Civic Intelligence

Great Lakes Hemophilia Foundation Inc

EIN 23-7367636 • 501(c)3 • Elm Grove, WI

View Organization Page

Profile

To educate, support and advocate for the bleeding disorders community of wisconsin.

12700 W Bluemound Rd 130Elm Grove, WI 53122

www.glhf.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

67th percentile

0.20x

Higher debt load relative to assets than 67% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

79th percentile

0.42x

Higher debt load relative to revenue than 79% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

29th percentile

-4.7%

Higher net margin than 29% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

84th percentile

$159,761

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 10.8% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

82nd percentile

24%

Faster asset growth than 82% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

28th percentile

-5.2%

Faster revenue growth than 28% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets67th percentile

Assets

Up

$3,069,458

Up $602,825 (+24%) from 2023

Liabilities

Up

$620,128

Up $368,261 (+146%) from 2023

Net Assets

Up

$2,449,330

Up $234,564 (+11%) from 2023

Operations
Liabilities / Revenue79th percentileNet Margin29th percentile

Revenue

Down

$1,475,801

Down $81,732 (-5.2%) from 2023

Expenses

Up

$1,545,444

Up $12,820 (+0.8%) from 2023

Net Income

Down

-$69,643

Down $94,552 (-380%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth82nd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$4.0M$3.0M$2.0M$1.0M$0Assets 2010: $1,661,350Liabilities 2010: $351,889Net Assets 2010: $1,309,4612010Assets 2012: $1,864,671Liabilities 2012: $372,922Net Assets 2012: $1,491,7492012Assets 2013: $2,012,701Liabilities 2013: $409,103Net Assets 2013: $1,603,5982013Assets 2014: $2,007,954Liabilities 2014: $333,294Net Assets 2014: $1,674,6602014Assets 2015: $2,233,577Liabilities 2015: $387,721Net Assets 2015: $1,845,8562015Assets 2016: $2,259,752Liabilities 2016: $332,264Net Assets 2016: $1,927,4882016Assets 2017: $2,419,227Liabilities 2017: $332,122Net Assets 2017: $2,087,1052017Assets 2018: $2,390,204Liabilities 2018: $276,105Net Assets 2018: $2,114,0992018Assets 2019: $2,474,465Liabilities 2019: $313,880Net Assets 2019: $2,160,5852019Assets 2020: $2,570,807Liabilities 2020: $338,903Net Assets 2020: $2,231,9042020Assets 2021: $2,822,790Liabilities 2021: $389,600Net Assets 2021: $2,433,1902021Assets 2022: $2,295,264Liabilities 2022: $211,902Net Assets 2022: $2,083,3622022Assets 2023: $2,466,633Liabilities 2023: $251,867Net Assets 2023: $2,214,7662023Assets 2024: $3,069,458Liabilities 2024: $620,128Net Assets 2024: $2,449,3302024

Highlighted filing

2024

Assets$3,069,458
Liabilities$620,128
Net Assets$2,449,330
Open 2024 Filing

Operations Trend

Revenue Growth28th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KExpenses 2010: $1,589,2642010Expenses 2012: $1,272,4682012Expenses 2013: $1,348,8402013Revenue 2014: $1,417,326Expenses 2014: $1,388,283Net Income 2014: $29,0432014Revenue 2015: $1,560,859Expenses 2015: $1,363,960Net Income 2015: $196,8992015Revenue 2016: $1,449,142Expenses 2016: $1,424,210Net Income 2016: $24,9322016Revenue 2017: $1,543,186Expenses 2017: $1,462,511Net Income 2017: $80,6752017Revenue 2018: $1,565,622Expenses 2018: $1,524,981Net Income 2018: $40,6412018Revenue 2019: $1,566,751Expenses 2019: $1,522,299Net Income 2019: $44,4522019Revenue 2020: $1,284,453Expenses 2020: $1,325,395Net Income 2020: -$40,9422020Revenue 2021: $1,364,312Expenses 2021: $1,335,954Net Income 2021: $28,3582021Revenue 2022: $1,516,533Expenses 2022: $1,471,056Net Income 2022: $45,4772022Revenue 2023: $1,557,533Expenses 2023: $1,532,624Net Income 2023: $24,9092023Revenue 2024: $1,475,801Expenses 2024: $1,545,444Net Income 2024: -$69,6432024

