Civic Intelligence

National Pku Alliance Inc

EIN 26-2849140 • 501(c)3 • New York, NY

Profile

To improve the lives of individuals with pku and pursue a cure.

945 Lexington Avenue 269New York, NY 10021

www.npkua.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

40th percentile

0.07x

Higher debt load relative to assets than 40% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

48th percentile

0.14x

Higher debt load relative to revenue than 48% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Net Margin

70th percentile

17%

Higher net margin than 70% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

56th percentile

$143,111

Higher top officer pay than 56% of similar nonprofits.

Top officer pay equals 5.6% of source-year revenue.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Asset Growth

70th percentile

12%

Faster asset growth than 70% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Revenue Growth

91st percentile

96%

Faster revenue growth than 91% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets40th percentile

Assets

Down

$4,987,467

Down $263,176 (-5.0%) from 2021

Liabilities

Down

$66,532

Down $227,057 (-77%) from 2021

Net Assets

Down

$4,920,935

Down $36,119 (-0.7%) from 2021

Operations
Liabilities / Revenue48th percentileNet Margin70th percentile

Revenue

Up

$2,213,963

Up $316,849 (+17%) from 2021

Expenses

Up

$1,806,805

Up $393,249 (+28%) from 2021

Net Income

Down

$407,158

Down $76,400 (-16%) from 2021

Trend Graphs

Balance Sheet Trend

Asset Growth70th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$6.0M$4.0M$2.0M$0Assets 2010: $522,653Liabilities 2010: $2,670Net Assets 2010: $519,9832010Assets 2012: $1,007,580Liabilities 2012: $22,889Net Assets 2012: $984,6912012Assets 2013: $1,761,142Liabilities 2013: $92,715Net Assets 2013: $1,668,4272013Assets 2015: $1,876,873Liabilities 2015: $7,275Net Assets 2015: $1,869,5982015Assets 2016: $2,455,407Liabilities 2016: $8,205Net Assets 2016: $2,447,2022016Assets 2017: $3,139,075Liabilities 2017: $21,026Net Assets 2017: $3,118,0492017Assets 2018: $3,456,793Liabilities 2018: $120,931Net Assets 2018: $3,335,8622018Assets 2019: $4,023,895Liabilities 2019: $583,290Net Assets 2019: $3,440,6052019Assets 2020: $4,584,703Liabilities 2020: $233,445Net Assets 2020: $4,351,2582020Assets 2021: $5,250,643Liabilities 2021: $293,589Net Assets 2021: $4,957,0542021Assets 2022: $4,987,467Liabilities 2022: $66,532Net Assets 2022: $4,920,9352022

Highlighted filing

2022

Assets$4,987,467
Liabilities$66,532
Net Assets$4,920,935
Open 2022 Filing

Operations Trend

Revenue Growth91st percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$3.0M$2.0M$1.0M$0Expenses 2010: $503,7162010Expenses 2012: $675,2052012Revenue 2013: $1,320,020Expenses 2013: $636,284Net Income 2013: $683,7362013Revenue 2015: $950,283Expenses 2015: $658,381Net Income 2015: $291,9022015Revenue 2016: $1,541,212Expenses 2016: $963,648Net Income 2016: $577,5642016Revenue 2017: $1,563,539Expenses 2017: $892,628Net Income 2017: $670,9112017Revenue 2018: $1,973,496Expenses 2018: $1,756,598Net Income 2018: $216,8982018Revenue 2019: $1,410,644Expenses 2019: $1,310,042Net Income 2019: $100,6022019Revenue 2020: $1,732,179Expenses 2020: $1,247,488Net Income 2020: $484,6912020Revenue 2021: $1,897,114Expenses 2021: $1,413,556Net Income 2021: $483,5582021Revenue 2022: $2,213,963Expenses 2022: $1,806,805Net Income 2022: $407,1582022

