Liabilities / Assets
22nd percentile
Higher debt load relative to assets than 22% of similar nonprofits.
The Clinic for Special Children Inc
EIN 23-2555373 • 501(c)3 • Gordonville, PA
Profile
Provice comprehensive local medical care, integrate the science and practice of medicine, and share knowledge to improve the health of children who suffer genetic disorders.
Siviq Scores
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
0.02x
Liabilities / Revenue
26th percentile
Higher debt load relative to revenue than 26% of similar nonprofits.
Net Margin
42nd percentile
Higher net margin than 42% of similar nonprofits.
Top Officer Pay
79th percentile
Higher top officer pay than 79% of similar nonprofits.
Top officer pay equals 4.1% of source-year revenue.
Asset Growth
41st percentile
Faster asset growth than 41% of similar nonprofits.
Revenue Growth
9th percentile
Faster revenue growth than 9% of similar nonprofits.
Balance Sheet
Assets
Up$24,393,508
Up $414,030 (+1.7%) from 2024
Liabilities
Down$546,373
Down $202,803 (-27%) from 2024
Net Assets
Up$23,847,135
Up $616,833 (+2.7%) from 2024
Revenue
Down$7,616,367
Down $3,008,521 (-28%) from 2024
Expenses
Up$7,492,545
Up $209,573 (+2.9%) from 2024
Net Income
Down$123,822
Down $3,218,094 (-96%) from 2024
Trend Graphs
Filings
Most recent year
2025 • Form 990Detailed filing. Detailed filing data is available for this year.
- Assets
- $24,393,508
- Liabilities
- $546,373
- Net assets
- $23,847,135
- Revenue
- $7,616,367
- Expenses
- $7,492,545
- Net income
- $123,822
Latest Filing Detail
Jump To
Filing Snapshot
- Filing Period
- Oct 1, 2024 to Sep 30, 2025
- Signed
- Feb 9, 2026
- Return Version
- 2024v5.0
- Gross Receipts
- $9,338,505
Mission and Program Overview
Mission
Serve children and adults who suffer from genetic and other complex medical disorders by providing comprehensive medical, laboratory, and consultative services, and by increasing and disseminating knowledge of science and medicine.
Balance Sheet Detail
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Land, Buildings, and Equipment, Net | $11,103,614 | $10,992,647 | ▼ $110,967 |
| Investments in Publicly Traded Securities | $8,743,385 | $9,446,220 | ▲ $702,835 |
| Cash and Non-Interest-Bearing Accounts | $922,571 | $2,077,134 | ▲ $1,154,563 |
| Savings and Temporary Cash Investments | $2,395,301 | $1,161,110 | ▼ $1,234,191 |
| Accounts Receivable | $403,484 | $339,104 | ▼ $64,380 |
| Pledges and Grants Receivable | $301,017 | $285,014 | ▼ $16,003 |
| Prepaid Expenses and Deferred Charges | $110,106 | $92,279 | ▼ $17,827 |
| Total Assets | $23,979,478 | $24,393,508 | ▲ $414,030 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $540,770 | $545,581 | ▲ $4,811 |
| Unsecured Notes Loans Payable | $70,820 | - | - |
| Deferred Revenue | $137,586 | $792 | ▼ $136,794 |
| Total Liabilities | $749,176 | $546,373 | ▼ $202,803 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $20,124,641 | $21,534,080 | ▲ $1,409,439 |
| Net Assets With Donor Restrictions | $3,105,661 | $2,313,055 | ▼ $792,606 |
| Total Net Assets Fund Balance | $23,230,302 | $23,847,135 | ▲ $616,833 |
| Total Liabilities and Net Assets / Fund Balance | $23,979,478 | $24,393,508 | ▲ $414,030 |
Asset Categories
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Buildings | $9,206,467 | $395,023 | $9,601,490 |
| Equipment | $639,965 | $714,867 | $1,354,832 |
| Land | $1,146,215 | - | $1,146,215 |
Endowment Activity
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2024 | $7,924,593 | $221 | ▲ $968,393 | $-305,885 | $8,587,322 |
| 2023 | $6,382,647 | - | ▲ $1,541,946 | - | $7,924,593 |
