Civic Intelligence

Epilepsy Foundation of Connecticut Inc.

990 • Fiscal year 2020 • EIN 22-2535999

Jan 01, 2020 to Dec 31, 2020 • Filed on Apr 06, 2021

Organization ProfileWWW.EPILEPSYCT.COM
386 Main StreetMiddletown, CT 06457-3360

(860) 346-1924

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

19th percentile

0.00x

Higher debt load relative to assets than 19% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Liabilities / Revenue

25th percentile

0.02x

Higher debt load relative to revenue than 25% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Net Margin

11th percentile

-31%

Higher net margin than 11% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Top Officer Pay

70th percentile

$101,422

Higher top officer pay than 70% of similar nonprofits.

Top officer pay equals 30.7% of source-year revenue.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Asset Growth

53rd percentile

7.3%

Faster asset growth than 53% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Revenue Growth

20th percentile

-23%

Faster revenue growth than 20% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets19th percentile

Assets

Up

$3,425,865

Up $233,243 (+7.3%) from 2019

Net Assets

Up

$3,419,280

Up $231,620 (+7.3%) from 2019

Liabilities

Up

$6,585

Up $1,623 (+33%) from 2019

Revenue And Expenses
Liabilities / Revenue25th percentileNet Margin11th percentile

Revenue

Down

$330,344

Down $101,453 (-23%) from 2019

Expenses

Down

$431,421

Down $20,289 (-4.5%) from 2019

Net Income

Down

-$101,077

Down $81,164 (-408%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth53rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2010: $341,661Liabilities 2010: $5,811Net Assets 2010: $335,8502010Assets 2011: $321,896Liabilities 2011: $8,757Net Assets 2011: $313,1392011Assets 2012: $341,082Liabilities 2012: $10,711Net Assets 2012: $330,3712012Assets 2013: $387,744Liabilities 2013: $13,585Net Assets 2013: $374,1592013Assets 2014: $476,696Liabilities 2014: $8,499Net Assets 2014: $468,1972014Assets 2015: $3,044,219Liabilities 2015: $36,836Net Assets 2015: $3,007,3832015Assets 2016: $3,050,298Liabilities 2016: $14,671Net Assets 2016: $3,035,6272016Assets 2017: $3,003,258Liabilities 2017: $8,581Net Assets 2017: $2,994,6772017Assets 2018: $2,750,574Liabilities 2018: $7,835Net Assets 2018: $2,742,7392018Assets 2019: $3,192,622Liabilities 2019: $4,962Net Assets 2019: $3,187,6602019Assets 2020: $3,425,865Liabilities 2020: $6,585Net Assets 2020: $3,419,2802020Assets 2021: $3,813,416Liabilities 2021: $126,745Net Assets 2021: $3,686,6712021Assets 2022: $3,279,481Liabilities 2022: $133,745Net Assets 2022: $3,145,7362022Assets 2023: $3,405,022Liabilities 2023: $114,138Net Assets 2023: $3,290,8842023Assets 2024: $3,467,051Liabilities 2024: $79,547Net Assets 2024: $3,387,5042024

Highlighted filing

2020

Assets$3,425,865
Liabilities$6,585
Net Assets$3,419,280
Open 2020 Filing

Operations Trend

Revenue Growth20th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $208,9452010Expenses 2011: $221,6972011Expenses 2012: $243,9892012Revenue 2013: $273,980Expenses 2013: $234,176Net Income 2013: $39,8042013Revenue 2014: $343,841Expenses 2014: $249,259Net Income 2014: $94,5822014Revenue 2015: $2,892,525Expenses 2015: $332,923Net Income 2015: $2,559,6022015Revenue 2016: $454,277Expenses 2016: $438,020Net Income 2016: $16,2572016Revenue 2017: $341,802Expenses 2017: $410,851Net Income 2017: -$69,0492017Revenue 2018: $431,073Expenses 2018: $460,555Net Income 2018: -$29,4822018Revenue 2019: $431,797Expenses 2019: $451,710Net Income 2019: -$19,9132019Revenue 2020: $330,344Expenses 2020: $431,421Net Income 2020: -$101,0772020Revenue 2021: $677,570Expenses 2021: $515,138Net Income 2021: $162,4322021Revenue 2022: $389,163Expenses 2022: $386,774Net Income 2022: $2,3892022Revenue 2023: $599,324Expenses 2023: $759,334Net Income 2023: -$160,0102023Revenue 2024: $699,473Expenses 2024: $716,921Net Income 2024: -$17,4482024

Highlighted filing

2020

Revenue$330,344
Expenses$431,421
Net Income-$101,077
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Apr 6, 2021
Return Version
2020v4.0
Gross Receipts
$788,976
Mission and Program Overview

