Civic Intelligence

Hemophilia of South Carolina

990 • Fiscal year 2024 • EIN 23-7400632

Jan 01, 2024 to Dec 31, 2024 • Filed on Apr 30, 2025

Organization Profilehemophiliasc.org
25 Woods Lake Rd 300Greenville, SC 29607

(864) 350-9941

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

40th percentile

0.00x

Higher debt load relative to assets than 40% of similar nonprofits.

2024 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

39th percentile

0.00x

Higher debt load relative to revenue than 39% of similar nonprofits.

2024 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

80th percentile

29%

Higher net margin than 80% of similar nonprofits.

2024 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

79th percentile

$78,923

Higher top officer pay than 79% of similar nonprofits.

Top officer pay equals 13.2% of source-year revenue.

2024 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2024

Asset Growth

87th percentile

45%

Faster asset growth than 87% of similar nonprofits.

2024 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

81st percentile

49%

Faster revenue growth than 81% of similar nonprofits.

2024 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets40th percentile

Assets

Up

$561,157

Up $174,680 (+45%) from 2023

Net Assets

Up

$559,237

Up $175,797 (+46%) from 2023

Liabilities

Down

$1,920

Down $1,117 (-37%) from 2023

Revenue And Expenses
Liabilities / Revenue39th percentileNet Margin80th percentile

Revenue

Up

$596,773

Up $195,616 (+49%) from 2023

Expenses

Down

$420,976

Down $29,893 (-6.6%) from 2023

Net Income

Up

$175,797

Up $225,509 (+454%) from 2023

Historical Trend

Balance Sheet Trend

Asset Growth87th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2013: $35,166Liabilities 2013: $0Net Assets 2013: $35,1662013Assets 2014: $76,251Liabilities 2014: $0Net Assets 2014: $76,2512014Assets 2016: $184,966Liabilities 2016: $2,002Net Assets 2016: $182,9642016Assets 2017: $190,768Liabilities 2017: $1,148Net Assets 2017: $189,6202017Assets 2018: $227,985Liabilities 2018: $1,083Net Assets 2018: $226,9022018Assets 2019: $268,810Liabilities 2019: $1,059Net Assets 2019: $267,7512019Assets 2020: $400,871Liabilities 2020: $15,835Net Assets 2020: $385,0362020Assets 2021: $443,317Liabilities 2021: $3,411Net Assets 2021: $439,9062021Assets 2022: $435,698Liabilities 2022: $2,546Net Assets 2022: $433,1522022Assets 2023: $386,477Liabilities 2023: $3,037Net Assets 2023: $383,4402023Assets 2024: $561,157Liabilities 2024: $1,920Net Assets 2024: $559,2372024

Highlighted filing

2024

Assets$561,157
Liabilities$1,920
Net Assets$559,237
Open 2024 Filing

Operations Trend

Revenue Growth81st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2013: $66,340Expenses 2013: $75,931Net Income 2013: -$9,5912013Revenue 2014: $112,525Expenses 2014: $71,440Net Income 2014: $41,0852014Revenue 2016: $243,691Expenses 2016: $196,683Net Income 2016: $47,0082016Revenue 2017: $231,137Expenses 2017: $224,481Net Income 2017: $6,6562017Revenue 2018: $284,308Expenses 2018: $247,026Net Income 2018: $37,2822018Revenue 2019: $331,349Expenses 2019: $290,500Net Income 2019: $40,8492019Revenue 2020: $339,268Expenses 2020: $221,983Net Income 2020: $117,2852020Revenue 2021: $329,889Expenses 2021: $275,019Net Income 2021: $54,8702021Revenue 2022: $370,179Expenses 2022: $376,933Net Income 2022: -$6,7542022Revenue 2023: $401,157Expenses 2023: $450,869Net Income 2023: -$49,7122023Revenue 2024: $596,773Expenses 2024: $420,976Net Income 2024: $175,7972024

Highlighted filing

2024

Revenue$596,773
Expenses$420,976
Net Income$175,797
Open 2024 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Apr 30, 2025
Return Version
2024v5.1
Gross Receipts
$660,553
Mission and Program Overview

Mission

To promote awareness of bleeding disorders to the general public provide education and support to persons affected and their familes and to support the ongoing research of the national hemophilia foundation

To raise awareness for and advocate on behalf of persons with bleeding disorders and their families provide education and supportive services and promote ongoing research to improve the quality of life for those affected.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$318,020$504,282▲ $186,262
Cash and Non-Interest-Bearing Accounts$67,644$56,062▼ $11,582
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$386,477$561,157▲ $174,680
Other Assets Total$813$813→ $0
Liabilities
Other Liabilities$3,037$1,920▼ $1,117
Total Liabilities$3,037$1,920▼ $1,117
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$383,440$559,237▲ $175,797
Total Net Assets Fund Balance$383,440$559,237▲ $175,797
Total Liabilities and Net Assets / Fund Balance$386,477$561,157▲ $174,680

