Liabilities / Assets
50th percentile
Higher debt load relative to assets than 50% of similar nonprofits.
EIN 26-1316274 • 501(c)3 • Staten Island, NY
Profile
To advance knowledege through research and to educate the medical, allied sciences and lay community about chiari malformation, syringomyelia and related disorders
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
50th percentile
Higher debt load relative to assets than 50% of similar nonprofits.
Liabilities / Revenue
52nd percentile
Higher debt load relative to revenue than 52% of similar nonprofits.
Net Margin
66th percentile
Higher net margin than 66% of similar nonprofits.
Top Officer Pay
81st percentile
Higher top officer pay than 81% of similar nonprofits.
Top officer pay equals 15.2% of source-year revenue.
Asset Growth
81st percentile
Faster asset growth than 81% of similar nonprofits.
Revenue Growth
56th percentile
Faster revenue growth than 56% of similar nonprofits.
Assets
Up$1,681,948
Up $375,621 (+29%) from 2024
Liabilities
Up$65,797
Up $59,906 (+1017%) from 2024
Net Assets
Up$1,616,151
Up $315,715 (+24%) from 2024
Revenue
Up$1,153,190
Up $170,722 (+17%) from 2024
Expenses
Up$917,419
Up $70,904 (+8.4%) from 2024
Net Income
Up$235,771
Up $99,818 (+73%) from 2024
Most recent year
2025 • Form 990Detailed filing. Detailed filing data is available for this year.
To advance knowledege through research and to educate the medical, allied sciences and lay community about chiari malformation,syringomyelia and related disorders.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments Other Securities | $942,444 | $898,010 | ▼ $44,434 |
| Cash and Non-Interest-Bearing Accounts | $309,875 | $730,595 | ▲ $420,720 |
| Pledges and Grants Receivable | - | $23,257 | - |
| Savings and Temporary Cash Investments | $46,080 | $21,170 | ▼ $24,910 |
| Prepaid Expenses and Deferred Charges | $6,716 | $7,704 | ▲ $988 |
| Intangible Assets | $1,212 | $1,212 | → $0 |
| Total Assets | $1,306,327 | $1,681,948 | ▲ $375,621 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $5,891 | $65,797 | ▲ $59,906 |
| Total Liabilities | $5,891 | $65,797 | ▲ $59,906 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,275,436 | $1,616,151 | ▲ $340,715 |
| Net Assets With Donor Restrictions | $25,000 | - | - |
| Total Net Assets Fund Balance | $1,300,436 | $1,616,151 | ▲ $315,715 |
| Total Liabilities and Net Assets / Fund Balance | $1,306,327 | $1,681,948 | ▲ $375,621 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Securities | $898,010 | - | - |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Dorothy J Poppe | Executive Di | FT | $159,988 | $15,789 | $175,777 |
| Dorothy J Poppe | Executive Director | - | $159,988 | $15,789 | $175,777 |
| Name | Title |
|---|---|
| James Rains | Chair |
| Paul J Farrell | Chair Emerit |
| Lory Watson | Vice Chair |
| Amanda Harris | Director |
| Cameron Kim Dawson | Director |
| Marina C White | Director |
| Cody Laird | Trustee |
| Craig Libson | Trustee |
| Dominic J Marino Dvm | Trustee |
| Katherine Clay | Trustee |
| Michael N Mikula | Trustee |
| Robert Jones Black | Trustee |
| Robert Walker Westbrook | Trustee |
| Tygh Wyckoff Md | Trustee |
| Tyler Guettler | Trustee |
| Pam Fenner | Secretary |
| Catherine Loughin Dvm | Treasurer |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Securities Publicly Traded | 1 | $29,987 | Fair Market Value (FMV) |
| Total Noncash Contributions | 1 | $29,987 | - |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $562,065 |
| Other Expenses | $354,193 |
| Total Fundraising Expense | $155,736 |
| Grants and Similar Amounts Paid | $1,161 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $308,807 | $43,846 | $96,186 | $448,839 |
| Other Employee Benefits | $39,206 | $7,464 | $12,212 | $58,882 |
| Payroll Taxes | $24,066 | $3,335 | $7,315 | $34,716 |
| Fees for Services Accounting | $8,150 | $13,000 | $8,150 | $29,300 |
| Office Expenses | $6,503 | $11,895 | $9,010 | $27,408 |
| Pension Plan Contributions | - | $19,628 | - | $19,628 |
| Information Technology | $8,159 | $1,756 | $5,734 | $15,649 |
| Travel | $9,219 | $85 | $1,460 | $10,764 |
| Insurance | - | $2,257 | $5,836 | $8,093 |
| Occupancy | - | $7,991 | - | $7,991 |
| Fees for Services Legal | - | $3,950 | - | $3,950 |
| Other Expenses | $2,033 | $1,181 | $842 | $2,875 |
| Grants to Domestic Orgs | $1,161 | - | - | $1,161 |
| Interest | - | - | $91 | $91 |
| Total Functional Expenses | $645,295 | $116,388 | $155,736 | $917,419 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $1,297,817 |
| Expenses per Audited Statements | $917,419 |
| Total Expenses per Form 990 | $917,419 |
| Expenses Not Reported on Form 990 | $380,398 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $320,880 |
| Fundraising Gross Income | $204,029 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Bobby Jones Gol | $209,255 | $88,898 | $136,295 | $-47,397 |
| Unite at Night | $707,484 | $16,366 | $69,770 | $-53,404 |
| Total Events | $1,176,188 | $204,029 | $320,880 | $-116,851 |
“Michael n. Mikula lory watson trustee vice chair father-daughter robert walker westbrook katherine reid clay trustee trustee cousins cody laird jones family trustee trustees in-law”
“Sent to the board of directors and officers of the board of trustees.”
“Board members sign a document stating that they recieved thepolicy, read and understand it, and agree to comply.”
“Compensation for executive director is reviewed and approvedby members of the board.”
“Compensation for officers and key employees is reviewed andapproved by board.”
“Maine, michigan, minnesota, mississippi, north carolina, new hampshire, new jersey, new mexico, new york, ohio, oklahoma, oregon, pennsylvania, rhode island, south carolina, tennessee, virginia, washington, wisconsin, west virginia”
“No documents available to the public”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 5891 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 65797 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | TO ADVANCE KNOWLEDEGE THROUGH RESEARCH AND TO EDUCATE THE MEDICAL, ALLIED SCIENCES AND LAY COMMUNITY ABOUT CHIARI MALFORMATION,SYRINGOMYELIA AND RELATED DISORDERS. |
| IRS990/AllOtherContributionsAmt | 0 | 249426 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | false |
