Civic Intelligence

Neurofibromatosis Midwest

EIN 22-2580173 • 501(c)3 • St Charles, IL

Profile

To improve the lives of children, adults, and families impacted by neurofibromatosis by focusing on and improving clinics, awareness, research, education and support in the states of illinois, indiana, iowa, kentucky, wisconsin, and the eastern half of missouri.

473 Dunham Road Suite 3St Charles, IL 60174

www.nfmidwest.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

63rd percentile

0.00x

Higher debt load relative to assets than 63% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

65th percentile

0.00x

Higher debt load relative to revenue than 65% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

72nd percentile

18%

Higher net margin than 72% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

81st percentile

$0

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

78th percentile

25%

Faster asset growth than 78% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

76th percentile

28%

Faster revenue growth than 76% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets63rd percentile

Assets

Up

$366,270

Up $72,672 (+25%) from 2023

Liabilities

Up

$951

Up $77 (+8.8%) from 2023

Net Assets

Up

$365,319

Up $72,595 (+25%) from 2023

Operations
Liabilities / Revenue65th percentileNet Margin72nd percentile

Revenue

Up

$307,665

Up $66,442 (+28%) from 2023

Expenses

Down

$252,673

Down $9,915 (-3.8%) from 2023

Net Income

Up

$54,992

Up $76,357 (+357%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth78th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$400K$300K$200K$100K$0Assets 2011: $276,493Liabilities 2011: $1,777Net Assets 2011: $274,7162011Assets 2012: $240,811Liabilities 2012: $3,551Net Assets 2012: $237,2602012Assets 2013: $216,573Liabilities 2013: $18,317Net Assets 2013: $198,2562013Assets 2014: $325,786Liabilities 2014: $13,646Net Assets 2014: $312,1402014Assets 2015: $347,191Liabilities 2015: $6,848Net Assets 2015: $340,3432015Assets 2016: $368,822Liabilities 2016: $14,845Net Assets 2016: $353,9772016Assets 2017: $345,443Liabilities 2017: $9,465Net Assets 2017: $335,9782017Assets 2018: $296,479Liabilities 2018: $13,288Net Assets 2018: $283,1912018Assets 2019: $350,786Liabilities 2019: $8,326Net Assets 2019: $342,4602019Assets 2020: $332,706Liabilities 2020: $19,781Net Assets 2020: $312,9252020Assets 2021: $351,353Liabilities 2021: $3,486Net Assets 2021: $347,8672021Assets 2022: $317,579Liabilities 2022: $2,264Net Assets 2022: $315,3152022Assets 2023: $293,598Liabilities 2023: $874Net Assets 2023: $292,7242023Assets 2024: $366,270Liabilities 2024: $951Net Assets 2024: $365,3192024

Highlighted filing

2024

Assets$366,270
Liabilities$951
Net Assets$365,319
Open 2024 Filing

Operations Trend

Revenue Growth76th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$600K$400K$200K$0-$200KRevenue 2011: $269,667Expenses 2011: $258,981Net Income 2011: $10,6862011Revenue 2012: $282,332Expenses 2012: $321,971Net Income 2012: -$39,6392012Revenue 2013: $266,362Expenses 2013: $305,366Net Income 2013: -$39,0042013Revenue 2014: $455,646Expenses 2014: $341,762Net Income 2014: $113,8842014Revenue 2015: $269,672Expenses 2015: $244,361Net Income 2015: $25,3112015Revenue 2016: $260,197Expenses 2016: $250,490Net Income 2016: $9,7072016Revenue 2017: $248,339Expenses 2017: $266,338Net Income 2017: -$17,9992017Revenue 2018: $277,690Expenses 2018: $323,157Net Income 2018: -$45,4672018Revenue 2019: $257,121Expenses 2019: $209,751Net Income 2019: $47,3702019Revenue 2020: $179,571Expenses 2020: $214,976Net Income 2020: -$35,4052020Revenue 2021: $209,965Expenses 2021: $175,928Net Income 2021: $34,0372021Revenue 2022: $220,690Expenses 2022: $218,142Net Income 2022: $2,5482022Revenue 2023: $241,223Expenses 2023: $262,588Net Income 2023: -$21,3652023Revenue 2024: $307,665Expenses 2024: $252,673Net Income 2024: $54,9922024

