Civic Intelligence

Histiocytosis Association Inc

EIN 22-2827069 • 501(c)3 • Pitman, NJ

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Profile

Histiocytosis association, inc. Is dedicated to raising awareness about histiocytic disorders, providing education and emotional support, and funding research leading to better treatments and a cure.

332 North BroadwayPitman, NJ 08071

www.histio.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

61st percentile

0.13x

Higher debt load relative to assets than 61% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

71st percentile

0.25x

Higher debt load relative to revenue than 71% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

31st percentile

-3.7%

Higher net margin than 31% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

69th percentile

$105,079

Higher top officer pay than 69% of similar nonprofits.

Top officer pay equals 8.5% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

26th percentile

-4.0%

Faster asset growth than 26% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

38th percentile

0.8%

Faster revenue growth than 38% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets61st percentile

Assets

Down

$2,341,187

Down $97,160 (-4.0%) from 2023

Liabilities

Down

$315,230

Down $13,395 (-4.1%) from 2023

Net Assets

Down

$2,025,957

Down $83,765 (-4.0%) from 2023

Operations
Liabilities / Revenue71st percentileNet Margin31st percentile

Revenue

Up

$1,241,274

Up $10,240 (+0.8%) from 2023

Expenses

Up

$1,287,139

Up $108,145 (+9.2%) from 2023

Net Income

Down

-$45,865

Down $97,905 (-188%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth26th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$3.0M$2.0M$1.0M$0Assets 2011: $1,257,956Liabilities 2011: $272,771Net Assets 2011: $985,1852011Assets 2012: $1,089,982Liabilities 2012: $41,800Net Assets 2012: $1,048,1822012Assets 2013: $1,207,651Liabilities 2013: $40,764Net Assets 2013: $1,166,8872013Assets 2014: $1,404,611Liabilities 2014: $146,676Net Assets 2014: $1,257,9352014Assets 2015: $1,531,242Liabilities 2015: $204,068Net Assets 2015: $1,327,1742015Assets 2016: $1,550,915Liabilities 2016: $209,620Net Assets 2016: $1,341,2952016Assets 2017: $1,883,077Liabilities 2017: $388,879Net Assets 2017: $1,494,1982017Assets 2018: $1,745,098Liabilities 2018: $272,073Net Assets 2018: $1,473,0252018Assets 2019: $2,056,830Liabilities 2019: $357,410Net Assets 2019: $1,699,4202019Assets 2020: $1,867,117Liabilities 2020: $133,204Net Assets 2020: $1,733,9132020Assets 2021: $2,387,632Liabilities 2021: $258,488Net Assets 2021: $2,129,1442021Assets 2022: $2,126,177Liabilities 2022: $141,675Net Assets 2022: $1,984,5022022Assets 2023: $2,438,347Liabilities 2023: $328,625Net Assets 2023: $2,109,7222023Assets 2024: $2,341,187Liabilities 2024: $315,230Net Assets 2024: $2,025,9572024

Highlighted filing

2024

Assets$2,341,187
Liabilities$315,230
Net Assets$2,025,957
Open 2024 Filing

Operations Trend

Revenue Growth38th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2011: $1,311,813Expenses 2011: $1,380,876Net Income 2011: -$69,0632011Revenue 2012: $1,404,564Expenses 2012: $1,356,072Net Income 2012: $48,4922012Revenue 2013: $1,399,729Expenses 2013: $1,313,443Net Income 2013: $86,2862013Revenue 2014: $1,368,431Expenses 2014: $1,283,407Net Income 2014: $85,0242014Revenue 2015: $1,350,319Expenses 2015: $1,275,921Net Income 2015: $74,3982015Revenue 2016: $1,290,726Expenses 2016: $1,290,225Net Income 2016: $5012016Revenue 2017: $1,358,565Expenses 2017: $1,239,358Net Income 2017: $119,2072017Revenue 2018: $1,257,785Expenses 2018: $1,232,351Net Income 2018: $25,4342018Revenue 2019: $1,310,309Expenses 2019: $1,141,553Net Income 2019: $168,7562019Revenue 2020: $806,169Expenses 2020: $757,730Net Income 2020: $48,4392020Revenue 2021: $1,416,505Expenses 2021: $1,026,638Net Income 2021: $389,8672021Revenue 2022: $987,719Expenses 2022: $1,051,647Net Income 2022: -$63,9282022Revenue 2023: $1,231,034Expenses 2023: $1,178,994Net Income 2023: $52,0402023Revenue 2024: $1,241,274Expenses 2024: $1,287,139Net Income 2024: -$45,8652024