| IRS990/BackupWthldComplianceInd | 0 | false |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | DOROTHY J POPPE |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 7189662593 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 29 CREST LOOP |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | STATEN ISLAND |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 10312 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 309875 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 730595 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 972159 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1221585 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 1161 |
| IRS990/CYInvestmentIncomeAmt | 0 | 48456 |
| IRS990/CYOtherExpensesAmt | 0 | 354193 |
| IRS990/CYOtherRevenueAmt | 0 | -116851 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 235771 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 562065 |
| IRS990/CYTotalExpensesAmt | 0 | 917419 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 155736 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1153190 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | true |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | THIS CONSISTS OF VARIOUS FUNDRAISING EVENTS IN WHICH DONATIONS WERE RAISED FOR FUTURE RESEARCH AND AWARENESS. THESE EVENTS CONSISTED OF EDUCATING ON CHIARI MALFORMATION, SYRINGOMYELIA AND RELATED DISORDERS THROUGH MEDIA, PRESENTATIONS AND VARIOUS EXPERT SPEAKERS. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | true |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 25000 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 5 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 645295 |
| IRS990/FamilyOrBusinessRlnInd | 0 | true |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 8150 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 13000 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 8150 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 29300 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 3950 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 3950 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 7.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 7.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 16 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 17 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 14 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 15 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 16 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 17 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 15789 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | DOROTHY J POPPE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | ROBERT JONES BLACK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | KATHERINE CLAY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | CATHERINE LOUGHIN DVM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | DOMINIC J MARINO DVM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | CAMERON KIM DAWSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | PAUL J FARRELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | PAM FENNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | TYLER GUETTLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | AMANDA HARRIS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | CODY LAIRD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | CRAIG LIBSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | TYGH WYCKOFF MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | MICHAEL N MIKULA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | JAMES RAINS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | LORY WATSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | ROBERT WALKER WESTBROOK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | MARINA C WHITE |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 159988 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | EXECUTIVE DI |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | CHAIR EMERIT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | VICE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | TRUSTEE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2007 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 972159 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 320880 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 204029 |
| IRS990/GainOrLossGrp/OtherAmt | 0 | 27385 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 1917 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 9 |
| IRS990/GrantAmt | 0 | 1161 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 1161 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 1161 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossAmountSalesAssetsGrp/OtherAmt | 0 | 27385 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 199187 |
| IRS990/GrossReceiptsAmt | 0 | 1671340 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 9 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 5734 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 1756 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 8159 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 15649 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 5836 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 2257 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 8093 |
| IRS990/IntangibleAssetsGrp/BOYAmt | 0 | 1212 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 1212 |
| IRS990/InterestGrp/FundraisingAmt | 0 | 91 |
| IRS990/InterestGrp/TotalAmt | 0 | 91 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 19154 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 19154 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt | 0 | 942444 |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 898010 |
| IRS990/IRPDocumentCnt | 0 | 9 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 197270 |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | true |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | TO ADVANCE KNOWLEDEGE THROUGH RESEARCH AND TO EDUCATE THE MEDICAL, ALLIED SCIENCES AND LAY COMMUNITY ABOUT CHIARI MALFORMATION,SYRINGOMYELIA AND RELATED DISORDERS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1300436 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1616151 |
| IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt | 0 | 29302 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 29302 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -116851 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 79944 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1275436 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1616151 |
