Civic Intelligence

American Thrombosis and Hemostasis

EIN 20-5244339 • 501(c)3 • Hickory, NC

Profile

Athn provides stewardship of a secure national database, adherent to all privacy guidelines, which will be used to support clinical outcomes analysis, research, advocacy and public health reporting in the hemostasis and thrombosis community.

200 1st Avenue NW 316Hickory, NC 28601

www.athn.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

56th percentile

0.23x

Higher debt load relative to assets than 56% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Liabilities / Revenue

26th percentile

0.07x

Higher debt load relative to revenue than 26% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Net Margin

22nd percentile

-6.4%

Higher net margin than 22% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Top Officer Pay

88th percentile

$428,123

Higher top officer pay than 88% of similar nonprofits.

Top officer pay equals 2.7% of source-year revenue.

501(c)3 • $10M-$25M nonprofits • Source year 2024

Asset Growth

18th percentile

-5.1%

Faster asset growth than 18% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2023 to 2024

Revenue Growth

68th percentile

18%

Faster revenue growth than 68% of similar nonprofits.

501(c)3 • $10M-$25M nonprofits • Annualized from 2023 to 2024

Assets

Down

$5,156,977

Down $276,572 (-5.1%) from 2023

Liabilities

Up

$1,186,872

Up $378,868 (+47%) from 2023

Net Assets

Down

$3,970,105

Down $655,440 (-14%) from 2023

Revenue

Up

$15,982,317

Up $2,408,418 (+18%) from 2023

Expenses

Up

$17,011,486

Up $577,865 (+3.5%) from 2023

Net Income

Up

-$1,029,169

Up $1,830,553 (+64%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$15M$10M$5.0M$0Assets 2011: $5,469,227Liabilities 2011: $625,478Net Assets 2011: $4,843,7492011Assets 2012: $5,444,154Liabilities 2012: $675,674Net Assets 2012: $4,768,4802012Assets 2013: $6,926,159Liabilities 2013: $868,638Net Assets 2013: $6,057,5212013Assets 2014: $5,830,460Liabilities 2014: $781,287Net Assets 2014: $5,049,1732014Assets 2015: $7,096,289Liabilities 2015: $1,202,930Net Assets 2015: $5,893,3592015Assets 2016: $8,482,471Liabilities 2016: $2,470,606Net Assets 2016: $6,011,8652016Assets 2017: $8,864,673Liabilities 2017: $2,834,142Net Assets 2017: $6,030,5312017Assets 2018: $10,470,469Liabilities 2018: $4,585,452Net Assets 2018: $5,885,0172018Assets 2019: $10,367,454Liabilities 2019: $4,200,736Net Assets 2019: $6,166,7182019Assets 2020: $10,322,975Liabilities 2020: $4,137,498Net Assets 2020: $6,185,4772020Assets 2021: $10,168,996Liabilities 2021: $3,334,622Net Assets 2021: $6,834,3742021Assets 2022: $8,367,265Liabilities 2022: $3,104,627Net Assets 2022: $5,262,6382022Assets 2023: $5,433,549Liabilities 2023: $808,004Net Assets 2023: $4,625,5452023Assets 2024: $5,156,977Liabilities 2024: $1,186,872Net Assets 2024: $3,970,1052024

Highlighted filing

2024

Assets$5,156,977
Liabilities$1,186,872
Net Assets$3,970,105

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$20M$15M$10M$5.0M$0-$5.0MRevenue 2011: $1,936,413Expenses 2011: $3,254,817Net Income 2011: -$1,318,4042011Revenue 2012: $6,752,266Expenses 2012: $6,795,974Net Income 2012: -$43,7082012Revenue 2013: $8,103,627Expenses 2013: $6,819,292Net Income 2013: $1,284,3352013Revenue 2014: $7,913,386Expenses 2014: $9,031,621Net Income 2014: -$1,118,2352014Revenue 2015: $9,578,160Expenses 2015: $8,682,665Net Income 2015: $895,4952015Revenue 2016: $10,577,882Expenses 2016: $10,624,102Net Income 2016: -$46,2202016Revenue 2017: $10,712,963Expenses 2017: $10,896,005Net Income 2017: -$183,0422017Revenue 2018: $11,684,281Expenses 2018: $11,592,038Net Income 2018: $92,2432018Revenue 2019: $12,125,041Expenses 2019: $12,505,599Net Income 2019: -$380,5582019Revenue 2020: $12,837,875Expenses 2020: $13,160,458Net Income 2020: -$322,5832020Revenue 2021: $13,364,540Expenses 2021: $13,560,977Net Income 2021: -$196,4372021Revenue 2022: $13,595,220Expenses 2022: $14,534,841Net Income 2022: -$939,6212022Revenue 2023: $13,573,899Expenses 2023: $16,433,621Net Income 2023: -$2,859,7222023Revenue 2024: $15,982,317Expenses 2024: $17,011,486Net Income 2024: -$1,029,1692024