Highlighted filing

2024

Revenue$1,241,274
Expenses$1,287,139
Net Income-$45,865
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$2,341,187
Liabilities
$315,230
Net assets
$2,025,957
Revenue
$1,241,274
Expenses
$1,287,139
Net income
-$45,865
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.34$0.32$2.03$1.24$1.29$0.05
2023Detailed filing. Detailed filing data is available for this year.$2.44$0.33$2.11$1.23$1.18$0.05
2022Detailed filing. Detailed filing data is available for this year.$2.13$0.14$1.98$0.99$1.05$0.06
2021Detailed filing. Detailed filing data is available for this year.$2.39$0.26$2.13$1.42$1.03$0.39
2020Detailed filing. Detailed filing data is available for this year.$1.87$0.13$1.73$0.81$0.76$0.05
2019Detailed filing. Detailed filing data is available for this year.$2.06$0.36$1.70$1.31$1.14$0.17
2018Detailed filing. Detailed filing data is available for this year.$1.75$0.27$1.47$1.26$1.23$0.03
2017Detailed filing. Detailed filing data is available for this year.$1.88$0.39$1.49$1.36$1.24$0.12
2016Detailed filing. Detailed filing data is available for this year.$1.55$0.21$1.34$1.29$1.29$0.00
2015Summary only. Only limited summary data is available for this year.$1.53$0.20$1.33$1.35$1.28$0.07
2014Summary only. Only limited summary data is available for this year.$1.40$0.15$1.26$1.37$1.28$0.09
2013Summary only. Only limited summary data is available for this year.$1.21$0.04$1.17$1.40$1.31$0.09
2012Summary only. Only limited summary data is available for this year.$1.09$0.04$1.05$1.40$1.36$0.05
2011Summary only. Only limited summary data is available for this year.$1.26$0.27$0.99$1.31$1.38$0.07
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Aug 25, 2025
Return Version
2024v5.2
Gross Receipts
$1,241,274
Mission and Program Overview

Mission

Histiocytosis association, inc. Is dedicated to raising awareness about histiocytic disorders, providing education and emotional support, and funding research leading to better treatments and a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$403,098$695,005▲ $291,907
Cash and Non-Interest-Bearing Accounts$1,184,882$644,886▼ $539,996
Savings and Temporary Cash Investments$524,473$641,871▲ $117,398
Land, Buildings, and Equipment, Net$290,342$281,837▼ $8,505
Prepaid Expenses and Deferred Charges$10,670$46,488▲ $35,818
Accounts Receivable$24,882$31,100▲ $6,218
Total Assets$2,438,347$2,341,187▼ $97,160
Liabilities
Accounts Payable and Accrued Expenses$278,625$315,230▲ $36,605
Deferred Revenue$50,000$0▼ $50,000
Total Liabilities$328,625$315,230▼ $13,395
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,926,843$1,808,231▼ $118,612
Net Assets With Donor Restrictions$182,879$217,726▲ $34,847
Total Net Assets Fund Balance$2,109,722$2,025,957▼ $83,765
Total Liabilities and Net Assets / Fund Balance$2,438,347$2,341,187▼ $97,160

Asset Categories

AssetBook ValueDepreciationBasis
Buildings$145,419$181,568$326,987
Land$136,418-$136,418
Leasehold Improvements$0$96,116$96,116

