Civic Intelligence

Epilepsy Foundation of Connecticut Inc

EIN 22-2535999 • 501(c)3 • Middletown, CT

Profile

The mission of the epilepsy foundation of connecticut is to lead the fight to overcome the challenges of living with epilepsy and to inform clients regarding therapies to stop seizures, find cures, and save lives.

386 Main StreetMiddletown, CT 06457-3360

www.epilepsyct.com

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

38th percentile

0.02x

Higher debt load relative to assets than 38% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

56th percentile

0.11x

Higher debt load relative to revenue than 56% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

33rd percentile

-2.5%

Higher net margin than 33% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

44th percentile

1.8%

Faster asset growth than 44% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

65th percentile

17%

Faster revenue growth than 65% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets38th percentile

Assets

Up

$3,467,051

Up $62,029 (+1.8%) from 2023

Liabilities

Down

$79,547

Down $34,591 (-30%) from 2023

Net Assets

Up

$3,387,504

Up $96,620 (+2.9%) from 2023

Operations
Liabilities / Revenue56th percentileNet Margin33rd percentile

Revenue

Up

$699,473

Up $100,149 (+17%) from 2023

Expenses

Down

$716,921

Down $42,413 (-5.6%) from 2023

Net Income

Up

-$17,448

Up $142,562 (+89%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth44th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$4.0M$3.0M$2.0M$1.0M$0Assets 2010: $341,661Liabilities 2010: $5,811Net Assets 2010: $335,8502010Assets 2011: $321,896Liabilities 2011: $8,757Net Assets 2011: $313,1392011Assets 2012: $341,082Liabilities 2012: $10,711Net Assets 2012: $330,3712012Assets 2013: $387,744Liabilities 2013: $13,585Net Assets 2013: $374,1592013Assets 2014: $476,696Liabilities 2014: $8,499Net Assets 2014: $468,1972014Assets 2015: $3,044,219Liabilities 2015: $36,836Net Assets 2015: $3,007,3832015Assets 2016: $3,050,298Liabilities 2016: $14,671Net Assets 2016: $3,035,6272016Assets 2017: $3,003,258Liabilities 2017: $8,581Net Assets 2017: $2,994,6772017Assets 2018: $2,750,574Liabilities 2018: $7,835Net Assets 2018: $2,742,7392018Assets 2019: $3,192,622Liabilities 2019: $4,962Net Assets 2019: $3,187,6602019Assets 2020: $3,425,865Liabilities 2020: $6,585Net Assets 2020: $3,419,2802020Assets 2021: $3,813,416Liabilities 2021: $126,745Net Assets 2021: $3,686,6712021Assets 2022: $3,279,481Liabilities 2022: $133,745Net Assets 2022: $3,145,7362022Assets 2023: $3,405,022Liabilities 2023: $114,138Net Assets 2023: $3,290,8842023Assets 2024: $3,467,051Liabilities 2024: $79,547Net Assets 2024: $3,387,5042024

Highlighted filing

2024

Assets$3,467,051
Liabilities$79,547
Net Assets$3,387,504
Open 2024 Filing

Operations Trend

Revenue Growth65th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $208,9452010Expenses 2011: $221,6972011Expenses 2012: $243,9892012Revenue 2013: $273,980Expenses 2013: $234,176Net Income 2013: $39,8042013Revenue 2014: $343,841Expenses 2014: $249,259Net Income 2014: $94,5822014Revenue 2015: $2,892,525Expenses 2015: $332,923Net Income 2015: $2,559,6022015Revenue 2016: $454,277Expenses 2016: $438,020Net Income 2016: $16,2572016Revenue 2017: $341,802Expenses 2017: $410,851Net Income 2017: -$69,0492017Revenue 2018: $431,073Expenses 2018: $460,555Net Income 2018: -$29,4822018Revenue 2019: $431,797Expenses 2019: $451,710Net Income 2019: -$19,9132019Revenue 2020: $330,344Expenses 2020: $431,421Net Income 2020: -$101,0772020Revenue 2021: $677,570Expenses 2021: $515,138Net Income 2021: $162,4322021Revenue 2022: $389,163Expenses 2022: $386,774Net Income 2022: $2,3892022Revenue 2023: $599,324Expenses 2023: $759,334Net Income 2023: -$160,0102023Revenue 2024: $699,473Expenses 2024: $716,921Net Income 2024: -$17,4482024