Highlighted filing

2024

Revenue$307,665
Expenses$252,673
Net Income$54,992
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$366,270
Liabilities
$951
Net assets
$365,319
Revenue
$307,665
Expenses
$252,673
Net income
$54,992
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.66$0.01$3.65$3.08$2.53$0.55
2023Detailed filing. Detailed filing data is available for this year.$2.94$0.01$2.93$2.41$2.63$0.21
2022Detailed filing. Detailed filing data is available for this year.$3.18$0.02$3.15$2.21$2.18$0.03
2021Detailed filing. Detailed filing data is available for this year.$3.51$0.03$3.48$2.10$1.76$0.34
2020Detailed filing. Detailed filing data is available for this year.$3.33$0.20$3.13$1.80$2.15$0.35
2019Detailed filing. Detailed filing data is available for this year.$3.51$0.08$3.42$2.57$2.10$0.47
2018Detailed filing. Detailed filing data is available for this year.$2.96$0.13$2.83$2.78$3.23$0.45
2017Summary only. Only limited summary data is available for this year.$3.45$0.09$3.36$2.48$2.66$0.18
2016Summary only. Only limited summary data is available for this year.$3.69$0.15$3.54$2.60$2.50$0.10
2015Summary only. Only limited summary data is available for this year.$3.47$0.07$3.40$2.70$2.44$0.25
2014Summary only. Only limited summary data is available for this year.$3.26$0.14$3.12$4.56$3.42$1.14
2013Summary only. Only limited summary data is available for this year.$2.17$0.18$1.98$2.66$3.05$0.39
2012Summary only. Only limited summary data is available for this year.$2.41$0.04$2.37$2.82$3.22$0.40
2011Summary only. Only limited summary data is available for this year.$2.76$0.02$2.75$2.70$2.59$0.11
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Oct 1, 2023 to Sep 30, 2024
Signed
Apr 29, 2025
Return Version
2023v6.0
Gross Receipts
$332,092
Mission and Program Overview

Mission

To improve the lives of children, adults, and families impacted by neurofibromatosis by focusing on and improving clinics, awareness, research, education and support in the states of illinois, indiana, iowa, kentucky, wisconsin, and the eastern half of missouri.

Education and support for those with neurofibromatosis.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$237,208$294,756▲ $57,548
Cash and Non-Interest-Bearing Accounts$51,570$67,656▲ $16,086
Land, Buildings, and Equipment, Net$3,615$2,758▼ $857
Other Notes and Loans Receivable, Net$105--
Total Assets$293,598$366,270▲ $72,672
Other Assets Total$1,100$1,100→ $0
Liabilities
Accounts Payable and Accrued Expenses$874$951▲ $77
Total Liabilities$874$951▲ $77
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$292,724$365,319▲ $72,595
Total Net Assets Fund Balance$292,724$365,319▲ $72,595
Total Liabilities and Net Assets / Fund Balance$293,598$366,270▲ $72,672

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$2,758$1,525$4,283
Compensation and Service Providers
Top Officer Pay81st percentile

Board Members and Trustees

NameTitle
Denise DulceakBoard Chair
Gail MavrogenesBoard Member
Diana HaberkampExecutive Di
Lesli WegnerSecretary
Andy RingoTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$295,569
Program Service Revenue
$0
Investment Income
$8,627
Other Revenue
$3,469
All Other Contributions
$207,630
Change in Net Assets
$54,992