Highlighted filing

2024

Revenue$1,475,801
Expenses$1,545,444
Net Income-$69,643
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,069,458
Liabilities
$620,128
Net assets
$2,449,330
Revenue
$1,475,801
Expenses
$1,545,444
Net income
-$69,643
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.07$0.62$2.45$1.48$1.55$0.07
2023Detailed filing. Detailed filing data is available for this year.$2.47$0.25$2.21$1.56$1.53$0.02
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.30$0.21$2.08$1.52$1.47$0.05
2021Detailed filing. Detailed filing data is available for this year.$2.82$0.39$2.43$1.36$1.34$0.03
2020Detailed filing. Detailed filing data is available for this year.$2.57$0.34$2.23$1.28$1.33$0.04
2019Detailed filing. Detailed filing data is available for this year.$2.47$0.31$2.16$1.57$1.52$0.04
2018Detailed filing. Detailed filing data is available for this year.$2.39$0.28$2.11$1.57$1.52$0.04
2017Detailed filing. Detailed filing data is available for this year.$2.42$0.33$2.09$1.54$1.46$0.08
2016Detailed filing. Detailed filing data is available for this year.$2.26$0.33$1.93$1.45$1.42$0.02
2015Detailed filing. Detailed filing data is available for this year.$2.23$0.39$1.85$1.56$1.36$0.20
2014Detailed filing. Detailed filing data is available for this year.$2.01$0.33$1.67$1.42$1.39$0.03
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.01$0.41$1.60$1.35
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.86$0.37$1.49$1.27
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.66$0.35$1.31$1.59
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Oct 1, 2023 to Sep 30, 2024
Signed
Aug 8, 2025
Return Version
2023v6.0
Gross Receipts
$1,635,165
Mission and Program Overview

Mission

To educate, support and advocate for the bleeding disorders community of wisconsin.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,927,272$2,321,677▲ $394,405
Pledges and Grants Receivable$238,119$205,509▼ $32,610
Accounts Receivable$72,292$122,989▲ $50,697
Savings and Temporary Cash Investments$138,736$120,554▼ $18,182
Land, Buildings, and Equipment, Net$1,133$94,121▲ $92,988
Cash and Non-Interest-Bearing Accounts$71,953$30,362▼ $41,591
Prepaid Expenses and Deferred Charges$4,040$11,846▲ $7,806
Total Assets$2,466,633$3,069,458▲ $602,825
Other Assets Total$13,088$162,400▲ $149,312
Liabilities
Accounts Payable and Accrued Expenses$235,215$232,461▼ $2,754
Other Liabilities$13,152$208,417▲ $195,265
Mortgage Notes Payable Secured by Investment Property-$160,000-
Deferred Revenue$3,500$19,250▲ $15,750
Total Liabilities$251,867$620,128▲ $368,261
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,066,674$2,363,825▲ $297,151
Net Assets With Donor Restrictions$148,092$85,505▼ $62,587
Total Net Assets Fund Balance$2,214,766$2,449,330▲ $234,564
Total Liabilities and Net Assets / Fund Balance$2,466,633$3,069,458▲ $602,825

Asset Categories

AssetBook ValueDepreciationBasis
Leasehold Improvements$52,826$7,690$60,516
Equipment$41,295$4,202$45,497
Other Assets Org$3,150--
Compensation and Service Providers
Top Officer Pay84th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Danielle Leitner BaxterExecutive DirectorFT$145,755$14,006$159,761