Highlighted filing

2024

Revenue$15,982,317
Expenses$17,011,486
Net Income-$1,029,169

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.16$1.19$3.97$16.0$17.0$1.03
2023Detailed filing. Detailed filing data is available for this year.$5.43$0.81$4.63$13.6$16.4$2.86
2022Detailed filing. Detailed filing data is available for this year.$8.37$3.10$5.26$13.6$14.5$0.94
2021Detailed filing. Detailed filing data is available for this year.$10.2$3.33$6.83$13.4$13.6$0.20
2020Detailed filing. Detailed filing data is available for this year.$10.3$4.14$6.19$12.8$13.2$0.32
2019Detailed filing. Detailed filing data is available for this year.$10.4$4.20$6.17$12.1$12.5$0.38
2018Detailed filing. Detailed filing data is available for this year.$10.5$4.59$5.89$11.7$11.6$0.09
2017Detailed filing. Detailed filing data is available for this year.$8.86$2.83$6.03$10.7$10.9$0.18
2016Detailed filing. Detailed filing data is available for this year.$8.48$2.47$6.01$10.6$10.6$0.05
2015Detailed filing. Detailed filing data is available for this year.$7.10$1.20$5.89$9.58$8.68$0.90
2014Summary only. Only limited summary data is available for this year.$5.83$0.78$5.05$7.91$9.03$1.12
2013Summary only. Only limited summary data is available for this year.$6.93$0.87$6.06$8.10$6.82$1.28
2012Summary only. Only limited summary data is available for this year.$5.44$0.68$4.77$6.75$6.80$0.04
2011Summary only. Only limited summary data is available for this year.$5.47$0.63$4.84$1.94$3.25$1.32
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 7, 2025
Return Version
2024v5.2
Gross Receipts
$18,844,799
Mission and Program Overview

Mission

Athn provides stewardship of a secure national database, adherent to all privacy guidelines, which will be used to support clinical outcomes analysis, research, advocacy and public health reporting in the hemostasis and thrombosis community.

The american thrombosis and hemostasis network (athn) is a nonprofit organization dedicated to improving the lives of people affected by bleeding and clotting disorders. We're using technology to secure data, advance knowledge, transform care--and ultimately improve lives.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$3,629,914$2,286,924▼ $1,342,990
Pledges and Grants Receivable$1,011,954$1,877,266▲ $865,312
Cash and Non-Interest-Bearing Accounts$605,909$790,696▲ $184,787
Prepaid Expenses and Deferred Charges$185,772$184,681▼ $1,091
Savings and Temporary Cash Investments-$17,410-
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$5,433,549$5,156,977▼ $276,572
Liabilities
Accounts Payable and Accrued Expenses$658,004$1,058,290▲ $400,286
Deferred Revenue$150,000$128,582▼ $21,418
Total Liabilities$808,004$1,186,872▲ $378,868
Net Assets / Fund Balance
Net Assets With Donor Restrictions$5,790,255$6,301,998▲ $511,743
Net Assets Without Donor Restrictions$-1,164,710$-2,331,893▼ $1,167,183
Total Net Assets Fund Balance$4,625,545$3,970,105▼ $655,440
Total Liabilities and Net Assets / Fund Balance$5,433,549$5,156,977▼ $276,572

