Civic Intelligence

Osteogenesis Imperfecta Foundation Inc.

990 • Fiscal year 2024 • EIN 23-7076021

Jul 01, 2023 to Jun 30, 2024 • Filed on Feb 12, 2025

Organization ProfileWWW.OIF.ORG

View Organization Page

656 Quince Orchard Road 650Gaithersburg, MD 20878

(301) 947-0083

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

72nd percentile

0.26x

Higher debt load relative to assets than 72% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

70th percentile

0.24x

Higher debt load relative to revenue than 70% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

24th percentile

-7.9%

Higher net margin than 24% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

92nd percentile

$227,892

Higher top officer pay than 92% of similar nonprofits.

Top officer pay equals 10.0% of source-year revenue.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

15th percentile

-9.4%

Faster asset growth than 15% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

40th percentile

2.6%

Faster revenue growth than 40% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets72nd percentile

Assets

Down

$2,125,391

Down $220,774 (-9.4%) from 2023

Net Assets

Down

$1,577,936

Down $97,311 (-5.8%) from 2023

Liabilities

Down

$547,455

Down $123,463 (-18%) from 2023

Revenue And Expenses
Liabilities / Revenue70th percentileNet Margin24th percentile

Revenue

Up

$2,271,920

Up $57,408 (+2.6%) from 2023

Expenses

Up

$2,451,085

Up $365,787 (+18%) from 2023

Net Income

Down

-$179,165

Down $308,379 (-239%) from 2023

Historical Trend

Balance Sheet Trend

Asset Growth15th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2019: $1,768,258Liabilities 2019: $271,555Net Assets 2019: $1,496,7032019Assets 2020: $1,745,584Liabilities 2020: $381,897Net Assets 2020: $1,363,6872020Assets 2021: $2,230,527Liabilities 2021: $192,429Net Assets 2021: $2,038,0982021Assets 2022: $2,054,090Liabilities 2022: $574,781Net Assets 2022: $1,479,3092022Assets 2023: $2,346,165Liabilities 2023: $670,918Net Assets 2023: $1,675,2472023Assets 2024: $2,125,391Liabilities 2024: $547,455Net Assets 2024: $1,577,9362024Assets 2025: $1,660,457Liabilities 2025: $292,624Net Assets 2025: $1,367,8332025

Highlighted filing

2024

Assets$2,125,391
Liabilities$547,455
Net Assets$1,577,936
Open 2024 Filing

Operations Trend

Revenue Growth40th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2019: $1,835,341Expenses 2019: $2,109,750Net Income 2019: -$274,4092019Revenue 2020: $1,544,189Expenses 2020: $1,643,730Net Income 2020: -$99,5412020Revenue 2021: $1,897,607Expenses 2021: $1,624,284Net Income 2021: $273,3232021Revenue 2022: $2,112,061Expenses 2022: $2,287,948Net Income 2022: -$175,8872022Revenue 2023: $2,214,512Expenses 2023: $2,085,298Net Income 2023: $129,2142023Revenue 2024: $2,271,920Expenses 2024: $2,451,085Net Income 2024: -$179,1652024Revenue 2025: $2,607,851Expenses 2025: $2,627,305Net Income 2025: -$19,4542025

Highlighted filing

2024

Revenue$2,271,920
Expenses$2,451,085
Net Income-$179,165
Open 2024 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2023 to Jun 30, 2024
Signed
Feb 12, 2025
Return Version
2023v6.0
Gross Receipts
$2,746,345
Mission and Program Overview

Mission

Our mission is to improve the quality of life for people affected by oi through research to find treatments and a cure, education, awareness, and mutual support. There are at least four distinct forms of osteogenesis imperfecta representing extreme variations in severity and affecting 20,000 to 40,000 people in the united states.