Board Members and Trustees

NameTitle
Joshua WelshPresident
Dave AmorosoVice President
Beverly PetersonDirector
Bob MontgomeryDirector
David PetersonDirector
Michelle BorresonDirector
Tracie FechterDirector
Bruce CarterSecretary
Dustin Van PeursemTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,425,541
Program Service Revenue
$6,416
Investment Income
$90,370
Other Revenue
$-46,526
All Other Contributions
$436,729
Change in Net Assets
$-69,643

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,558,662
Revenue Not Reported on Financial Statements
$-82,861
Revenue Not Reported on Form 990
$304,207
Other Revenue Adjustments
$-82,861
Total Revenue per Audited Statements
$1,862,869
Total Revenue per Form 990
$1,475,801
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$665,656
Salaries, Compensation, and Employee Benefits$555,054
Other Expenses$324,734
Total Fundraising Expense$96,818
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$579,072--$579,072
Other Salaries and Wages$174,114$78,095$50,577$302,786
Current Officers, Directors, Trustees, and Key Employees$100,054$44,877$29,064$173,995
Grants to Domestic Individuals$86,584--$86,584
Fees for Services Accounting-$50,900-$50,900
Office Expenses$37,595$6,629$523$44,747
Payroll Taxes$19,992$8,968$5,807$34,767
Other Employee Benefits$19,866$8,910$5,771$34,547
Occupancy-$25,455-$25,455
Fees for Service Investment Mgmnt Fees-$18,338-$18,338
Fees for Services Other$10,008$2,477-$12,485
Pension Plan Contributions$5,152$2,311$1,496$8,959
Insurance-$8,144-$8,144
Travel$5,340$457$915$6,712
Depreciation Depletion-$5,790-$5,790
Other Expenses$3,429$1,339$589$5,357
Fees for Services Legal-$2,780-$2,780
Conferences and Meetings$1,756--$1,756
Total Functional Expenses$1,170,885$277,741$96,818$1,545,444

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,628,305
Expenses per Audited Statements$1,545,444
Total Expenses per Form 990$1,545,444
Expenses Not Reported on Form 990$82,861
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Versiti Wisconsin IncWauwatosa, WI501(c)(3)To Provide Outreach and Care Through the Hemophilia Treatment Center Network and Conduct Surveillance and Research to Prevent Complications.$71,720
The Bleeding and Clotting Disorders InstitutePeoria, IL501(c)(3)To Provide Outreach and Care Through the Hemophilia Treatment Center Network and Conduct Surveillance and Research to Prevent Complications.$60,481
Mayo ClinicRochester, MN501(c)(3)To Provide Outreach and Care Through the Hemophilia Treatment Center Network and Conduct Surveillance and Research to Prevent Complications.$56,415
Rush University Medical CenterChicago, IL501(c)(3)To Provide Outreach and Care Through the Hemophilia Treatment Center Network and Conduct Surveillance and Research to Prevent Complications.$54,477
Ann & Robert H Lurie Childrens Hospital of ChicagoChicago, IL501(c)(3)To Provide Outreach and Care Through the Hemophilia Treatment Center Network and Conduct Surveillance and Research to Prevent Complications.$53,454
CHILDREN'S MINNESOTAMinneapolis, MN501(c)(3)To Provide Outreach and Care Through the Hemophilia Treatment Center Network and Conduct Surveillance and Research to Prevent Complications.$46,488
Fairview Health ServicesMinneapolis, MN501(c)(3)To Provide Outreach and Care Through the Hemophilia Treatment Center Network and Conduct Surveillance and Research to Prevent Complications.$41,466
Northwestern UniversityChicago, IL501(c)(3)To Provide Outreach and Care Through the Hemophilia Treatment Center Network and Conduct Surveillance and Research to Prevent Complications.$41,179
Sanford Medical Center FargoFargo, ND501(c)(3)To Provide Outreach and Care Through the Hemophilia Treatment Center Network and Conduct Surveillance and Research to Prevent Complications.$39,824
Hemophilia Outreach of Wisconsin IncGreen Bay, WI501(c)(3)To Provide Outreach and Care Through the Hemophilia Treatment Center Network and Conduct Surveillance and Research to Prevent Complications.$39,353
University of Wisconsin Hospitals and Clinics AuthorityMadison, WIState of WiTo Provide Outreach and Care Through the Hemophilia Treatment Center Network and Conduct Surveillance and Research to Prevent Complications.$38,272
Gundersen Lutheran Medical FoundationLa Crosse, WI501(c)(3)To Provide Outreach and Care Through the Hemophilia Treatment Center Network and Conduct Surveillance and Research to Prevent Complications.$22,320
Sanford Clinic (sioux Falls)Sioux Falls, SD501(c)(3)To Provide Outreach and Care Through the Hemophilia Treatment Center Network and Conduct Surveillance and Research to Prevent Complications.$13,623
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$82,861
Fundraising Gross Income$27,235
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Mke Best Bloody$51,808$14,020$13,202$818
Unite Walk$68,399$3,360$2,199$1,161
Total Events$158,778$27,235$82,861$-55,626
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating & Financing Lease Obligation$208,417
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“All board members have an opportunity to review the document prior to filing. The form 990 is reviewed by the executive director and electronically distributed to the finance committee and board of directors in draft form for review. If filing deadlines permit, the form 990 will be approved at a board meeting.”

