Civic Intelligence

United Mitochondrial Disease Foundation

EIN 25-1767180 • 501(c)3 • Pittsburgh, PA

Profile

To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

8085 Saltsburg Road 201Pittsburgh, PA 15239

www.umdf.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

71st percentile

0.34x

Higher debt load relative to assets than 71% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

78th percentile

0.59x

Higher debt load relative to revenue than 78% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Net Margin

10th percentile

-26%

Higher net margin than 10% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

81st percentile

$239,932

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 6.5% of source-year revenue.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Asset Growth

12th percentile

-11%

Faster asset growth than 12% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Revenue Growth

10th percentile

-30%

Faster revenue growth than 10% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets71st percentile

Assets

Down

$6,427,384

Down $777,205 (-11%) from 2023

Liabilities

Down

$2,190,202

Down $155,954 (-6.6%) from 2023

Net Assets

Down

$4,237,182

Down $621,251 (-13%) from 2023

Operations
Liabilities / Revenue78th percentileNet Margin10th percentile

Revenue

Down

$3,685,049

Down $1,611,744 (-30%) from 2023

Expenses

Up

$4,660,117

Up $958,666 (+26%) from 2023

Net Income

Down

-$975,068

Down $2,570,410 (-161%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth12th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $1,580,989Liabilities 2010: $1,190,017Net Assets 2010: $390,9722010Assets 2012: $2,187,472Liabilities 2012: $1,324,958Net Assets 2012: $862,5142012Assets 2013: $2,526,960Liabilities 2013: $1,539,028Net Assets 2013: $987,9322013Assets 2014: $2,932,225Liabilities 2014: $1,514,571Net Assets 2014: $1,417,6542014Assets 2015: $3,119,637Liabilities 2015: $1,620,593Net Assets 2015: $1,499,0442015Assets 2016: $3,489,076Liabilities 2016: $2,049,863Net Assets 2016: $1,439,2132016Assets 2017: $3,593,962Liabilities 2017: $1,964,869Net Assets 2017: $1,629,0932017Assets 2018: $3,647,852Liabilities 2018: $1,392,248Net Assets 2018: $2,255,6042018Assets 2019: $4,395,321Liabilities 2019: $1,654,733Net Assets 2019: $2,740,5882019Assets 2020: $4,694,980Liabilities 2020: $2,101,722Net Assets 2020: $2,593,2582020Assets 2021: $5,488,767Liabilities 2021: $2,069,331Net Assets 2021: $3,419,4362021Assets 2022: $5,075,622Liabilities 2022: $2,009,088Net Assets 2022: $3,066,5342022Assets 2023: $7,204,589Liabilities 2023: $2,346,156Net Assets 2023: $4,858,4332023Assets 2024: $6,427,384Liabilities 2024: $2,190,202Net Assets 2024: $4,237,1822024

Highlighted filing

2024

Assets$6,427,384
Liabilities$2,190,202
Net Assets$4,237,182
Open 2024 Filing

Operations Trend

Revenue Growth10th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2010: $2,073,4722010Expenses 2012: $2,466,3022012Expenses 2013: $2,868,1132013Revenue 2014: $3,015,687Expenses 2014: $2,709,006Net Income 2014: $306,6812014Revenue 2015: $3,217,568Expenses 2015: $3,112,993Net Income 2015: $104,5752015Revenue 2016: $3,329,597Expenses 2016: $3,304,005Net Income 2016: $25,5922016Revenue 2017: $3,487,840Expenses 2017: $3,387,167Net Income 2017: $100,6732017Revenue 2018: $3,227,502Expenses 2018: $2,652,219Net Income 2018: $575,2832018Revenue 2019: $3,546,866Expenses 2019: $3,127,050Net Income 2019: $419,8162019Revenue 2020: $2,789,883Expenses 2020: $2,981,524Net Income 2020: -$191,6412020Revenue 2021: $3,021,406Expenses 2021: $2,704,378Net Income 2021: $317,0282021Revenue 2022: $3,572,403Expenses 2022: $3,198,117Net Income 2022: $374,2862022Revenue 2023: $5,296,793Expenses 2023: $3,701,451Net Income 2023: $1,595,3422023Revenue 2024: $3,685,049Expenses 2024: $4,660,117Net Income 2024: -$975,0682024