Osteogenesis imperfecta foundation, inc. (the foundation or oif) is a georgia non-stock corporation incorporated in 1970 with the primary purpose of improving the quality of life for people affected by the bone disorder osteogenesis imperfecta (oi) through research into treatments and a cure, education, awareness, and mutual support. The foundation's headquarters are located in gaithersburg, maryland.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,501,581$1,599,239▲ $97,658
Cash and Non-Interest-Bearing Accounts$153,116$163,870▲ $10,754
Savings and Temporary Cash Investments$10,398$111,584▲ $101,186
Prepaid Expenses and Deferred Charges$35,704$74,763▲ $39,059
Pledges and Grants Receivable$444,565$21,968▼ $422,597
Accounts Receivable$12,500$13,703▲ $1,203
Land, Buildings, and Equipment, Net$5,988$8,804▲ $2,816
Inventories for Sale or Use$7,602$7,336▼ $266
Intangible Assets$8,182$602▼ $7,580
Total Assets$2,346,165$2,125,391▼ $220,774
Other Assets Total$166,529$123,522▼ $43,007
Liabilities
Deferred Revenue$44,094$186,935▲ $142,841
Grants Payable$304,013$117,500▼ $186,513
Accounts Payable and Accrued Expenses$145,717$111,792▼ $33,925
Other Liabilities$152,094$106,228▼ $45,866
Unsecured Notes Loans Payable$25,000$25,000→ $0
Total Liabilities$670,918$547,455▼ $123,463
Net Assets / Fund Balance
Net Assets With Donor Restrictions$1,675,833$1,553,418▼ $122,415
Net Assets Without Donor Restrictions$-586$24,518▲ $25,104
Total Net Assets Fund Balance$1,675,247$1,577,936▼ $97,311
Total Liabilities and Net Assets / Fund Balance$2,346,165$2,125,391▼ $220,774

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$8,804$36,298$45,102
Equipment$0$2,608$2,608
Other Assets Org$96,617--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2023$1,675,833$1,021,958--$1,553,418
2022$987,567$1,378,122--$1,675,833
2021$1,354,619$726,549--$987,567
2020$1,055,103$623,072--$1,354,619
2019$713,808$523,273--$1,055,103
Compensation and Service Providers
Top Officer Pay92nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Tracy Smith HartChief Executive OfficerFT$200,484$27,408$227,892
Katherine E CarterChief Program OfficerFT$129,557$6,588$136,145

Board Members and Trustees

NameTitle
Ted TrahanPresident
Christine Wyman RossiVice President
Kenneth FinkelVice President
Billy HuangBoard Member
James SharplesBoard Member
Karen BraitmayerBoard Member
Michael SheridanBoard Member
V Reid Sutton MdBoard Member
Wendy E SacksBoard Member
Francis GlorieuxFoundation Member
Michelle FynanSecretary
Sharon MutnickTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,105,123
Program Service Revenue
$80,195
Investment Income
$57,062
Other Revenue
$29,540
All Other Contributions
$1,486,214
Change in Net Assets
$-179,165

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,469,808
Revenue Not Reported on Financial Statements
$-197,888
Revenue Not Reported on Form 990
$146,254
Other Revenue Adjustments
$-209,313
Total Revenue per Audited Statements
$2,616,062
Total Revenue per Form 990
$2,271,920
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,170,290
Grants and Similar Amounts Paid$663,333
Other Expenses$617,462
Total Fundraising Expense$133,406
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$526,020$161,166$53,893$741,079
Grants to Domestic Orgs$335,510--$335,510
Grants to Domestic Individuals$327,823--$327,823
Current Officers, Directors, Trustees, and Key Employees$182,572$35,222$39,628$257,422
Conferences and Meetings$205,973$10,673-$216,646
Other Employee Benefits$64,966$18,860$7,711$91,537
Payroll Taxes$47,770$17,225$6,647$71,642
Occupancy$42,767$11,961$5,534$60,262
Travel$37,929$10,609$4,908$53,446
All Other Expenses$26,624$9,947$3,446$40,017
Information Technology$6,319$25,513$818$32,650
Office Expenses$14,132$3,955$1,829$19,916
Fees for Services Accounting-$19,632-$19,632
Fees for Services Other$15,374$1,503$695$17,572
Other Expenses$10,823$3,027$1,400$15,250
Fees for Service Investment Mgmnt Fees-$11,425-$11,425
Depreciation Depletion$6,746$1,885$873$9,504
Pension Plan Contributions$10,015$238$-1,643$8,610
Insurance$4,815$931$2,832$8,578
Interest-$2,933-$2,933
Total Functional Expenses$1,878,708$438,971$133,406$2,451,085

