Civic Intelligence

Lyme Disease Association Inc

EIN 22-3123551 • 501(c)3 • Jackson, NJ

Profile

LDA's mission is promoting awareness of & controlling spread of Lyme & other tick-borne (TBD) diseases and their complications through education; raising and distributing funds for research & education; assisting underprivileged patients.

PO Box 1438Jackson, NJ 08527

lymediseaseassociation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on the latest valid filing.

Source year 2024

Liabilities / Revenue

62nd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

3rd percentile

-984%

Higher net margin than 3% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

81st percentile

$0

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

10th percentile

-100%

Faster asset growth than 10% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

8th percentile

-85%

Faster revenue growth than 8% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / AssetsScore unavailable

Assets

Down

$0

Down $556,186 (-100%) from 2023

Liabilities

Down

$0

Down $54,302 (-100%) from 2023

Net Assets

Down

$0

Down $501,884 (-100%) from 2023

Operations
Liabilities / Revenue62nd percentileNet Margin3rd percentile

Revenue

Down

$51,000

Down $279,469 (-85%) from 2023

Expenses

Up

$552,884

Up $295,164 (+115%) from 2023

Net Income

Down

-$501,884

Down $574,633 (-790%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth10th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$800K$600K$400K$200K$0Assets 2011: $673,840Liabilities 2011: $73,438Net Assets 2011: $600,4022011Assets 2012: $483,221Liabilities 2012: $120,321Net Assets 2012: $362,9002012Assets 2013: $616,230Liabilities 2013: $126,539Net Assets 2013: $489,6912013Assets 2014: $622,412Liabilities 2014: $117,040Net Assets 2014: $505,3722014Assets 2015: $599,559Liabilities 2015: $65,971Net Assets 2015: $533,5882015Assets 2016: $532,040Liabilities 2016: $42,898Net Assets 2016: $489,1422016Assets 2017: $477,676Liabilities 2017: $49,934Net Assets 2017: $427,7422017Assets 2018: $659,438Liabilities 2018: $126,764Net Assets 2018: $532,6742018Assets 2019: $536,785Liabilities 2019: $112,369Net Assets 2019: $424,4162019Assets 2020: $494,581Liabilities 2020: $78,400Net Assets 2020: $416,1812020Assets 2021: $496,596Liabilities 2021: $66,728Net Assets 2021: $429,8682021Assets 2022: $494,539Liabilities 2022: $67,459Net Assets 2022: $427,0802022Assets 2023: $556,186Liabilities 2023: $54,302Net Assets 2023: $501,8842023Assets 2024: $0Liabilities 2024: $0Net Assets 2024: $02024

Highlighted filing

2024

Assets$0
Liabilities$0
Net Assets$0
Open 2024 Filing

Operations Trend

Revenue Growth8th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500K-$1.0MRevenue 2011: $284,648Expenses 2011: $269,424Net Income 2011: $15,2242011Revenue 2012: $0Expenses 2012: $495,656Net Income 2012: -$495,6562012Revenue 2013: $364,039Expenses 2013: $241,589Net Income 2013: $122,4502013Revenue 2014: $280,951Expenses 2014: $265,270Net Income 2014: $15,6812014Revenue 2015: $274,544Expenses 2015: $246,328Net Income 2015: $28,2162015Revenue 2016: $202,582Expenses 2016: $247,036Net Income 2016: -$44,4542016Revenue 2017: $313,133Expenses 2017: $372,733Net Income 2017: -$59,6002017Revenue 2018: $533,408Expenses 2018: $428,093Net Income 2018: $105,3152018Revenue 2019: $377,399Expenses 2019: $491,488Net Income 2019: -$114,0892019Revenue 2020: $247,877Expenses 2020: $256,112Net Income 2020: -$8,2352020Revenue 2021: $312,342Expenses 2021: $294,484Net Income 2021: $17,8582021Revenue 2022: $279,003Expenses 2022: $280,669Net Income 2022: -$1,6662022Revenue 2023: $330,469Expenses 2023: $257,720Net Income 2023: $72,7492023Revenue 2024: $51,000Expenses 2024: $552,884Net Income 2024: -$501,8842024

