Civic Intelligence

Illinois Spina Bifida Association

EIN 23-7062317 • 501(c)3 • Chicago, IL

Profile

An organization that works to improve the quality of life of children, adults, and families living with spina bifida, a lifelong neurological condition that affects the spine and is usually apparent at birth. ISBA works to accomplish its mission with a three-part strategy.

2211 N Oak Park AveChicago, IL 60707

www.i-sba.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

76th percentile

0.06x

Higher debt load relative to assets than 76% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

81st percentile

0.08x

Higher debt load relative to revenue than 81% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

26th percentile

-15%

Higher net margin than 26% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

42nd percentile

-6.8%

Faster asset growth than 42% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2022 to 2024

Revenue Growth

48th percentile

-2.6%

Faster revenue growth than 48% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2022 to 2024

Balance Sheet
Liabilities / Assets76th percentile

Assets

Down

$348,197

Down $37,532 (-9.7%) from 2023

Liabilities

Down

$21,938

Down $43 (-0.2%) from 2023

Net Assets

Down

$326,259

Down $37,489 (-10%) from 2023

Operations
Liabilities / Revenue81st percentileNet Margin26th percentile

Revenue

Down

$268,168

Down $511 (-0.2%) from 2023

Expenses

Up

$308,580

Up $13,605 (+4.6%) from 2023

Net Income

Down

-$40,412

Down $14,116 (-54%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth42nd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0Assets 2012: $268,305Liabilities 2012: $24,548Net Assets 2012: $243,7572012Assets 2013: $309,757Liabilities 2013: $25,590Net Assets 2013: $284,1672013Assets 2014: $328,526Liabilities 2014: $29,345Net Assets 2014: $299,1812014Assets 2015: $357,904Liabilities 2015: $16,349Net Assets 2015: $341,5552015Assets 2016: $351,004Liabilities 2016: $4,488Net Assets 2016: $346,5162016Assets 2017: $344,062Liabilities 2017: $12,196Net Assets 2017: $331,8662017Assets 2018: $352,752Liabilities 2018: $12,706Net Assets 2018: $340,0462018Assets 2019: $391,925Liabilities 2019: $13,172Net Assets 2019: $378,7532019Assets 2020: $382,703Liabilities 2020: $30,444Net Assets 2020: $352,2592020Assets 2021: $384,566Liabilities 2021: $12,463Net Assets 2021: $372,1032021Assets 2022: $400,544Liabilities 2022: $16,485Net Assets 2022: $384,0592022Assets 2023: $385,729Liabilities 2023: $21,981Net Assets 2023: $363,7482023Assets 2024: $348,197Liabilities 2024: $21,938Net Assets 2024: $326,2592024

Highlighted filing

2024

Assets$348,197
Liabilities$21,938
Net Assets$326,259
Open 2024 Filing

Operations Trend

Revenue Growth48th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$400K$200K$0-$200KExpenses 2012: $369,7352012Revenue 2013: $309,892Expenses 2013: $263,863Net Income 2013: $46,0292013Revenue 2014: $269,076Expenses 2014: $249,459Net Income 2014: $19,6172014Revenue 2015: $312,738Expenses 2015: $268,669Net Income 2015: $44,0692015Revenue 2016: $270,779Expenses 2016: $268,386Net Income 2016: $2,3932016Revenue 2017: $269,815Expenses 2017: $283,835Net Income 2017: -$14,0202017Revenue 2018: $286,540Expenses 2018: $273,448Net Income 2018: $13,0922018Revenue 2019: $295,665Expenses 2019: $264,414Net Income 2019: $31,2512019Revenue 2020: $231,816Expenses 2020: $264,018Net Income 2020: -$32,2022020Revenue 2021: $265,951Expenses 2021: $247,367Net Income 2021: $18,5842021Revenue 2022: $282,397Expenses 2022: $255,260Net Income 2022: $27,1372022Revenue 2023: $268,679Expenses 2023: $294,975Net Income 2023: -$26,2962023Revenue 2024: $268,168Expenses 2024: $308,580Net Income 2024: -$40,4122024

Highlighted filing

2024

Revenue$268,168
Expenses$308,580
Net Income-$40,412
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$348,197
Liabilities
$21,938
Net assets
$326,259
Revenue
$268,168
Expenses
$308,580
Net income
-$40,412
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.48$0.22$3.26$2.68$3.09$0.40
2023Detailed filing. Detailed filing data is available for this year.$3.86$0.22$3.64$2.69$2.95$0.26
2022Detailed filing. Detailed filing data is available for this year.$4.01$0.16$3.84$2.82$2.55$0.27
2021Detailed filing. Detailed filing data is available for this year.$3.85$0.12$3.72$2.66$2.47$0.19
2020Detailed filing. Detailed filing data is available for this year.$3.83$0.30$3.52$2.32$2.64$0.32
2019Detailed filing. Detailed filing data is available for this year.$3.92$0.13$3.79$2.96$2.64$0.31
2018Detailed filing. Detailed filing data is available for this year.$3.53$0.13$3.40$2.87$2.73$0.13
2017Detailed filing. Detailed filing data is available for this year.$3.44$0.12$3.32$2.70$2.84$0.14
2016Detailed filing. Detailed filing data is available for this year.$3.51$0.04$3.47$2.71$2.68$0.02
2015Detailed filing. Detailed filing data is available for this year.$3.58$0.16$3.42$3.13$2.69$0.44
2014Detailed filing. Detailed filing data is available for this year.$3.29$0.29$2.99$2.69$2.49$0.20
2013Detailed filing. Detailed filing data is available for this year.$3.10$0.26$2.84$3.10$2.64$0.46
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.68$0.25$2.44$3.70
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 14, 2025
Return Version
2024v5.2
Gross Receipts
$292,708
Mission and Program Overview

