES OF FAST, ITS PROGRESS TOWARDS MEETING THOSE GOALS AND PLANS FOR THE FUTURE. SPEAKERS INCLUDED THE HEAD OF FAST'S SCIENTIFIC ADVISORY BOARD, DR. EDWIN WEEBER, WHO CURED AS IN THE MOUSE MODEL, AS WELL AS DR. REBECCA BURDINE, FAST'S CHIEF SCIENCE OFFICER, COLIN FARRELL, JAI COURTNEY, RETTA SIRLEAF AND PAULA EVANS. IN ADDITION, NETWORKING/MENTORING OPPORTUNITIES WERE FACILITATED SO THAT PEOPLE CARING FOR INDIVIDUALS OF THE SAME AGE OR WITH SIMILAR CIRCUMSTANCES COULD EXCHANGE EXPERIENCES, INFORMATION AND GUIDANCE AND SOLIDIFY RELATIONSHIPS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0112293
IRS990/ProgSrvcAccomActy3Grp/Desc0LITERACY AND ADVANCING ADVENTURES IN COMMUNICATING CAMP FOR INDIVIDUALS WITH ANGELMAN SYNDROME AND THEIR FAMILIES.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt020000
IRS990/ProgSrvcAccomActy3Grp/GrantAmt020000
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0899898
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0808469
IRS990/PYInvestmentIncomeAmt00
IRS990/PYOtherExpensesAmt0138983
IRS990/PYOtherRevenueAmt0-18196
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-65750
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt0947452
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0881702
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/ReconcilationRevenueExpnssAmt0320440
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0854250
IRS990/SavingsAndTempCashInvstGrp/EOYAmt01375102
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01573348
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0913798
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0956923
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0638779
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0214162
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt04297010
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt03478
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0279
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0746
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0570
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt05073
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.67080
IRS990ScheduleA/PublicSupportPY170Pct00.68190
IRS990ScheduleA/PublicSupportTotal170Amt02885781
IRS990ScheduleA/SubstantialContributorsTotAmt01411229
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt01573348
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0913798
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0956923
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0638779
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0214162
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt04297010
IRS990ScheduleA/TotalSupportAmt04302083
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/ExpensesNotReportedAmt048046
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt01208340
IRS990ScheduleD/OtherExpensesIncludedAmt048046
IRS990ScheduleD/OtherRevenueAmt048046
IRS990ScheduleD/RevenueNotReportedAmt048046
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt01528780
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0DIRECT EXPENSES FROM FUNDRAISING EVENTS (PAGE 9, PART VIII, LINE 8B)
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1DIRECT EXPENSES FROM FUNDRAISING EVENTS (PAGE 9, PART VIII, LINE 8B)
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2PART XI, LINE 2D - DIRECT EXPENSES FROM FUNDRAISING EVENTS INCLUDED ON PAGE 9, PART VIII, LINE 8B. PART XII, LINE 2D - DIRECT EXPENSES FROM FUNDRAISING EVENTS INCLUDED ON PAGE 9, PART VIII, LINE 8B.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART XI, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, SCHEDULE D, PART XI, LINE 2D AND PART XII, LINE 2D
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalExpensesPerForm990Amt01208340
IRS990ScheduleD/TotalRevenuePerForm990Amt01528780
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt01576826
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt01256386
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt020000
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0NORTH AMERICA
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0LITERACY AND ADVANCING ADVENTURES IN COMMUNICATING CAMP FOR INDIVIDUALS WITH ANGELMAN SYNDROME AND THEIR FAMILIES.
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0PROGRAM SERVICES AND GRANTS TO FOREIGN ORGANIZATIONS
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinutationTotalEmployeeCnt00
IRS990ScheduleF/ContinutationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantRecordsMaintainedInd01
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt020000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/MannerOfCashDisbursementTxt0CHECK
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0LITERACY AND ADVANCING ADVENTURES IN COMMUNICATING CAMP FOR INDIVIDUALS WITH ANGELMAN SYNDROME AND THEIR FAMILIES.