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$0$4,410,217$4,410,217
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Tammuella SingletonChief Science OfficerFT$350,984$77,139$428,123
Crystal WatsonPresident and CEOFT$286,072$104,493$390,565
Michael NiekampCFO Ending 12/24FT$241,478$88,380$329,858
Moses Miles IiiChief Operating OfficerFT$259,108$65,170$324,278
Srikanth SubramanyaSr. Director, EngineeringFT$169,170$91,763$260,933
Diana VainshteinDirector, Product ManagementFT$156,297$52,929$209,226
Troy VerbruggeLead Software EngineerFT$167,688$40,031$207,719
Nabil DaoudDirector, Data ScienceFT$159,481$42,028$201,509
Justine KaplanSr. Director, Office of PhiFT$149,540$38,504$188,044
Robert Sidonio MdDirector-$36,000-$36,000
Roosevelt CouncilChief Financial OfficerFT$18,073$300$18,373

Board Members and Trustees

Highest Paid Contractors

ContractorServicesLocationCompensation
Smith Gambrell & Russell LLPLegal FeesPO BOX 930930, Atlanta, GA 31193-0930, Ez$160,734
Rip Road INCInformation Technology8 WRIGHT ST STE 107, Westport, CT 06880$156,300
Citrin CoopermanSystems & Software Engineering50 ROCKEFELLER PLAZA, New York, NY 10020$152,190
-Accounting-$117,650
Revenue and Support

Revenue Composition

Contributions and Grants
$15,816,465
Program Service Revenue
$0
Investment Income
$71,496
Other Revenue
$94,356
All Other Contributions
$10,786,137
Change in Net Assets
$-1,029,169

Audited Revenue Reconciliation

Revenue per Audited Statements
$15,961,511
Revenue Not Reported on Financial Statements
$20,806
Revenue Not Reported on Form 990
$373,729
Total Revenue per Audited Statements
$16,335,240
Total Revenue per Form 990
$15,982,317
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$7,968,406
Grants and Similar Amounts Paid$5,125,912
Other Expenses$3,917,168
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$4,719,306$560,737-$5,280,043
Grants to Domestic Orgs$5,125,912--$5,125,912
Information Technology$2,105,795$87,858-$2,193,653
Current Officers, Directors, Trustees, and Key Employees$391,620$1,107,313-$1,498,933
Conferences and Meetings$112,417$540,099-$652,516
Payroll Taxes$389,322$120,313-$509,635
Fees for Services Other$322,518$174,143-$496,661
Other Employee Benefits$347,359$56,652-$404,011
Pension Plan Contributions$239,650$36,134-$275,784
Office Expenses$133,970$83,114-$217,084
Fees for Services Legal$131,808$28,926-$160,734
Fees for Services Accounting-$117,650-$117,650
Insurance-$41,919-$41,919
Fees for Service Investment Mgmnt Fees-$20,806-$20,806
All Other Expenses-$16,145-$16,145
Total Functional Expenses$14,019,677$2,991,809$0$17,011,486