Highlighted filing

2022

Revenue$2,213,963
Expenses$1,806,805
Net Income$407,158
Open 2022 Filing

Filings

Most recent year

2022 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$4,987,467
Liabilities
$66,532
Net assets
$4,920,935
Revenue
$2,213,963
Expenses
$1,806,805
Net income
$407,158
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.99$0.07$4.92$2.21$1.81$0.41
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.25$0.29$4.96$1.90$1.41$0.48
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.58$0.23$4.35$1.73$1.25$0.48
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.02$0.58$3.44$1.41$1.31$0.10
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.46$0.12$3.34$1.97$1.76$0.22
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.14$0.02$3.12$1.56$0.89$0.67
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.46$0.01$2.45$1.54$0.96$0.58
2015Detailed filing. Detailed filing data is available for this year.$1.88$0.01$1.87$0.95$0.66$0.29
2013Detailed filing. Detailed filing data is available for this year.$1.76$0.09$1.67$1.32$0.64$0.68
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.01$0.02$0.98$0.68
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.52$0.00$0.52$0.50
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Apr 13, 2023
Return Version
2022v5.0
Gross Receipts
$4,158,234
Mission and Program Overview

Mission

To improve the lives of individuals with pku and pursue a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$3,649,708$3,271,060▼ $378,648
Cash and Non-Interest-Bearing Accounts$2,384$1,208,353▲ $1,205,969
Savings and Temporary Cash Investments$1,476,314$340,810▼ $1,135,504
Investments Other Securities-$100,000-
Pledges and Grants Receivable$33,000$30,020▼ $2,980
Accounts Receivable-$22,995-
Prepaid Expenses and Deferred Charges$88,134$12,370▼ $75,764
Land, Buildings, and Equipment, Net$1,103$1,859▲ $756
Total Assets$5,250,643$4,987,467▼ $263,176
Liabilities
Accounts Payable and Accrued Expenses$37,952$56,532▲ $18,580
Deferred Revenue$255,637$10,000▼ $245,637
Total Liabilities$293,589$66,532▼ $227,057
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$4,716,843$4,827,469▲ $110,626
Net Assets With Donor Restrictions$240,211$93,466▼ $146,745
Total Net Assets Fund Balance$4,957,054$4,920,935▼ $36,119
Total Liabilities and Net Assets / Fund Balance$5,250,643$4,987,467▼ $263,176

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,859$1,956$3,815
Compensation and Service Providers
Top Officer Pay56th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Lisa MilbergExecutive Director (since May)FT$138,846$2,725$141,571
Christine SchlegelExecutive Director (part-year)FT$38,215-$38,215

Board Members and Trustees

NameTitle
Jerry ElkinsPresident
Jeb HaberVice President
Richard MichauxVice President
Alison ReynoldsDirector
Brandon MorganDirector
Brittany HolmesDirector
David MickleDirector
Elizabeth AselageDirector
Heather BomarDirector
Heidi MaxfieldDirector
Lillian IsabellaDirector
Susan BerryDirector
Rhonda ConnollySecretary
J Glenn HaberTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,253,786
Program Service Revenue
$44,989
Investment Income
$32,422
Other Revenue
$-117,234
All Other Contributions
$1,846,506
Change in Net Assets
$407,158

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded1$51,042Fair Market Value (FMV)
Other Non Cash Contri Table19$13,317Fair Market Value (FMV)
Collectibles5$13,200Fair Market Value (FMV)
Food Inventory10$11,533Fair Market Value (FMV)
Other Non Cash Contri Table1$380Fair Market Value (FMV)
Total Noncash Contributions36$89,472-

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,197,245
Revenue Not Reported on Financial Statements
$16,718
Revenue Not Reported on Form 990
$-286,415
Total Revenue per Audited Statements
$1,910,830
Total Revenue per Form 990
$2,213,963
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$821,567
Salaries, Compensation, and Employee Benefits$513,318
Grants and Similar Amounts Paid$471,920
Total Fundraising Expense$201,229
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$456,460--$456,460
Conferences and Meetings$341,442--$341,442
Other Salaries and Wages$173,269$25,604$79,847$278,720
Fees for Services Other$204,229$16,508$26,583$247,320
Current Officers, Directors, Trustees, and Key Employees$75,847$52,921$51,012$179,780
Office Expenses$53,631$14,668$15,372$83,671
Travel$27,395$6,762$10,892$45,049
Fees for Services Accounting-$39,547-$39,547
Payroll Taxes$18,024$6,487$10,860$35,371
Other Employee Benefits$10,389$3,158$5,900$19,447
Fees for Service Investment Mgmnt Fees-$16,718-$16,718
Fees for Services Legal-$15,830-$15,830
Foreign Grants$15,460--$15,460
Information Technology$1,434$11,405$159$12,998
All Other Expenses$137$4,969$339$5,445
Insurance-$2,681-$2,681
Other Expenses$1,313$8,230-$1,313
Depreciation Depletion$512$171$171$854
Advertising$281$94$94$469
Total Functional Expenses$1,379,823$225,753$201,229$1,806,805

