Civic Intelligence

Gbscidp Foundation International Inc

EIN 22-2474769 • 501(c)3 • Conshohocken, PA

Profile

To improve the quality of life for individuals and families worldwide affected by gbs, cidp and variants by 1) providing a network for all patients, their caregivers and families 2) providing public and professional education programs worldwide designed to heighten awareness and improve the understanding and treatment of gbs, cidp and variants. 3) expanding the foundation's role in sponsoring research and engaging in patient advocacy.

375 East Elm Street Suite 101Conshohocken, PA 19428

www.gbs-cidp.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

39th percentile

0.09x

Higher debt load relative to assets than 39% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Liabilities / Revenue

59th percentile

0.31x

Higher debt load relative to revenue than 59% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Net Margin

57th percentile

7.2%

Higher net margin than 57% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Top Officer Pay

85th percentile

$376,670

Higher top officer pay than 85% of similar nonprofits.

Top officer pay equals 7.5% of source-year revenue.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Asset Growth

68th percentile

11%

Faster asset growth than 68% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2023 to 2024

Revenue Growth

14th percentile

-19%

Faster revenue growth than 14% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets39th percentile

Assets

Up

$16,714,766

Up $1,591,330 (+11%) from 2023

Liabilities

Down

$1,569,094

Down $152,975 (-8.9%) from 2023

Net Assets

Up

$15,145,672

Up $1,744,305 (+13%) from 2023

Operations
Liabilities / Revenue59th percentileNet Margin57th percentile

Revenue

Down

$4,995,163

Down $1,146,180 (-19%) from 2023

Expenses

Up

$4,634,095

Up $198,755 (+4.5%) from 2023

Net Income

Down

$361,068

Down $1,344,935 (-79%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth68th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$20M$15M$10M$5.0M$0Assets 2010: $5,096,806Liabilities 2010: $29,000Net Assets 2010: $5,067,8062010Assets 2011: $5,426,061Liabilities 2011: $37,306Net Assets 2011: $5,388,7552011Assets 2012: $5,364,743Liabilities 2012: $185,158Net Assets 2012: $5,179,5852012Assets 2013: $7,057,882Liabilities 2013: $147,719Net Assets 2013: $6,910,1632013Assets 2014: $7,419,282Liabilities 2014: $547,750Net Assets 2014: $6,871,5322014Assets 2015: $7,222,136Liabilities 2015: $557,461Net Assets 2015: $6,664,6752015Assets 2016: $7,527,264Liabilities 2016: $278,749Net Assets 2016: $7,248,5152016Assets 2017: $8,135,214Liabilities 2017: $705,236Net Assets 2017: $7,429,9782017Assets 2018: $7,784,410Liabilities 2018: $465,725Net Assets 2018: $7,318,6852018Assets 2019: $9,277,070Liabilities 2019: $913,229Net Assets 2019: $8,363,8412019Assets 2020: $11,254,894Liabilities 2020: $1,090,751Net Assets 2020: $10,164,1432020Assets 2021: $13,412,420Liabilities 2021: $1,220,374Net Assets 2021: $12,192,0462021Assets 2022: $11,708,926Liabilities 2022: $1,206,459Net Assets 2022: $10,502,4672022Assets 2023: $15,123,436Liabilities 2023: $1,722,069Net Assets 2023: $13,401,3672023Assets 2024: $16,714,766Liabilities 2024: $1,569,094Net Assets 2024: $15,145,6722024