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$17,011,486
Expenses per Audited Statements$16,990,680
Total Expenses per Audited Statements$16,990,680
Expenses Not Reported on Financial Statements$20,806
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Hemophilia Foundation of MichiganYpsilanti, MI501(c)(3)Data Management and Research Project Support$566,663
Lehigh Valley Hospital IncAllentown, PA501(c)(3)Data Management and Research Project Support$428,581
Center for Inherited Blood DisordersOrange, CA501(c)(3)Data Management and Research Project Support$393,944
Great Lakes Hemophilia FoundationMilwaukee, WI501(c)(3)Data Management and Research Project Support$387,200
Icahn School of Medicine at Mt SinaiNew York, NY501(c)(3)Data Management and Research Project Support$350,879
University of Texas HoustonHouston, TX501(c)(3)Data Management and Research Project Support$333,215
Hemophilia of GeorgiaSandy Springs, GA501(c)(3)Data Management and Research Project Support$327,934
University of North Carolina Chapel HillChapel Hill, NC501(c)(3)Data Management and Research Project Support$309,781
Oregon Health & Science UniversityPortland, OR501(c)(3)Data Management and Research Project Support$291,662
BOSTON CHILDREN'S HOSPITALBoston, MA501(c)(3)Data Management and Research Project Support$258,861
Versiti WisconsinChicago, IL501(c)(3)Data Management and Research Project Support$133,897
THE CHILDREN'S MERCY HOSPITALKansas City, MT501(c)(3)Data Management and Research Project Support$74,600
Yale University School of MedicineNew Haven, CT501(c)(3)Data Management and Research Project Support$63,600
Regents University of MichiganPittsburgh, PA501(c)(3)Data Management and Research Project Support$52,000
Tulane UniversityNew Orleans, LA501(c)(3)Data Management and Research Project Support$43,500
Hemophilia Center of Western PaPittsburgh, PA501(c)(3)Data Management and Research Project Support$41,312
Ut Southwestern Medical CenterDallas, TX501(c)(3)Data Management and Research Project Support$37,762
Wake University Health SciencesWinstonsalem, NC501(c)(3)Data Management and Research Project Support$33,162
Regents of the University of California SdLos Angeles, CA501(c)(3)Data Management and Research Project Support$32,600
Vanderbilt UniversityDallas, TX501(c)(3)Data Management and Research Project Support$26,000
Michigan State UniversityEast Lansing, MI501(c)(3)Data Management and Research Project Support$24,650
Hemophilia Outreach CenterGreen Bay, WI501(c)(3)Data Management and Research Project Support$23,500
University of Iowa & ClinicsIowa City, IA501(c)(3)Data Management and Research Project Support$22,555
Orthopaedic HospitalLos Angeles, CA501(c)(3)Data Management and Research Project Support$21,000
The Feinstein Institute for Medical ResearchManhasset, NY501(c)(3)Data Management and Research Project Support$20,624
Hemostasis and Thrombosis Research Society (htrs)Milwaukee, WI501(c)(3)Data Management and Research Project Support$18,750
Newark Beth Israel Medical CenterNewark, NJ501(c)(3)Data Management and Research Project Support$18,450
CHILDREN'S HOSPITAL OF PHILADELPHIAPhiladelphia, PA501(c)(3)Data Management and Research Project Support$17,800
Montefiore Medical CenterBronx, NY501(c)(3)Data Management and Research Project Support$15,600
Research Institute at Nationwide Childrens HospitalColumbus, OH501(c)(3)Data Management and Research Project Support$15,600
CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTERCincinnati, OH501(c)(3)Data Management and Research Project Support$15,500
CHILDREN'S NATIONAL MEDICAL CENTERWashington, DC501(c)(3)Data Management and Research Project Support$15,000
Maine Medical CenterScarborough, ME501(c)(3)Data Management and Research Project Support$15,000
Bleeding & Clotting Disorders InstitutePeoria, IL501(c)(3)Data Management and Research Project Support$14,650
JOHNS HOPKINS ALL CHILDREN'S RESEARCH INSTITUTEPetersburg, FL501(c)(3)Data Management and Research Project Support$14,500
