Civic Intelligence

Tarlov Cyst Disease Foundation

EIN 20-5724680 • 501(c)3 • Knoxville, TN

Profile

The Tarlov Cyst Disease Foundation is a volunteer-based, 501(c)(3) non-profit foundation dedicated to the research, improved diagnosis and development of successful treatments and outcomes for symptomatic Tarlov cysts. The Foundation is incorporated exclusively for scientific, educational, and charitable purposes that will seek to improve the level of understanding, diagnosis and treatment of Tarlov cysts.

9111 Cross Park Dr D200-265Knoxville, TN 37923

www.tarlovcystfoundation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

19th percentile

0.00x

Higher debt load relative to assets than 19% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

22nd percentile

0.00x

Higher debt load relative to revenue than 22% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

2nd percentile

-205%

Higher net margin than 2% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

78th percentile

$132,000

Higher top officer pay than 78% of similar nonprofits.

Top officer pay equals 273.8% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

100th percentile

1976%

Faster asset growth than 100% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

93rd percentile

128%

Faster revenue growth than 93% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets19th percentile

Assets

Up

$2,916,528

Up $2,776,069 (+1976%) from 2023

Liabilities

$50

No earlier filing loaded for comparison.

Net Assets

Up

$2,916,478

Up $2,776,019 (+1976%) from 2023

Operations
Liabilities / Revenue22nd percentileNet Margin2nd percentile

Revenue

Up

$48,219

Up $27,080 (+128%) from 2023

Expenses

Up

$147,123

Up $109,902 (+295%) from 2023

Net Income

Down

-$98,904

Down $82,822 (-515%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth100th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$3.0M$2.0M$1.0M$0Assets 2010: $97,052Net Assets 2010: $97,0522010Assets 2011: $49,773Net Assets 2011: $49,7732011Assets 2012: $67,251Net Assets 2012: $67,2512012Assets 2013: $103,201Net Assets 2013: $103,2012013Assets 2014: $131,782Net Assets 2014: $131,7822014Assets 2015: $145,328Net Assets 2015: $145,3282015Assets 2016: $174,004Net Assets 2016: $174,0042016Assets 2017: $169,269Net Assets 2017: $169,2692017Assets 2018: $174,904Net Assets 2018: $174,9042018Assets 2019: $185,563Net Assets 2019: $185,5632019Assets 2020: $188,534Net Assets 2020: $188,5342020Assets 2021: $172,554Net Assets 2021: $172,5542021Assets 2022: $156,541Net Assets 2022: $156,5412022Assets 2023: $140,459Net Assets 2023: $140,4592023Assets 2024: $2,916,528Liabilities 2024: $50Net Assets 2024: $2,916,4782024

Highlighted filing

2024

Assets$2,916,528
Liabilities$50
Net Assets$2,916,478
Open 2024 Filing

Operations Trend

Revenue Growth93rd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$200K$100K$0-$100KRevenue 2010: $49,594Expenses 2010: $2,385Net Income 2010: $47,2092010Revenue 2011: $29,236Expenses 2011: $76,515Net Income 2011: -$47,2792011Revenue 2012: $18,415Expenses 2012: $937Net Income 2012: $17,4782012Revenue 2013: $46,628Expenses 2013: $10,678Net Income 2013: $35,9502013Revenue 2014: $49,777Expenses 2014: $21,196Net Income 2014: $28,5812014Revenue 2015: $41,438Expenses 2015: $27,892Net Income 2015: $13,5462015Revenue 2016: $53,898Expenses 2016: $25,222Net Income 2016: $28,6762016Revenue 2017: $26,455Expenses 2017: $31,190Net Income 2017: -$4,7352017Revenue 2018: $34,181Expenses 2018: $28,546Net Income 2018: $5,6352018Revenue 2019: $42,534Expenses 2019: $31,875Net Income 2019: $10,6592019Revenue 2020: $36,859Expenses 2020: $33,888Net Income 2020: $2,9712020Revenue 2021: $20,560Expenses 2021: $36,540Net Income 2021: -$15,9802021Revenue 2022: $23,747Expenses 2022: $39,760Net Income 2022: -$16,0132022Revenue 2023: $21,139Expenses 2023: $37,221Net Income 2023: -$16,0822023Revenue 2024: $48,219Expenses 2024: $147,123Net Income 2024: -$98,9042024

