Liabilities / Assets
22nd percentile
Higher debt load relative to assets than 22% of similar nonprofits.
EIN 26-1577154 • 501(c)3 • Needham, MA
Profile
Raise money for research programs dedicated to finding new therapies and cures for childhood cancers, chronic illnesses and impairments such as deafness and blindness.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
22nd percentile
Higher debt load relative to assets than 22% of similar nonprofits.
Liabilities / Revenue
23rd percentile
Higher debt load relative to revenue than 23% of similar nonprofits.
Net Margin
75th percentile
Higher net margin than 75% of similar nonprofits.
Top Officer Pay
40th percentile
Higher top officer pay than 40% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
72nd percentile
Faster asset growth than 72% of similar nonprofits.
Revenue Growth
18th percentile
Faster revenue growth than 18% of similar nonprofits.
Assets
Up$2,032,699
Up $1,403,223 (+223%) from 2022
Liabilities
Up$6,058
Up $6,058 from 2022
Net Assets
Up$2,026,641
Up $1,397,165 (+222%) from 2022
Revenue
Up$1,540,380
Up $1,066,911 (+225%) from 2022
Expenses
Up$450,758
Up $40,935 (+10.0%) from 2022
Net Income
Up$1,089,622
Up $1,025,976 (+1612%) from 2022
Most recent year
2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.
To use the arts to create empathy in order to raise awareness and funding for Usher Syndrome to ultimately find a cure.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $394,072 | $752,860 | ▲ $358,788 |
| Cash and Non-Interest-Bearing Accounts | $286,972 | $732,401 | ▲ $445,429 |
| Accounts Receivable | - | $547,438 | - |
| Total Assets | $681,044 | $2,032,699 | ▲ $1,351,655 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | - | $6,058 | - |
| Total Liabilities | $0 | $6,058 | ▲ $6,058 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $681,044 | $1,143,078 | ▲ $462,034 |
| Net Assets With Donor Restrictions | - | $883,563 | - |
| Total Net Assets Fund Balance | $681,044 | $2,026,641 | ▲ $1,345,597 |
| Total Liabilities and Net Assets / Fund Balance | $681,044 | $2,032,699 | ▲ $1,351,655 |
| Name | Title |
|---|---|
| David Corderman | Chair |
| Nancy Corderman | President |
| Alan Pinto | Director |
| Hannah Corderman | Director |
| Michael Conn | Director |
| Peggy Borst | Director |
| Rebecca Alexander | Director |
| Sophia Boccard | Director |
| Tori Banu | Director |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $267,603 |
| Other Expenses | $183,155 |
| Total Fundraising Expense | $12,957 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $267,603 | - | - | $267,603 |
| Conferences and Meetings | $113,520 | - | $5,849 | $119,369 |
| Other Expenses | $20,350 | - | - | $20,350 |
| Information Technology | - | $9,737 | $2,932 | $12,669 |
| Fees for Services Accounting | - | $11,713 | - | $11,713 |
| Office Expenses | $540 | $5,760 | $3,526 | $9,826 |
| Travel | $3,298 | - | - | $3,298 |
| Fees for Services Other | $1,010 | $1,490 | $650 | $3,150 |
| Insurance | - | $2,161 | - | $2,161 |
| Fees for Services Legal | - | $619 | - | $619 |
| Total Functional Expenses | $406,321 | $31,480 | $12,957 | $450,758 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $450,758 |
| Total Expenses per Audited Statements | $450,758 |
| Total Expenses per Form 990 | $450,758 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Childrens Hospital Boston | Boston, MA | 501c3 | Research Usher Syndrome | $145,000 |
| University of Oregon | Eugene, OR | 501c3 | Research Usher Syndrome | $100,000 |
| Usher Syndrome Coalition | Westford, MA | - | Research Usher Syndrome | $20,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“Nancy Corderman has a family relationship with David Corderman and Hannah Corderman.”
“Changes to bylaws:Added a Section 5 to Article I describing the purposes of the Corporation, consistent with the prior amendments to your Articles of Organization;Added a Section 6 to Article I, which primarily deals with tax-exempt status guidelines. Generally stating that you cant have private benefits, need to pay fair compensation, and in the event of a liquidation the money needs to go to another charity. This is generally in the bylaws, and also in a nonprofits articles (it is already your articles as well, but best practices are to have it in both places); I added several sections concerning management of conflicts of interests and protection for officers and your directors from liability:I added a Section 5 to Article IV, which puts in writing that you have adopted a conflict of interest policy for approving transactions. Section 6 was added to ensure folks joining your board actually review the conflict of interest policy and consent to it annually. Section 7 and 8 states Massachusetts law and intent to ensure that folks managing the Corporation are immune from personal liability. Lastly, Section 8 provides that if there is some sort of liability asserted against someone personally in connection with their role with the Corporation, the Corporation will have a duty to indemnify them so that they will not be out of pocket.”
