Civic Intelligence

Alport Syndrome Foundation Inc

EIN 20-8237159 • 501(c)3 • Scottsdale, AZ

Profile

The foundation was created to educate and support patients and families that have been affected by this genetic kidney disease with a goal of funding research, to find more effective treatment protocols and to ultimately find a cure.

PO Box 4130Scottsdale, AZ 85261-4130

alportsyndrome.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

29th percentile

0.01x

Higher debt load relative to assets than 29% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

32nd percentile

0.01x

Higher debt load relative to revenue than 32% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

69th percentile

16%

Higher net margin than 69% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

69th percentile

$105,000

Higher top officer pay than 69% of similar nonprofits.

Top officer pay equals 8.8% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

56th percentile

5.6%

Faster asset growth than 56% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

65th percentile

18%

Faster revenue growth than 65% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets29th percentile

Assets

Up

$2,817,931

Up $148,345 (+5.6%) from 2023

Liabilities

Down

$16,538

Down $14,629 (-47%) from 2023

Net Assets

Up

$2,801,393

Up $162,974 (+6.2%) from 2023

Operations
Liabilities / Revenue32nd percentileNet Margin69th percentile

Revenue

Up

$1,194,735

Up $178,330 (+18%) from 2023

Expenses

Up

$1,003,948

Up $391,414 (+64%) from 2023

Net Income

Down

$190,787

Down $213,084 (-53%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth56th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$3.0M$2.0M$1.0M$0Assets 2010: $201,783Liabilities 2010: $0Net Assets 2010: $201,7832010Assets 2011: $260,657Net Assets 2011: $260,6572011Assets 2012: $365,879Liabilities 2012: $0Net Assets 2012: $365,8792012Assets 2013: $353,476Liabilities 2013: $0Net Assets 2013: $353,4762013Assets 2014: $492,809Liabilities 2014: $2,627Net Assets 2014: $490,1822014Assets 2015: $583,786Liabilities 2015: $6,248Net Assets 2015: $577,5382015Assets 2016: $772,448Liabilities 2016: $89,389Net Assets 2016: $683,0592016Assets 2017: $930,216Liabilities 2017: $10,510Net Assets 2017: $919,7062017Assets 2018: $1,206,840Liabilities 2018: $173,913Net Assets 2018: $1,032,9272018Assets 2019: $1,069,034Liabilities 2019: $140,120Net Assets 2019: $928,9142019Assets 2020: $1,307,819Liabilities 2020: $78,603Net Assets 2020: $1,229,2162020Assets 2021: $1,762,638Liabilities 2021: $17,916Net Assets 2021: $1,744,7222021Assets 2022: $2,277,966Liabilities 2022: $42,491Net Assets 2022: $2,235,4752022Assets 2023: $2,669,586Liabilities 2023: $31,167Net Assets 2023: $2,638,4192023Assets 2024: $2,817,931Liabilities 2024: $16,538Net Assets 2024: $2,801,3932024

Highlighted filing

2024

Assets$2,817,931
Liabilities$16,538
Net Assets$2,801,393
Open 2024 Filing

Operations Trend

Revenue Growth65th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.5M$1.0M$500K$0-$500KExpenses 2010: $87,2692010Revenue 2011: $191,021Expenses 2011: $132,147Net Income 2011: $58,8742011Expenses 2012: $169,0022012Revenue 2013: $206,809Expenses 2013: $219,212Net Income 2013: -$12,4032013Revenue 2014: $387,045Expenses 2014: $247,984Net Income 2014: $139,0612014Revenue 2015: $272,033Expenses 2015: $184,677Net Income 2015: $87,3562015Revenue 2016: $570,777Expenses 2016: $515,256Net Income 2016: $55,5212016Revenue 2017: $664,301Expenses 2017: $427,654Net Income 2017: $236,6472017Revenue 2018: $806,994Expenses 2018: $693,773Net Income 2018: $113,2212018Revenue 2019: $552,035Expenses 2019: $656,048Net Income 2019: -$104,0132019Revenue 2020: $738,552Expenses 2020: $438,250Net Income 2020: $300,3022020Revenue 2021: $993,526Expenses 2021: $478,020Net Income 2021: $515,5062021Revenue 2022: $990,673Expenses 2022: $499,455Net Income 2022: $491,2182022Revenue 2023: $1,016,405Expenses 2023: $612,534Net Income 2023: $403,8712023Revenue 2024: $1,194,735Expenses 2024: $1,003,948Net Income 2024: $190,7872024