Mission

The mission of the epilepsy foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$3,060,471$3,326,076▲ $265,605
Pledges and Grants Receivable$17,713$39,509▲ $21,796
Savings and Temporary Cash Investments$67,364$25,784▼ $41,580
Cash and Non-Interest-Bearing Accounts$37,482$21,609▼ $15,873
Prepaid Expenses and Deferred Charges$3,773$7,854▲ $4,081
Land, Buildings, and Equipment, Net$2,619$1,833▼ $786
Total Assets$3,192,622$3,425,865▲ $233,243
Other Assets Total$3,200$3,200→ $0
Liabilities
Accounts Payable and Accrued Expenses$4,962$6,585▲ $1,623
Total Liabilities$4,962$6,585▲ $1,623
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$3,166,813$3,387,702▲ $220,889
Net Assets With Donor Restrictions$20,847$31,578▲ $10,731
Total Net Assets Fund Balance$3,187,660$3,419,280▲ $231,620
Total Liabilities and Net Assets / Fund Balance$3,192,622$3,425,865▲ $233,243

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,833$22,537$24,370
Compensation and Service Providers
Top Officer Pay70th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Linda WallaceExecutive DiFT$93,500$7,922$101,422

Board Members and Trustees

NameTitle
Ian RacePresident
Alex S RobertsonDirector
Davina KingDirector
Denise BrowerDirector
Dr Robert BonwetschDirector
Gary R SiegelDirector
Letanya LawrenceDirector
Lisa CretellaDirector
Michelle MechanicDirector
Scott DemseyDirector
Yulia ChillingtonDirector
Steve ArenaHonorary Director
Darren SinofskySecretary
Susan L Sheppard CPATreasurer
Greg SparzoVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$300,644
Program Service Revenue
$348
Investment Income
$29,352
Other Revenue
$0
All Other Contributions
$142,290
Change in Net Assets
$-101,077

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table8$29,626Fair Market Value (FMV) - Comparable Sales
Total Noncash Contributions8$29,626-

Audited Revenue Reconciliation

Revenue per Audited Statements
$389,006
Revenue Not Reported on Financial Statements
$-58,662
Revenue Not Reported on Form 990
$337,163
Other Revenue Adjustments
$-58,662
Total Revenue per Audited Statements
$726,169
Total Revenue per Form 990
$330,344
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$311,708
Other Expenses$119,713
Total Fundraising Expense$43,825
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$154,953$4,269$17,901$177,123
Current Officers, Directors, Trustees, and Key Employees$76,713$14,561$10,148$101,422
Occupancy$42,542$3,458$5,151$51,151
Office Expenses$21,555$1,844$3,968$27,367
Payroll Taxes$18,112$1,472$2,193$21,777
Other Employee Benefits$8,531$693$1,033$10,257
Fees for Services Accounting$5,905$480$715$7,100
Fees for Services Other$5,767$469$699$6,935
Insurance$3,208$261$388$3,857
Other Expenses$2,398$195$290$2,883
Conferences and Meetings$2,746--$2,746
Pension Plan Contributions$939$76$114$1,129
Travel$814--$814
Depreciation Depletion$654$53$79$786
Interest$293$24$36$353
Total Functional Expenses$358,996$28,600$43,825$431,421

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$494,549
Expenses per Audited Statements$431,421
Total Expenses per Form 990$431,421
Expenses Not Reported on Form 990$63,128
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$58,662
Fundraising Gross Income$58,662
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Golf Tournament$32,574$17,618$3,329$14,289
Walk to End Epi$66,414$10,712$9,712$1,000
Total Events$160,465$56,597$56,597-
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“The form 990 is reviewed by the executive director and the treasurer (who is a cpa) prior to submission to the internal revenue service”

Form 990, Page 6, Part VI, Line 12C

“Annual conflict of interest statements are required to be signed. Any member of the board of directors who has a conflict related to a business matter under discussion is required to recuse him/herself from the discussion and abstain from voting.”

Form 990, Page 6, Part VI, Line 15A

“Compensation is approved by the board of directors upon recommendation of the executive commitiee. Comparable salary information is provided by the treasurer”

Form 990, Page 6, Part VI, Line 19

“All governing documents, conflict of interest policy and financial statements are available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Epilepsy Foundation of
EIN
22-2535999
Phone
8603461924
Address
386 MAIN STREET, MIDDLETOWN, CT 06457-3360

Signing Officer

Name
Susan L Sheppard CPA
Title
Treasurer
Phone
8603461924
Signed
2021-04-06
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Susan L Sheppard CPA
Formed
1984
Legal Domicile
Ct
Voting Board Members
15
Independent Board Members
15
Employees
5
Volunteers
200

Preparer

Firm
Carney Roy and Gerrol Pc
Address
35 COLD SPRING ROAD SUITE 111, ROCKY HILL, CT 06067-3161
Preparer
Thomas D Roy
Phone
8607215786
Supplemental Narrative