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,713,373
Expenses per Audited Statements$2,648,973
Total Expenses per Form 990$2,451,085
Expenses Not Reported on Form 990$64,400
Expenses Not Reported on Financial Statements$-197,888
Other Expense Adjustments$-209,313
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
BOSTON CHILDREN'S HOSPITALBoston, MA501(c)(3)Research Grant$50,000
University of South FloridaTampa, FL501(c)(3)Contact Registry$50,000
Hospital for Special SurgeryNew York, NY501(c)(3)Research Grant$25,000
PHOENIX CHILDREN'S HOSPITALPhoenix, AZ501(c)(3)Research Grant$25,000

International Summary

Offices
0
Employees
0
Spending
$208,010

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North America - Canada and Mexico, But Not the United StatesResearch GrantBrittle Bone Disorders Consortium Research Grant00$140,000
North America - Canada and Mexico, But Not the United StatesResearch GrantBrittle Bone Disorders Consortium Research Grant00$50,000
North America - Canada and Mexico, But Not the United StatesResearch GrantBrittle Bone Disorders Consortium Research Grant00$18,010
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$225,361
Fundraising Direct Expenses$209,313
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Dc Fine Wine$176,333$81,859$10,391$71,468
Strong Bones Houston$88,280$43,750$888$42,862
Total Events$472,375$225,361$209,313$16,048
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Lease Payable$106,228
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 6

“Membership in the oi foundation is open to all people who support the mission of the oi foundation. The board of directors determine the level and benefits of membership, and may change these from time to time. All members are entitled to voting privileges. Membership becomes effective upon receipt of dues.”

Form 990, Part VI, Section B, Line 11B

“After the form 990 is prepared by the independent accountants a copy of the return is provided to all members of the board of directors. It is also reviewed by the audit committee before being filed with the irs.”

Form 990, Part VI, Section B, Line 12C

“The conflict of interest policy covers all members of the board, its committees, foundation staff and their immediate families and business associates. It is monitored by annual written information questionnaire from the board president which is reviewed and maintained by the audit committee chair. The entire board reviews each transaction to come before the board for potential or actual conflicts of interest. If potential or actual conflicts (past, present or future) are identified, the person determined to have a conflict is recused from deliberations and voting. The identified conflicts of interest and appropriate recusals are documented in the minutes of each board or commitee meeting.”

Form 990, Part VI, Section B, Line 15

“The process for determining compensation of the following persons includes a review and approval by independent members of the executive committee. Comparability data used in the review process is obtained from national health council salary survey. The deliberations and decisions are documented in the minutes of the board or committee meeting. The compensation determination process applies to the following offices/positions and the most recent year for which this process was undertaken for each is identified: office/title - chief executive officer year of most recent review/approval - 2024”

Form 990, Part VI, Section C, Line 19

“Oi foundation makes its governing documents, conflict of interest policy, and financial statements available to the public on its website.”

Filing and Contact Details

Filer

Filer Name
Osteogenesis Imperfecta Foundation
EIN
23-7076021
Phone
3019470083
Address
656 QUINCE ORCHARD ROAD 650, GAITHERSBURG, MD 20878

Signing Officer

Name
Tracy Smith Hart
Title
Chief Executive Officer
Phone
3019470083
Signed
2025-02-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Tracy Smith Hart
Formed
1970
Legal Domicile
Ga
Voting Board Members
12
Independent Board Members
12
Employees
14
Volunteers
12

Preparer

Firm
Renner and Company CPA Pc
Address
700 NORTH FAIRFAX STREET SUITE 400, ALEXANDRIA, VA 22314
Preparer
Andrew E Young CPA
Phone
7035351200
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

“No changes from the prior year. The board of directors is responsible for the selection of independent auditors and oversight over the independent audit process.”

Financial Statement Notes

PART V, LINE 4:

“The foundation's endowment funds consist of restricted funds designated for a specific purpose by a donor.”

PART X, LINE 2:

“In accounting for uncertainty in income taxes, accounting standards require an entity to recognize the financial statement impact of a tax position when it is more-likely-than-not that the position will not be sustained upon examination. Management evaluated the foundation's tax positions and concluded there are no uncertain tax positions that require adjustment to the financial statements to comply with the provisions of this guidance.”

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Reclassification of event expenses -209,313.”

PART XII, LINE 4B - OTHER ADJUSTMENTS:

“Reclassification of event expenses -209,313.”

