Civic Intelligence

Epilepsy Foundation of Connecticut Inc.

990 • Fiscal year 2021 • EIN 22-2535999

Jan 01, 2021 to Dec 31, 2021 • Filed on May 13, 2022

Organization ProfileWWW.EPILEPSYCT.COM
386 Main StreetMiddletown, CT 06457-3360

(860) 346-1924

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

41st percentile

0.03x

Higher debt load relative to assets than 41% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Liabilities / Revenue

64th percentile

0.19x

Higher debt load relative to revenue than 64% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Net Margin

67th percentile

24%

Higher net margin than 67% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Top Officer Pay

70th percentile

$101,253

Higher top officer pay than 70% of similar nonprofits.

Top officer pay equals 14.9% of source-year revenue.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Asset Growth

54th percentile

11%

Faster asset growth than 54% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Revenue Growth

88th percentile

105%

Faster revenue growth than 88% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets41st percentile

Assets

Up

$3,813,416

Up $387,551 (+11%) from 2020

Net Assets

Up

$3,686,671

Up $267,391 (+7.8%) from 2020

Liabilities

Up

$126,745

Up $120,160 (+1825%) from 2020

Revenue And Expenses
Liabilities / Revenue64th percentileNet Margin67th percentile

Revenue

Up

$677,570

Up $347,226 (+105%) from 2020

Expenses

Up

$515,138

Up $83,717 (+19%) from 2020

Net Income

Up

$162,432

Up $263,509 (+261%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth54th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2010: $341,661Liabilities 2010: $5,811Net Assets 2010: $335,8502010Assets 2011: $321,896Liabilities 2011: $8,757Net Assets 2011: $313,1392011Assets 2012: $341,082Liabilities 2012: $10,711Net Assets 2012: $330,3712012Assets 2013: $387,744Liabilities 2013: $13,585Net Assets 2013: $374,1592013Assets 2014: $476,696Liabilities 2014: $8,499Net Assets 2014: $468,1972014Assets 2015: $3,044,219Liabilities 2015: $36,836Net Assets 2015: $3,007,3832015Assets 2016: $3,050,298Liabilities 2016: $14,671Net Assets 2016: $3,035,6272016Assets 2017: $3,003,258Liabilities 2017: $8,581Net Assets 2017: $2,994,6772017Assets 2018: $2,750,574Liabilities 2018: $7,835Net Assets 2018: $2,742,7392018Assets 2019: $3,192,622Liabilities 2019: $4,962Net Assets 2019: $3,187,6602019Assets 2020: $3,425,865Liabilities 2020: $6,585Net Assets 2020: $3,419,2802020Assets 2021: $3,813,416Liabilities 2021: $126,745Net Assets 2021: $3,686,6712021Assets 2022: $3,279,481Liabilities 2022: $133,745Net Assets 2022: $3,145,7362022Assets 2023: $3,405,022Liabilities 2023: $114,138Net Assets 2023: $3,290,8842023Assets 2024: $3,467,051Liabilities 2024: $79,547Net Assets 2024: $3,387,5042024

Highlighted filing

2021

Assets$3,813,416
Liabilities$126,745
Net Assets$3,686,671
Open 2021 Filing

Operations Trend

Revenue Growth88th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $208,9452010Expenses 2011: $221,6972011Expenses 2012: $243,9892012Revenue 2013: $273,980Expenses 2013: $234,176Net Income 2013: $39,8042013Revenue 2014: $343,841Expenses 2014: $249,259Net Income 2014: $94,5822014Revenue 2015: $2,892,525Expenses 2015: $332,923Net Income 2015: $2,559,6022015Revenue 2016: $454,277Expenses 2016: $438,020Net Income 2016: $16,2572016Revenue 2017: $341,802Expenses 2017: $410,851Net Income 2017: -$69,0492017Revenue 2018: $431,073Expenses 2018: $460,555Net Income 2018: -$29,4822018Revenue 2019: $431,797Expenses 2019: $451,710Net Income 2019: -$19,9132019Revenue 2020: $330,344Expenses 2020: $431,421Net Income 2020: -$101,0772020Revenue 2021: $677,570Expenses 2021: $515,138Net Income 2021: $162,4322021Revenue 2022: $389,163Expenses 2022: $386,774Net Income 2022: $2,3892022Revenue 2023: $599,324Expenses 2023: $759,334Net Income 2023: -$160,0102023Revenue 2024: $699,473Expenses 2024: $716,921Net Income 2024: -$17,4482024

Highlighted filing

2021

Revenue$677,570
Expenses$515,138
Net Income$162,432
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
May 13, 2022
Return Version
2021v4.0
Gross Receipts
$1,542,233
Mission and Program Overview