Highlighted filing

2024

Revenue$699,473
Expenses$716,921
Net Income-$17,448
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$3,467,051
Liabilities
$79,547
Net assets
$3,387,504
Revenue
$699,473
Expenses
$716,921
Net income
-$17,448
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.47$0.08$3.39$0.70$0.72$0.02
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.41$0.11$3.29$0.60$0.76$0.16
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.28$0.13$3.15$0.39$0.39$0.00
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.81$0.13$3.69$0.68$0.52$0.16
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.43$0.01$3.42$0.33$0.43$0.10
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.19$0.00$3.19$0.43$0.45$0.02
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.75$0.01$2.74$0.43$0.46$0.03
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.00$0.01$2.99$0.34$0.41$0.07
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.05$0.01$3.04$0.45$0.44$0.02
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.04$0.04$3.01$2.89$0.33$2.56
2014Detailed filing. Detailed filing data is available for this year.$0.48$0.01$0.47$0.34$0.25$0.09
2013XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.39$0.01$0.37$0.27$0.23$0.04
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.34$0.01$0.33$0.24
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.32$0.01$0.31$0.22
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.34$0.01$0.34$0.21
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 13, 2025
Return Version
2024v5.0
Gross Receipts
$1,168,180
Mission and Program Overview

Mission

The mission of the epilepsy foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

The mission of the epilepsy foundation of connecticut is to support people impacted by epilepsy through advocacy, education, programs and connections to ensure that they can live their best lives.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$3,160,080$3,289,017▲ $128,937
Savings and Temporary Cash Investments$37,720$87,413▲ $49,693
Cash and Non-Interest-Bearing Accounts$43,306$18,132▼ $25,174
Accounts Receivable$19,777$12,668▼ $7,109
Pledges and Grants Receivable$57,100$7,802▼ $49,298
Prepaid Expenses and Deferred Charges$2,156$2,717▲ $561
Land, Buildings, and Equipment, Net$2,388$1,671▼ $717
Total Assets$3,405,022$3,467,051▲ $62,029
Other Assets Total$82,495$47,631▼ $34,864
Liabilities
Other Liabilities$82,633$46,902▼ $35,731
Accounts Payable and Accrued Expenses$31,505$32,645▲ $1,140
Total Liabilities$114,138$79,547▼ $34,591
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$3,166,081$3,275,491▲ $109,410
Net Assets With Donor Restrictions$124,803$112,013▼ $12,790
Total Net Assets Fund Balance$3,290,884$3,387,504▲ $96,620
Total Liabilities and Net Assets / Fund Balance$3,405,022$3,467,051▲ $62,029

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,671$26,283$27,954
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Cherie PoirierExecutive DiFT$91,600$9,843$101,443

Board Members and Trustees

NameTitle
Denise BrowerPresident
Alex S RobertsonDirector
Cindy DiscoDirector
Derek FaulknerDirector
Dr John GreenfieldDirector
Dr Letanya LawrenceDirector
Gary R SiegelDirector
Ian RaceDirector
Jessica LoffredoDirector
Michelle MechanicDirector
Natalie CooperDirector
Renee SuppaDirector
Robert FieldsDirector
James HartEcecutive Di
Taylor Brown CPATreasurer
Greg SparzoVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$367,390
Program Service Revenue
$98,924
Investment Income
$233,159
Other Revenue
$0
All Other Contributions
$161,967
Change in Net Assets
$-17,448