Raw XML AppendixShowing 400 of 848 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0OSTEOGENESIS IMPERFECTA FOUNDATION, INC. (THE FOUNDATION OR OIF) IS A GEORGIA NON-STOCK CORPORATION INCORPORATED IN 1970 WITH THE PRIMARY PURPOSE OF IMPROVING THE QUALITY OF LIFE FOR PEOPLE AFFECTED BY THE BONE DISORDER OSTEOGENESIS IMPERFECTA (OI) THROUGH RESEARCH INTO TREATMENTS AND A CURE, EDUCATION, AWARENESS, AND MUTUAL SUPPORT. THE FOUNDATION'S HEADQUARTERS ARE LOCATED IN GAITHERSBURG, MARYLAND.
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IRS990/Desc0RESEARCH:CARDIAC DELPHI PANEL - AS A TYPE I COLLAGEN DISORDER, OI IMPACTS NEARLY EVERY SYSTEM WITHIN THE BODY INCLUDING THE HEART, LUNGS, DIGESTIVE TRACT, MUSCLES/JOINTS AND TEETH. BUT BECAUSE OI IS A RARE DISORDER, THERE IS STILL MUCH THAT EXPERTS DON'T KNOW ABOUT THE FULL IMPACT OI HAS ON OTHER SYSTEMS IN THE BODY. THIS LACK OF STANDARD IS DUE TO INFORMATION BEING SCATTERED AND NO COMPLETE EVALUATIONS OF THE LITERATURE CONCERNING PATHOPHYSIOLOGY, EPIDEMIOLOGY, AND CLINICAL CHARACTERISTICS. IN JANUARY, THE OIF BROUGHT TOGETHER A GROUP OF INTERNATIONAL OI EXPERTS AND CARDIOLOGISTS TO REVIEW ALL THE EXISTING LITERATURE AND RESEARCH ON CARDIAC COMPLICATIONS IN OI. USING A DELPHI PROCESS, THEY DEVELOPED A CONSENSUS STATEMENT AND RECOMMENDATIONS FOR CLINICAL CARE AND COMPELLING RESEARCH NEEDS. THE ASSOCIATED MANUSCRIPT IS SET TO BE PUBLISHED IN JOURNAL OF BONE AND MINERAL RESEARCH THIS WINTER. EXPERT REVIEW PANELS SUCH AS THIS ONE CAN IMMEDIATELY IMPACT HEALTH OUTCOMES FOR PATIENTS BECAUSE THEIR PROVIDERS WILL HAVE A BETTER UNDERSTANDING OF HOW OI AFFECTS DIFFERENT SYSTEMS AND A STANDARD OF CARE.SCIENTIFIC MEETING - EACH YEAR, LEADING SCIENTISTS AND MEDICAL PROFESSIONALS ATTEND THE OI FOUNDATION SCIENTIFIC MEETING, A TWO-DAY EVENT WHERE ATTENDEES COLLABORATE AND SHARE RESEARCH. OIF MEDICAL ADVISORY COUNCIL (MAC) MEMBERS, RESEARCHERS IN THE BRITTLE BONE DISORDERS CONSORTIUM (BBDC), AND OTHER NOTABLE RESEARCHERS AND CLINICIANS ARE INVITED TO ATTEND. THIS YEAR'S MEETING, HELD ON APRIL 17-19, 2024, WAS CHAIRED BY DR. CHARLOTTE PHILLIPS OF THE UNIVERSITY OF MISSOURI. THE MEETING FEATURED OVER 30 PRESENTATIONS ON A WIDE VARIETY OF TOPICS INCLUDING CARDIOPULMONARY RESEARCH, OI MOUSE MODELS, UPDATES ON NON-TYPE I OI, PARTNERSHIPS TO ADVANCE RESEARCH, CLINICAL NEEDS AND CHALLENGES, AND FUTURE RESEARCH DIRECTIONS.MICHAEL GEISMAN FELLOWSHIP GRANT - THE MICHAEL GEISMAN FELLOWSHIP GRANT PROGRAM AWARDS FUNDING UP TO $50,000 PER YEAR, FOR TWO YEARS, TO POSTDOCTORAL TRAINEES WHO ARE CURRENTLY WORKING ON PROJECTS WITH CLEAR RELEVANCE TO OSTEOGENESIS IMPERFECTA, OR WHO HAVE PROJECTS THAT WILL ENABLE THEM TO DEVELOP EXPERTISE IN OI RESEARCH. THIS YEAR'S MICHAEL GEISMAN FELLOWSHIP AWARDEE IS DR. MARIE COUSSENS, OF GHENT UNIVERSITY IN BELGIUM. DR. COUSSENS IS RECEIVING FUNDING FOR HER PROJECT TARGETING MUSCLE IN ADULTS WITH OSTEOGENESIS