Asset Categories

AssetBook ValueDepreciationBasis
Equipment-$2,320$2,320
Compensation and Service Providers
Top Officer Pay79th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Suzanne MartinDirectorFT$78,923$78,923

Board Members and Trustees

NameTitle
Aaron SmithPresident
Edna RabbVice President
Candi MitchemDirector
Christine EvansDirector
Eric TownsendDirector
James WhitmireDirector
Shelley CrispDirector
Susie MaloyDirector
Taylor UptonDirector
Cristal DaySecretary
Joey KarkowiakTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$514,825
Program Service Revenue
$13,550
Investment Income
$15,492
Other Revenue
$52,906
All Other Contributions
$514,825
Change in Net Assets
$175,797
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$310,009
Salaries, Compensation, and Employee Benefits$84,961
Grants and Similar Amounts Paid$26,006
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$277,088--$277,088
Current Officers, Directors, Trustees, and Key Employees$63,230$15,693-$78,923
Grants to Domestic Individuals$26,006--$26,006
Occupancy-$12,965-$12,965
Office Expenses-$12,910-$12,910
Payroll Taxes$4,838$1,200-$6,038
Fees for Services Accounting-$4,613-$4,613
Insurance-$2,433-$2,433
Total Functional Expenses$371,162$49,814$0$420,976
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$116,686
Fundraising Direct Expenses$63,780
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Golf Fundraiser$64,937$64,937$18,372$46,565
Walk Fundraiser$51,749$51,749$18,908$32,841
Total Events$116,686$116,686$63,780$52,906
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Payroll Taxes$1,920
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Once the form 990 is completed, it is presnted at the first scheduled board meeting for all board members to revirw and approve”

Form 990, Part VI, Section B, Line 15A

“The board of directors determines executive director compenstion based on comparable compensation paid for similiar positions at other state hemophilia chapters”

Form 990, Part VI, Section C, Line 19

“Bleeding disorders association of south carolina maintains a web site whereby most relevant documents are available to the general public. Interested parties may contact the chapter and request other documents as appropriate. Contact numbers and addresses are posted on the web site.”

Filing and Contact Details

Filer

Filer Name
Bleeding Disorders Association
EIN
23-7400632
Phone
8643509941
Address
25 Woods Lake Rd 300, Greenville, SC 29607

Signing Officer

Name
Sue Martin
Title
Director
Signed
2025-04-30

Organization Details

Principal Officer
Sue Martin
Formed
1998
Legal Domicile
Sc
Voting Board Members
12
Independent Board Members
0
Employees
0