Highlighted filing

2024

Revenue$1,194,735
Expenses$1,003,948
Net Income$190,787
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,817,931
Liabilities
$16,538
Net assets
$2,801,393
Revenue
$1,194,735
Expenses
$1,003,948
Net income
$190,787
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$2.82$0.02$2.80$1.19$1.00$0.19
2023Detailed filing. Detailed filing data is available for this year.$2.67$0.03$2.64$1.02$0.61$0.40
2022Detailed filing. Detailed filing data is available for this year.$2.28$0.04$2.24$0.99$0.50$0.49
2021Detailed filing. Detailed filing data is available for this year.$1.76$0.02$1.74$0.99$0.48$0.52
2020Detailed filing. Detailed filing data is available for this year.$1.31$0.08$1.23$0.74$0.44$0.30
2019Detailed filing. Detailed filing data is available for this year.$1.07$0.14$0.93$0.55$0.66$0.10
2018Detailed filing. Detailed filing data is available for this year.$1.21$0.17$1.03$0.81$0.69$0.11
2017Detailed filing. Detailed filing data is available for this year.$0.93$0.01$0.92$0.66$0.43$0.24
2016Detailed filing. Detailed filing data is available for this year.$0.77$0.09$0.68$0.57$0.52$0.06
2015Detailed filing. Detailed filing data is available for this year.$0.58$0.01$0.58$0.27$0.18$0.09
2014Detailed filing. Detailed filing data is available for this year.$0.49$0.00$0.49$0.39$0.25$0.14
2013Detailed filing. Detailed filing data is available for this year.$0.35$0.00$0.35$0.21$0.22$0.01
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.37$0.00$0.37$0.17
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.26$0.26$0.19$0.13$0.06
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.20$0.00$0.20$0.09
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Sep 29, 2025
Return Version
2024v5.2
Gross Receipts
$1,402,656
Mission and Program Overview

Mission

The foundation was created to educate and support patients and families that have been affected by this genetic kidney disease with a goal of funding research, to find more effective treatment protocols and to ultimately find a cure.

To improve the lives of those affected by alport syndrome through education, empowerment, advocacy, and funding research. The foundations vision is to make alport syndrome a treatable disease and find a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,888,171$2,141,999▲ $253,828
Cash and Non-Interest-Bearing Accounts$601,572$456,229▼ $145,343
Intangible Assets$130,324$127,617▼ $2,707
Prepaid Expenses and Deferred Charges$29,487$46,579▲ $17,092
Pledges and Grants Receivable$20,032$41,027▲ $20,995
Accounts Receivable-$3,498-
Land, Buildings, and Equipment, Net-$982-
Total Assets$2,669,586$2,817,931▲ $148,345
Liabilities
Accounts Payable and Accrued Expenses$17,167$16,538▼ $629
Grants Payable$14,000--
Total Liabilities$31,167$16,538▼ $14,629
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,935,485$2,190,732▲ $255,247
Net Assets With Donor Restrictions$702,934$610,661▼ $92,273
Total Net Assets Fund Balance$2,638,419$2,801,393▲ $162,974
Total Liabilities and Net Assets / Fund Balance$2,669,586$2,817,931▲ $148,345

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$982$491$1,473

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$702,934$416,027-$193,669$610,661
2023$648,609$320,032-$168,556$702,934
2022$301,458$548,941-$21,146$648,609
2021$129,204$421,146-$18,324$301,458
2020$20,123$307,458-$20,123$129,204
Compensation and Service Providers
Top Officer Pay69th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Lisa BonebrakeExecutive DirectorFT$105,000$105,000

Board Members and Trustees

NameTitle
Andrew KronenbergBoard Chair
Sharon LagasCo-founder, Director Past Chair
Amy RhodesDirector
December WestDirector
Marty DunleavyDirector
Phillip KumnickDirector
Stephen MalachDirector
Ryan LinderSecretary
Daniel KilpatrickTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,063,256
Program Service Revenue
$0
Investment Income
$131,479
Other Revenue
$0
All Other Contributions
$1,063,256
Change in Net Assets
$190,787