IMPERFECTA: A NEW EXERCISE APPROACH. THIS PROJECT IS AN INTERVENTIONAL STUDY TO EVALUATE THE IMPACT OF BLOOD FLOW RESTRICTION TRAINING ON MUSCLE AND BONE HEALTH AND QUALITY OF LIFE IN ADULTS WITH OSTEOGENESIS IMPERFECTA TYPE I. TOOLKITS - THE OSTEOGENESIS IMPERFECTA FOUNDATION IS PLEASED TO ANNOUNCE THE PUBLICATION OF THE ADULT HEALTH TOOLKIT: INFORMATION FOR ADULTS LIVING WITH OI, THEIR FAMILIES, AND MEDICAL PROFESSIONALS TO HELP YOU NAVIGATE THE MANY ASPECTS OF MANAGING YOUR HEALTH AS AN ADULT LIVING WITH OI. THIS RESOURCE SEEKS TO PROVIDE ADULT OI COMMUNITY MEMBERS WITH TOOLS TO USE IN HEALTHCARE ENVIRONMENTS AND EVERYDAY LIFE. THE ADULT HEALTH TOOLKIT JOINS THE OI FOUNDATION'S NAVIGATING A NEW DIAGNOSIS TOOLKIT AS AN EFFECTIVE WAY FOR FAMILIES TO LEARN HOW TO BEST MANAGE OI AT ALL STAGES OF LIFE. THESE TOOLKITS ARE AN EASY RESOURCE TO SHARE WITH PROVIDERS, TEACHERS AND SCHOOLS AND ARE NOW AVAILABLE IN ENGLISH, FRENCH AND SPANISH. TO DATE, THE OI ADULT HEALTH AND THE NAVIGATING A NEW DIAGNOSIS TOOLKITS HAVE BEEN ACCESSED ELECTRONICALLY MORE THAN 21,000 TIMES AND WITH MORE THAN 3,500 COPIES IN PRINT.
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IRS990/Form990PartVIISectionAGrp/PersonNm3SHARON MUTNICK
IRS990/Form990PartVIISectionAGrp/PersonNm4MICHELLE FYNAN
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IRS990/Form990PartVIISectionAGrp/PersonNm7BILLY HUANG
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IRS990/Form990PartVIISectionAGrp/PersonNm9JAMES SHARPLES
IRS990/Form990PartVIISectionAGrp/PersonNm10MICHAEL SHERIDAN
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IRS990/MissionDesc0OUR MISSION IS TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE AFFECTED BY OI THROUGH RESEARCH TO FIND TREATMENTS AND A CURE, EDUCATION, AWARENESS, AND MUTUAL SUPPORT. THERE ARE AT LEAST FOUR DISTINCT FORMS OF OSTEOGENESIS IMPERFECTA REPRESENTING EXTREME VARIATIONS IN SEVERITY AND AFFECTING 20,000 TO 40,000 PEOPLE IN THE UNITED STATES.
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IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION AND SUPPORT: OI CLINIC OUTREACH - IN AN ONGOING EFFORT TO CONNECT WITH MEDICAL PROFESSIONALS CURRENTLY TREATING INDIVIDUALS WITH OI AND TO EDUCATE THEM ON THE OIF'S RESOURCES FOR CLINICS AND THEIR PATIENTS, THE OIF HELD TWO OI CLINIC AND BONE HEALTH TOWN HALL MEETINGS CHAIRED BY OIF MAC MEMBER, DR. LAURA TOSI IN JUNE AND DECEMBER 2024. THESE MEETINGS REPRESENT A UNIQUE OPPORTUNITY FOR MEDICAL PROFESSIONALS WHO TREAT PATIENTS WITH OI AND THOSE INTERESTED IN BONE HEALTH TO CONNECT WITH EACH OTHER, STAY UP TO DATE ON OI CARE TOPICS, AND LEARN ABOUT OIF RESOURCES. OI SUPPORT GROUPS - THE OIF RELAUNCHED OUR SUPPORT GROUP PROGRAM WITH A REGIONAL SUPPORT GROUP PROGRAM. THE REGIONAL SUPPORT GROUPS ARE DIVIDED INTO FIVE REGIONAL GROUPS (NORTHEAST, SOUTHEAST, MIDWEST, SOUTHWEST, AND WEST). THE GROUPS AIM TO CONNECT AND FOSTER