Civic Intelligence

Congenital Adrenal Hyperplasia Research

EIN 22-3755684 • 501(c)3 • Union, NJ

Profile

Cares foundation is a nonprofit organization committed to improving the lives of families and individuals affected by congenital adrenal hyperplasia (cah) through proactively advancing research for a better understanding of cah, better treatments and a cure; educating the public and healthcare professionals about all forms of cah; advocating for universal newborn screening; immediate, appropriate emergency medical treatment; and comprehensive lifelong care; as well as support services and resources vital to the cah community worldwide.

Refreshing map…

2414 Morris Avenue 110Union, NJ 07083

caresfoundation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

66th percentile

0.15x

Higher debt load relative to assets than 66% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

60th percentile

0.12x

Higher debt load relative to revenue than 60% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Source year 2024

Net Margin

59th percentile

15%

Higher net margin than 59% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

33rd percentile

$0

Higher top officer pay than 33% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

NTEE G • $1M-$5M nonprofits • Source year 2024

Asset Growth

53rd percentile

7.0%

Faster asset growth than 53% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

67th percentile

31%

Faster revenue growth than 67% of similar nonprofits.

NTEE G • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets66th percentile

Assets

Up

$905,559

Up $151,063 (+20%) from 2022

Liabilities

Up

$265,032

Up $111,933 (+73%) from 2022

Net Assets

Up

$640,527

Up $39,130 (+6.5%) from 2022

Operations
Liabilities / Revenue60th percentileNet Margin59th percentile

Revenue

Up

$954,248

Up $60,158 (+6.7%) from 2022

Expenses

Up

$915,118

Up $97,439 (+12%) from 2022

Net Income

Down

$39,130

Down $37,281 (-49%) from 2022

Trend Graphs

Balance Sheet Trend

Asset Growth53rd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.0M$500K$0Assets 2010: $203,901Liabilities 2010: $2,557Net Assets 2010: $201,3442010Assets 2011: $236,664Liabilities 2011: $10,187Net Assets 2011: $226,4772011Assets 2012: $202,201Liabilities 2012: $2,667Net Assets 2012: $199,5342012Assets 2013: $222,013Liabilities 2013: $11,281Net Assets 2013: $210,7322013Assets 2014: $237,105Liabilities 2014: $14,613Net Assets 2014: $222,4922014Assets 2015: $268,683Liabilities 2015: $9,860Net Assets 2015: $258,8232015Assets 2016: $304,381Liabilities 2016: $16,416Net Assets 2016: $287,9652016Assets 2017: $335,687Liabilities 2017: $47,331Net Assets 2017: $288,3562017Assets 2018: $310,644Liabilities 2018: $13,809Net Assets 2018: $296,8352018Assets 2019: $297,233Liabilities 2019: $22,911Net Assets 2019: $274,3222019Assets 2020: $372,968Liabilities 2020: $74,083Net Assets 2020: $298,8852020Assets 2021: $540,971Liabilities 2021: $15,985Net Assets 2021: $524,9862021Assets 2022: $754,496Liabilities 2022: $153,099Net Assets 2022: $601,3972022Assets 2023: $905,559Liabilities 2023: $265,032Net Assets 2023: $640,5272023

Highlighted filing

2023

Assets$905,559
Liabilities$265,032
Net Assets$640,527
Open 2023 Filing

Operations Trend

Revenue Growth67th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KExpenses 2010: $333,8112010Expenses 2011: $399,8132011Expenses 2012: $382,5402012Revenue 2013: $493,998Expenses 2013: $473,877Net Income 2013: $20,1212013Revenue 2014: $474,116Expenses 2014: $462,356Net Income 2014: $11,7602014Revenue 2015: $475,978Expenses 2015: $439,647Net Income 2015: $36,3312015Revenue 2016: $541,125Expenses 2016: $511,983Net Income 2016: $29,1422016Revenue 2017: $495,712Expenses 2017: $495,321Net Income 2017: $3912017Revenue 2018: $647,899Expenses 2018: $639,420Net Income 2018: $8,4792018Revenue 2019: $591,492Expenses 2019: $614,005Net Income 2019: -$22,5132019Revenue 2020: $515,759Expenses 2020: $491,196Net Income 2020: $24,5632020Revenue 2021: $791,663Expenses 2021: $565,562Net Income 2021: $226,1012021Revenue 2022: $894,090Expenses 2022: $817,679Net Income 2022: $76,4112022Revenue 2023: $954,248Expenses 2023: $915,118Net Income 2023: $39,1302023

Highlighted filing

2023

Revenue$954,248
Expenses$915,118
Net Income$39,130
Open 2023 Filing

Filings

Most recent year

2023 • Form 990Summary only. Only limited summary data is available for this year.