Highlighted filing

2024

Revenue$51,000
Expenses$552,884
Net Income-$501,884
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$0
Liabilities
$0
Net assets
$0
Revenue
$51,000
Expenses
$552,884
Net income
-$501,884
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00$0.51$5.53$5.02
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.56$0.54$5.02$3.30$2.58$0.73
2022Detailed filing. Detailed filing data is available for this year.$4.95$0.67$4.27$2.79$2.81$0.02
2021Detailed filing. Detailed filing data is available for this year.$4.97$0.67$4.30$3.12$2.94$0.18
2020Detailed filing. Detailed filing data is available for this year.$4.95$0.78$4.16$2.48$2.56$0.08
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.37$1.12$4.24$3.77$4.91$1.14
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.59$1.27$5.33$5.33$4.28$1.05
2017Detailed filing. Detailed filing data is available for this year.$4.78$0.50$4.28$3.13$3.73$0.60
2016Summary only. Only limited summary data is available for this year.$5.32$0.43$4.89$2.03$2.47$0.44
2015Summary only. Only limited summary data is available for this year.$6.00$0.66$5.34$2.75$2.46$0.28
2014Summary only. Only limited summary data is available for this year.$6.22$1.17$5.05$2.81$2.65$0.16
2013Summary only. Only limited summary data is available for this year.$6.16$1.27$4.90$3.64$2.42$1.22
2012Summary only. Only limited summary data is available for this year.$4.83$1.20$3.63$0.00$4.96$4.96
2011Summary only. Only limited summary data is available for this year.$6.74$0.73$6.00$2.85$2.69$0.15
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 14, 2025
Return Version
2024v5.1
Gross Receipts
$51,000
Mission and Program Overview

Mission

The organization is organized exclusively for charitable, educational and scientific purposes and is dedicated to promoting awareness of and control of the spread of Lyme disease and other tick-borne diseases (TBD) and their complications.

Lyme Disease Association (LDA) raises funds for research, education, prevention and patient support. LDA partnered to establish Columbia Un. Lyme & Tick-Borne Diseases Research Center. Provides research grants, LymeAid 4 Kids, physician conferences, public presentations.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$277,555$0▼ $277,555
Cash and Non-Interest-Bearing Accounts$268,763$0▼ $268,763
Investments in Publicly Traded Securities$8,141$0▼ $8,141
Land, Buildings, and Equipment, Net$1,727$0▼ $1,727
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$556,186$0▼ $556,186
Other Assets Total-$0-
Liabilities
Grants Payable$43,789--
Accounts Payable and Accrued Expenses$10,513--
Total Liabilities$54,302$0▼ $54,302
Net Assets / Fund Balance
Net Assets With Donor Restrictions$323,861--
Net Assets Without Donor Restrictions$178,023--
Total Net Assets Fund Balance$501,884$0▼ $501,884
Total Liabilities and Net Assets / Fund Balance$556,186$0▼ $556,186

Asset Categories

AssetBook ValueDepreciationBasis
Equipment-$13,599$13,599
Compensation and Service Providers
Top Officer Pay81st percentile

Board Members and Trustees

NameTitle
Corey LakinDirector
Jeannine PhillipsDirector
Timothy LynaghDirector
Ruth WaddingtonSecretary
Richard SmithV P/Treasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$48,006
Program Service Revenue
$0
Investment Income
$2,994
Other Revenue
$0
All Other Contributions
$41,786
Change in Net Assets
$-501,884

Audited Revenue Reconciliation

Revenue per Audited Statements
$51,000
Total Revenue per Audited Statements
$51,000
Total Revenue per Form 990
$51,000
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$366,088
Other Expenses$186,796
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$343,004--$343,004
Grants to Domestic Individuals$23,084--$23,084
All Other Expenses$2,558$2,806-$5,364
Insurance$1,212$2,594-$3,806
Conferences and Meetings$2,085--$2,085
Fees for Services Legal-$2,000-$2,000
Depreciation Depletion$1,727--$1,727
Other Expenses$4,423$1,551-$1,551
Office Expenses-$1,549-$1,549
Fees for Services Accounting-$1,000-$1,000
Advertising$360$434-$794
Travel$97--$97
Total Functional Expenses$514,762$38,122$0$552,884

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$552,884
Total Expenses per Audited Statements$552,884
Total Expenses per Form 990$552,884
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Southampton Hospital FoundSouthampton, NY-research$314,854
Colorado Tick-Borne AssocSalida, CO-education$21,000
University of Texas at DallasRichardson, TX-research$18,150
Columbia Un Research CenterNew York, NY-education$15,000
Lyme DiseaseorgSan Diego, CA-education$9,000
Invisible InternationalTowson, MD-education$5,001
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 8B

“Board minutes are documented for all Board meetings and any actions taken by the Board. There are no committees which are authorized to act on behalf of the organization.”