Form 990, Part VI, Section B, Line 12C

“The organization implements an annual certification for board members and staff. Compliance is self-monitored and board members have consistently held themselves, and each other, to high standards of abstaining during discussion and voting on issues with which they either have, or may be perceived to have, a conflict.”

Form 990, Part VI, Section B, Line 15A

“Salary range information for executive directors by organization size and area of focus was obtained from the helen bader nonprofit institute for nonprofit management. The salary range information was shared with the executive committee and after discussion and deliberation, an appropriate salary was defined. The salary of the executive director meets the range as defined.”

Form 990, Part VI, Section C, Line 19

“Governing documents, conflict of interest policy and financial statements are available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Great Lakes Hemophilia Foundation Inc
EIN
23-7367636
Phone
4142570200
Address
12700 W BLUEMOUND RD 130, ELM GROVE, WI 53122

Signing Officer

Name
Danielle Leitner Baxter
Title
Executive Director
Phone
4142570200
Signed
2025-08-08
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Danielle Leitner Baxter
Formed
1974
Legal Domicile
Wi
Voting Board Members
9
Independent Board Members
9
Employees
7
Volunteers
75

Preparer

Firm
Wipfli Llp
Address
170 N RADNOR-CHESTER RD SUITE 200, RADNOR, PA 19087
Preparer
Solomon Mardakhaev
Phone
6105653930
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The organization's process has not changed from the prior year.”

Financial Statement Notes

PART X, LINE 2:

“The organization is exempt from income taxes under section 501(c)(3) of the internal revenue code and is also exempt from state taxes on related income. Management believes that no uncertain tax positions exist for the organization at september 30, 2024 and 2023. The organization has not incurred any interest or penalties for income taxes for the years ended september 30, 2024 and 2023.”

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Direct expenses of fundraising events -82,861.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Direct expenses of fundraising events 82,861.”