Highlighted filing

2024

Revenue$48,219
Expenses$147,123
Net Income-$98,904
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$2,916,528
Liabilities
$50
Net assets
$2,916,478
Revenue
$48,219
Expenses
$147,123
Net income
-$98,904
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.92$0.00$2.92$0.05$0.15$0.10
2023Detailed filing. Detailed filing data is available for this year.$0.14$0.14$0.02$0.04$0.02
2022Detailed filing. Detailed filing data is available for this year.$0.16$0.16$0.02$0.04$0.02
2021Detailed filing. Detailed filing data is available for this year.$0.17$0.17$0.02$0.04$0.02
2020Detailed filing. Detailed filing data is available for this year.$0.19$0.19$0.04$0.03$0.00
2019Detailed filing. Detailed filing data is available for this year.$0.19$0.19$0.04$0.03$0.01
2018Detailed filing. Detailed filing data is available for this year.$0.17$0.17$0.03$0.03$0.01
2017Detailed filing. Detailed filing data is available for this year.$0.17$0.17$0.03$0.03$0.00
2016Detailed filing. Detailed filing data is available for this year.$0.17$0.17$0.05$0.03$0.03
2015Detailed filing. Detailed filing data is available for this year.$0.15$0.15$0.04$0.03$0.01
2014Detailed filing. Detailed filing data is available for this year.$0.13$0.13$0.05$0.02$0.03
2013Detailed filing. Detailed filing data is available for this year.$0.10$0.10$0.05$0.01$0.04
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.07$0.07$0.02$0.00$0.02
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.05$0.05$0.03$0.08$0.05
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.10$0.10$0.05$0.00$0.05
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 16, 2025
Return Version
2024v5.2
Gross Receipts
$48,219
Mission and Program Overview

Mission

The Tarlov Cyst Disease Foundation is a volunteer-based, 501(c)(3) non-profit foundation dedicated to the research, improved diagnosis and development of successful treatments and outcomes for symptomatic Tarlov cysts. The Foundation is incorporated exclusively for scientific, educational, and charitable purposes that will seek to improve the level of understanding, diagnosis and treatment of Tarlov cysts.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments-$2,006,722-
Accounts Receivable-$875,000-
Cash and Non-Interest-Bearing Accounts$89,077$32,216▼ $56,861
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$140,458$2,916,528▲ $2,776,070
Other Assets Total$51,381$2,590▼ $48,791
Liabilities
Accounts Payable and Accrued Expenses-$50-
Total Liabilities$0$50▲ $50
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$140,458$2,916,478▲ $2,776,020
Total Net Assets Fund Balance$140,458$2,916,478▲ $2,776,020
Total Liabilities and Net Assets / Fund Balance$140,458$2,916,528▲ $2,776,070
Compensation and Service Providers
Top Officer Pay78th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Reta Honey Hiers RncPast Exec DirectorPT$132,000$132,000

Board Members and Trustees

NameTitle
Gail NelsonPresident
Iris KachuckVice President
Michelle LearDirector
Sandy a RoofSecretary
Cathy Gray CarlomagnoTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Reta Honey Hiers RncContract Exec Dir-$132,000
Revenue and Support

Revenue Composition

Contributions and Grants
$2,497
Program Service Revenue
$0
Investment Income
$45,722
Other Revenue
$0
All Other Contributions
$2,497
Change in Net Assets
$-98,904

Audited Revenue Reconciliation

Revenue per Audited Statements
$48,219
Total Revenue per Audited Statements
$48,219
Total Revenue per Form 990
$48,219
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$132,000
Other Expenses$15,123
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$105,600$26,400-$132,000
Fees for Services Legal$5,499$8,249-$13,748
Office Expenses$1,055$264-$1,319
Other Expenses-$20-$20
Total Functional Expenses$112,154$34,969$0$147,123

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$147,123
Total Expenses per Audited Statements$147,123
Total Expenses per Form 990$147,123
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Audit committee
Yes
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“A copy of the Form 990 is provided to all board members prior to signing and filing the form.”

Form 990, Part VI, Section C, Line 19

“No documents available to the public.”

