Civic Intelligence

New Jersey Rett Syndrome Associatio

EIN 26-1359425 • 501(c)3 • Freehold, NJ

Profile

To increase public understanding of rett syndrome, its nature and treatment; to research rett syndrome and reduce the stigma of the same by means of education of the community concerning rett syndrome as a disease and public health problem; to maintain a rett syndrome.

417 Brickyard RoadFreehold, NJ 07728

www.njrsa.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

72nd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

NTEE H • <$500k nonprofits • Source year 2024

Liabilities / Revenue

72nd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

NTEE H • <$500k nonprofits • Source year 2024

Net Margin

88th percentile

81%

Higher net margin than 88% of similar nonprofits.

NTEE H • <$500k nonprofits • Source year 2024

Top Officer Pay

92nd percentile

$0

Higher top officer pay than 92% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

NTEE H • <$500k nonprofits • Source year 2024

Asset Growth

83rd percentile

62%

Faster asset growth than 83% of similar nonprofits.

NTEE H • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

75th percentile

39%

Faster revenue growth than 75% of similar nonprofits.

NTEE H • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets72nd percentile

Assets

Up

$63,152

Up $24,078 (+62%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Up

$63,152

Up $24,078 (+62%) from 2023

Operations
Liabilities / Revenue72nd percentileNet Margin88th percentile

Revenue

Up

$29,783

Up $8,298 (+39%) from 2023

Expenses

Down

$5,705

Down $40,124 (-88%) from 2023

Net Income

Up

$24,078

Up $48,422 (+199%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth83rd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$80K$60K$40K$20K$0Assets 2021: $68,659Liabilities 2021: $0Net Assets 2021: $68,6592021Assets 2022: $63,418Liabilities 2022: $0Net Assets 2022: $63,4182022Assets 2023: $39,074Liabilities 2023: $0Net Assets 2023: $39,0742023Assets 2024: $63,152Liabilities 2024: $0Net Assets 2024: $63,1522024

Highlighted filing

2024

Assets$63,152
Liabilities$0
Net Assets$63,152
Open 2024 Filing

Operations Trend

Revenue Growth75th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$100K$50K$0-$50KRevenue 2021: $55,470Expenses 2021: $74,873Net Income 2021: -$19,4032021Revenue 2022: $56,958Expenses 2022: $62,199Net Income 2022: -$5,2412022Revenue 2023: $21,485Expenses 2023: $45,829Net Income 2023: -$24,3442023Revenue 2024: $29,783Expenses 2024: $5,705Net Income 2024: $24,0782024

Highlighted filing

2024

Revenue$29,783
Expenses$5,705
Net Income$24,078
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$63,152
Liabilities
$0
Net assets
$63,152
Revenue
$29,783
Expenses
$5,705
Net income
$24,078
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$63.2$0.00$63.2$29.8$5.71$24.1
2023Detailed filing. Detailed filing data is available for this year.$39.1$0.00$39.1$21.5$45.8$24.3
2022Detailed filing. Detailed filing data is available for this year.$63.4$0.00$63.4$57.0$62.2$5.24
2021Detailed filing. Detailed filing data is available for this year.$68.7$0.00$68.7$55.5$74.9$19.4
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jul 1, 2023 to Jun 30, 2024
Signed
May 13, 2025
Return Version
2023v6.0
Gross Receipts
$29,783
Mission and Program Overview

Mission

To increase public understanding of rett syndrome, its nature and treatment; to research rett syndrome and reduce the stigma of the same by means of education of the community concerning rett syndrome as a disease and public health problem;to maintain a rett syndrome.

To increase public understanding of rett syndrome, its nature and treatment; to research rett syndrome and reduce the stigma of the same by means of education of the community concerning rett syndrome as a disease and public health problem; to maintain a rett syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$39,074$63,152▲ $24,078
Rtn Earn Endowment Incm Other Fnds$39,074$63,152▲ $24,078
Total Assets$39,074$63,152▲ $24,078
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$39,074$63,152▲ $24,078
Total Liabilities and Net Assets / Fund Balance$39,074$63,152▲ $24,078
Compensation and Service Providers
Top Officer Pay92nd percentile

Board Members and Trustees

NameTitle
Carl Raso MdTrustee
Carla BenetatosTrustee
Gerard SaydahTrustee
Steve MedlinTrustee
Leslie GreenfieldExec. Direct
Robin DiamondTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$15,273
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$14,510
All Other Contributions
$15,273
Change in Net Assets
$24,078
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$5,705
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Information Technology-$1,569-$1,569
Insurance-$1,498-$1,498
Advertising-$1,399-$1,399
Office Expenses-$1,239-$1,239
Total Functional Expenses$0$5,705$0$5,705
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$14,510
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“No review was or will be conducted.”

Form 990, Page 6, Part VI, Line 19

“No documents available to the public”

Filing and Contact Details

Filer

Filer Name
New Jersey Rett Syndrome Associatio
EIN
26-1359425
Phone
9082040106
Address
417 BRICKYARD ROAD, FREEHOLD, NJ 07728

Signing Officer

Name
Robin Diamond
Title
Treasurer
Phone
9082040106
Signed
2025-05-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Robin Diamond
Formed
2007
Legal Domicile
Nj
Voting Board Members
0
Independent Board Members
0
Employees
0

Preparer

Firm
F&m Associates of Eb Inc
Address
2822 MORRIS AVE, UNION, NJ 07083
Preparer
Michael Cauterucci
Phone
9086886686
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“To increase public understanding of rett syndrome, its nature and treatment; to research rett syndrome and reduce the stigma of the same by means of education of the community concerning rett syndrome as a disease and public health problem; to maintain a rett syndrome.”

Raw XML Appendix273 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt1TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt2EXEC. DIRECT
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IRS990/IRPDocumentCnt00
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IRS990/LoanOutstandingInd0false
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1NO REVIEW WAS OR WILL BE CONDUCTED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2NO DOCUMENTS AVAILABLE TO THE PUBLIC
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 19
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ReturnHeader/BuildTS02025-03-06 01:10:19Z
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ReturnHeader/BusinessOfficerGrp/SignatureDt02025-05-13
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ReturnHeader/Filer/EIN0261359425
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ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0NJ
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd007083
ReturnHeader/PreparerPersonGrp/PhoneNum09086886686
ReturnHeader/PreparerPersonGrp/PreparationDt02025-05-13
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0MICHAEL CAUTERUCCI
ReturnHeader/ReturnTs02025-05-13T17:08:41-04:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02023-07-01
ReturnHeader/TaxPeriodEndDt02024-06-30
ReturnHeader/TaxYr02023

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