Highlighted filing

2024

Assets$16,714,766
Liabilities$1,569,094
Net Assets$15,145,672
Open 2024 Filing

Operations Trend

Revenue Growth14th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0-$2.0MExpenses 2010: $1,150,7582010Revenue 2011: $1,482,055Expenses 2011: $1,140,240Net Income 2011: $341,8152011Expenses 2012: $1,466,7212012Revenue 2013: $2,328,648Expenses 2013: $1,183,582Net Income 2013: $1,145,0662013Revenue 2014: $1,798,837Expenses 2014: $1,991,684Net Income 2014: -$192,8472014Revenue 2015: $1,843,272Expenses 2015: $1,723,412Net Income 2015: $119,8602015Revenue 2016: $1,916,002Expenses 2016: $1,831,881Net Income 2016: $84,1212016Revenue 2017: $1,839,276Expenses 2017: $2,303,548Net Income 2017: -$464,2722017Revenue 2018: $2,423,290Expenses 2018: $1,913,805Net Income 2018: $509,4852018Revenue 2019: $2,373,175Expenses 2019: $2,495,739Net Income 2019: -$122,5642019Revenue 2020: $3,156,166Expenses 2020: $2,660,871Net Income 2020: $495,2952020Revenue 2021: $4,358,358Expenses 2021: $2,732,099Net Income 2021: $1,626,2592021Revenue 2022: $4,567,397Expenses 2022: $3,888,472Net Income 2022: $678,9252022Revenue 2023: $6,141,343Expenses 2023: $4,435,340Net Income 2023: $1,706,0032023Revenue 2024: $4,995,163Expenses 2024: $4,634,095Net Income 2024: $361,0682024

Highlighted filing

2024

Revenue$4,995,163
Expenses$4,634,095
Net Income$361,068
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$16,714,766
Liabilities
$1,569,094
Net assets
$15,145,672
Revenue
$4,995,163
Expenses
$4,634,095
Net income
$361,068
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$16.7$1.57$15.1$5.00$4.63$0.36
2023Summary only. Only limited summary data is available for this year.$15.1$1.72$13.4$6.14$4.44$1.71
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.7$1.21$10.5$4.57$3.89$0.68
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$13.4$1.22$12.2$4.36$2.73$1.63
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.3$1.09$10.2$3.16$2.66$0.50
2019Summary only. Only limited summary data is available for this year.$9.28$0.91$8.36$2.37$2.50$0.12
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.78$0.47$7.32$2.42$1.91$0.51
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$8.14$0.71$7.43$1.84$2.30$0.46
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$7.53$0.28$7.25$1.92$1.83$0.08
2015Summary only. Only limited summary data is available for this year.$7.22$0.56$6.66$1.84$1.72$0.12
2014Detailed filing. Detailed filing data is available for this year.$7.42$0.55$6.87$1.80$1.99$0.19
2013Summary only. Only limited summary data is available for this year.$7.06$0.15$6.91$2.33$1.18$1.15
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.36$0.19$5.18$1.47
2011Summary only. Only limited summary data is available for this year.$5.43$0.04$5.39$1.48$1.14$0.34
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.10$0.03$5.07$1.15
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 30, 2025
Return Version
2024v5.1
Gross Receipts
$6,264,566
Mission and Program Overview

Mission

To improve the quality of life for individuals and families worldwide affected by gbs, cidp and variants by 1) providing a network for all patients, their caregivers and families 2) providing public and professional education programs worldwide designed to heighten awareness and improve the understanding and treatment of gbs, cidp and variants. 3) expanding the foundation's role in sponsoring research and engaging in patient advocacy.

Improve the quality of life for individuals and families affected by guillain-barre, cidp and variants. Provide patient support, research sponsorship, and lay and professional educational programs worldwide.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$12,815,241$14,182,210▲ $1,366,969
Cash and Non-Interest-Bearing Accounts$464,371$726,311▲ $261,940
Savings and Temporary Cash Investments$601,152$473,784▼ $127,368
Pledges and Grants Receivable$58,948$177,760▲ $118,812
Prepaid Expenses and Deferred Charges$59,022$119,354▲ $60,332
Land, Buildings, and Equipment, Net$77,108$79,271▲ $2,163
Total Assets$15,123,436$16,714,766▲ $1,591,330
Other Assets Total$1,047,594$956,076▼ $91,518
Liabilities
Other Liabilities$1,037,782$941,850▼ $95,932
Grants Payable$647,123$533,057▼ $114,066
Accounts Payable and Accrued Expenses$37,164$84,187▲ $47,023
Deferred Revenue-$10,000-
Total Liabilities$1,722,069$1,569,094▼ $152,975
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$13,401,367$15,145,672▲ $1,744,305
Total Net Assets Fund Balance$13,401,367$15,145,672▲ $1,744,305
Total Liabilities and Net Assets / Fund Balance$15,123,436$16,714,766▲ $1,591,330