“No review was or will be conducted.”
“No documents available to the public.”
“No documents available to the public.”
“The prior year 990 was filed on cash basis, and is being filed on accrual basis this year.”
“The Society is exempt from Federal income tax, on its exempt purpose activities, under Section 501(c)(3) of the Internal Revenue Code (IRC). The Society is subject to income tax on its unrelated business income under the IRC. The Society had no unrelated business income for the tax year.For the tax year-end, Society has documented its consideration of FASB ASC 740-10, Income Taxes, that provides guidance for reporting uncertainty in income taxes and has determined that no material uncertain tax positions qualify for either recognition or disclosure in the financial statements.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990/Desc | 0 | In 2024 Usher Syndrome Society launched the award winning Every Second Counts campaign, which included taking over nine Times Square billboards, airing a national TV commercial, and securing digital displays on taxi tops, bus stops, and major media platforms to raise awareness for Usher syndrome. The campaign generated 145,849,932 impressions, leading to a 984% increase in direct website traffic, a 558% rise in website users, and a 118% growth in our donor base. We also educated the public by hosting three storytelling events featuring film screenings, showcasing our Shine a Light Portraits in 5 rotating exhibits. This momentum enabled us to launch PUSH, a groundbreaking research program, accelerating treatment for all types of Usher syndrome, and award $265,000 in Translational Research Grants to advance critical global research efforts. |
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| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
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| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | The Society is exempt from Federal income tax, on its exempt purpose activities, under Section 501(c)(3) of the Internal Revenue Code (IRC). The Society is subject to income tax on its unrelated business income under the IRC. The Society had no unrelated business income for the tax year.For the tax year-end, Society has documented its consideration of FASB ASC 740-10, Income Taxes, that provides guidance for reporting uncertainty in income taxes and has determined that no material uncertain tax positions qualify for either recognition or disclosure in the financial statements. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740) |
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| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | Research Usher Syndrome |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | Research Usher Syndrome |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | Research Usher Syndrome |
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| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | University of Oregon |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | Usher Syndrome Coalition |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 042774441 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 264560897 |
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| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 6231 University of Oregon |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | 9 Cornerstone Square STE 400-224 |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | Boston |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | Eugene |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | Westford |
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| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | OR |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Nancy Corderman has a family relationship with David Corderman and Hannah Corderman. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Changes to bylaws:Added a Section 5 to Article I describing the purposes of the Corporation, consistent with the prior amendments to your Articles of Organization;Added a Section 6 to Article I, which primarily deals with tax-exempt status guidelines. Generally stating that you cant have private benefits, need to pay fair compensation, and in the event of a liquidation the money needs to go to another charity. This is generally in the bylaws, and also in a nonprofits articles (it is already your articles as well, but best practices are to have it in both places); I added several sections concerning management of conflicts of interests and protection for officers and your directors from liability:I added a Section 5 to Article IV, which puts in writing that you have adopted a conflict of interest policy for approving transactions. Section 6 was added to ensure folks joining your board actually review the conflict of interest policy and consent to it annually. Section 7 and 8 states Massachusetts law and intent to ensure that folks managing the Corporation are immune from personal liability. Lastly, Section 8 provides that if there is some sort of liability asserted against someone personally in connection with their role with the Corporation, the Corporation will have a duty to indemnify them so that they will not be out of pocket. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | No review was or will be conducted. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | No documents available to the public. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | No documents available to the public. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | The prior year 990 was filed on cash basis, and is being filed on accrual basis this year. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Officer directors etc family relationship Part VI line 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Organizational document changes Part VI line 4 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990 governing body review Part VI line 11 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Form 990 availability to public Part VI line 18 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | Governing documents etc available to public Part VI line 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | Explanation of other changes in net assets or fund balances Part XI line 9 |
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| IRS990/USAddress/CityNm | 0 | Needham |
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| IRS990/WebsiteAddressTxt | 0 | ushersyndromesociety.org |
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| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | true |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | NANCY CORDERMAN |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | President |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 7814445766 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2025-07-15 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | Usher Syndrome Society Inc |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | USHE |
| ReturnHeader/Filer/EIN | 0 | 261577154 |
| ReturnHeader/Filer/InCareOfNm | 0 | % Nancy Corderman |
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