Additional Explanations

Form 990, Page 2, Part III, Line 4A

“The epilepsy foundation of connecticut: provided information i.e. Brochures, medication information, legal rights, advocacy, etc. To 660 clients. Conducted 35 educational programs that served 900 participants including school nurses, allied healthcare professionals, teachers, camp counselors, lifeguards, early childcare educators, other agency and employee training, senior citizens, transit companies, elementary school students, middle school students, high school students, police officers, and first responders. Hosted 7 educational webinars with professionals providing information about various epilepsy related topics. Successfully advocated for emergency legislation expanding access to and reimbursement of telehealth services during the covid pandemic. Sponsored a virtual camping program for 15 children and teens with epilepsy. Managed a parent & family telephone support network. Managed a friend to friend telephone support network. Sponsored 5 support groups throughout connecticut, serving 50 people monthly. Provided transportation assistance for clients with epilepsy. Offered the halyn murtha family assistance fund to help people with epilepsy in need of financial assistance to cover the cost of epilepsy treatment, and care services associated with the condition. Enrolled 17 clients in the hobscotch memory & cognition program. Enrolled 26 clients in project uplift program that improved mental health through mindfulness and cognitive behavioral skills.”

Form 990, Part XI, Line 9

“Fundraising event direct expenses 58,662 fundraising event direct expenses -58,662”

Financial Statement Notes

Schedule D, Page 4, Part XI, Line 4B

“Fundraising event direct expenses -58,662”

Schedule D, Page 4, Part XII, Line 2D

“Fundraising event direct expenses 58,662”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt15VICE PRESIDE
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IRS990/MinutesOfCommitteesInd0true
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IRS990/MissionDesc0THE MISSION OF THE EPILEPSY FOUNDATION IS TO LEAD THE FIGHT TO OVERCOME THE CHALLENGES OF LIVING WITH EPILEPSY AND TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES, AND SAVE LIVES.
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IRS990/OtherExpensesGrp/Desc0OTHER DUES AND FEES
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IRS990/OtherExpensesGrp/Desc2EQUIPMENT
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IRS990/OtherExpensesGrp/FundraisingAmt1290
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0745
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1195
IRS990/OtherExpensesGrp/ProgramServicesAmt09172
IRS990/OtherExpensesGrp/ProgramServicesAmt14694
IRS990/OtherExpensesGrp/ProgramServicesAmt22398
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IRS990/OtherExpensesGrp/TotalAmt14694
IRS990/OtherExpensesGrp/TotalAmt22883
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt017901
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt04269
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0154953
IRS990/OtherSalariesAndWagesGrp/TotalAmt0177123
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt02193
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01472
IRS990/PayrollTaxesGrp/ProgramServicesAmt018112
IRS990/PayrollTaxesGrp/TotalAmt021777
IRS990/PensionPlanContributionsGrp/FundraisingAmt0114
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt076
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IRS990/PensionPlanContributionsGrp/TotalAmt01129
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt017713
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IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt03773
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IRS990/PrincipalOfficerNm0SUSAN L SHEPPARD CPA
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IRS990/ReconcilationRevenueExpnssAmt0-101077
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IRS990/ReportLandBuildingEquipmentInd0true
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IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION MADE ITS FIRST SECTION 501(H) ELECTION IN THE TAX YEAR ENDED DECEMBER 31, 2020. COLUMNS FOR YEARS BEFORE 2020 ARE NOT COMPLETED, ACCORDINGLY.
IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE C, PART II-A
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IRS990ScheduleC/TotalExemptPurposeExpendGrp/FilingOrganizationsTotalAmt0431421

Document Assets

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,425,865
Liabilities
$6,585
Net assets
$3,419,280
Revenue
$330,344
Expenses
$431,421
Net income
-$101,077
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.47$0.08$3.39$0.70$0.72$0.02
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.41$0.11$3.29$0.60$0.76$0.16
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.28$0.13$3.15$0.39$0.39$0.00
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.81$0.13$3.69$0.68$0.52$0.16
2020Detailed filing. Detailed filing data is available for this year.$3.43$0.01$3.42$0.33$0.43$0.10
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.19$0.00$3.19$0.43$0.45$0.02
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.75$0.01$2.74$0.43$0.46$0.03
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.00$0.01$2.99$0.34$0.41$0.07
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.05$0.01$3.04$0.45$0.44$0.02
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.04$0.04$3.01$2.89$0.33$2.56
2014Detailed filing. Detailed filing data is available for this year.$0.48$0.01$0.47$0.34$0.25$0.09
2013XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.39$0.01$0.37$0.27$0.23$0.04
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.34$0.01$0.33$0.24
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.32$0.01$0.31$0.22
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.34$0.01$0.34$0.21