Highlighted filing

2024

Revenue$3,685,049
Expenses$4,660,117
Net Income-$975,068
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$6,427,384
Liabilities
$2,190,202
Net assets
$4,237,182
Revenue
$3,685,049
Expenses
$4,660,117
Net income
-$975,068
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$6.43$2.19$4.24$3.69$4.66$0.98
2023Detailed filing. Detailed filing data is available for this year.$7.20$2.35$4.86$5.30$3.70$1.60
2022Detailed filing. Detailed filing data is available for this year.$5.08$2.01$3.07$3.57$3.20$0.37
2021Detailed filing. Detailed filing data is available for this year.$5.49$2.07$3.42$3.02$2.70$0.32
2020Detailed filing. Detailed filing data is available for this year.$4.69$2.10$2.59$2.79$2.98$0.19
2019Detailed filing. Detailed filing data is available for this year.$4.40$1.65$2.74$3.55$3.13$0.42
2018Detailed filing. Detailed filing data is available for this year.$3.65$1.39$2.26$3.23$2.65$0.58
2017Detailed filing. Detailed filing data is available for this year.$3.59$1.96$1.63$3.49$3.39$0.10
2016Detailed filing. Detailed filing data is available for this year.$3.49$2.05$1.44$3.33$3.30$0.03
2015Detailed filing. Detailed filing data is available for this year.$3.12$1.62$1.50$3.22$3.11$0.10
2014Detailed filing. Detailed filing data is available for this year.$2.93$1.51$1.42$3.02$2.71$0.31
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.53$1.54$0.99$2.87
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.19$1.32$0.86$2.47
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.58$1.19$0.39$2.07
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jul 1, 2023 to Jun 30, 2024
Signed
May 13, 2025
Return Version
2023v6.0
Gross Receipts
$5,023,540
Mission and Program Overview

Mission

To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

Promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$3,096,730$4,398,007▲ $1,301,277
Pledges and Grants Receivable$1,440,206$598,320▼ $841,886
Other Notes and Loans Receivable, Net-$500,000-
Cash and Non-Interest-Bearing Accounts$488,240$368,255▼ $119,985
Savings and Temporary Cash Investments$1,850,695$343,467▼ $1,507,228
Prepaid Expenses and Deferred Charges$85,106$110,667▲ $25,561
Investments Other Securities$107,118$107,118→ $0
Accounts Receivable$136,494$1,550▼ $134,944
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$7,204,589$6,427,384▼ $777,205
Liabilities
Grants Payable$1,557,580$1,488,807▼ $68,773
Accounts Payable and Accrued Expenses$788,576$626,577▼ $161,999
Deferred Revenue-$74,818-
Total Liabilities$2,346,156$2,190,202▼ $155,954
Net Assets / Fund Balance
Net Assets With Donor Restrictions$2,747,298$2,757,106▲ $9,808
Net Assets Without Donor Restrictions$2,111,135$1,480,076▼ $631,059
Total Net Assets Fund Balance$4,858,433$4,237,182▼ $621,251
Total Liabilities and Net Assets / Fund Balance$7,204,589$6,427,384▼ $777,205
Compensation and Service Providers
Top Officer Pay81st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Brian T HarmanPresident & CEOFT$208,566$31,366$239,932
Philip E Yeske PhDScience & Alliance OfficerFT$150,551$27,109$177,660
Beth WhitehouseFormer Director of Development (Terminated 5/21/24FT$137,157$22,713$159,870
Beth WhitehouseFormer Director of Development (Term-$137,157$22,713$159,870
Mark S CampbellChief Financial OfficerFT$118,029$14,115$132,144

Board Members and Trustees

NameTitle
Alicia M Palladino EsqChair , Board of Trustees
Amel Karaa MDSMAB Chair
William Kallaos JrVice Chair Board of Truste
Alan BreslowBoard of Trustees
Annette M St Pierre-Mackoul MDBoard of Trustees
Erica WilliamsBoard of Trustees
Jana StoudemireBoard of Trustees
Richard LeachBoard of Trustees
Michael FriedbergTrustee-at-Large
Shari Lopez AlbertsonSecretary
Todd LaceyTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,903,291
Program Service Revenue
$486,328
Investment Income
$121,594
Other Revenue
$173,836
All Other Contributions
$2,131,847
Change in Net Assets
$-975,068

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,665,746
Revenue Not Reported on Financial Statements
$19,303
Revenue Not Reported on Form 990
$662,741
Total Revenue per Audited Statements
$4,328,487
Total Revenue per Form 990
$3,685,049
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$2,040,455
Grants and Similar Amounts Paid$1,665,902
Other Expenses$953,760
Total Fundraising Expense$767,770
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,399,547--$1,399,547
Other Salaries and Wages$583,874$132,762$385,681$1,102,317
Conferences and Meetings$506,904$13,638-$520,542
Current Officers, Directors, Trustees, and Key Employees$262,866$59,771$173,637$496,274
Other Employee Benefits$256,784-$60,935$317,719
Foreign Grants$205,000--$205,000
Advertising$132,263$2,384$44,554$179,201
Payroll Taxes$95,441-$28,704$124,145
Office Expenses$24,545$11,510$29,046$65,101
Grants to Domestic Individuals$61,355--$61,355
Travel$9,019$3,171$12,294$24,484
Information Technology$21,870--$21,870
Fees for Service Investment Mgmnt Fees-$19,303-$19,303
Fees for Services Accounting$3,256$13,629$1,628$18,513
Insurance$6,744$3,373$3,372$13,489
Occupancy$5,123$2,561$2,562$10,246
Other Expenses$2,331$1,458$1,165$1,458
Total Functional Expenses$3,603,433$288,914$767,770$4,660,117

