Civic Intelligence

Pheo Alliance Inc

990 • Fiscal year 2019 • EIN 26-1510652

Jan 01, 2019 to Dec 31, 2019 • Filed on Jul 13, 2020

Organization Profilewww.pheopara.org
9721 Whitley Park PlaceBethesda, MD 20814

(202) 441-7855

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

78th percentile

0.10x

Higher debt load relative to assets than 78% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Liabilities / Revenue

91st percentile

0.34x

Higher debt load relative to revenue than 91% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Net Margin

6th percentile

-77%

Higher net margin than 6% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Top Officer Pay

95th percentile

$61,060

Higher top officer pay than 95% of similar nonprofits.

Top officer pay equals 57.3% of source-year revenue.

2019 filings • 501(c)3 • <$500k nonprofits • Source year 2019

Asset Growth

26th percentile

-13%

Faster asset growth than 26% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Annualized from 2018 to 2019

Revenue Growth

7th percentile

-62%

Faster revenue growth than 7% of similar nonprofits.

2019 filings • 501(c)3 • <$500k nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets78th percentile

Assets

Down

$378,732

Down $55,448 (-13%) from 2018

Net Assets

Down

$341,956

Down $82,186 (-19%) from 2018

Liabilities

Up

$36,776

Up $26,738 (+266%) from 2018

Revenue And Expenses
Liabilities / Revenue91st percentileNet Margin6th percentile

Revenue

Down

$106,635

Down $175,966 (-62%) from 2018

Expenses

Down

$188,821

Down $58,162 (-24%) from 2018

Net Income

Down

-$82,186

Down $117,804 (-331%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth26th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2016: $644,750Liabilities 2016: $0Net Assets 2016: $644,7502016Assets 2017: $412,357Liabilities 2017: $23,833Net Assets 2017: $388,5242017Assets 2018: $434,180Liabilities 2018: $10,038Net Assets 2018: $424,1422018Assets 2019: $378,732Liabilities 2019: $36,776Net Assets 2019: $341,9562019Assets 2020: $369,145Liabilities 2020: $10,520Net Assets 2020: $358,6252020Assets 2021: $404,925Liabilities 2021: $10,800Net Assets 2021: $394,1252021Assets 2022: $372,133Liabilities 2022: $900Net Assets 2022: $371,2332022Assets 2023: $372,037Liabilities 2023: $428Net Assets 2023: $371,6092023Assets 2024: $410,226Liabilities 2024: $4,738Net Assets 2024: $405,4882024

Highlighted filing

2019

Assets$378,732
Liabilities$36,776
Net Assets$341,956
Open 2019 Filing

Operations Trend

Revenue Growth7th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$400K$200K$0-$200K-$400KRevenue 2016: $30,392Expenses 2016: $220,149Net Income 2016: -$189,7572016Revenue 2017: $21,993Expenses 2017: $278,219Net Income 2017: -$256,2262017Revenue 2018: $282,601Expenses 2018: $246,983Net Income 2018: $35,6182018Revenue 2019: $106,635Expenses 2019: $188,821Net Income 2019: -$82,1862019Revenue 2020: $171,708Expenses 2020: $155,039Net Income 2020: $16,6692020Revenue 2021: $187,139Expenses 2021: $151,639Net Income 2021: $35,5002021Revenue 2022: $195,379Expenses 2022: $218,271Net Income 2022: -$22,8922022Revenue 2023: $243,641Expenses 2023: $243,265Net Income 2023: $3762023Revenue 2024: $214,437Expenses 2024: $180,558Net Income 2024: $33,8792024

Highlighted filing

2019

Revenue$106,635
Expenses$188,821
Net Income-$82,186
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Jul 13, 2020
Return Version
2019v5.1
Gross Receipts
$106,635
Mission and Program Overview

Mission

The mission of the Pheo Para Alliance is twofold: One, to spread the word about this rare disease and two, to support and fund research that will lead to better treatment options and ultimately to find a cure.