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$151,500---$151,500
2023$151,500---$151,500
2022$151,500---$151,500
2021$151,500---$151,500
2020$151,500---$151,500
Compensation and Service Providers
Top Officer Pay69th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Deanna FournierExecutive DirectorFT$89,759$15,320$105,079

Board Members and Trustees

NameTitle
Tracy BrownChairwoman
Bradley CompBoard Member
Chad RubinBoard Member
Christine ShipleyBoard Member
Eli Diamond MdBoard Member
James Hassan EsqBoard Member
Kelsey CheekBoard Member
Rima JubranBoard Member
Stephan Ladisch MdBoard Member
Kimo Stine MdSecretary
Robert ListTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,079,174
Program Service Revenue
$20,000
Investment Income
$141,766
Other Revenue
$334
All Other Contributions
$265,906
Change in Net Assets
$-45,865

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,236,161
Revenue Not Reported on Financial Statements
$5,113
Revenue Not Reported on Form 990
$-37,900
Total Revenue per Audited Statements
$1,198,261
Total Revenue per Form 990
$1,241,274
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$519,508
Salaries, Compensation, and Employee Benefits$506,243
Grants and Similar Amounts Paid$261,388
Total Fundraising Expense$103,240
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$409,490$27,299$18,200$454,989
Grants to Domestic Orgs$251,000--$251,000
Insurance$98,243$4,873$4,051$107,167
All Other Expenses$62,636$5,013$5,293$72,942
Information Technology$56,071-$14,018$70,089
Fees for Services Other$37,433$9,884$3,408$50,725
Payroll Taxes$33,290$2,219$1,480$36,989
Travel$11,978$798$3,194$15,970
Pension Plan Contributions$13,409$428$428$14,265
Other Expenses$8,727$545$1,636$10,908
Grants to Domestic Individuals$10,388--$10,388
Depreciation Depletion$7,825$255$425$8,505
Fees for Service Investment Mgmnt Fees-$5,113-$5,113
Advertising$3,222-$1,074$4,296
Total Functional Expenses$1,119,607$64,292$103,240$1,287,139

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$1,287,139
Expenses per Audited Statements$1,282,026
Total Expenses per Audited Statements$1,282,026
Expenses Not Reported on Financial Statements$5,113
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Karolinska InstitutetMemphis, TN, Sw-Research$51,000
Erasmus McZUID-HOLLAND, Nl-Research$50,000
ST JUDE CHILDREN'S RESEARCH HOSPITALNEWCASTLE, Uk-Research$50,000
The University of NewcastleBADEN-WURTTE, Gm-Research$50,000
University of Freiburg--Research$50,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Ny Dinner$481,757---
Year End Giving$97,576---
Total Events$813,268---
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The board of trustees are given a copy of the 990 prior to filing”

Form 990, Part VI, Section B, Line 12C

“The association requires their trustees to disclose any known financial interest that the individual, or a member of the individual's family, has in any business entity that transacts business with the association. This disclosure is requested at the annual board of trustees meeting, usually held in may or june.”

Form 990, Part VI, Section B, Line 15

“Approved and reviewed by board of trustees”

Form 990, Part VI, Section C, Line 19

“Governing documents are available on the association's website”

Filing and Contact Details

Filer

Filer Name
Histiocytosis Association Inc
EIN
22-2827069
Phone
8565896606
Address
332 NORTH BROADWAY, PITMAN, NJ 08071

Signing Officer

Name
Tracy Brown
Title
Board Chair
Phone
8565896606
Signed
2025-08-25
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Tracy Brown
Formed
1986
Legal Domicile
Nj
Voting Board Members
11
Independent Board Members
11
Employees
8
Volunteers
125

Preparer

Firm
Bowman & Company Llp
Address
601 WHITE HORSE ROAD, VOORHEES, NJ 08043-2493
Preparer
Michael J Thilker
Phone
8564356200
Supplemental Narrative

Additional Explanations

Form 990, Part XII Line 2C

“The process has not changed from year to year”

Financial Statement Notes

PART X, LINE 2:

“Histiocytosis association, inc. Is a not-for-profit association exempt from federal income taxes under internal revenue code section 501(c)(3). Accordingly the association does not record a provision for income taxes on related income. The organization regularly reviews and evaluates its tax positions taken in previously filed information returns and as reflected in its financial statements, with regard to issues affecting its tax exempt status, unrelated business income, and related matters. The organization believes that in the event of an examination by taxing authorities, the organization's position would prevail based upon the technical merits of such positions. Therefore, the organization has concluded that no tax benefits or liabilities are required to be recognized in accordance with the new requirements.”