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,946,949
Total Expenses per Form 990$1,806,805
Expenses per Audited Statements$1,790,087
Expenses Not Reported on Form 990$156,862
Expenses Not Reported on Financial Statements$16,718
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Oregon Health and Science UniversityPortland, OR501(c)(3)Pku Research$305,765
BOSTON CHILDREN'S HOSPITALBoston, MA501(c)(3)Pku Research$129,928
Maryland Alliance of Pku Families IncPasadena, MD501(c)(3)Local Support to Pku Community$6,775

International Summary

Offices
0
Employees
0
Spending
$15,460

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Russia and Neighboring StatesGrant to Recipients in UkraineGrants to Assist Ukraine00$15,460
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$222,737
Fundraising Gross Income$105,391
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$512,671$105,391$190,292$-84,901
Total Events$512,671$105,391$222,737$-117,346
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
Yes
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 4

“The organization made updates to the bylaws since the prior form 990 was filed. The board of directors shall have no more than fifteen directors. The executive committee shall now include any elected officers of the board.”

Form 990, Part VI, Section B, Line 11B

“The board of directors reviews and approves the form 990 before it is filed.”

Form 990, Part VI, Section B, Line 12C

“Any conflicts of interest for officers, directors, and key employees are reviewed annually.”

Form 990, Part VI, Section B, Line 15

“Compensation was decided by the board of directors after reviewing compensation levels of other similar organizations. Compensation for key employees is decided by the board of directors after reviewing comparables of similar organizations.”

Form 990, Part VI, Section C, Line 19

“The governing documents, conflict of interest policy and financial statements are available to the public upon request, and is also communicated via member organizations.”

Filing and Contact Details

Filer

Filer Name
National Pku Alliance Inc
EIN
26-2849140
Phone
5164435820
Address
945 LEXINGTON AVENUE 269, NEW YORK, NY 10021

Signing Officer

Name
Lisa Milberg
Title
Executive Director
Phone
5614435820
Signed
2023-04-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Jerry Elkins
Formed
2008
Legal Domicile
De
Voting Board Members
14
Independent Board Members
14
Employees
8
Volunteers
150

Preparer

Firm
Cliftonlarsonallen Llp
Address
PO BOX 23819, GREEN BAY, WI 54305-3819
Preparer
Becky Meyer
Phone
9204367800
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Contracted fees: program service expenses 204,229. Management and general expenses 16,508. Fundraising expenses 26,583. Total expenses 247,320.”

Financial Statement Notes

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Special events expenses netted with revenue 156,862.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Special events expenses netted with revenue 156,862.”