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported Amount
Other Non Cash Contri Table66$16,147
Securities Publicly Traded3$12,104
Total Noncash Contributions69$28,251

Audited Revenue Reconciliation

Revenue per Audited Statements
$677,685
Revenue Not Reported on Financial Statements
$21,788
Revenue Not Reported on Form 990
$149,218
Total Revenue per Audited Statements
$826,903
Total Revenue per Form 990
$699,473
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$415,847
Other Expenses$301,074
Total Fundraising Expense$109,060
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$201,727$3,359$62,207$267,293
Current Officers, Directors, Trustees, and Key Employees$50,049$40,379$6,215$96,643
Fees for Services Accounting-$52,750-$52,750
Occupancy$33,878$5,857$9,194$48,929
Payroll Taxes$28,099$4,858$7,626$40,583
Office Expenses$19,721$3,409$5,352$28,482
Fees for Services Other$15,689$2,856$5,316$23,861
Fees for Service Investment Mgmnt Fees-$21,788-$21,788
Other Employee Benefits$6,278$1,085$1,708$9,071
Advertising$4,588-$2,293$6,881
Other Expenses$4,177$722$1,133$6,032
Insurance$3,075$531$834$4,440
Pension Plan Contributions$1,779$96$382$2,257
Depreciation Depletion$1,305$226$354$1,885
Conferences and Meetings$603$104$164$871
Travel$428$43$67$538
Interest$27$5$8$40
Total Functional Expenses$465,839$142,022$109,060$716,921

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$730,283
Total Expenses per Form 990$716,921
Expenses per Audited Statements$695,133
Expenses Not Reported on Form 990$35,150
Expenses Not Reported on Financial Statements$21,788
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$35,150
Fundraising Gross Income$35,150
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$69,917$15,976$4,378$11,598
Walk to End Epi$112,375$11,449$2,033$9,416
Total Events$240,573$35,150$35,150-
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Right-of-use Operating Lease Liabili$46,581
Right-of-use Finance Lease Liability$321
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

“The form 990 is reviewed by the executive director and the signing officer prior to submission to the internal revenue service. The entire board votes on the submitted 990.”

Form 990, Page 6, Part VI, Line 12C

“Members of the board are requested to sign annual conflict of interest statements, according to the foundations policies. Any member of the board of directors who has a conflict related to a business matter under discussion is required to recuse him/herself from the discussion and abstain from voting.”

Form 990, Page 6, Part VI, Line 15A

“Compensation for the executive director is currently determined by the executive committee. The compensation is included in the budget that is voted on by the entire board.”

Form 990, Page 6, Part VI, Line 19

“All governing documents, conflict of interest policy and financial statements are available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Epilepsy Foundation of
EIN
22-2535999
Phone
8603461924
Address
386 MAIN STREET, MIDDLETOWN, CT 06457-3360

Signing Officer

Name
James Hart
Title
Ececutive Director
Phone
8603461924
Signed
2025-11-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
James Hart
Formed
1984
Legal Domicile
Ct
Voting Board Members
15
Independent Board Members
15
Employees
10
Volunteers
60

Preparer

Firm
Carney Roy and Gerrol Pc
Address
35 COLD SPRING ROAD SUITE 111, ROCKY HILL, CT 06067-3161
Preparer
Thomas D Roy
Phone
8607215786
Supplemental Narrative