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded4$44,162Avg Day Trade Fair Market Value (FMV)
Total Noncash Contributions4$44,162-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,194,735
Revenue Not Reported on Form 990
$-21,827
Total Revenue per Audited Statements
$1,172,908
Total Revenue per Form 990
$1,194,735
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$376,180
Grants and Similar Amounts Paid$324,631
Other Expenses$303,137
Total Fundraising Expense$25,179
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$314,631--$314,631
Other Salaries and Wages$215,913$20,540$6,375$242,828
Current Officers, Directors, Trustees, and Key Employees$93,362$8,881$2,757$105,000
Information Technology$99,589--$99,589
Conferences and Meetings$77,474$98$64$77,636
Travel$43,054$4,048$1,256$48,358
Office Expenses$15,155$8,578$5,902$29,635
Payroll Taxes$25,210$2,398$744$28,352
Fees for Services Accounting$5,593$15,659$1,119$22,371
Depreciation Depletion$9,957$947$294$11,198
Grants to Domestic Individuals$10,000--$10,000
Advertising--$6,474$6,474
Insurance$3,931$374$116$4,421
Fees for Services Other$3,124$253$78$3,455
Total Functional Expenses$916,993$61,776$25,179$1,003,948

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,009,934
Expenses per Audited Statements$1,003,948
Total Expenses per Form 990$1,003,948
Expenses Not Reported on Form 990$5,986
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of MichiganAnn Arbor, MI501c3Alport Syn ancillary natural history study$170,733
Univ of Washington at St LouisSt Louis, MO501c3School of Medicine Alport Study in mice$132,835
Others under threshold-501c3Alport Syndrome research$11,063
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Federal income taxes-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The treasurer of the organization distributes a pdf copy of 990 return to all board members for a review and comment prior to being filed.”

Form 990, Part VI, Section B, Line 12C

“At each board and committee meeting, if there is a discussion of selecting or engaging a vendor or service provider, all in attendance are asked to recuse themselves from this discussion if there could be a perceived conflict. Annually, the organization reviews and discusses the conflict of interest policy and requests that each board member list and acknowledge any known conflicts.”

Form 990, Part VI, Section B, Line 15

“The board may hire and compensate individuals for necessary services rendered to the organization so long as such compensation is reasonable. The board shall determine reasonable compensation amounts based upon compensation paid by similarly situated nonprofits for like services. The board may rely upon salary studies, as well as data regarding compensation paid by at least three specific peer organizations of similar size to determine reasonable compensation. The terms of such compensation, information relied upon to determine the terms of any compensation, and its source shall be recorded in writing. An individual who is a voting member of the board or a committee with the board delegated powers and who receives compensation, directly or indirectly, from the foundation for services is precluded from participating in discussions or votes pertaining to their own compensation.”

Form 990, Part VI, Section C, Line 19

“The organization will provide, in a timely manner, financial statements and governing documents including its conflict of interest policy when requested in writing or in person.”

Filing and Contact Details

Filer

Filer Name
Alport Syndrome Foundation Inc
EIN
20-8237159
Phone
4808003510
Address
PO BOX 4130, SCOTTSDALE, AZ 85261-4130

Signing Officer

Name
Daniel Kilpatrick
Title
Treasurer
Phone
4808003510
Signed
2025-09-29
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Daniel Kilpatrick
Formed
2007
Legal Domicile
Az
Voting Board Members
9
Independent Board Members
9
Employees
5
Volunteers
95

Preparer

Firm
Sechler Morgan Cpas Pllc
Address
2418 W BARROW DRIVE, CHANDLER, AZ 85224
Preparer
Kristina Morgan
Phone
6022302700
Supplemental Narrative

Financial Statement Notes

V 4

“The organizations donor-restricted net assets were restricted for the following time restrictions on contributions receivable and research grants.”

X 2

“Management believes that it has appropriate support for any income tax positions taken, and, as such, does not have any uncertain tax positions that are material to the financial statements. The foundation would recognize future accrued interest and penalties related to unrecognized tax benefits and liabilities in income tax expense if such interest and penalties are incurred.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATIONS DONOR-RESTRICTED NET ASSETS WERE RESTRICTED FOR THE FOLLOWING TIME RESTRICTIONS ON CONTRIBUTIONS RECEIVABLE AND RESEARCH GRANTS.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1MANAGEMENT BELIEVES THAT IT HAS APPROPRIATE SUPPORT FOR ANY INCOME TAX POSITIONS TAKEN, AND, AS SUCH, DOES NOT HAVE ANY UNCERTAIN TAX POSITIONS THAT ARE MATERIAL TO THE FINANCIAL STATEMENTS. THE FOUNDATION WOULD RECOGNIZE FUTURE ACCRUED INTEREST AND PENALTIES RELATED TO UNRECOGNIZED TAX BENEFITS AND LIABILITIES IN INCOME TAX EXPENSE IF SUCH INTEREST AND PENALTIES ARE INCURRED.
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