A SENSE OF COMMUNITY AMONG OI COMMUNITY MEMBERS IN A SPECIFIC REGION OF THE UNITED STATES AND TO PROVIDE NATIONAL AND LOCAL RESOURCES. THE GOAL OF THE OIF SUPPORT GROUP PROGRAM IS TO PROVIDE A SPACE FOR SHARING, EDUCATING, AND SOCIALIZING. REGIONAL SUPPORT GROUP LEADERS WERE SELECTED FROM APPLICANTS WHO HAVE A HISTORY OF BEING INVOLVED IN OI FOUNDATION PROGRAMS AND SERVING THE OI COMMUNITY. EACH REGIONAL SUPPORT GROUP LEADER UNDERWENT TRAINING TO ENABLE THEM TO BE A RESOURCE FOR FAMILIES AND INDIVIDUALS LOOKING TO CONNECT WITH THE OI COMMUNITY AND OIF. EACH REGIONAL SUPPORT GROUP HOSTS QUARTERLY VIRTUAL MEETINGS AND HELPS SUPPORT THE REGIONAL CONFERENCES.
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IRS990/ProgSrvcAccomActy2Grp/GrantAmt0217083
IRS990/ProgSrvcAccomActy3Grp/Desc0OIF CONFERENCES: OIF NATIONAL CONFERENCE - THE OIF HOSTED ITS NATIONAL CONFERENCE AT THE HILTON OMAHA IN OMAHA, NEBRASKA FROM JULY 19TH -21ST. THIS WAS THE FIRST IN-PERSON NATIONAL CONFERENCE SINCE 2018. THE MEETING DREW MORE THAN 500 ATTENDEES, 100 OF WHOM RECEIVED FINANCIAL SUPPORT FROM THE OIF THROUGH THE IMPACT GRANT PROGRAM AND KASPER/KENDALL CONFERENCE SCHOLARSHIP FUND. PROGRAM HIGHLIGHTS INCLUDED THE UNBREAKABLE SPIRIT WALK-N-WHEEL, WOMEN'S FORUM, OI RESEARCH UPDATE, PAIN PANEL, FITNESS AND OI, TALENT SHOW, PEER-TO-PEER SESSIONS, MEDICAL CONSULTATIONS, AND CLOSING DINNER AND DANCE. THE NEXT OIF NATIONAL CONFERENCE WILL BE HELD ON JULY 23-26, 2026, IN ORLANDO, FLORIDA.OIF REGIONAL CONFERENCES - THIS PAST YEAR, THE OIF HOSTED TWO REGIONAL CONFERENCES IN NASHVILLE, TN AND MONTREAL, QC. NEARLY 100 OI COMMUNITY MEMBERS AND MEDICAL PROFESSIONALS ATTENDED EACH MEETING TO CONNECT AND DISCUSS A RANGE OF OI RELATED TOPICS. TOPICS AT THE EVENTS INCLUDED PAIN MANAGEMENT, TREATMENT OPTIONS FOR ADULTS AND CHILDREN, PHYSICAL THERAPY, ORTHOPEDICS, DENTAL ISSUES AND MORE. COMING IN 2025, THE OIF WILL BE HOSTING THREE MORE REGIONAL CONFERENCES IN ATLANTA, GEORGIA, DENVER, COLORADO AND PORTLAND, OREGON. CHECK OUT WWW.OIF.ORG/CONFERENCES TO KEEP UP TO DATE WITH UPCOMING EVENTS.
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Filings

Displayed year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,125,391
Liabilities
$547,455
Net assets
$1,577,936
Revenue
$2,271,920
Expenses
$2,451,085
Net income
-$179,165
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$1.66$0.29$1.37$2.61$2.63$0.02
2024Detailed filing. Detailed filing data is available for this year.$2.13$0.55$1.58$2.27$2.45$0.18
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.35$0.67$1.68$2.21$2.09$0.13
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.05$0.57$1.48$2.11$2.29$0.18
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.23$0.19$2.04$1.90$1.62$0.27
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.75$0.38$1.36$1.54$1.64$0.10
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.77$0.27$1.50$1.84$2.11$0.27