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0NORTH AMERICA
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt020000
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0EACH DISBURSEMENT OF ANY FUNDING AWARDED IS CONTINGENT UPON RECIPIENT'S DEMONSTRATION OF PROGRESS THAT IS SATISFACTORY TO THE FOUNDATION, IN ITS SOLE DISCRETION. RECIPIENTS WILL BE REQUIRED TO SUMBIT WRITTEN REPORTS TO THE FOUNDATION FROM TIME TO TIME AS FOLLOWS DESCRIBING PROGRESS MADE. RECIPIENT WILL SUBMIT A PROGRESS REPORT DUE 11 MONTHS AFTER RECEIPT OF THE FIRST DISBURSEMENT. THE INITIAL PROGRESS REPORT SHOULD FOCUS ON PROGRESS MADE TOWARD MEETING THE MILESTONES OUTLINED IN THE PROJECT. A FINAL PROGRESS REPORT MUST BE SUBMITTED WITHIN 60 DAYS AFTER PROJECT TERMINATION AND SHOULD INCLUDE A DETAILED ACCOUNTING OF THE FUNDS AWARDED. AT THE FOUNDATION'S REQUEST, THE RECIPIENT WILL ALSO MAKE A PRESENTATION ABOUT THE SIGNIFICANCE AND PROGRESS OF THEIR WORK TO A MEETING OF THE FOUNDATION'S BOARD AND ANY OTHER PARTICIPANTS CHOSEN BY THE FOUNDATION. UPON REASONABLE NOTICE, THE RECIPIENT AGREES TO ALLOW THE FOUNDATION'S REPRESENTATIVES TO VISIT THE LOCATION(S) WHERE THE ACTIVITY AND/OR RESEARCH IS BEING CONDUCTED IN ORDER TO GAIN FURTHER KNOWLEDGE TO EVALUATE PROGRESS WITH RESPECT TO THE PROJECT.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990ScheduleF/TotalEmployeeCnt00
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalOtherOrgCnt01
IRS990ScheduleF/TotalSpentAmt020000
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0314712
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0314712
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt048046
IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent1Amt03505
IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt03505
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0ANNUAL GALA
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt037792
IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt037792
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0329542
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0329542
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt014830
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt014830
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-33216
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt06749
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt06749
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt056000
IRS990ScheduleI/RecipientTable/CashGrantAmt1797468
IRS990ScheduleI/RecipientTable/CashGrantAmt256000
IRS990ScheduleI/RecipientTable/CashGrantAmt3150000
IRS990ScheduleI/RecipientTable/IRCSectionDesc0115(1)
IRS990ScheduleI/RecipientTable/IRCSectionDesc1115(1)
IRS990ScheduleI/RecipientTable/IRCSectionDesc2115(1)
IRS990ScheduleI/RecipientTable/IRCSectionDesc3115(1)
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0EPIGENETIC REPRESSION OF THE PATERNAL UBE3A ALLELE IN NEURONS
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1IDENTIFICATION AND CHARACTERIZATION OF NOVEL THERAPEUTICS FOR ANGELMAN SYNDROME
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2TO STUDY POTENTIAL ANGELMAN SYNDROME THERAPEUTICS.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3PRODUCTION OF A PIG MODEL FOR ANGELMAN SYNDROME RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0TEXAS AGRILIFE RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1UNIVERSITY OF SOUTH FLORIDA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2UNIVERSITY OF MIAMI
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3TEXAS AGRILIFE RESEARCH
IRS990ScheduleI/RecipientTable/RecipientEIN0746000541

Document Assets

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Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,571,929
Liabilities
$150,000
Net assets
$1,421,929
Revenue
$1,528,780
Expenses
$1,208,340
Net income
$320,440
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$44.9$4.71$40.2$5.39$10.4$5.00
2023Detailed filing. Detailed filing data is available for this year.$58.4$18.6$39.8$6.53$23.2$16.7
2022Detailed filing. Detailed filing data is available for this year.$63.1$7.26$55.8$52.5$8.93$43.5
2021Detailed filing. Detailed filing data is available for this year.$17.7$3.35$14.4$3.98$5.84$1.86
2020Detailed filing. Detailed filing data is available for this year.$18.3$2.42$15.9$9.36$3.05$6.31
2019Detailed filing. Detailed filing data is available for this year.$12.0$3.25$8.75$5.74$4.56$1.18
2018Detailed filing. Detailed filing data is available for this year.$8.90$1.33$7.57$5.27$2.95$2.33
2017Detailed filing. Detailed filing data is available for this year.$7.71$2.47$5.25$8.75$5.64$3.11
2016Detailed filing. Detailed filing data is available for this year.$2.22$0.08$2.14$4.40$3.45$0.95
2015Detailed filing. Detailed filing data is available for this year.$1.19$0.00$1.19$1.08$1.31$0.23
2014Detailed filing. Detailed filing data is available for this year.$1.57$0.15$1.42$1.53$1.21$0.32
2013Detailed filing. Detailed filing data is available for this year.$1.11$0.01$1.10$0.88$0.95$0.07