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$4,949,738
Total Expenses per Form 990$4,660,117
Expenses per Audited Statements$4,640,814
Expenses Not Reported on Form 990$308,924
Expenses Not Reported on Financial Statements$19,303
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The Childrens Hospital of PhiladelphiaPhiladelphia, PA501(c)(3)Research$821,627
LabcorpDurham, NC-Research$198,150
AIWA Health Inc dba Probably Genetic IncSan Francisco, CA-Research$105,000
Columbia UniversityNew York, NY-Research & Patient Registry$73,000
Perlara PBCBerkeley, CA501(c)(3)Research$71,250
Childrens Hospital of Los AngelesLos Angeles, CA501(c)(3)Research$35,000
Across HealthcareCarrollton, GA501(c)(3)Patient Registry$26,400
University of Texas Health Science Center at HoustonHouston, TX-Research$19,750

International Summary

Offices
0
Employees
0
Spending
$205,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (Including Iceland & Greenland)Program Services - Research GrantsResearch Grants00$200,000
East Asia and the PacificProgram Services - Research GrantsResearch Grants00$5,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$482,760
Fundraising Direct Expenses$308,924
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
EFL Walk - Seattle$52,748$52,748$1,765$50,983
EFL Walk - Chicago$49,793$49,793$4,005$45,788
Total Events$1,250,081$482,760$308,924$173,836
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
William KallaosVice-Chairman Board of TrusteesPledge ReceivableNo$500,000
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, line 11B

“The 990 is shared with the Board of Trustees.”

Form 990, Part VI, Section B, line 15

“The Executive Committe of the Board of Trustees is responsible for determining the Executive Director's and Key Employees compensation and benefits.”

Form 990, Part VI, Section C, line 19

“The organization's governing documents and conflict of interest policy are made available to the public upon request. The organization's financial statements are made available to the public through the organization's website.”

Filing and Contact Details

Filer

Filer Name
United Mitochondrial Disease Foundation
EIN
25-1767180
Phone
4127938077
Address
8085 Saltsburg Road 201, Pittsburgh, PA 15239

Signing Officer

Name
Kristen Clifford
Title
President & CEO
Phone
4127938077
Signed
2025-05-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kristen Clifford
Formed
1995
Legal Domicile
Pa
Voting Board Members
11
Independent Board Members
11
Employees
20
Volunteers
856

Preparer

Firm
Stelmack Dobransky & Eannace LLC
Address
3328 Washington Road, McMurray, PA 15317-3005
Preparer
Vincent M Eannace CPA
Phone
7242600900
Supplemental Narrative

Additional Explanations

Form 990, Part XI, Line 2C

“The Executive and Finance Committees review and have responsibility for oversight of the audit.”

Financial Statement Notes

Part XI, Line 2D - Other Adjustments:

“Fundraising expenses 308,924.”

Part XII, Line 2D - Other Adjustments:

“Fundraising Expenses 308,924.”

Raw XML AppendixShowing 400 of 765 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm11Brian T Harman
IRS990/Form990PartVIISectionAGrp/PersonNm12Mark S Campbell
IRS990/Form990PartVIISectionAGrp/PersonNm13Philip E Yeske PhD
IRS990/Form990PartVIISectionAGrp/PersonNm14Beth Whitehouse
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IRS990/Form990PartVIISectionAGrp/TitleTxt0Chair , Board of Trustees
IRS990/Form990PartVIISectionAGrp/TitleTxt1Vice Chair Board of Truste
IRS990/Form990PartVIISectionAGrp/TitleTxt2Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt3Trustee-at-Large
IRS990/Form990PartVIISectionAGrp/TitleTxt4Board of Trustees
IRS990/Form990PartVIISectionAGrp/TitleTxt5Board of Trustees
IRS990/Form990PartVIISectionAGrp/TitleTxt6Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt7Board of Trustees
IRS990/Form990PartVIISectionAGrp/TitleTxt8Board of Trustees
IRS990/Form990PartVIISectionAGrp/TitleTxt9SMAB Chair
IRS990/Form990PartVIISectionAGrp/TitleTxt10Board of Trustees
IRS990/Form990PartVIISectionAGrp/TitleTxt11President & CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt12Chief Financial Officer
IRS990/Form990PartVIISectionAGrp/TitleTxt13Science & Alliance Officer
IRS990/Form990PartVIISectionAGrp/TitleTxt14Former Director of Development (Terminated 5/21/24
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