Mission

The mission of the epilepsy foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

The mission of the epilepsy foundation of connecticut is to lead the fight to overcome the challenges of living with epilepsy and to inform clients regarding therapies to stop seizures, find cures, and save lives.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$3,326,076$3,536,885▲ $210,809
Savings and Temporary Cash Investments$25,784$186,564▲ $160,780
Cash and Non-Interest-Bearing Accounts$21,609$74,294▲ $52,685
Pledges and Grants Receivable$39,509$8,924▼ $30,585
Prepaid Expenses and Deferred Charges$7,854$2,502▼ $5,352
Land, Buildings, and Equipment, Net$1,833$1,047▼ $786
Total Assets$3,425,865$3,813,416▲ $387,551
Other Assets Total$3,200$3,200→ $0
Liabilities
Accounts Payable and Accrued Expenses$6,585$126,745▲ $120,160
Total Liabilities$6,585$126,745▲ $120,160
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$3,387,702$3,669,774▲ $282,072
Net Assets With Donor Restrictions$31,578$16,897▼ $14,681
Total Net Assets Fund Balance$3,419,280$3,686,671▲ $267,391
Total Liabilities and Net Assets / Fund Balance$3,425,865$3,813,416▲ $387,551

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,047$23,323$24,370
Compensation and Service Providers
Top Officer Pay70th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Linda WallaceExecutive DiFT$93,300$7,953$101,253

Board Members and Trustees

NameTitle
Dr Robert BonwetschPab Chair
Denise BrowerPresident
Alex S RobertsonDirector
Darren SinofskyDirector
Davina KingDirector
Gary R SiegelDirector
Ian RaceDirector
Letanya LawrenceDirector
Michelle MechanicDirector
Scott DemseyDirector
Steve ArenaHonorary Director
Lisa CretellaSecretary
Susan L Sheppard CPATreasurer
Greg SparzoVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$344,500
Program Service Revenue
$3,555
Investment Income
$329,515
Other Revenue
$0
All Other Contributions
$132,741
Change in Net Assets
$162,432

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table6$52,800Fair Market Value (FMV) - Comparable Sales
Total Noncash Contributions6$52,800-

Audited Revenue Reconciliation

Revenue per Audited Statements
$788,938
Revenue Not Reported on Financial Statements
$-111,368
Revenue Not Reported on Form 990
$132,269
Other Revenue Adjustments
$-111,368
Total Revenue per Audited Statements
$921,207
Total Revenue per Form 990
$677,570
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$388,243
Other Expenses$120,450
Total Fundraising Expense$86,529
Grants and Similar Amounts Paid$6,445
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$102,889$71,635$28,551$203,075
Other Salaries and Wages$106,642$8,207$32,873$147,722
Occupancy$26,787$10,207$7,852$44,846
Payroll Taxes$16,564$6,312$4,855$27,731
Office Expenses$10,395$3,713$2,856$16,964
Other Employee Benefits$5,026$1,915$1,474$8,415
Fees for Services Accounting$4,300$1,639$1,261$7,200
Grants to Domestic Individuals$6,445--$6,445
Fees for Services Other$4,831$211$983$6,025
Insurance$2,550$972$748$4,270
Other Expenses$1,979$754$580$3,313
Fees for Services Legal$2,390--$2,390
Conferences and Meetings$875$334$257$1,466
Pension Plan Contributions$776$296$228$1,300
Depreciation Depletion$469$179$138$786
Travel$624$4$3$631
Total Functional Expenses$317,201$111,408$86,529$515,138

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$653,816
Expenses per Audited Statements$515,138
Total Expenses per Form 990$515,138
Expenses Not Reported on Form 990$138,678
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$111,368
Fundraising Gross Income$111,368
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Mud Volleyball$70,800$47,985$46,069$1,916
Walk to End Epi$112,346$21,324$18,460$2,864
Total Events$267,782$111,119$111,119-
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“The form 990 is reviewed by the executive director and the signing officer prior to submission to the internal revenue service.”

Form 990, Page 6, Part VI, Line 12C

“Members of the board are requested to sign annual conflict of interest statements, according to the foundations policies. Any member of the board of directors who has a conflict related to a business matter under discussion is required to recuse him/herself from the discussion and abstain from voting.”

Form 990, Page 6, Part VI, Line 15A

“Compensation for all paid employees is currently discussed amongst the board of directors.”