Preparer

Firm
Lane Financial Services
Address
8 Glencove Ct, Simpsonville, SC 29681
Preparer
James Lane
Phone
8643466157
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IRS990/ProgSrvcAccomActy2Grp/Desc0BDASC Advocacy/Legislative Days in Columbia Our annual Advocacy and Legislative Days event in Columbia was attended by approximately 75 individuals, including community members living with bleeding disorders, healthcare providers, local and national partner organizations, representatives from the South Carolina Department of Health and Environmental Control, Children with Special Health Care Needs, and our valued industry partners. The event provided critical advocacy awareness and training for attendees, helping to build understanding of current healthcare access initiatives supported by the Chapter. It also served as a platform to voice community concerns and to educate elected officials about the real-life challenges of living with bleeding disorders. Informational materials and resources were distributed to state agencies and government representatives to strengthen their understanding and support of our cause.
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IRS990/ProgSrvcAccomActy3Grp/Desc0Rural Outreach Support Programming: The Voices of 46 In 2024, BDASC conducted over 60 in-person educational outreach programs across South Carolina, reaching communities in the Upstate, Midlands, and Lowcountry regions. These efforts reduced the need for long-distance travel and ensured that families living in rural and underserved areas had access to critical information and support. Program topics included scholarship and camp opportunities, insurance navigation, healthcare policy updates, school and employment resources, and advocacy training. Through this extensive outreach, we were able to provide educational and networking support to hundreds of families throughout the state. As part of our commitment to awareness, BDASC led efforts during National Bleeding Disorders Awareness Month in March, securing seven proclamations from state, county, and city officials to recognize and elevate the visibility of bleeding disorders across South Carolina. In addition to these efforts, we launched a statewide initiative to proclaim special days of awareness specifically honoring our Von Willebrand Disease (VWD) and rare bleeding disorder communitiesensuring their unique challenges and needs received the recognition they deserve.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0Mens, Womens, Young Families, VWD, and Rare Support Groups BDASC facilitated 16 targeted support group activities throughout the state, engaging individuals from various regions and diverse bleeding disorder communities, including those with Von Willebrand Disease (VWD) and rare bleeding disorders. These programs served men, women, young families, teens, and children, offering both educational content and emotional support. Each gathering was designed to foster empowerment, build lasting friendships, and provide a space where individuals could share experiences, learn from one another, and navigate the challenges of living with a bleeding disorder together.
IRS990/ProgSrvcAccomActyOtherGrp/Desc1Family Educational / Health Equity Summit This three-day weekend event was available to individuals and families free of charge with direct and immediate family members who either have a bleeding disorder, are carriers of a bleeding disorder or have an immediate family member affected. It was hosted in the upstate to provide educational and supportive services, including advocacy training and awareness to our community members throughout the state. Education, supportive services, and family connections with community members was an optimum outcome of this weekend event. This year, we support a health equity summit within the event to address health inequities within the South Carolina Bleeding Disorders Community. Attendees included 38 families, approximately 165 participants, speakers, and guests. We provided an educational and networking component specifically designed for families with children ages 0-6, 7-12, and our teens 13-18. We also provided simultaneously an adult educational track for our childless adults. Exhibiting of treatment therapies and services was available throughout the event. We provided multiple sessions throughout the weekend with national educators on varies bleeding disorders issues addressing their needs to include insurance education, school and healthcare self-advocacy, treatment, research, local and national healthcare public policies updates and other related educational and health equity needs. This event was free of charge to all participants.
IRS990/ProgSrvcAccomActyOtherGrp/Desc2Newsletter, Website, and E-Blasts BDASC maintained strong and consistent communication with our community through a variety of digital and print channels. Our quarterly newsletter featured updates on Chapter activities, national news, treatment product information, educational articles, and member highlightsserving as a vital resource for staying connected and informed. Our website continues to be a central hub of support and education, offering resources for individuals and families affected by bleeding disorders. In addition, we distributed weekly e-blasts to over 2,000 subscribers nationwide, sharing timely updates on events, advocacy efforts, research, and educational opportunities.
IRS990/ProgSrvcAccomActyOtherGrp/Desc3Winter Year-End State Meeting and Holiday Celebration Our Winter Year-End State Meeting and Holiday Celebration welcomed over 145 participantsincluding adults, children, and teensfor a day of reflection, celebration, and education. This one-day event served as the Chapters final community gathering of the year, highlighting BDASCs accomplishments and program impacts. In addition to festive holiday activities for all ages, the event featured an educational session focused on strengthening advocacy skills, empowering attendees to continue engaging in the community and with policymakers throughout the year.
IRS990/ProgSrvcAccomActyOtherGrp/Desc4The Carolina Crew North and South Carolina Teen Retreat The Carolina Crew Teen Retreat brought together 30 teens, ages 1318, from across North and South Carolina for a four-day weekend dedicated to growth, connection, and empowerment. Open to teens living with a bleeding disorder, as well as those with an affected sibling or parent, the retreat offered a supportive environment to foster friendships, independence, and resilience. Participants took part in a variety of educational sessions and outdoor team-building activities, helping to strengthen peer relationships and develop a reliable support network. A key focus of the retreat was encouraging teens to advocate for themselvesparticularly during the challenging transition to adulthood. A special session was held to build self-advocacy skills, while mentorship opportunities provided guidance and reassurance in navigating life with a bleeding disorder.
IRS990/ProgSrvcAccomActyOtherGrp/Desc5Washington Days In March, BDASC proudly represented South Carolina at the national Washington Days advocacy event in Washington, D.C. Alongside over 445 advocates from across the country, our delegation engaged in seven meetings with U.S. Congressional offices to discuss continued access to care and treatment for those affected by bleeding disorders. We provided financial assistance to fourteen community members, empowering them to participate in federal-level advocacy and to share their personal stories with lawmakers.
IRS990/ProgSrvcAccomActyOtherGrp/Desc6National Annual Meeting Education and Research Support As an active chapter of the National Bleeding Disorders Foundation and a member of the Hemophilia Federation of America, we strongly encourage participation in national events. This year, we provided financial support to eight individuals and their families to attend these important national meetings. In addition, we contributed to bleeding disorder research initiatives and supported global efforts through funding provided to the World Hemophilia Foundation. These efforts ensure our community stays informed and engaged with the latest advancements and global perspectives in care and advocacy.
IRS990/ProgSrvcAccomActyOtherGrp/Desc7BDASC Chapter Day at Camps The Bleeding Disorders Association of South Carolina partnered with the South Carolina Hemophilia Treatment Centers and the State Department of Health and Environmental Control to host special Chapter Days at summer camps across the state. These events were designed to support children living with bleeding disorders who are patients of Prisma Health Midstate and Upstate. To ensure accessibility, BDASC provided travel assistance for families in need of transportation support. Each camper received a Chapter Camp Bag filled with fun and useful items, and all camp sessions featured a BDASC-sponsored Ice Cream Social. These special touches helped create a supportive and joyful environment for learning and connection. Camp experiences offered children the chance to build self-confidence and independence, with additional mentoring from BDASC volunteers to reinforce positive self-help and life skills. Our involvement also extended to Camp Courage and the Brave Blood family camp hosted by Prisma Health Upstate HTC in Greenville, ensuring continuity of support and encouragement across all regional programs.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc9Emergency Assistance Program and Scholarships BDASC continued its commitment to supporting families and individuals impacted by bleeding disorders through our Emergency Assistance Program and Scholarship Fund. In 2024, we provided direct financial aid to 63 individuals and families, totaling over $26,000. This vital support helped community members facing unexpected financial hardship due to their medical condition. In addition, BDASC awarded four college scholarships to eligible students affected by bleeding disorders, helping them pursue higher education while managing the challenges of their condition. These initiatives reflect our dedication to improving quality of life and long-term success for our community.
IRS990/ProgSrvcAccomActyOtherGrp/Desc10Par for the Clot Charity Golf Awareness Fundraiser Now in its tenth year, our "Par for the Clot" golf tournament continues to grow as a successful fundraising and awareness initiative. With 175 participants, including volunteers and community members, the event raised vital funds to support BDASCs education programs, advocacy work, and contributions to national research. Beyond fundraising, this event served as an educational outreach effort, helping the broader public better understand the physical, emotional, and financial impact of a bleeding disorder diagnosis on individuals and families.
IRS990/ProgSrvcAccomActyOtherGrp/Desc11STEP for Bleeding Disorders Walk for Hemophilia and Bleeding Disorders Our annual STEP for Bleeding Disorders Walk is a key fundraiser and awareness campaign for BDASC. This community event drew over 200 participants from across South Carolina. More than just a walk, it encourages fitness and well-being among individuals with hemophilia and other bleeding disorders while educating the general public. Funds raised from the walk directly support our mission-driven programs and services, expanding our reach and deepening public understanding of bleeding disorders.
IRS990/ProgSrvcAccomActyOtherGrp/Desc12Virtual Innovation Program (VIP) In response to the COVID-19 pandemic, BDASC continued the Virtual Innovation Program (VIP), originally launched in 2020. The mission of VIP is to provide ongoing education, support services, and facilitate connections for our members using managed educational tools, such as iPads. Through the service of Mobile Device Management, we are able to deliver web clips, videos, apps, and URLs tailored to our communitys needs, along with Zoom virtual meeting capabilities. The program has been embraced by 82 families and individuals who have enrolled, offering a flexible, accessible way to stay engaged and informed. Given the success of this educational pilot, BDASC plans to continue the VIP, providing this valuable resource to additional members as funding allows for the acquisition of additional educational tools.
IRS990/ProgSrvcAccomActyOtherGrp/Desc13Annual Adult Connections Retreats and Symposiums In addition to educating families with children and teens, we hosted dedicated retreats for adults in our community. These weekend gatherings offered opportunities for networking, peer support, and education directly from individuals and families living with bleeding disorders. The event welcomed 80 adult participants and focused on topics such as mental health, relationships, men and women's health, and more. Attendees reported a strong sense of belonging and connection, reinforcing the core mission of our organization through community empowerment.
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Document Assets