| 2022 | $5,613,721 | $150 | ▲ $769,568 | $-792 | $6,382,647 |
| 2021 | $6,560,771 | $750 | ▼ $947,800 | - | $5,613,721 |
| 2020 | $5,452,642 | $600 | ▲ $1,107,531 | - | $6,560,773 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Laura Poskitt Do | Medical Dire | FT | $262,682 | $52,488 | $315,170 |
| Laura Poskitt Do | Medical Director | - | $257,682 | $57,488 | $315,170 |
| Vincent J Carson Md | Pediatric Ne | FT | $262,107 | $52,003 | $314,110 |
| Vincent J Carson Md | Pediatric Neurologis | - | $257,107 | $57,003 | $314,110 |
| Kevin Strauss Md | Former Offic | - | $234,635 | $38,548 | $273,183 |
| Kevin Strauss Md | Former Officer/med D | - | $234,635 | $43,548 | $273,183 |
| Grace Loudon Meier Md | Family Medic | FT | $218,620 | $48,059 | $266,679 |
| Grace Loudon Meier Md | Family Medicine Phys | - | $213,620 | $52,049 | $266,679 |
| Erik Puffenberger Phd | Laboratory D | FT | $215,841 | $47,072 | $262,913 |
| Erik Puffenberger Phd | Laboratory Director | - | $215,841 | $48,572 | $262,913 |
| Adam Heaps Ms Mba | Executive Di | FT | $181,778 | $43,719 | $225,497 |
| Adam Heaps Ms Mba | Executive Dir/pres | - | $177,788 | $43,719 | $225,497 |
| Karlla W Brigatti Ms Cgc | Research Director | FT | $170,000 | $18,619 | $188,619 |
| Helge D Hartung | Physician Sc | FT | $137,981 | $19,070 | $157,051 |
| Helge D Hartung | Physician Scientist | - | $137,981 | $32,376 | $157,051 |
| Donna L Robinson Msn Crnp | Nurse Practi | FT | $131,626 | $25,140 | $156,766 |
| Donna L Robinson Msn Crnp | Nurse Practioner | - | $130,126 | $11,834 | $156,766 |
| Alexis M Mcvey | Nursing Dire | FT | $112,505 | $36,126 | $148,631 |
Board Members and Trustees
| Name | Title |
|---|---|
| Herman Bontrager | Chair |
| Leon Hoover | Vice Chair |
| Elam Esh | Board Member |
| Glen Zimmerman | Board Member |
| Glenn Zimmerman | Board Member |
| Jacob Petersheim | Board Member |
| Jonathan Salvin Md | Board Member |
| Stephen Tifft Md | Board Member |
| Cindy Bo Mba | Secretary |
| Mark Martin | Treasurer |
Highest Paid Contractors
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Hoover Building Specialists LLC | Construction | 5010 HORSESHOE PK, Honeybrook, PA 19344 | $2,304,366 |
| Illumina INC | Lab Testing | 12864 COLLECTION CENTER DR, Chicago, IL 60693-0128 | $248,095 |
| Benecon | Employee Benefi | PO BOX 5365, Lancaster, PA 17606-5365 | $138,043 |
| Innovative Hematology INC | Wage Research | 8326 NAAB, Indianapolis, IN 46260 | $121,781 |
Revenue and Support
Revenue Composition
- Contributions and Grants
- $4,468,688
- Program Service Revenue
- $2,108,135
- Investment Income
- $1,039,544
- Other Revenue
- $0
- All Other Contributions
- $3,781,102
- Change in Net Assets
- $123,822
Noncash Contribution Practices
- Property subject to holding requirements
- No
- Reviewed unusual noncash gifts
- No
- Third parties used for noncash contributions
- Yes
Noncash Contributions
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Clothing and Household Goods | - | $436,054 | Sales of Comparable Items |
| Other Non Cash Contri Table | 1,371 | $372,676 | Sales of Comparable Items |
| Other Non Cash Contri Table | 158 | $123,942 | Sales of Comparable Items |
| Food Inventory | 2,746 | $57,108 | Sales of Comparable Items |
| Other Non Cash Contri Table | 90 | $30,985 | Selling Price of Donated |
| Total Noncash Contributions | 4,365 | $1,020,765 | - |
Audited Revenue Reconciliation
- Revenue per Audited Statements
- $7,616,367
- Revenue Not Reported on Form 990
- $545,260
- Total Revenue per Audited Statements
- $8,161,627
- Total Revenue per Form 990
- $7,616,367
Expenses and Functional Allocation
Major Expense Lines