Mission

An organization that works to improve the quality of life of children, adults,and families living with spina bifida, one of the most common permanently-disabling birth defects in the u.s. Isba works to accomplish its mission with a three-part program strategy below.

Works to improve the quality of life of children, adults, and families living with spina bifida.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$242,317$259,241▲ $16,924
Pledges and Grants Receivable$54,045$57,036▲ $2,991
Savings and Temporary Cash Investments$24,273$11,275▼ $12,998
Cash and Non-Interest-Bearing Accounts$48,809$10,823▼ $37,986
Prepaid Expenses and Deferred Charges$1,600$1,600→ $0
Land, Buildings, and Equipment, Net$332$0▼ $332
Total Assets$385,729$348,197▼ $37,532
Other Assets Total$14,353$8,222▼ $6,131
Liabilities
Accounts Payable and Accrued Expenses$15,738$19,839▲ $4,101
Other Liabilities$6,243$2,099▼ $4,144
Total Liabilities$21,981$21,938▼ $43
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$260,310$214,348▼ $45,962
Net Assets With Donor Restrictions$103,438$111,911▲ $8,473
Total Net Assets Fund Balance$363,748$326,259▼ $37,489
Total Liabilities and Net Assets / Fund Balance$385,729$348,197▼ $37,532

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$0$1,995$1,995
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Matt LarsenExecutive DirectorFT$81,142$25,815$106,957

Board Members and Trustees

NameTitle
Rebecca RupnickChairperson
Blanca JaraVice Chair
Chris ByrneDirector
Derek SnyderDirector
Erika HollidayDirector
Kevin DamDirector
Mary Jo GrillDirector
Jessica BarclayDirector resigned 2024
Paul GerberDirector resigned 2024
Nathan ParrisSecretary
James MarksTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$167,898
Program Service Revenue
$2,562
Investment Income
$14,003
Other Revenue
$83,705
All Other Contributions
$166,948
Change in Net Assets
$-40,412

Audited Revenue Reconciliation

Revenue per Audited Statements
$268,168
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$2,923
Total Revenue per Audited Statements
$271,091
Total Revenue per Form 990
$268,168
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$196,880
Grants and Similar Amounts Paid$64,275
Other Expenses$47,425
Total Fundraising Expense$36,093
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$63,208$23,972$19,778$106,958
Other Salaries and Wages$67,043$1,429$2,919$71,391
Grants to Domestic Orgs$33,194--$33,194
Grants to Domestic Individuals$31,081--$31,081
Payroll Taxes$3,660$5,189$4,006$12,855
Fees for Services Accounting-$11,045-$11,045
Occupancy$7,014$1,711$1,453$10,178
Office Expenses$5,573$1,359$1,155$8,087
Insurance$500$6,251-$6,751
Other Employee Benefits$1,616$2,291$1,769$5,676
Other Expenses$2,820$1,259$584$1,259
Travel$1,252--$1,252
Depreciation Depletion-$332-$332
Total Functional Expenses$216,961$55,526$36,093$308,580

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$308,580
Total Expenses per Audited Statements$308,580
Total Expenses per Form 990$308,580
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
YMCA Camp IndependenceIngleside, IL-Camp scholarships$14,479
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$107,222
Fundraising Direct Expenses$24,540
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Chicago Marathon$52,213$52,213$9,371$42,842
Chicagoland bowl$27,784$27,784-$27,784
Total Events$108,172$107,222$24,541$82,681
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating lease right-of-use asset$2,099
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, line 11B

“A draft copy of the form 990 is emailed to the Board of Directors for approval before filing the return.”

Form 990, Part VI, Section B, line 12C

“Board members affirm that they are in compliance with the policy annually via email.”

Form 990, Part VI, Section B, line 15

“The Board of Directors approves compensation for the Executive Director annually.”

Form 990, Part VI, Section C, line 19

“Illinois Spina Bifida Assocation makes its governing documents available upon request. The 990 is posted on the organization's website”

Filing and Contact Details

Filer

Filer Name
Illinois Spina Bifida Association
EIN
23-7062317
Phone
7734440305
Address
2211 N Oak Park Ave, Chicago, IL 60707

Signing Officer

Name
Rebecca Rupnick
Title
Board Chair
Phone
7734440305
Signed
2025-11-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Rebecca Rupnick
Formed
1969
Legal Domicile
Il
Voting Board Members
9
Independent Board Members
9
Employees
10
Volunteers
100

Preparer

Firm
Desmond & Ahern Ltd
Address
10827 S WESTERN AVENUE, CHICAGO, IL 60643-3206
Preparer
Mel Padillo
Phone
7737794720
Supplemental Narrative

Additional Explanations

Form 990, Part XII, line 2C:

“The process has not changed from the prior year.”