University of FloridaGainesville, FL501(c)(3)Data Management and Research Project Support$14,400
DAYTON CHILDREN'S HEMOSTASIS & THROMBOSIS CENTERDayton, OH501(c)(3)Data Management and Research Project Support$13,500
University Hospitals Cleveland Medical CenterDetroit, MI501(c)(3)Data Management and Research Project Support$13,400
VALLEY CHILDREN'S HOSPITALMadera, CA501(c)(3)Data Management and Research Project Support$12,800
CHILDREN'S MINNESOTAMinneapolis, MN501(c)(3)Data Management and Research Project Support$12,550
Ihc Health Services IncSalt Lake City, UT501(c)(3)Data Management and Research Project Support$12,550
PROMEDICA RUSSELL J EBEID CHILDREN'S HOSPITALToledo, OH501(c)(3)Data Management and Research Project Support$12,500
Pennsylvania State UniversityHershey, PA501(c)(3)Data Management and Research Project Support$12,500
University of California Sd Medical CenterLa Jolla, CA501(c)(3)Data Management and Research Project Support$12,500
The John Bouhasin Center for Children With Bleeding DisordeSt Louis, MT501(c)(3)Data Management and Research Project Support$11,900
University of California San FranciscoSan Francisco, CA501(c)(3)Data Management and Research Project Support$11,650
Novant Health Presbyterian Medical Center FoundationCharlotte, NC501(c)(3)Data Management and Research Project Support$11,562
ARKANSAS CHILDREN'S RESEARCH INSTITUTELittle Rock, AR501(c)(3)Data Management and Research Project Support$11,500
ST JOSEPH'S CHILDREN'S HOSPITAL TAMPATampa, FL501(c)(3)Data Management and Research Project Support$11,262
East Carolina University Hemophilia Treatment CenterGreenville, NC501(c)(3)Data Management and Research Project Support$10,950
Mary M Gooley Hemophilia CenterRochester, NY501(c)(3)Data Management and Research Project Support$10,800
ST JUDE CHILDREN'S RESEARCH HOSPITALMemphis, TN501(c)(3)Data Management and Research Project Support$10,650
Augusta UniversityAugusta, GA501(c)(3)Data Management and Research Project Support$10,200
Orlando Health IncOrlando, FL501(c)(3)Data Management and Research Project Support$10,000
Drexel UniversityPhiladelphia, PA501(c)(3)Data Management and Research Project Support$9,500
ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGOChicago, IL501(c)(3)Data Management and Research Project Support$8,850
The Washington UniversitySaint Louis, MT501(c)(3)Data Management and Research Project Support$8,700
Weill Cornell MedicineNew York, NY501(c)(3)Data Management and Research Project Support$8,600
Connecticut Bleeding and Clotting Disorders CenterHartford, CT501(c)(3)Data Management and Research Project Support$8,200
Baylor College of MedicineHouston, TX501(c)(3)Data Management and Research Project Support$7,500
CHILDREN'S HOSPITAL OF THE KING'S DAUGHTERS INCNorfolk, VA501(c)(3)Data Management and Research Project Support$7,500
Rhode Island Hospital Hemostasis and Thrombosis CenterProvidence, RI501(c)(3)Data Management and Research Project Support$7,450
CHILDREN'S HOSPITAL OF LOS ANGELESLos Angeles, CA501(c)(3)Data Management and Research Project Support$7,200
Emory UniversityAtlanta, GA501(c)(3)Data Management and Research Project Support$7,000
PHOENIX CHILDREN'S HOSPITAL FOUNDATIONPhoenix, AZ501(c)(3)Data Management and Research Project Support$7,000
Indiana Hemophilia & Thrombosis CenterIndianapolis, IN501(c)(3)Data Management and Research Project Support$6,950
Johns Hopkins U Medical CenterBaltimore, MD501(c)(3)Data Management and Research Project Support$6,662
Mississippi Center for Advanced MedicineMadison, MS501(c)(3)Data Management and Research Project Support$6,400
Wny Bloodcare IncBuffalo, NY501(c)(3)Data Management and Research Project Support$6,100
Albany Medical CenterAlbany, NY501(c)(3)Data Management and Research Project Support$5,500
Central Michigan UniversityMount Pleasant, MI501(c)(3)Data Management and Research Project Support$5,324
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