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $5,097,318 |
| Other Expenses | $2,395,227 |
| Total Fundraising Expense | $581,547 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
Functional Expense Allocation
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $2,432,812 | $335,137 | $220,815 | $2,988,764 |
| Current Officers, Directors, Trustees, and Key Employees | $758,368 | $254,537 | $23,593 | $1,036,498 |
| Other Employee Benefits | $445,361 | $66,332 | $37,095 | $548,788 |
| Depreciation Depletion | $328,444 | $58,371 | $25,700 | $412,515 |
| Payroll Taxes | $210,687 | $37,443 | $16,485 | $264,615 |
| Pension Plan Contributions | $211,256 | $27,822 | $19,575 | $258,653 |
| Occupancy | $161,119 | $28,634 | $12,607 | $202,360 |
| All Other Expenses | $141,316 | $10,617 | $4,133 | $156,066 |
| Office Expenses | $51,242 | $9,107 | $68,877 | $129,226 |
| Information Technology | $75,562 | $13,428 | $5,912 | $94,902 |
| Insurance | $72,172 | $12,826 | $5,647 | $90,645 |
| Other Expenses | $71,091 | $12,634 | $5,563 | $89,288 |
| Fees for Services Legal | $23,145 | $4,113 | $1,811 | $29,069 |
| Fees for Services Accounting | $3,592 | $20,088 | $282 | $23,962 |
| Travel | $8,645 | $1,536 | $676 | $10,857 |
| Interest | $4,180 | - | - | $4,180 |
| Total Functional Expenses | $6,018,373 | $892,625 | $581,547 | $7,492,545 |
Audited Expense Reconciliation
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $7,544,794 |
| Expenses per Audited Statements | $7,492,545 |
| Total Expenses per Form 990 | $7,492,545 |
| Expenses Not Reported on Form 990 | $52,249 |
Fundraising, Events, and Gaming
- Fundraising activities
- Yes
- Gaming activities
- No
- Professional fundraiser used
- No
Fundraising and Gaming Totals
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $1,337,831 |
| Fundraising Gross Income | $1,337,831 |
| Professional Fundraising Fees | $0 |
Fundraising Events
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Auctions | $1,876,637 | $1,327,893 | $1,267,079 | $60,814 |
| 5k Race | $81,998 | $5,275 | $1,116 | $4,159 |
| Total Events | $2,025,417 | $1,337,831 | $1,337,831 | - |
Political and Lobbying Activity
- Political campaign activity
- No
- Lobbying activity
- No
- Subject to proxy tax
- No
Governance and Compliance
Governance Checklist
- Compiled or reviewed by an accountant
- No
- Annual disclosure for covered persons
- Yes
- Audit committee
- Yes
- Business relationship with 35% controlled entity
- No
- Business relationship with family members
- No
- Business relationship with organization members
- No
- Material changes to governing documents
- Yes
- Compensation from other sources disclosed
- No
- CEO compensation reviewed
- Yes
- Other officer compensation reviewed
- Yes
- Conflict-of-interest policy
- Yes
- Audited financial statements prepared
- No
- Key decisions subject to board approval
- No
- Management duties delegated
- No
Governance Explanations
Form 990, Page 6, Part VI, Line 4
“Per the organization's amended bylaws dated november 20, 2024, the medical director was removed from being an officer. The officers of the corporation now consist of a chair, vice chair, executive director, secretary, treasurer and such other officers and assistant officers as the needs of the corporation may require. The executive director and not the chair now has legal status as president, and the chair no longer acts as chief executive officer. The executive director is responsible for all administrative, operational, management, and organizational functions of the clinic, and the medical director reports to the executive director instead of to the board.”