Additional Explanations

Form 990, Page 2, Part III, Line 4A

“The epilepsy foundation of connecticut: provided information i.e. Brochures, medication information, legal rights, advocacy, etc. To clients. Conducted educational programs that served participants including school nurses, allied healthcare professionals, teachers, camp counselors, lifeguards, early childcare educators, other agency and employee training, senior citizens, transit companies, elementary school students, middle school students, high school students, police officers, and first responders. Hosted educational webinars with professionals providing information about various epilepsy related topics. Successfully advocated for emergency legislation expanding access to and reimbursement of telehealth services during the covid pandemic. Sponsored a camping program for children and teens with epilepsy. Managed a parent & family telephone support network. Managed a friend to friend telephone support network. Sponsored virtual support groups throughout connecticut, serving dozens of people monthly. Provided transportation assistance for clients with epilepsy. Offered the halyn murtha family assistance fund to help people with epilepsy in need of financial assistance to cover the cost of epilepsy treatment, and care services associated with the condition. Enrolled clients in the hobscotch memory & cognition program. Enrolled clients in project uplift program that improved mental health through mindfulness and cognitive behavioral skills.”

Form 990, Part XI, Line 9

“Fundraising event direct expenses 35,150 fundraising event direct expenses -35,150”

Financial Statement Notes

Schedule D, Page 4, Part XI, Line 2D

“Fundraising event direct expenses 35,150”

Schedule D, Page 4, Part XII, Line 2D

“Fundraising event direct expenses 35,150”

Raw XML AppendixShowing 400 of 588 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0THE MISSION OF THE EPILEPSY FOUNDATION OF CONNECTICUT IS TO SUPPORT PEOPLE IMPACTED BY EPILEPSY THROUGH ADVOCACY, EDUCATION, PROGRAMS AND CONNECTIONS TO ENSURE THAT THEY CAN LIVE THEIR BEST LIVES.
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IRS990/Desc0THE EPILEPSY FOUNDATION OF CONNECTICUT: PROVIDED INFORMATION I.E. BROCHURES, MEDICATION INFORMATION, LEGAL RIGHTS, ADVOCACY, ETC. TO CLIENTS. CONDUCTED EDUCATIONAL PROGRAMS THAT SERVED PARTICIPANTS INCLUDING SCHOOL NURSES, ALLIED HEALTHCARE PROFESSIONALS, TEACHERS, CAMP COUNSELORS, LIFEGUARDS, EARLY CHILDCARE EDUCATORS, OTHER AGENCY AND EMPLOYEE TRAINING, SENIOR CITIZENS, TRANSIT COMPANIES, ELEMENTARY SCHOOL STUDENTS, MIDDLE SCHOOL STUDENTS, HIGH SCHOOL STUDENTS, POLICE OFFICERS, AND FIRST RESPONDERS. HOSTED EDUCATIONAL WEBINARS WITH PROFESSIONALS PROVIDING INFORMATION ABOUT VARIOUS EPILEPSY RELATED TOPICS. SUCCESSFULLY ADVOCATED FOR EMERGENCY LEGISLATION EXPANDING ACCESS TO AND REIMBURSEMENT OF TELEHEALTH SERVICES DURING THE COVID PANDEMIC. SPONSORED A CAMPING PROGRAM FOR CHILDREN AND TEENS WITH EPILEPSY. MANAGED A PARENT & FAMILY TELEPHONE SUPPORT NETWORK. MANAGED A FRIEND TO FRIEND TELEPHONE SUPPORT NETWORK. SPONSORED VIRTUAL SUPPORT GROUPS THROUGHOUT CONNECTICUT, SERVING DOZENS OF PEOPLE MONTHLY. PROVIDED TRANSPORTATION ASSISTANCE FOR CLIENTS WITH EPILEPSY. OFFERED THE HALYN MURTHA FAMILY ASSISTANCE FUND TO HELP PEOPLE WITH EPILEPSY IN NEED OF FINANCIAL ASSISTANCE TO COVER THE COST OF EPILEPSY TREATMENT, AND CARE SERVICES ASSOCIATED WITH THE CONDITION. ENROLLED CLIENTS IN THE HOBSCOTCH MEMORY & COGNITION PROGRAM. ENROLLED CLIENTS IN PROJECT UPLIFT PROGRAM THAT IMPROVED MENTAL HEALTH THROUGH MINDFULNESS AND COGNITIVE BEHAVIORAL SKILLS.
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