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$48,076$80,169$128,245
Leasehold Improvements$31,195$4,370$35,565
Other Assets Org$941,850--
Compensation and Service Providers
Top Officer Pay85th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Elizabeth ButlerExecutive DirectorFT$329,280$47,390$376,670
Maureen NevilleDirector of Mktg & CommunicatioFT$200,000$34,726$234,726
Laura BlairCFOFT$200,000$22,727$222,727

Board Members and Trustees

NameTitle
Corbin WhittingtonPresident
Peter Donofrio MdVice President
Betsy BlakeDirector
Brenda PeralesDirector
Chrissie JenkinsDirector
Clive PhillipsDirector
Dave RossnerDirector
Diana CastroDirector
Jeff Allen MdDirector
Michele DearingDirector
Shane SumlinDirector
Valentina TrevinoDirector
Russell WalterSecretary
Jim YadlonTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$4,500,282
Program Service Revenue
$0
Investment Income
$573,240
Other Revenue
$-78,359
All Other Contributions
$3,744,290
Change in Net Assets
$361,068

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,912,859
Revenue Not Reported on Financial Statements
$82,304
Revenue Not Reported on Form 990
$1,383,237
Total Revenue per Audited Statements
$6,296,096
Total Revenue per Form 990
$4,995,163
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$2,213,068
Other Expenses$1,663,452
Grants and Similar Amounts Paid$757,575
Total Fundraising Expense$321,981
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,154,681$4,706$182,310$1,341,697
Foreign Grants$714,040--$714,040
Current Officers, Directors, Trustees, and Key Employees$376,018$204,545$18,834$599,397
Travel$227,424$174$5,379$232,977
All Other Expenses$178,831$2,107$17,400$198,338
Occupancy$147,531$9,385$22,171$179,087
Payroll Taxes$101,691$13,723$12,265$127,679
Other Expenses$73,600$3,311$20,127$93,727
Other Employee Benefits$68,038$12,239$11,565$91,842
Fees for Service Investment Mgmnt Fees-$82,304-$82,304
Office Expenses$40,486$17,838$1,493$59,817
Pension Plan Contributions$39,530$6,260$6,663$52,453
Grants to Domestic Orgs$43,535--$43,535
Insurance$22,025$1,401$3,310$26,736
Fees for Services Accounting-$23,450-$23,450
Depreciation Depletion$15,136$963$2,275$18,374
Fees for Services Other$7,377$1,203$479$9,059
Fees for Services Legal$6,960--$6,960
Total Functional Expenses$3,928,505$383,609$321,981$4,634,095

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$4,634,095
Expenses per Audited Statements$4,551,791
Total Expenses per Audited Statements$4,551,791
Expenses Not Reported on Financial Statements$82,304
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of Texas Health Science CenterSan Antonio, TX501(c)(3)Research$50,000

International Summary

Offices
0
Employees
0
Spending
$714,040

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
EuropeGrants to RecipientsResearch00$664,040
South AsiaGrants to RecipientsResearch00$50,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$79,748
Fundraising Gross Income$1,389
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk-a-thon$757,381$1,389$79,748$-78,359
Total Events$757,381$1,389$79,748$-78,359
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease Liability$941,850
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 7A

“The organization's board of directors nominate and vote to elect the governing body.”

Form 990, Part VI, Section A, Line 7B

“The board of directors approves decisions of the governing body.”

Form 990, Part VI, Section A, Line 8B

“The committees report to the board of directors, which information is documented in the board of director minutes.”

Form 990, Part VI, Section B, Line 11B

“Treasurer, cfo, and executive director review the form 990 with the paid preparer prior to filing. The board also has an opportunity to review before filing.”

Form 990, Part VI, Section B, Line 12C

“Communication at board meetings.”

Form 990, Part VI, Section B, Line 15A

“Salaries determined based on national health council salary and benefit report”

Form 990, Part VI, Section C, Line 19

“Furnished on website and upon request.”