The mission of Pheo Para Alliance is to provide resources, information and support to those with pheochromocytoma and facilitate research for better treatments and a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$277,878$250,776▼ $27,102
Cash and Non-Interest-Bearing Accounts$155,844$114,456▼ $41,388
Prepaid Expenses and Deferred Charges$458$13,500▲ $13,042
Total Assets$434,180$378,732▼ $55,448
Liabilities
Deferred Revenue-$35,911-
Accounts Payable and Accrued Expenses$10,038$865▼ $9,173
Total Liabilities$10,038$36,776▲ $26,738
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$424,142$341,956▼ $82,186
Total Net Assets Fund Balance$424,142$341,956▼ $82,186
Total Liabilities and Net Assets / Fund Balance$434,180$378,732▼ $55,448
Compensation and Service Providers
Top Officer Pay95th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Stephanie AlbandExecutive DirectorPT$61,060$61,060

Board Members and Trustees

NameTitle
Emily CollinsPast President
Matthew CapagrecoPresident
Allen WilsonMember
Elizabeth HeroldMember
Taylor ArmstrongMember
Salley WoodSecretary
Robert SpelkeTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$106,339
Program Service Revenue
$0
Investment Income
$296
Other Revenue
$0
All Other Contributions
$106,339
Change in Net Assets
$-82,186
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$78,327
Other Expenses$73,248
Grants and Similar Amounts Paid$37,246
Total Fundraising Expense$19,931
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$54,165$10,832$13,330$78,327
Grants to Domestic Orgs$37,246--$37,246
Fees for Services Management$7,700$16,035$2,250$25,985
Conferences and Meetings$21,024$6-$21,030
Travel$5,788--$5,788
Office Expenses$1,066$393$477$1,936
Insurance-$1,000-$1,000
Other Expenses$273$5,335$468$273
All Other Expenses$70$25-$95
Total Functional Expenses$135,264$33,626$19,931$188,821
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Broad InstituteCambridge, MA-Take initial steps towards a pheochromocytoma and paraganglioma tumor dependency map. If successful, these models will be used to begin to identify possible drug repurposing opportunities using the Broad's Drug Repurposing Library and genetic targets using the breakthrough CRISPR genome-engineering technology.$37,246
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, line 2

“Emily Collins and Salley Woods are mother and daughter.”

Form 990, Part VI, Section B, line 11B

“The Pheo Alliance Board including the Treasurer review the complete form 990, including all associated schedules.”

Form 990, Part VI, Section B, line 12C

“A questionnaire is completed annually to monitor and enforce conflict of interest compliance.”

Form 990, Part VI, Section B, line 15A

“A recruiting executive provided direction on appropriate salary range for industry and geographic location.”

Form 990, Part VI, Section C, line 19

“The governing documents, conflict of interest policy and financial statements are made available to the public by request.”

Filing and Contact Details

Filer

Filer Name
Pheo Alliance Inc
EIN
26-1510652
Phone
2024417855
Address
9721 Whitley Park Place, Bethesda, MD 20814

Signing Officer

Name
Robert Spelke
Title
Treasurer
Phone
2024417855
Signed
2020-07-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Robert Spelke
Formed
2007
Legal Domicile
Va
Voting Board Members
8
Independent Board Members
8
Employees
0
Volunteers
20

Preparer

Firm
Fruci & Associates PS
Address
PO Box 2163, Spokane, WA 99210-2163
Preparer
Paul R Fruci CPA
Phone
5096249223
Supplemental Narrative

Additional Explanations

Form 990, Part III, line 2

“The Patient Education Webinar Series features hour-long patient education webinars featuring a medical expert discussing a pheo para topic. The webinar is moderated by a patient or caregiver. Patients are provided an opportunity to ask questions live or submit them beforehand. This Live Webinar Series is made possible through an educational grant by Progenics”