A copy of the form 990 was emailed to all board members for their review prior to being filed.

Form 990, Part VI, Section B, Line 12C

Athn requires all board members and officers to complete conflict of interest statements on a yearly basis.

Form 990, Part VI, Section B, Line 15A

The president/ceo's compensation is reviewed by the executive committee and approved by the board.

Form 990, Part VI, Section C, Line 19

All required public disclosure documents are made available upon request during normal business hours.

Filing and Contact Details

Filer

Filer Name
American Thrombosis and Hemostasis
EIN
20-5244339
Phone
9145883550
Address
200 1ST AVENUE NW 316, HICKORY, NC 28601

Signing Officer

Name
Crystal Watson
Title
President & CEO
Phone
9145883550
Signed
2025-11-07
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Crystal Watson
Formed
2006
Legal Domicile
Ga
Voting Board Members
5
Independent Board Members
4
Employees
52
Volunteers
5

Preparer

Firm
Citrin Cooperman Advisors LLC
Address
30 BRAINTREE HL OFFICE PARK STE 300, BRAINTREE, MA 02184
Preparer
Amanda Adams
Phone
7813562000
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

Athn follows standards that provide clarifications on accounting for uncertainty in income taxes recognized in athn's financial statements. The guidance prescribes a recognition threshold and measurement attribute for the recognition and measurement of a tax position takesn or expected to be taken in a tax return, and provides guidance on derecognition, classification, interest and penalties, disclosure, and transition. Athn's policy is to recognize interest and penalties on unrecognized tax benefits in income tax expense. No interest and penalties were recorded during the year ended december 31, 2024. At december 31, 2024, there are no significant income tax uncertainties.