Filing and Contact Details

Filer

Filer Name
Tarlov Cyst Disease Foundation
EIN
20-5724680
Phone
6157424200
Address
9111 Cross Park Dr D200-265, Knoxville, TN 37923

Signing Officer

Name
Cathy Gray Carlomagno
Title
Treasurer
Signed
2025-11-16
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Cathy Gray Carlomagno
Formed
2006
Legal Domicile
Tn
Voting Board Members
5
Independent Board Members
5
Employees
0
Volunteers
8

Preparer

Firm
Blad & Hezlep LLC
Address
1832 Independence Sq, Atlanta, GA 30338
Preparer
Adam Hezlep
Phone
7705127600
Supplemental Narrative

Additional Explanations

Prior Period Adjustment

“During the year ended December 31, 2024, in connection with the Organizations first audit of its financial statements, management identified an unconditional promise to give totaling $2,875,000 that should have been recorded as contribution revenue and contributions receivable in the year ended December 31, 2023.The Organization recorded a prior period adjustment in its 2024 audited financial statements to correct this error. The adjustment increased beginning net assets and contributions receivable by $2,875,000. This amount is not included in 2024 revenue reported on Form 990, but is reflected as a prior period adjustment in the 2024 Form 990.”

Financial Statement Notes

Part X : FIN48 Footnote

“The Organization is exempt from income taxes under section 501(c)(3) of the Internal Revenue Code. Accordingly, no income taxes are reflected in the accompanying financial statements. The Organization has been classified as an entity that is not a private foundation within the meaning of Section 509(a) of the Internal Revenue Code. The Organization recognizes the tax benefit from an uncertain tax position only if it is more likely than not that the tax position will be sustained on examination by the taxing authority, based on the technical merits of the position. As of December 31, 2024, there are no known items which would result in a material accrual related to where the Organization has federal or state attributable tax positions. Generally, the taxing authorities have three years to examine a tax return from the later of the filing date or the extended due date.”

Raw XML Appendix372 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0The Organization is exempt from income taxes under section 501(c)(3) of the Internal Revenue Code. Accordingly, no income taxes are reflected in the accompanying financial statements. The Organization has been classified as an entity that is not a private foundation within the meaning of Section 509(a) of the Internal Revenue Code. The Organization recognizes the tax benefit from an uncertain tax position only if it is more likely than not that the tax position will be sustained on examination by the taxing authority, based on the technical merits of the position. As of December 31, 2024, there are no known items which would result in a material accrual related to where the Organization has federal or state attributable tax positions. Generally, the taxing authorities have three years to examine a tax return from the later of the filing date or the extended due date.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Part X : FIN48 Footnote
IRS990ScheduleD/TotalExpensesPerForm990Amt0147123
IRS990ScheduleD/TotalRevenuePerForm990Amt048219
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt048219
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0A copy of the Form 990 is provided to all board members prior to signing and filing the form.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1No documents available to the public.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2During the year ended December 31, 2024, in connection with the Organizations first audit of its financial statements, management identified an unconditional promise to give totaling $2,875,000 that should have been recorded as contribution revenue and contributions receivable in the year ended December 31, 2023.The Organization recorded a prior period adjustment in its 2024 audited financial statements to correct this error. The adjustment increased beginning net assets and contributions receivable by $2,875,000. This amount is not included in 2024 revenue reported on Form 990, but is reflected as a prior period adjustment in the 2024 Form 990.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section C, Line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2PRIOR PERIOD ADJUSTMENT
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IRS990/TotalRevenueGrp/TotalRevenueColumnAmt048219
IRS990/TotalVolunteersCnt08
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IRS990/TravelGrp/TotalAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt09111 Cross Park Dr D200-265
IRS990/USAddress/CityNm0Knoxville
IRS990/USAddress/StateAbbreviationCd0TN
IRS990/USAddress/ZIPCd037923
IRS990/VotingMembersGoverningBodyCnt05
IRS990/VotingMembersIndependentCnt05
IRS990/WebsiteAddressTxt0www.tarlovcystfoundation.org
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0CATHY GRAY CARLOMAGNO
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Treasurer
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-11-16
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0TARLOV CYST DISEASE FOUNDATION
ReturnHeader/Filer/BusinessNameControlTxt0TARL
ReturnHeader/Filer/EIN0205724680
ReturnHeader/Filer/PhoneNum06157424200
ReturnHeader/Filer/USAddress/AddressLine1Txt09111 Cross Park Dr D200-265
ReturnHeader/Filer/USAddress/CityNm0Knoxville
ReturnHeader/Filer/USAddress/StateAbbreviationCd0TN
ReturnHeader/Filer/USAddress/ZIPCd037923
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0true
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0922053187
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Blad & Hezlep LLC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt01832 Independence Sq
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Atlanta
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0GA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd030338
ReturnHeader/PreparerPersonGrp/PhoneNum07705127600
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0ADAM HEZLEP
ReturnHeader/PreparerPersonGrp/SelfEmployedInd0X
ReturnHeader/ReturnTs02025-11-16T07:29:25-08:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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