Raw XML Appendix400 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0to provide a network of resources, information and support to patients and those affected on all facets of the illness including diagnosis, genetic testing, surgery, non-surgical treatment, options, metastatic disease and emotional wellbeing.The Alliance was represented at various neuroendocrine conferences in the United States including NCAN, NETRF, NANETS, NorCal Carcinet and Rare Disease Day on the Hill.
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IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0106635
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0324980
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt024893
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt092061
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0511656
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IRS990/ScheduleBRequiredInd01
IRS990ScheduleI/GrantRecordsMaintainedInd00
IRS990ScheduleI/RecipientTable/CashGrantAmt037246
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0Take initial steps towards a pheochromocytoma and paraganglioma tumor dependency map. If successful, these models will be used to begin to identify possible drug repurposing opportunities using the Broad's Drug Repurposing Library and genetic targets using the breakthrough CRISPR genome-engineering technology.
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Broad Institute
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0415 Main St
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Cambridge
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0MA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd002142
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The Patient Education Webinar Series features hour-long patient education webinars featuring a medical expert discussing a pheo para topic. The webinar is moderated by a patient or caregiver. Patients are provided an opportunity to ask questions live or submit them beforehand. This Live Webinar Series is made possible through an educational grant by Progenics
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Emily Collins and Salley Woods are mother and daughter.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The Pheo Alliance Board including the Treasurer review the complete form 990, including all associated schedules.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3A questionnaire is completed annually to monitor and enforce conflict of interest compliance.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4A recruiting executive provided direction on appropriate salary range for industry and geographic location.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5The governing documents, conflict of interest policy and financial statements are made available to the public by request.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part III, line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section A, line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section B, line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section B, line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part VI, Section B, line 15a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Form 990, Part VI, Section C, line 19
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IRS990/SubjectToExcsTaxNetInvstIncInd00
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IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
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IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt019931
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt033626
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0135264
IRS990/TotalFunctionalExpensesGrp/TotalAmt0188821
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt010038
IRS990/TotalLiabilitiesEOYAmt036776
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IRS990/TotalLiabilitiesGrp/EOYAmt036776
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IRS990/TotalOtherCompensationAmt00
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IRS990/TotalReportableCompFromOrgAmt061060
IRS990/TotalRevenueGrp/ExclusionAmt00
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IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0106635
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt020
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IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0378732
IRS990/TotReportableCompRltdOrgAmt00
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IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
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IRS990/USAddress/AddressLine1Txt09721 Whitley Park Place
IRS990/USAddress/CityNm0Bethesda
IRS990/USAddress/StateAbbreviationCd0MD
IRS990/USAddress/ZIPCd020814
IRS990/VotingMembersGoverningBodyCnt08
IRS990/VotingMembersIndependentCnt08
IRS990/WebsiteAddressTxt0www.pheopara.org
IRS990/WhistleblowerPolicyInd00
ReturnHeader/BuildTS02020-09-23 17:36:50Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0Robert Spelke
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Treasurer
ReturnHeader/BusinessOfficerGrp/PhoneNum02024417855
ReturnHeader/BusinessOfficerGrp/SignatureDt02020-07-13
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Pheo Alliance Inc
ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt0Pheo Para Alliance
ReturnHeader/Filer/BusinessNameControlTxt0PHEO
ReturnHeader/Filer/EIN0261510652
ReturnHeader/Filer/PhoneNum02024417855
ReturnHeader/Filer/USAddress/AddressLine1Txt09721 Whitley Park Place
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ReturnHeader/Filer/USAddress/StateAbbreviationCd0MD
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ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt096.81.134.233
ReturnHeader/FilingSecurityInformation/IPDt02020-07-13
ReturnHeader/FilingSecurityInformation/IPTimezoneCd0PD
ReturnHeader/FilingSecurityInformation/IPTm017:43:01
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0208571624
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Fruci & Associates PS
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0PO Box 2163
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Spokane
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0WA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd0992102163
ReturnHeader/PreparerPersonGrp/PhoneNum05096249223
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Paul R Fruci CPA
ReturnHeader/ReturnTs02020-07-14T15:43:32-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02019-01-01
ReturnHeader/TaxPeriodEndDt02019-12-31
ReturnHeader/TaxYr02019

Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$378,732
Liabilities
$36,776
Net assets
$341,956
Revenue
$106,635
Expenses
$188,821
Net income
-$82,186
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.10$0.05$4.05$2.14$1.81$0.34
2023Detailed filing. Detailed filing data is available for this year.$3.72$0.00$3.72$2.44$2.43$0.00
2022Detailed filing. Detailed filing data is available for this year.$3.72$0.01$3.71$1.95$2.18$0.23
2021Detailed filing. Detailed filing data is available for this year.$4.05$0.11$3.94$1.87$1.52$0.36
2020Detailed filing. Detailed filing data is available for this year.$3.69$0.11$3.59$1.72$1.55$0.17
2019Detailed filing. Detailed filing data is available for this year.$3.79$0.37$3.42$1.07$1.89$0.82
2018Detailed filing. Detailed filing data is available for this year.$4.34$0.10$4.24$2.83$2.47$0.36
2017Detailed filing. Detailed filing data is available for this year.$4.12$0.24$3.89$0.22$2.78$2.56
2016Detailed filing. Detailed filing data is available for this year.$6.45$0.00$6.45$0.30$2.20$1.90