Open filing
Assets
$905,559
Liabilities
$265,032
Net assets
$640,527
Revenue
$954,248
Expenses
$915,118
Net income
$39,130
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Summary only. Only limited summary data is available for this year.$9.06$2.65$6.41$9.54$9.15$0.39
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.54$1.53$6.01$8.94$8.18$0.76
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.41$0.16$5.25$7.92$5.66$2.26
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.73$0.74$2.99$5.16$4.91$0.25
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.97$0.23$2.74$5.91$6.14$0.23
2018Summary only. Only limited summary data is available for this year.$3.11$0.14$2.97$6.48$6.39$0.08
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.36$0.47$2.88$4.96$4.95$0.00
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.04$0.16$2.88$5.41$5.12$0.29
2015Summary only. Only limited summary data is available for this year.$2.69$0.10$2.59$4.76$4.40$0.36
2014Detailed filing. Detailed filing data is available for this year.$2.37$0.15$2.22$4.74$4.62$0.12
2013Detailed filing. Detailed filing data is available for this year.$2.22$0.11$2.11$4.94$4.74$0.20
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.02$0.03$2.00$3.83
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.37$0.10$2.26$4.00
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.04$0.03$2.01$3.34
Latest Detailed Filing

The latest 2023 filing currently has summary financial data only. Showing the latest detailed filing from 2021 below.

Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Jul 7, 2022
Return Version
2021v4.0
Gross Receipts
$791,863
Mission and Program Overview

Mission

Cares foundation is a nonprofit organization committed to improving the lives of families and individuals affected by congenital adrenal hyperplasia (cah) through proactively advancing research for a better understanding of cah, better treatments and a cure; educating the public and healthcare professionals about all forms of cah; advocating for universal newborn screening; immediate, appropriate emergency medical treatment; and comprehensive lifelong care; as well as support services and resources vital to the cah community worldwide.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$341,013$441,125▲ $100,112
Cash and Non-Interest-Bearing Accounts$17,056$70,490▲ $53,434
Prepaid Expenses and Deferred Charges$12,015$25,365▲ $13,350
Land, Buildings, and Equipment, Net$2,884$3,991▲ $1,107
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$372,968$540,971▲ $168,003
Other Assets Total-$0-
Liabilities
Other Liabilities$59,741--
Accounts Payable and Accrued Expenses$11,721$15,985▲ $4,264
Deferred Revenue$2,621--
Total Liabilities$74,083$15,985▼ $58,098
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$298,885$524,986▲ $226,101
Total Net Assets Fund Balance$298,885$524,986▲ $226,101
Total Liabilities and Net Assets / Fund Balance$372,968$540,971▲ $168,003

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$3,991$27,755$31,746
Compensation and Service Providers
Top Officer Pay33rd percentile

Board Members and Trustees

NameTitle
LOUISE FLEMING PhD RNBoard Chair
Karen BogaardPast President
Alexandra DuboisVice Chair
Alan MacyTrustee
Brian StairTrustee
Katherine FowlerTrustee
Keysha BerryTrustee
Lesley HolroydTrustee
Maria MaebiusTrustee
Michele BacusTrustee
Stacey ShackleyTrustee
Timothy RobertsTrustee
Valentina TudorTrustee
Jessica MargoliesSecretary
CARLOS DaSILVATreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$507,189
Program Service Revenue
$282,117
Investment Income
$2,357
Other Revenue
$0
All Other Contributions
$447,448
Change in Net Assets
$226,101
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$328,274
Other Expenses$237,288
Total Fundraising Expense$33,493
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$260,865$24,266$18,200$303,331
Payroll Taxes$21,451$1,995$1,497$24,943
All Other Expenses$15,481$4,303$389$20,173
Other Expenses$18,294$1,759$963$19,257
Insurance$687$13,101$48$13,836
Fees for Services Accounting-$5,500-$5,500
Fees for Services Other$2,452$599$2,397$5,448
Office Expenses$2,002$470-$2,472
Depreciation Depletion$1,786$223$223$2,232
Travel$1,389$28-$1,417
Fees for Services Management$1,050$98$73$1,221
Total Functional Expenses$479,727$52,342$33,493$565,562
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

“The form 990 has been sent electronically to all board members for comment and approval before submission to the irs.”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“Conflict of interest forms are collected each year and reviewed by the executive director for any possible issues. The procedures for addressing any conflicts are documented in the conflicts of interest policy which is distributed to all board members and staff as well as posted on our website.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“Financial statements are available on the organization's website.”

Filing and Contact Details

Filer

Filer Name
Congenital Adrenal Hyperplasia Research
EIN
22-3755684
Phone
9083640272
Address
2414 MORRIS AVENUE 110, UNION, NJ 07083

Signing Officer

Name
LOUISE FLEMING PhD RN
Title
Board Chair
Signed
2022-07-07
Discuss with paid preparer
Yes

Organization Details

Formed
2000
Legal Domicile
Nj
Voting Board Members
15
Independent Board Members
15
Employees
5
Volunteers
50

Preparer

Firm
Schachter & Depalma LLC
Address
959 ROUTE 46 EAST STE 302, PARSIPPANY, NJ 07054
Preparer
Maria DePalma
Phone
9732990775
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 4D: Other Program Services Description

“Other program services 4: programs-other other program services 5: cah awareness-educating the public and physicians about all forms of congenital adrenal hyperplasia, its symptoms, portocols, treatments, genetic frequency and the necessity of early intervention and benefits of newborn screening. Other program services 6: program travel other program services 7: program supplies other program services 8: cah awareness walks other program services 9: research other program services 10: cah products other program services 11: ems other program services 12: newsletters other program services 13: cah awareness-other other program services 14: endo/ice conference other program services 15: program postage other program services 16: program printing other program services 17: program consulting”

Raw XML AppendixShowing 400 of 526 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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