Form 990, Page 6, Part VI, Line 11B
“The form 990 is made available to officers and trustees of the organization electronically and by mail for review. Once all trustees and officers have reviewed the form, the return is submitted to the irs.”
Form 990, Page 6, Part VI, Line 12C
“Board directors, employees, and committee members are required to complete a questionnaire and disclosure statement provided by csc at the time of their association with csc and annually thereafter. An additional disclosure statement is required to be filed when an actual or potential conflict arises.”
Form 990, Page 6, Part VI, Line 15A
“Compensation is determined through review of comparable salaries in other similar organizations to determine salaries that are in fair market range for the region. Board members review the salary information as a group and all discussions are recorded in the board minutes.”
Form 990, Page 6, Part VI, Line 15B
“Compensation is determined through review of comparable salaries in other similar organizations to determine salaries that are in fair market range for the region. The board of directors determines the salaries of all key employees.”
Form 990, Page 6, Part VI, Line 19
“The clinic's governing documents and financial statements are made available to the public upon request. A toll free telephone number is listed on any publications asking for support, so that potential donors may request these documents.”
Filing and Contact Details
Filer
- Filer Name
- The Clinic for Special Children Inc
- EIN
- 23-2555373
- Phone
- 7176879407
- Address
- 20 COMMUNITY LN, GORDONVILLE, PA 17529
Signing Officer
- Name
- Mark Martin
- Title
- Treasurer
- Phone
- 7176879407
- Signed
- 2026-02-09
- Discuss with paid preparer
- Yes
Organization Details
- Principal Officer
- Adam Heaps Ms Mba
- Formed
- 1989
- Legal Domicile
- Pa
- Voting Board Members
- 10
- Independent Board Members
- 10
- Employees
- 39
- Volunteers
- 300
Preparer
- Firm
- Simon Lever LLC
- Address
- 147 W AIRPORT RD, LITITZ, PA 17543
- Preparer
- Kimberly D Lyons CPA
- Phone
- 7175697081
Supplemental Narrative
Additional Explanations
FORM 990 - ORGANIZATION'S MISSION
“Serve children and adults who suffer from genetic and other complex medical disorders by providing comprehensive medical, laboratory, and consultative services, and by increasing and disseminating knowledge of science and medicine.”
Form 990, Part XI, Line 9
“BAD DEBT EXPENSE -52,249”
Financial Statement Notes
Schedule D, Page 2, Part V, Line 4
“The endowment fund was established to support the ongoing operations of the clinic.”
Schedule D, Page 3, Part X
“The clinic reports accrued interest and penalties related to unrecognized tax benefits as interest expense and penalties expense, respectively. There were no interest or penalties related to unrecognized tax benefits for the years ended september 30, 2025 and 2024.”
Schedule D, Page 4, Part XII, Line 2D
“BAD DEBT EXPENSE 52,249”
Raw XML AppendixShowing 400 of 760 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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|---|---|---|
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| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 339104 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | SERVE CHILDREN AND ADULTS WHO SUFFER FROM GENETIC AND OTHER COMPLEX MEDICAL DISORDERS BY PROVIDING COMPREHENSIVE MEDICAL, LABORATORY, AND CONSULTATIVE SERVICES, AND BY INCREASING AND DISSEMINATING KNOWLEDGE OF SCIENCE AND MEDICINE. |
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| IRS990/Desc | 0 | CLINICAL, LABORATORY, AND RESEARCH SERVICES WERE PROVIDED FOR PATIENTS WITH MORE THAN 300 GENETIC CONDITIONS. CLINICAL OUTREACH SERVICES WERE ALSO PROVIDED TO ADDITIONAL RURAL AREAS ON A REGULAR BASIS. |
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| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 29069 |
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| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 45.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 16 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 17 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 18 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 19 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/FormerOfcrDirectorTrusteeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/KeyEmployeeInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 52488 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 52003 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 38548 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 48059 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 47072 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 43719 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 18619 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 19070 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 25140 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 36126 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | LAURA POSKITT DO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | VINCENT J CARSON MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | KEVIN STRAUSS MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | GRACE LOUDON MEIER MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | ERIK PUFFENBERGER PHD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | ADAM HEAPS MS MBA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | KARLLA W BRIGATTI MS CGC |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | HELGE D HARTUNG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | DONNA L ROBINSON MSN CRNP |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | ALEXIS M MCVEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | HERMAN BONTRAGER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | ELAM ESH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | LEON HOOVER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | CINDY BO MBA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | JONATHAN SALVIN MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | STEPHEN TIFFT MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | MARK MARTIN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | JACOB PETERSHEIM |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 18 | GLEN ZIMMERMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 19 | GLENN ZIMMERMAN |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 262682 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 262107 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 234635 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 218620 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 215841 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 181778 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 170000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 137981 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 131626 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 112505 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | MEDICAL DIRE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | PEDIATRIC NE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | FORMER OFFIC |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | FAMILY MEDIC |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | LABORATORY D |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | EXECUTIVE DI |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | RESEARCH DIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | PHYSICIAN SC |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | NURSE PRACTI |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | NURSING DIRE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | VICE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 18 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 19 | BOARD MEMBER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 1989 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | true |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 687586 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 1337831 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 1337831 |