Raw XML AppendixShowing 400 of 737 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0PATIENT CARE: GREAT LAKES HEMOPHILIA FOUNDATION ADVANCES THE COMPREHENSIVE CARE FOR PEOPLE WITH BLEEDING DISORDERS THROUGH ITS PARTICIPATION IN AN INTEGRATED REGIONAL NETWORK OF HEMOPHILIA TREATMENT CENTERS THROUGH A GRANT FROM HRSA. THE DESIGN OF THE HEMOPHILIA TREATMENT CARE NETWORK PROVIDES PATIENTS WITH ACCESS TO MULTIPLE DISCIPLINES, EACH OF WHICH HAS SPECIFIC EXPERTISE IN BLEEDING DISORDERS CARE. THE HEMOPHILIA MODEL HAS BEEN ONE OF THE MOST SUCCESSFULLY MANAGED PUBLIC HEALTH PROGRAMS IN THE UNITED STATES. THE SUBSTANTIAL SOCIOECONOMIC BENEFITS OF COMPREHENSIVE SERVICES FOR THE HEMOPHILIA POPULATION ARE WELL DOCUMENTED AND INCLUDE DECREASED HOSPITAL IN-PATIENT-DAYS, INCREASED NUMBERS OF PATIENTS WITH THIRD-PARTY COVERAGE, LOWER COST OF CARE, AND DECREASED HEALTH CARE RESOURCE UTILIZATION. MORE IMPORTANTLY, STUDIES INDICATE THAT PERSONS RECEIVING CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK HAVE A REDUCTION IN RISK OF DEATH DESPITE HAVING MORE SEVERE CLINICAL SYMPTOMS COMPARED TO THOSE RECEIVING NON-TREATMENT-CENTER CARE.
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IRS990/ProgSrvcAccomActy2Grp/Desc0COMMUNITY SERVICES AND PROFESSIONAL EDUCATION AND TRAINING:GREAT LAKES HEMOPHILIA FOUNDATION PROVIDES A VARIETY OF OPPORTUNITIES FOR INDIVIDUALS WITH BLEEDING DISORDERS. THE WISCONSIN BLEEDING DISORDERS CONFERENCE AND YOUTH PROGRAMS LIKE CAMP KLOTTY PINE PROVIDE INDIVIDUALS WITH BLEEDING DISORDERS AN OPPORTUNITY TO NETWORK WITH OTHERS LIVING WITH A BLEEDING DISORDER. CAMP SCHOLARSHIPS ARE PROVIDED TO YOUTH. AT CAMP, THEY ARE AMONG OTHER KIDS WITH BLEEDING DISORDERS AND OFTEN LEARN TO INFUSE THEREFORE GAINING INDEPENDENCE.INDIVIDUALS WITH CHALLENGING FINANCIAL SITUATIONS MAY APPLY FOR EMERGENCY FINANCIAL ASSISTANCE THROUGH GREAT LAKES HEMOPHILIA FOUNDATION. MANY INDIVIDUALS WITH BLEEDING DISORDERS ARE AT OR JUST ABOVE THE FEDERAL POVERTY LEVELS. GREAT LAKES HEMOPHILIA FOUNDATION PROVIDES ASSISTANCE TO ENSURE INDIVIDUALS WITH BLEEDING DISORDERS CAN RETAIN HEALTH INSURANCE COVERAGE BY ASSISTING WITH INSURANCE PREMIUMS. IN ADDITION, FUNDS ARE AVAILABLE TO ASSIST WITH MEDICAL BILLS AND BASIC LIVING NEEDS.GREAT LAKES HEMOPHILIA FOUNDATION IS COMMITTED TO ASSESSING REGIONAL TRAINING NEEDS AND PROVIDING TRAINING OPPORTUNITIES IN ITS ROLE AS THE REGIONAL CORE CENTER. AS THE REGIONAL CORE CENTER, STAFF PROVIDES TECHNICAL ASSISTANCE TO HEMOPHILIA TREATMENT CENTER STAFF THROUGH TRAINING USING A VARIETY OF TECHNIQUES. NEW PERSONNEL TRAINING IS CARRIED OUT: 1) BY STAFF