Audited Revenue Reconciliation

Revenue per Audited Statements
$307,665
Revenue Not Reported on Form 990
$14,255
Total Revenue per Audited Statements
$321,920
Total Revenue per Form 990
$307,665
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$140,729
Other Expenses$94,044
Total Fundraising Expense$26,259
Grants and Similar Amounts Paid$17,900
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$98,046$16,995$15,687$130,728
Grants to Domestic Orgs$16,400--$16,400
Occupancy$9,595$4,798$1,599$15,992
Payments to Affiliates$12,689--$12,689
Information Technology$7,975$1,501$2,081$11,557
Fees for Services Lobbying$10,350--$10,350
Fees for Services Other$10,141--$10,141
Payroll Taxes$6,801$1,600$1,600$10,001
Office Expenses$6,712$1,138$1,138$8,988
Travel$8,344--$8,344
Fees for Services Accounting$1,430-$1,320$2,750
Insurance$1,882$311$207$2,400
Grants to Domestic Individuals$1,500--$1,500
Depreciation Depletion$857--$857
Conferences and Meetings$300--$300
Advertising$198--$198
Other Expenses$57$326$326$57
Total Functional Expenses$197,646$28,768$26,259$252,673

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$266,928
Expenses per Audited Statements$252,673
Total Expenses per Form 990$252,673
Expenses Not Reported on Form 990$14,255
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Brainy CampsWashington, DCXSummer Camp$10,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$16,314
Fundraising Direct Expenses$13,129
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Great Steps$102,616$14,677$13,129$1,548
Total Events$102,616$14,677$13,129$1,548
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“The organization's principal officer will review the federal 990 and in addition the treasurer and president will review the federal 990 prior to the actual irs filing.”

Form 990, Page 6, Part VI, Line 15A

“The board of directors determine the salaries annually.”

Form 990, Page 6, Part VI, Line 15B

“The board of directors determine the base salaries.”

Form 990, Page 6, Part VI, Line 19

“The governing documents are available to the publice by request,”

Filing and Contact Details

Filer

Filer Name
Neurofibromatosis Midwest
EIN
22-2580173
Phone
6309453562
Address
473 DUNHAM ROAD SUITE 3, ST CHARLES, IL 60174

Signing Officer

Name
Diana Haberkamp
Title
Executive Director
Phone
6309328111
Signed
2025-04-29
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Diana Haberkamp
Formed
1981
Legal Domicile
Il
Voting Board Members
4
Independent Board Members
4
Employees
6
Volunteers
80

Preparer

Firm
KOLNICKI PETERSON & WIRTH CPA'S
Address
1400 OPUS PLACE SUITE 100, DOWNERS GROVE, IL 60515
Preparer
Kenneth W Peterson CPA
Phone
6303901140
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“To improve the lives of children, adults, and families impacted by neurofibromatosis by focusing on and improving clinics, awareness, research, education and support in the states of illinois, indiana, iowa, kentucky, wisconsin, and the eastern half of missouri.”

Form 990, Part XI, Line 9

“Direct expenses 14,255 direct expenses -14,255”

Financial Statement Notes

Schedule D, Page 4, Part XI, Line 2D

“DIRECT EXPENSES 14,255”

Schedule D, Page 4, Part XII, Line 2D

“DIRECT EXPENSES 14,255”