| IRS990/GainOrLossGrp/OtherAmt | 0 | 515843 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 10 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossAmountSalesAssetsGrp/OtherAmt | 0 | 900150 |
| IRS990/GrossReceiptsAmt | 0 | 9338505 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | true |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 10 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 10 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 5912 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 13428 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 75562 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 94902 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 5647 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 12826 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 72172 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 90645 |
| IRS990/InterestGrp/ProgramServicesAmt | 0 | 4180 |
| IRS990/InterestGrp/TotalAmt | 0 | 4180 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 523701 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 523701 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 8743385 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 9446220 |
| IRS990/IRPDocumentCnt | 0 | 24 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 1109890 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 11103614 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 10992647 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 12102537 |
| IRS990/LegalDomicileStateCd | 0 | PA |
| IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt | 0 | 384307 |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | SERVE CHILDREN AND ADULTS WHO SUFFER FROM GENETIC AND OTHER COMPLEX MEDICAL DISORDERS BY PROVIDING COMPREHENSIVE MEDICAL, LABORATORY, AND CONSULTATIVE SERVICES, AND BY INCREASING AND DISSEMINATING KNOWLEDGE OF SCIENCE AND MEDICINE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 23230302 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 23847135 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 515693 |
| IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt | 0 | 150 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 515843 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 545260 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 20124641 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 21534080 |
| IRS990/NoncashContributionsAmt | 0 | 1020765 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 12607 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 28634 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 161119 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 202360 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 68877 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 9107 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 51242 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 129226 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | -52249 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 37095 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 66332 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 445361 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 548788 |
| IRS990/OtherExpensesGrp/Desc | 0 | LAB SUPPLIES |
| IRS990/OtherExpensesGrp/Desc | 1 | CLINIC SUPPLIES |
| IRS990/OtherExpensesGrp/Desc | 2 | OTHER FUNDRAISING COSTS |
| IRS990/OtherExpensesGrp/Desc | 3 | PROFESSIONAL DEVELOPMENT |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 132776 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 5563 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 12634 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 767305 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 252076 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 71091 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 767305 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 252076 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 132776 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 89288 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 220815 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 335137 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 2432812 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 2988764 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 16485 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 37443 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 210687 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 264615 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 19575 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 27822 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 211256 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 258653 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 301017 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 285014 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 110106 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 92279 |
| IRS990/PrincipalOfficerNm | 0 | ADAM HEAPS MS MBA |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 624100 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 1 | 624100 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 2 | 624100 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 3 | 624100 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | COLLABORATION FEES |
| IRS990/ProgramServiceRevenueGrp/Desc | 1 | LAB FEES |
| IRS990/ProgramServiceRevenueGrp/Desc | 2 | CLINIC FEES |
| IRS990/ProgramServiceRevenueGrp/Desc | 3 | MISCELLANEOUS |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 1080146 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 1 | 567986 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 2 | 445223 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 3 | 14780 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 1080146 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 1 | 567986 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 2 | 445223 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 3 | 14780 |
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