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Filings

Displayed year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$561,157
Liabilities
$1,920
Net assets
$559,237
Revenue
$596,773
Expenses
$420,976
Net income
$175,797
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$5.61$0.02$5.59$5.97$4.21$1.76
2023Detailed filing. Detailed filing data is available for this year.$3.86$0.03$3.83$4.01$4.51$0.50
2022Detailed filing. Detailed filing data is available for this year.$4.36$0.03$4.33$3.70$3.77$0.07
2021Detailed filing. Detailed filing data is available for this year.$4.43$0.03$4.40$3.30$2.75$0.55
2020Detailed filing. Detailed filing data is available for this year.$4.01$0.16$3.85$3.39$2.22$1.17
2019Detailed filing. Detailed filing data is available for this year.$2.69$0.01$2.68$3.31$2.91$0.41
2018Detailed filing. Detailed filing data is available for this year.$2.28$0.01$2.27$2.84$2.47$0.37
2017Detailed filing. Detailed filing data is available for this year.$1.91$0.01$1.90$2.31$2.24$0.07
2016Detailed filing. Detailed filing data is available for this year.$1.85$0.02$1.83$2.44$1.97$0.47
2014Detailed filing. Detailed filing data is available for this year.$0.76$0.00$0.76$1.13$0.71$0.41
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.35$0.00$0.35$0.66$0.76$0.10
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