Financial Statement Notes

Part X, Line 2:

“FIN 48 Note from Audited Financial Statements Illinois Spina Bifida Association was granted an exemption from federal income tax by the Internal Revenue Service pursuant to the provisions of Internal Revenue Code Section 501(c)(3). The Organization qualifies for the charitable contribution deduction under Section 170(b)(1)(A)(vi) and has been classified as an Organization that is not a private foundation under Section 509(a)(1). The tax- exempt purpose of the Organization and the nature in which it operates is described above. Management believes the Organization operates in compliance with its tax-exempt purpose. Thus, no provision for income tax has been provided for in the financial statements. The Organization has adopted the requirements for accounting for uncertain tax positions and management has determined that the Organization was not required to record a liability related to uncertain tax positions as of December 31, 2024. The Organization's annual information and income tax returns filed with the federal and state governments are subject to examination generally for three years after they are filed. All filings are current.”

Raw XML AppendixShowing 400 of 545 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0Promote Skills Development and Independence: Through executive functioning coaching and vocational rehabilitation programs, ISBA helped 79 children, teens, and adults with skills, strategies, and tools needed to pursue their academic, driving, and employment goals.Since 2016, annual GoBabyGo workshops have provided custom electric ride-on cars to 137 children to empower greater mobility and independence.The Community-Clinic Connection program has worked on more than 1,800 individualized coaching and referral cases since 2017. ISBA helps people find medical care, navigate benefits, access community resources, and maintain basic needs.
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IRS990/Form990PartVIISectionAGrp/PersonNm0Rebecca Rupnick
IRS990/Form990PartVIISectionAGrp/PersonNm1Blanca Jara
IRS990/Form990PartVIISectionAGrp/PersonNm2James Marks
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IRS990/Form990PartVIISectionAGrp/PersonNm11Matt Larsen
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IRS990/Form990PartVIISectionAGrp/TitleTxt0Chairperson
IRS990/Form990PartVIISectionAGrp/TitleTxt1Vice Chair
IRS990/Form990PartVIISectionAGrp/TitleTxt2Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt3Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director
IRS990/Form990PartVIISectionAGrp/TitleTxt5Director
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990PartVIISectionAGrp/TitleTxt7Director
IRS990/Form990PartVIISectionAGrp/TitleTxt8Director
IRS990/Form990PartVIISectionAGrp/TitleTxt9Director resigned 2024
IRS990/Form990PartVIISectionAGrp/TitleTxt10Director resigned 2024
IRS990/Form990PartVIISectionAGrp/TitleTxt11Executive Director
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IRS990/MissionDesc0An organization that works to improve the quality of life of children, adults, and families living with spina bifida, a lifelong neurological condition that affects the spine and is usually apparent at birth. ISBA works to accomplish its mission with a three-part strategy.
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IRS990/ProgSrvcAccomActy2Grp/Desc0Support Individuals and Families Through Outreach, Education, and Advocacy: ISBA has built a statewide network of more than 1000 people living with spina bifida through community events, virtual groups, and outreach at hospital outpatient clinics.ISBA has partnerships with Shriners Children's Chicago, where ISBA is co-located, as well as with Ann & Robert H. Lurie Children's Hospital of Chicago, Loyola Medicine, The UChicago Medicine Margaret Hackett Family Program, and OSF HealthCare in Peoria.Education advocacy and legislative advocacy help ensure that people of all ages with spina bifida receive the services they need.
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IRS990/ProgSrvcAccomActy3Grp/Desc0Invest in People Through Targeted Financial Assistance: ISBA provided financial assistance for medical expenses and equipment, scholarships, camp, adaptive sports, and emergency needs.
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IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt0The Internal cost of $401.53 was determined by the hours the Executive Director recorded as Lobbying in his Timesheet Activities report times his rate of pay, plus reimbursement to a Board Member for a lobbying event registration fee._
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0FIN 48 Note from Audited Financial Statements Illinois Spina Bifida Association was granted an exemption from federal income tax by the Internal Revenue Service pursuant to the provisions of Internal Revenue Code Section 501(c)(3). The Organization qualifies for the charitable contribution deduction under Section 170(b)(1)(A)(vi) and has been classified as an Organization that is not a private foundation under Section 509(a)(1). The tax- exempt purpose of the Organization and the nature in which it operates is described above. Management believes the Organization operates in compliance with its tax-exempt purpose. Thus, no provision for income tax has been provided for in the financial statements. The Organization has adopted the requirements for accounting for uncertain tax positions and management has determined that the Organization was not required to record a liability related to uncertain tax positions as of December 31, 2024. The Organization's annual information and income tax returns filed with the federal and state governments are subject to examination generally for three years after they are filed. All filings are current.
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