Form 990, Part VI, Section B, Line 11B

“The Association's financial records are reviewed by the Board members. The 990 is reviewed by the treasurer before it is filed. It is then sent to the Board for comment. The Board reviews the 990 and then votes to accept the documents at the next Board meeting or in online discussion.”

Form 990, Part VI, Section B, Line 12C

“The organization has a written conflict of interest policy. Board members are reminded of compliance with this policy on an ongoing basis.”

Form 990, Part VI, Section B, Line 15A

“The organization does not have paid employees.”

Form 990, Part VI, Section B, Line 15B

“There are no paid employees. This is a volunteer run organization.”

Form 990, Part VI, Section C, Line 19

“Information is available upon request as required by current regulations. Financial information can also be found on Candid, formerly Guidestar.”

Filing and Contact Details

Filer

Filer Name
Lyme Disease Association Inc
EIN
22-3123551
Phone
8454861103
Address
PO Box 1438, Jackson, NJ 08527

Signing Officer

Name
Richard Smith
Title
V P/Treasurer
Signed
2025-05-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Richard Smith
Formed
1992
Legal Domicile
Nj
Voting Board Members
5
Independent Board Members
5
Employees
0
Volunteers
20

Preparer

Firm
Donna Foxman CPA
Address
105 Foxwood Terrace, Toms River, NJ 08755
Preparer
Donna Foxman CPA
Phone
7323497638
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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/OtherExpensesGrp/Desc1Database management, website
IRS990/OtherExpensesGrp/Desc2Telephone & internet
IRS990/OtherExpensesGrp/Desc3Technology & office expenses
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IRS990/PrincipalOfficerNm0Richard Smith
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IRS990/ProgSrvcAccomActy2Grp/Desc0LA4K Grants: The Lyme Disease Association's LymeAid 4 Kids (LA4K)fund was started in conjunction with author Amy Tan. It has been in operation since 2004 and has distributed $477,300 for children all over the United States since. The fund is for children who do not have insurance coverage or do not receive reimbursement for Lyme disease treatment/diagnosis and whose families have economic difficulties. LDA's LymeAid 4 Kids fund gave 15 financially disadvantaged families grants in 2024.
IRS990/ProgSrvcAccomActy3Grp/Desc0Research, Education, Grants: Since 1992, LDA has provided 128 research grants including one in 2024.Research published in peer-reviewed journals helps move the field forward. To date there have been more than 60 journal publications from LDA funded research. From 1999 to 2024, LDA also awarded educational grants to other non-profits, hospitals, universities/other entities to provide educational programs, conferences, billboards, printed matter/other materials on Lyme/TBD.
IRS990/ProgSrvcAccomActyOtherGrp/Desc0Education - the LDA's efforts are multi-pronged - providing free speakers for programs for various audiences: public, corporations, schools, government, health care providers, and radio interviews.LDA brochures are ordered through LDA website for shipping cost. Most LDA materials/articles are posted on website for free download/printing. LDA publishes a free monthly e-newsletter featuring articles on current research, news, links to resources & researcher funding opportunities/studies for public. LDA answers non-medical questions online & maintains a free tick-borne disease searchable nationwide doctor referral with about 800 medical providers/other professionals.Several School Nursing educational programs were provided in 2024 along with a National Vector Borne Disease Strategy.
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IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0LymeAid 4 Kids (1,000 each grant)
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt1Dr. Robert C. Bransfield
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IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt5research
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Colorado Tick-Borne Assoc
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1Columbia Un Research Center
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2Invisible International
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3Lyme Diseaseorg
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4Southampton Hospital Found
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt5University of Texas at Dallas
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IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt11051 Riverside Drive
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt21122 Kenilworth Drive
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt3PO Box 16009
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt4240 Meeting House Lane
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt5800 W Campbell Rd
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Salida
IRS990ScheduleI/RecipientTable/USAddress/CityNm1New York
IRS990ScheduleI/RecipientTable/USAddress/CityNm2Towson
IRS990ScheduleI/RecipientTable/USAddress/CityNm3San Diego
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IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0Research and education grants totaling $383,005 were awarded in 2024. In addition to the grants over $5,000, one smaller grant was awarded to the following in 2024: Robert C. Bransfield, MD $1,784 In addition, LDA awarded several grants totalling $21,300 to individuals under LymeAid 4 Kids programs.
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt1Many of these are the final grants from LDA prior to the organization's termination.A total of $406,089 was granted in 2024. However, a total of $40,001 for prior year grants was not used, for a net grant total of $366,088 for 2024.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0Additional Supplemental Information
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc1Grantmaker's Description of How Grants are Used
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