| IRS990/NoncashContributionsAmt | 0 | 29987 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 7991 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 7991 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 9010 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 11895 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 6503 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 27408 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 12212 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 7464 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 39206 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 58882 |
| IRS990/OtherExpensesGrp/Desc | 0 | RESEARCH EXPENSES |
| IRS990/OtherExpensesGrp/Desc | 1 | RMM EXPENSES |
| IRS990/OtherExpensesGrp/Desc | 2 | CREDIT CARD FEES |
| IRS990/OtherExpensesGrp/Desc | 3 | MEALS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 8900 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 842 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1181 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 161841 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 67250 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 8900 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 2033 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 161841 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 67250 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 18981 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 2875 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 96186 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 43846 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 308807 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 448839 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 7315 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 3335 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 24066 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 34716 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 19628 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 19628 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 23257 |
| IRS990/PoliciesReferenceChaptersInd | 0 | true |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 6716 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 7704 |
| IRS990/PrincipalOfficerNm | 0 | DOROTHY J POPPE |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 950491 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYInvestmentIncomeAmt | 0 | 31977 |
| IRS990/PYOtherExpensesAmt | 0 | 310843 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 135953 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 535672 |
| IRS990/PYTotalExpensesAmt | 0 | 846515 |
| IRS990/PYTotalRevenueAmt | 0 | 982468 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 235771 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | true |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 18110 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 46080 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 21170 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 1221585 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 432428 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 344310 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 300053 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 430374 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 2728750 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 128400 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 26940 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 19308 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 11119 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 61187 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 246954 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearAmt | 0 | 832418 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus1YearAmt | 0 | 475594 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus2YearsAmt | 0 | 473363 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus3YearsAmt | 0 | 458035 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus4YearsAmt | 0 | 306442 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 2545852 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 128400 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 26940 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 19308 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 11119 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 61187 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 246954 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.04000 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.04000 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.95530 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.96100 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 5274602 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 2054003 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 908022 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 817673 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 758088 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 736816 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 5274602 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 2182403 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 934962 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 836981 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 769207 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 798003 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 5521556 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/DisclosedForCharitablePrpsInd | 0 | true |
| IRS990ScheduleD/DisclosedOrgLegCtrlInd | 0 | true |
| IRS990ScheduleD/DonatedServicesAndUseFcltsAmt | 0 | 380398 |
| IRS990ScheduleD/DonatedServicesUseFcltsAmt | 0 | 380398 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 380398 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 917419 |
| IRS990ScheduleD/OtherSecuritiesGrp/BookValueAmt | 0 | 898010 |
| IRS990ScheduleD/OtherSecuritiesGrp/Desc | 0 | GOLDMAN SACHS INVESTMENT ACCOUNT |
| IRS990ScheduleD/OtherSecuritiesGrp/MethodValuationCd | 0 | F |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 380398 |
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