Form 990, Page 6, Part VI, Line 19

“All governing documents, conflict of interest policy and financial statements are available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Epilepsy Foundation of
EIN
22-2535999
Phone
8603461924
Address
386 MAIN STREET, MIDDLETOWN, CT 06457-3360

Signing Officer

Name
Denise Brower
Title
President
Phone
8603461924
Signed
2022-05-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Denise Brower
Formed
1984
Legal Domicile
Ct
Voting Board Members
10
Independent Board Members
10
Employees
6
Volunteers
200

Preparer

Firm
Carney Roy and Gerrol Pc
Address
35 COLD SPRING ROAD SUITE 111, ROCKY HILL, CT 06067-3161
Preparer
Thomas D Roy
Phone
8607215786
Supplemental Narrative

Additional Explanations

Form 990, Page 2, Part III, Line 4A

“The epilepsy foundation of connecticut: provided information i.e. Brochures, medication information, legal rights, advocacy, etc. To 524 clients. Conducted 51 educational programs that served 900 participants including school nurses, allied healthcare professionals, teachers, camp counselors, lifeguards, early childcare educators, other agency and employee training, senior citizens, transit companies, elementary school students, middle school students, high school students, police officers, and first responders. Hosted 5 educational webinars with professionals providing information about various epilepsy related topics. Successfully advocated for emergency legislation expanding access to and reimbursement of telehealth services during the covid pandemic. Sponsored a camping program for 11 children and teens with epilepsy. Managed a parent & family telephone support network. Managed a friend to friend telephone support network. Sponsored 5 virtual support groups throughout connecticut, serving 50 people monthly. Provided transportation assistance for clients with epilepsy. Offered the halyn murtha family assistance fund to help people with epilepsy in need of financial assistance to cover the cost of epilepsy treatment, and care services associated with the condition. Enrolled 12 clients in the hobscotch memory & cognition program. Enrolled 15 clients in project uplift program that improved mental health through mindfulness and cognitive behavioral skills.”

Form 990, Part XI, Line 9

“Fundraising event direct expenses 111,368 fundraising event direct expenses -111,368”

Financial Statement Notes

Schedule D, Page 4, Part XI, Line 4B

“Fundraising event direct expenses -111,368”

Schedule D, Page 4, Part XII, Line 2D

“Fundraising event direct expenses 111,368”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt1HONORARY DIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2PAB CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt4TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt5SECRETARY
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IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
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IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
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IRS990/MissionDesc0THE MISSION OF THE EPILEPSY FOUNDATION OF CONNECTICUT IS TO LEAD THE FIGHT TO OVERCOME THE CHALLENGES OF LIVING WITH EPILEPSY AND TO INFORM CLIENTS REGARDING THERAPIES TO STOP SEIZURES, FIND CURES, AND SAVE LIVES.
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IRS990/OccupancyGrp/TotalAmt044846
IRS990/OfficeExpensesGrp/FundraisingAmt02856
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IRS990/Organization501c3Ind0X
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IRS990/OtherExpensesGrp/Desc2EQUIPMENT
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IRS990/OtherExpensesGrp/FundraisingAmt1580
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IRS990/OwnWebsiteInd0X
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IRS990/PrincipalOfficerNm0DENISE BROWER
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IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION MADE ITS FIRST SECTION 501(H) ELECTION IN THE TAX YEAR ENDED DECEMBER 31, 2020. COLUMNS FOR YEARS BEFORE 2020 ARE NOT COMPLETED, ACCORDINGLY.
IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE C, PART II-A
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IRS990ScheduleC/TotalLobbyingExpendGrp/FilingOrganizationsTotalAmt015454

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Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,813,416
Liabilities
$126,745
Net assets
$3,686,671
Revenue
$677,570
Expenses
$515,138
Net income
$162,432
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.47$0.08$3.39$0.70$0.72$0.02
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.41$0.11$3.29$0.60$0.76$0.16
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.28$0.13$3.15$0.39$0.39$0.00
2021Detailed filing. Detailed filing data is available for this year.$3.81$0.13$3.69$0.68$0.52$0.16
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.43$0.01$3.42$0.33$0.43$0.10
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.19$0.00$3.19$0.43$0.45$0.02
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.75$0.01$2.74$0.43$0.46$0.03
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.00$0.01$2.99$0.34$0.41$0.07
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.05$0.01$3.04$0.45$0.44$0.02
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.04$0.04$3.01$2.89$0.33$2.56
2014Detailed filing. Detailed filing data is available for this year.$0.48$0.01$0.47$0.34$0.25$0.09
2013XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.39$0.01$0.37$0.27$0.23$0.04
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.34$0.01$0.33$0.24
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.32$0.01$0.31$0.22
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.34$0.01$0.34$0.21