Raw XML AppendixShowing 400 of 450 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt01100
IRS990/OtherAssetsTotalGrp/EOYAmt01100
IRS990/OtherExpensesGrp/Desc0BANK AND CREDIT CARD FEES
IRS990/OtherExpensesGrp/Desc1TELEPHONE
IRS990/OtherExpensesGrp/Desc2NF EDUCATION
IRS990/OtherExpensesGrp/Desc3MISCELLANEOUS
IRS990/OtherExpensesGrp/FundraisingAmt02301
IRS990/OtherExpensesGrp/FundraisingAmt1326
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt02099
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1326
IRS990/OtherExpensesGrp/ProgramServicesAmt02368
IRS990/OtherExpensesGrp/ProgramServicesAmt11520
IRS990/OtherExpensesGrp/ProgramServicesAmt2481
IRS990/OtherExpensesGrp/ProgramServicesAmt357
IRS990/OtherExpensesGrp/TotalAmt06768
IRS990/OtherExpensesGrp/TotalAmt12172
IRS990/OtherExpensesGrp/TotalAmt2481
IRS990/OtherExpensesGrp/TotalAmt357
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt015687
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt016995
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt098046
IRS990/OtherSalariesAndWagesGrp/TotalAmt0130728
IRS990/OthNotesLoansReceivableNetGrp/BOYAmt0105
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt012689
IRS990/PaymentsToAffiliatesGrp/TotalAmt012689
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt01600
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01600
IRS990/PayrollTaxesGrp/ProgramServicesAmt06801
IRS990/PayrollTaxesGrp/TotalAmt010001
IRS990/PoliticalCampaignActyInd0false
IRS990/PrincipalOfficerNm0DIANA HABERKAMP
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgSrvcAccomActy2Grp/Desc0SUPPORT/EDUCATION/AWARENESS NEUROFIBROMATOSIS MIDWEST PROVIDES EDUCATION TO INDIVIDUALS AND FAMILIES WITH NEUROFIBROMATOSIS, TO THE MEDICAL COMMUNITY AND TO THE PUBLIC THROUGH AN ANNUAL SYMPOSIUM; SMALLER LOCAL MEETINGS; AND PRINTED AND ONLINE MATERIALS. WE PROVIDE FREE PACKETS OF INFORMATION TO NEWLY DIAGNOSED FAMILIES AND PHONE AND ONLINE SUPPORT. AN ANNUAL GRANT IS PROVIDED TO SEND CHILDREN WITH NF TO CAMP. WE ALSO PROVIDE MATERIALS AND OPPORTUNITIES TO RAISE AWARENESS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt010000
IRS990/ProgSrvcAccomActy2Grp/GrantAmt010000
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0230293
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt060282
IRS990/PYInvestmentIncomeAmt07244
IRS990/PYOtherExpensesAmt085968
IRS990/PYOtherRevenueAmt03686
IRS990/PYRevenuesLessExpensesAmt0-21365
IRS990/PYSalariesCompEmpBnftPaidAmt0116338
IRS990/PYTotalExpensesAmt0262588
IRS990/PYTotalRevenueAmt0241223
IRS990/QuidProQuoContributionsInd0true
IRS990/QuidProQuoContriDisclInd0true
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt054992
IRS990/RegularMonitoringEnfrcInd0false
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0OTHER INCOME 2,687
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0PART II, LINE 10
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0295569
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0230293
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0183921
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0145261
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0140948
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt0995992
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt07144
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt07244
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt014388
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0202321
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt01
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt03
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt02683
IRS990ScheduleA/OtherIncome170Grp/TotalAmt02687
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.98310
IRS990ScheduleA/PublicSupportPY170Pct00.98660
IRS990ScheduleA/PublicSupportTotal170Amt0995992
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0295569
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0230293
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0183921
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0145261
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0140948
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt0995992
IRS990ScheduleA/TotalSupportAmt01013067
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleC/DirectContactLegislatorsInd0false
IRS990ScheduleC/GrantsOtherOrganizationsInd0false
IRS990ScheduleC/MailingsMembersInd0false
IRS990ScheduleC/MediaAdvertisementsInd0false
IRS990ScheduleC/NotDescribedSection501c3Ind0false
IRS990ScheduleC/OtherActivitiesInd0false
IRS990ScheduleC/PaidStaffOrManagementInd0true
IRS990ScheduleC/PublicationsOrBroadcastInd0false