Raw XML AppendixShowing 400 of 691 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm14LISA MILBERG
IRS990/Form990PartVIISectionAGrp/PersonNm15CHRISTINE SCHLEGEL
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14138846
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1538215
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14EXECUTIVE DIRECTOR (SINCE MAY)
IRS990/Form990PartVIISectionAGrp/TitleTxt15EXECUTIVE DIRECTOR (PART-YEAR)
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02008
IRS990/FormerOfcrEmployeesListedInd00
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IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0407280
IRS990/FundraisingDirectExpensesAmt0222737
IRS990/FundraisingGrossIncomeAmt0105391
IRS990/GainOrLossGrp/SecuritiesAmt0-49230
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt014
IRS990/GrantAmt0435718
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0456460
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0456460
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt01672304
IRS990/GrossReceiptsAmt04158234
IRS990/GrossSalesOfInventoryAmt0112
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd00
IRS990/IndependentAuditFinclStmtInd01
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IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
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IRS990/InformationTechnologyGrp/FundraisingAmt0159
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt011405
IRS990/InformationTechnologyGrp/ProgramServicesAmt01434
IRS990/InformationTechnologyGrp/TotalAmt012998
IRS990/InsuranceGrp/ManagementAndGeneralAmt02681
IRS990/InsuranceGrp/TotalAmt02681
IRS990/InvestmentIncomeGrp/ExclusionAmt081652
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt081652
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt0100000
IRS990/InvestmentsPubTradedSecGrp/BOYAmt03649708
IRS990/InvestmentsPubTradedSecGrp/EOYAmt03271060
IRS990/IRPDocumentCnt031
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt01956
IRS990/LandBldgEquipBasisNetGrp/BOYAmt01103
IRS990/LandBldgEquipBasisNetGrp/EOYAmt01859
IRS990/LandBldgEquipCostOrOtherBssAmt03815
IRS990/LegalDomicileStateCd0DE
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt01721534
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE NATIONAL PKU ALLIANCE (NPKUA) WORKS TOWARD EXPANDING PKU RESEARCH AND ACCELERATING THE TIMELINE FOR A CURE BY INVESTING IN PEER-REVIEWED AND TARGET RESEARCH. NPKUA PROVIDES EDUCATION AND SUPPORT TO PEOPLE LIVING WITH PKU. NPKUA IS THE NATIONAL VOICE FOR ADVOCACY AT THE FEDERAL LEVEL. THE BOARD OF DIRECTORS INCLUDES LEADERS OF LOCAL ORGANIZATIONS THROUGHOUT THE NATION, AS WELL AS REPRESENTATIVES OF THE ACADEMIC MEDICAL COMMUNITY AND INDUSTRY.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/NetAssetsOrFundBalancesBOYAmt04957054
IRS990/NetAssetsOrFundBalancesEOYAmt04920935
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-49230
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-49230
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-117346
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-117346
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt0112
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt0112
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-443277
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt04716843
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt04827469
IRS990/NoncashContributionsAmt089472
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/FundraisingAmt015372
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt014668
IRS990/OfficeExpensesGrp/ProgramServicesAmt053631
IRS990/OfficeExpensesGrp/TotalAmt083671
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt05900
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt03158
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt010389
IRS990/OtherEmployeeBenefitsGrp/TotalAmt019447
IRS990/OtherExpensesGrp/Desc0CREDIT CARD FEES
IRS990/OtherExpensesGrp/Desc1DUES
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt08230
IRS990/OtherExpensesGrp/ProgramServicesAmt01313
IRS990/OtherExpensesGrp/TotalAmt08230
IRS990/OtherExpensesGrp/TotalAmt11313
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt079847
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IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0173269
IRS990/OtherSalariesAndWagesGrp/TotalAmt0278720
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt010860
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt06487
IRS990/PayrollTaxesGrp/ProgramServicesAmt018024
IRS990/PayrollTaxesGrp/TotalAmt035371
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt033000
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IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt012370
IRS990/PrincipalOfficerNm0JERRY ELKINS
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IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt044989
IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION AND ADVOCACY - CREATED AND RELEASED EDUCATIONAL VIDEOS WITH PATIENTS AND MEDICAL PROFESSIONALS ON PKU TREATMENT OPTIONS, TRANSITIONING TO ADULT CARE AND MATERNAL PKU. DEVELOPED TWO NEW MENTORING PROGRAMS TO PROVIDE SUPPORT TO ADULTS STRUGGLING TO MANAGE THEIR PKU.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0499105
IRS990/ProgSrvcAccomActy2Grp/GrantAmt036202
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt00
IRS990/ProgSrvcAccomActy3Grp/Desc0PROVIDED EDUCATION AND SUPPORT TO 400 PATIENTS THROUGH A VIRTUAL CONFERENCE
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0341442
IRS990/ProgSrvcAccomActy3Grp/GrantAmt00
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt045101
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01682965
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0402709
IRS990/PYInvestmentIncomeAmt0202026
IRS990/PYOtherExpensesAmt0611122
IRS990/PYOtherRevenueAmt09493
IRS990/PYProgramServiceRevenueAmt02630
IRS990/PYRevenuesLessExpensesAmt0483558
IRS990/PYSalariesCompEmpBnftPaidAmt0399725
IRS990/PYTotalExpensesAmt01413556
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01897114
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0407158
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
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IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt01476314
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0340810
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0MISCELLANEOUS INCOME - 2019 AMOUNT: $ 1,474.
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01676954
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01699486
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01389469
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt01991296
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt09010991
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt081652
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt081203
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt067830
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt054794
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt021195
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0306674
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0130655
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt01474
IRS990ScheduleA/OtherIncome170Grp/TotalAmt01474
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IRS990ScheduleA/PublicSupportCY170Pct00.91230
IRS990ScheduleA/PublicSupportPY170Pct00.90500
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IRS990ScheduleA/SubstantialContributorsTotAmt0495307
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IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt01991296
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt09010991
IRS990ScheduleA/TotalSupportAmt09334656
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IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/CurrentTaxYearMinus3YearsAmt01916
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt015517

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