Raw XML AppendixShowing 400 of 589 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0HISTIOCYTOSIS ASSOCIATION, INC. IS DEDICATED TO RAISING AWARENESS ABOUT HISTIOCYTIC DISORDERS, PROVIDING EDUCATION AND EMOTIONAL SUPPORT, AND FUNDING RESEARCH LEADING TO BETTER TREATMENTS AND A CURE.
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IRS990/Desc0EDUCATION AND OUTREACH: THE HISTIOCYTOSIS ASSOCIATION PROVIDES EDUCATIONAL INFORMATION AND OPPORTUNITIES TO PATIENTS AND THEIR FAMILIES AS WELL AS TO THE MEDICAL COMMUNITY THROUGH OUR ONLINE PRESENCE AT WWW.HISTIO.ORG, EDUCATIONAL VIDEOS, PRINTED MATERIALS AND ECOMMUNICATIONS. WE PROVIDE EMOTIONAL SUPPORT WITH OUR CIRCLE OF FRIENDS PROGRAM, SOCIAL MEDIA ACTIVITY, TELEPHONE-BASED HELPLINE AND HISTIO WARRIORS DIRECTORY WHICH CONNECTS PATIENTS AND FAMILIES IN A PRIVATE AND SECURE SETTING. THROUGH OUR PHYSICIAN DIRECTORY, PATIENTS AND DOCTORS ALIKE CAN FIND EXPERIENCED PHYSICIANS IN THEIR AREA. WE ADVOCATE FOR PATIENTS WITH HISTIOCYTIC DISORDERS THROUGHOUT THE YEAR, PARTICULARLY DURING SEPTEMBER HISTIOCYTOSIS AWARENESS MONTH, TO RAISE FUNDS AND AWARENESS ABOUT THESE RARE DISORDERS.
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IRS990/MissionDesc0HISTIOCYTOSIS ASSOCIATION, INC. IS DEDICATED TO RAISING AWARENESS ABOUT HISTIOCYTIC DISORDERS, PROVIDING EDUCATION AND EMOTIONAL SUPPORT, AND FUNDING RESEARCH LEADING TO BETTER TREATMENTS AND A CURE.
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IRS990/ProgSrvcAccomActy2Grp/Desc0RESEARCH INITIATIVES: WE FUND THE VERY BEST BASIC SCIENCE RESEARCH BEING CONDUCTED WORLDWIDE AS IDENTIFIED THROUGH A COMPETITIVE EVALUATION PROCESS; THE RESULTS OF THIS FUNDING CONTINUE TO PAVE THE PATH TO A CURE. WE FUND CLINICAL STUDIES THAT RESULT IN IDENTIFYING THE BEST POSSIBLE TREATMENTS FOR HISTIOCYTIC DISORDERS; THIS PROVIDES IMMEDIATE AID TO PATIENTS BATTLING THESE DISEASES. AND WE DIRECTLY FACILITATE RESEARCH BY MANAGING THE HISTIOCYTE SOCIETY, THE ONLY PROFESSIONAL MEDICAL ORGANIZATION SPECIFICALLY DEDICATED TO THE RESEARCH AND TREATMENT OF HISTIOCYTIC DISORDERS; THIS UNIQUE RELATIONSHIP PROVIDES US WITH UNPARALLELED ACCESS TO THE LATEST ADVANCEMENTS AND INFORMATION IN THE SCIENTIFIC COMMUNITY, FROM WHICH ALL PATIENTS CAN BENEFIT.
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