EXCHANGE; 2) THROUGH ON-THE-JOB TRAINING BY OTHER TEAM MEMBERS DURING TEAM MEETINGS AND CLINIC USING A DEFINED SET OF DEMONSTRATED SKILLS AND KNOWLEDGE; 3) AT PROFESSIONAL MEETINGS; 4) AT TRAINING PROGRAMS LIKE THE PARTNERS PROGRAM; 5) THROUGH CONTACT WITH OTHER PROFESSIONALS ON A STATE, REGIONAL, AND NATIONAL LEVEL; AND 6) THROUGH TRAINING FROM REGIONAL CORE STAFF THAT INCLUDES INFORMATIONAL RESOURCE EMAILS, CALLS AND VIDEO CALLS.AS THE REGIONAL CORE CENTER, GREAT LAKES HEMOPHILIA FOUNDATION IS ALSO COMMITTED TO HELPING EXPERIENCED STAFF UPDATE THEIR KNOWLEDGE AND SKILLS BY PROVIDING ONGOING OPPORTUNITIES FOR PROFESSIONAL TRAINING AND GROWTH. THESE OPPORTUNITIES INCLUDE, BUT ARE NOT LIMITED TO PROVIDING DISCIPLE-SPECIFIC SYMPOSIA AND ANNUAL REGIONAL MEETINGS.
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IRS990/ProgSrvcAccomActy3Grp/Desc0RESEARCH/SURVEILLANCE: GREAT LAKES HEMOPHILIA FOUNDATION SUPPORTS THE SYSTEMATIC COORDINATED ASSESSMENT AND RECORDING OF HEALTH OUTCOMES OF INDIVIDUALS WITH BLEEDING DISORDERS IN A NATIONAL DATABASE. GREAT LAKES HEMOPHILIA FOUNDATION IS A SUB GRANTEE OF THE AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK (ATHN) FOR THE CDC COMMUNITY COUNTS PROJECT. THIS DATABASE MONITORS THE HEALTH OF THE BLEEDING DISORDERS POPULATION WITH THE GOAL OF OPTIMIZED QUALITY OF LIFE FOR THOSE AFFECTED BY BLEEDING DISORDERS.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0PUBLIC AND PATIENT EDUCATION:GREAT LAKES HEMOPHILIA FOUNDATION SUPPORTS A COMPREHENSIVE NETWORK OF HEALTH PROFESSIONALS AND PATIENTS AND THEIR FAMILIES IN PROVIDING PUBLIC EDUCATION ABOUT BLEEDING DISORDERS. HEALTH CARE PROFESSIONALS - THROUGH THE FEDERAL GRANT SUPPORTED REGIONAL NETWORK - EDUCATE TEACHERS, COACHES, EMERGENCY ROOM PERSONNEL, DENTISTS AND OTHER INDIVIDUALS WHO PROVIDE SUPPORT TO INDIVIDUALS WITH BLEEDING DISORDERS TO ENSURE SAFE AND HEALTHY OUTCOMES FOR THEIR PATIENTS. IN ADDITION, GREAT LAKES HEMOPHILIA FOUNDATION VOLUNTEERS ATTEND HEALTH FAIRS AND OTHER EVENTS TO HEIGHTEN THE PUBLIC'S UNDERSTANDING OF BLEEDING DISORDERS AND THE SYMPTOMS TO ENCOURAGE WOMEN AND GIRLS, IN PARTICULAR, TO SEEK MEDICAL SUPPORT FOR OTHERWISE POTENTIALLY UNDIAGNOSED CONDITIONS. GREAT LAKES HEMOPHILIA FOUNDATION ALSO MANAGES A STRONG VOLUNTEER ADVOCACY PROGRAM WHICH EDUCATES LEGISLATORS AND OTHER PUBLIC OFFICIALS ON THE INTERESTS AND CHALLENGES OF INDIVIDUALS LIVING WITH BLEEDING DISORDERS RELATED TO PUBLIC POLICY ISSUES. GLHF COORDINATES AND MANAGES A LARGE EDUCATIONAL CONFERENCE ANNUALLY FOR PATIENTS AND THEIR FAMILIES.
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