Filing and Contact Details

Filer

Filer Name
Gbscidp Foundation International Inc
EIN
22-2474769
Phone
6106670131
Address
375 EAST ELM STREET SUITE 101, CONSHOHOCKEN, PA 19428

Signing Officer

Name
Elizabeth Butler
Title
Executive Director
Phone
6106670131
Signed
2025-05-30
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Elizabeth Butler
Formed
1980
Legal Domicile
Pa
Voting Board Members
14
Independent Board Members
14
Employees
21
Volunteers
206

Preparer

Firm
Isdaner & Company LLC
Address
ONE BALA PLAZA SUITE 502, BALA CYNWYD, PA 19004
Preparer
Jeffrey S Silver CPA Mba
Phone
6106684200
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

“Audit committee approve auditors and assume responsibility for the audit.”

Financial Statement Notes

PART X, LINE 2:

“The organization is exempt from federal income taxes under section 501(c)(3) of the internal revenue code. Financial accounting standards board ("fasb") accounting standards codification topic 740, income taxes clarifies the accounting for uncertainty in income taxes recognized in an entity's financial statements and prescribes a recognition threshold of more-likely-than-not to be sustained upon examination by the appropriate taxing authority. Measurement of the tax uncertainty occurs if the recognition threshold has been met. Asc topic 740 also provides guidance on derecognition, classification, interest and penalties, accounting in interim periods, and disclosure. No liability for uncertain tax postions was recorded as of december 31, 2024 or 2023.”

Raw XML AppendixShowing 400 of 768 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0DISTRIBUTION OF INFORMATION AND LITERATURE TO MEMBERS, HOSPITALS, DOCTORS, AND INDIVIDUALS UPON REQUEST; ORGANIZE AND SPONSOR SYMPOSIUM OR REGIONAL MEETING AND OTHER EDUCATIONAL AND RESEARCH PROGRAMS FOR MEDICAL PROFESSIONAL AND LAYPEOPLE; PROVIDE RESEARCH GRANTS TO FURTHER THE STUDY OF GUILLAIN-BARRE, CIDP AND VARIANTS.
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IRS990/Form990PartVIISectionAGrp/PersonNm3JIM YADLON
IRS990/Form990PartVIISectionAGrp/PersonNm4JEFF ALLEN MD
IRS990/Form990PartVIISectionAGrp/PersonNm5BETSY BLAKE
IRS990/Form990PartVIISectionAGrp/PersonNm6DIANA CASTRO
IRS990/Form990PartVIISectionAGrp/PersonNm7MICHELE DEARING
IRS990/Form990PartVIISectionAGrp/PersonNm8CHRISSIE JENKINS
IRS990/Form990PartVIISectionAGrp/PersonNm9BRENDA PERALES
IRS990/Form990PartVIISectionAGrp/PersonNm10CLIVE PHILLIPS
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IRS990/Form990PartVIISectionAGrp/PersonNm12SHANE SUMLIN
IRS990/Form990PartVIISectionAGrp/PersonNm13VALENTINA TREVINO
IRS990/Form990PartVIISectionAGrp/PersonNm14ELIZABETH BUTLER
IRS990/Form990PartVIISectionAGrp/PersonNm15LAURA BLAIR
IRS990/Form990PartVIISectionAGrp/PersonNm16MAUREEN NEVILLE
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
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IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15CFO
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIR OF MKTG & COMMUNICATIO
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IRS990/MissionDesc0TO IMPROVE THE QUALITY OF LIFE FOR INDIVIDUALS AND FAMILIES WORLDWIDE AFFECTED BY GBS, CIDP AND VARIANTS BY 1) PROVIDING A NETWORK FOR ALL PATIENTS, THEIR CAREGIVERS AND FAMILIES 2) PROVIDING PUBLIC AND PROFESSIONAL EDUCATION PROGRAMS WORLDWIDE DESIGNED TO HEIGHTEN AWARENESS AND IMPROVE THE UNDERSTANDING AND TREATMENT OF GBS, CIDP AND VARIANTS. 3) EXPANDING THE FOUNDATION'S ROLE IN SPONSORING RESEARCH AND ENGAGING IN PATIENT ADVOCACY.
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt03037143
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IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
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