IRS990ScheduleC/RalliesDemonstrationsInd0false
IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION HIRED A LOBBYING FIRM THAT PUTS THE ORGANIZATION'S PEOPLE AT NEUROFIBROMATOSIS MIDWEST IN CONTACT WITH POLITICIANS.
IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE C, PART II-B, LINE 1
IRS990ScheduleC/VolunteersInd0true
IRS990ScheduleD/EquipmentGrp/BookValueAmt02758
IRS990ScheduleD/EquipmentGrp/DepreciationAmt01525
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt04283
IRS990ScheduleD/ExpensesNotReportedAmt014255
IRS990ScheduleD/ExpensesSubtotalAmt0252673
IRS990ScheduleD/OtherExpensesIncludedAmt014255
IRS990ScheduleD/OtherRevenueAmt014255
IRS990ScheduleD/RevenueNotReportedAmt014255
IRS990ScheduleD/RevenueSubtotalAmt0307665
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0DIRECT EXPENSES 14,255
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1DIRECT EXPENSES 14,255
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE D, PAGE 4, PART XI, LINE 2D
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1SCHEDULE D, PAGE 4, PART XII, LINE 2D
IRS990ScheduleD/TotalBookValueLandBuildingsAmt02758
IRS990ScheduleD/TotalExpensesPerForm990Amt0252673
IRS990ScheduleD/TotalRevenuePerForm990Amt0307665
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0321920
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0266928
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt087939
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt087939
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt013129
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0GREAT STEPS
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0102616
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0102616
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt014677
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt014677
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt01548
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt013129
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt013129
IRS990ScheduleI/GrantRecordsMaintainedInd0false
IRS990ScheduleI/RecipientTable/CashGrantAmt010000
IRS990ScheduleI/RecipientTable/IRCSectionDesc0X
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0SUMMER CAMP
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0BRAINY CAMPS
IRS990ScheduleI/RecipientTable/RecipientEIN0271547370
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0111 MICHIGAN AVE NW
IRS990ScheduleI/RecipientTable/USAddress/CityNm0WASHINGTON
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0DC
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd020010
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0TO IMPROVE THE LIVES OF CHILDREN, ADULTS, AND FAMILIES IMPACTED BY NEUROFIBROMATOSIS BY FOCUSING ON AND IMPROVING CLINICS, AWARENESS, RESEARCH, EDUCATION AND SUPPORT IN THE STATES OF ILLINOIS, INDIANA, IOWA, KENTUCKY, WISCONSIN, AND THE EASTERN HALF OF MISSOURI.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION'S PRINCIPAL OFFICER WILL REVIEW THE FEDERAL 990 AND IN ADDITION THE TREASURER AND PRESIDENT WILL REVIEW THE FEDERAL 990 PRIOR TO THE ACTUAL IRS FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE BOARD OF DIRECTORS DETERMINE THE SALARIES ANNUALLY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE BOARD OF DIRECTORS DETERMINE THE BASE SALARIES.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE GOVERNING DOCUMENTS ARE AVAILABLE TO THE PUBLICE BY REQUEST,
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5DIRECT EXPENSES 14,255 DIRECT EXPENSES -14,255
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 15B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PART XI, LINE 9
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0IL
IRS990/StatesWhereCopyOfReturnIsFldCd1IN
IRS990/StatesWhereCopyOfReturnIsFldCd2WI
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0293598
IRS990/TotalAssetsEOYAmt0366270
IRS990/TotalAssetsGrp/BOYAmt0293598
IRS990/TotalAssetsGrp/EOYAmt0366270
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0295569
IRS990/TotalEmployeeCnt06
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt026259
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt028768
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0197646
IRS990/TotalFunctionalExpensesGrp/TotalAmt0252673
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt0874
IRS990/TotalLiabilitiesEOYAmt0951
IRS990/TotalLiabilitiesGrp/BOYAmt0874
IRS990/TotalLiabilitiesGrp/EOYAmt0951
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0292724
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0365319

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