Raw XML AppendixShowing 400 of 1,405 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0THE AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK (ATHN) IS A NONPROFIT ORGANIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE AFFECTED BY BLEEDING AND CLOTTING DISORDERS. WE'RE USING TECHNOLOGY TO SECURE DATA, ADVANCE KNOWLEDGE, TRANSFORM CARE--AND ULTIMATELY IMPROVE LIVES.
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IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt0SMITH GAMBRELL & RUSSELL LLP
IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt1RIP ROAD INC
IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt2CITRIN COOPERMAN
IRS990/ContractorCompensationGrp/ContractorName/PersonNm0NATHAN WILLIAM VENN
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IRS990/ContractorCompensationGrp/ServicesDesc2SYSTEMS & SOFTWARE ENGINEERING
IRS990/ContractorCompensationGrp/ServicesDesc3ACCOUNTING
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IRS990/Desc0ATHN RESEARCH PROGRAMS:ATHN, IN CONJUNCTION WITH OUR 140+ HEMOPHILIA TREATMENT CENTERS (HTCS) ACROSS THE UNITED STATES, LEADS OR SUPPORTS A NUMBER OF PROGRAMS THAT LEVERAGE OUR STAFF EXPERTISE AND INFRASTRUCTURE.OUR LEADING 2024 RESEARCH PROGRAMS INCLUDE:ATHN TRANSCENDS - THE WORLD'S LARGEST NATURAL HISTORY STUDY OF PEOPLE AFFECTED BY NON-NEOPLASTIC HEMATOLOGIC CONDITIONS, WAS CREATED IN RESPONSE TO THE NATIONAL HEART, LUNG, AND BLOOD INSTITUTE'S (NHLBI) BLUEPRINT FOR FACTOR VIII INHIBITOR CLINICAL TRIALS. WITH THE PRIMARY AIM OF DETERMINING THE SAFETY OF ALL THERAPIES UTILIZED IN THIS POPULATION.ATHN TRANSCENDS PLANS TO ENROLL PARTICIPANTS INTO VARIOUS COHORTS BASED ON DIAGNOSIS. ATHN TRANSCENDS' STUDY ARCHITECTURE IS DESIGNED TO ENCOURAGE THE CREATION OF MODULES EXPLORING SPECIFIC SAFETY AND EFFECTIVENESS ENDPOINTS. IN ADDITION, THE ATHN RESEARCH BIOREPOSITORY, LOCATED AT VERSITI, BLOOD CENTER OF WISCONSIN, WILL STORE BIOSPECIMENS FROM ATHN TRANSCENDS FOR FUTURE RESEARCH.ATHN TRANSCENDS IS ORGANIZED INTO SEVEN (7) COHORTS: 1. HEMOPHILIA 2. VON WILLEBRAND DISEASE 3. THROMBOSIS/THROMBOPHILIA4. NON-NEOPLASTIC HEMATOLOGIC CONDITIONS5. BLEEDING NOT OTHERWISE SPECIFIED (NOS) 6. RARE BLOOD DISORDERS7. CONGENITAL PLATELET DISORDERS
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IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6PRESIDENT AND CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt7CHIEF FINANCIAL OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt8CFO ENDING 12/24
IRS990/Form990PartVIISectionAGrp/TitleTxt9CHIEF SCIENCE OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt10CHIEF OPERATING OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt11SR. DIRECTOR, ENGINEERING
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR, DATA SCIENCE
IRS990/Form990PartVIISectionAGrp/TitleTxt13LEAD SOFTWARE ENGINEER
IRS990/Form990PartVIISectionAGrp/TitleTxt14SR. DIRECTOR, OFFICE OF PHI
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR, PRODUCT MANAGEMENT
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IRS990/MissionDesc0THE AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK (ATHN) IS A NONPROFIT ORGANIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE AFFECTED BY BLEEDING AND CLOTTING DISORDERS. WE'RE USING TECHNOLOGY TO SECURE DATA, ADVANCE KNOWLEDGE, TRANSFORM CARE--AND ULTIMATELY IMPROVE LIVES.
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IRS990/ProgSrvcAccomActy2Grp/Desc0COMMUNITY COUNTS CDC PUBLIC HEALTH SURVEILLANCE PROJECT (CDC):THIS FEDERAL PROJECT IS LED BY ATHN IN PARTNERSHIP WITH THE CENTERS FOR DISEASE CONTROL AND PREVENTION (CDC) AND THE U.S. HEMOPHILIA TREATMENT CENTER NETWORK. ITS AIM IS TO COLLECT DATA ON PEOPLE WITH BLEEDING AND CLOTTING DISORDERS AND INCREASE KNOWLEDGE, MONITOR TRENDS, IDENTIFY RISK FACTORS, AND MORE. IN 2020, THE CDC RENEWED ATHN'S 5-YEAR COOPERATIVE AGREEMENT TO CONTINUE THE COMMUNITY COUNTS PROJECT AND:- STRENGTHEN COLLABORATION WITH TREATMENT CENTERS - CONTINUE DATA AND SPECIMEN COLLECTION AND TRANSFER- EVALUATE DATA QUALITY AND IMPROVEMENT- SHARE INFORMATION WITH THE COMMUNITYUSING ATHN SYSTEMS, OVER 453,000 SURVEILLANCE FORMS HAVE BEEN SUBMITTED TO CDC FOR MORE THAN 141,000 UNIQUE PATIENTS.
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IRS990/ProgSrvcAccomActy3Grp/Desc0ATHN SYSTEMS:THIS PROGRAM COMPRISES THE SOFTWARE SYSTEMS AND CAPABILITIES REQUIRED AS A STEWARD OF A SECURE NATIONAL DATABASE USED TO SUPPORT CLINICAL OUTCOMES ANALYSIS, RESEARCH, AND PUBLIC HEALTH WITH REPORTING BY OVER 140 TREATMENT CENTERS, GOVERNMENT ENTITIES, AND RESEARCHERS.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0NATIONAL HEMOPHILIA PROGRAM COORDINATING CENTER (NHPCC):THE NHPCC SUPPORTS A COLLABORATIVE AND INTEGRATED NATIONAL INFRASTRUCTURE OF REGIONAL HEMOPHILIA NETWORKS TO PROMOTE ACCESS AND QUALITY OF CARE FOR PEOPLE WITH BLOOD DISORDERS. THE NHPCC IS FUNDED BY A HEALTH RESOURCES AND SERVICES ADMINISTRATION (HRSA) COOPERATIVE AGREEMENT THROUGH ATHN, ITS SPONSORING ORGANIZATION. ATHN RECEIVED A NEW FIVE-YEAR COOPERATIVE AGREEMENT IN JUNE 2022 CARRYING THE PROJECT INTO 2027. THE NHPCC'S QUALITY IMPROVEMENT PROGRAM USES EVIDENCE-BASED PRACTICES TO IMPROVE ACCESS TO CARE, TRANSITION OF CARE, PATIENT ENGAGEMENT, AND MORE. THIS PROGRAM HAS USED RESULTS OF THE FIRST-EVER NATIONAL PATIENT NEEDS ASSESSMENT, COMPLETED BY THE NHPCC, TO PRIORITIZE AND LAUNCH QUALITY IMPROVEMENT INITIATIVES AT HTCS ACROSS THE U.S.
IRS990/ProgSrvcAccomActyOtherGrp/Desc1ATHN DATA QUALITY COUNTS IS HELPING ATHN AFFILIATES ENRICH THE ATHN DATASET. THE PROMISE OF USING DATA FOR RESEARCH, SURVEILLANCE, AND QUALITY IMPROVEMENT RELIES ON DATA THAT IS COMPLETE AND ACCURATE. ATHN DATA QUALITY COUNTS PROVIDES THE CRITICAL FUNDING NEEDED TO BUILD DATA MANAGEMENT CAPACITY ACROSS THE ATHN AFFILIATE NETWORK AND ENRICH THEATHNDATASET. SINCE OUR INCEPTION, ATHN HAS DISTRIBUTED OVER $8.1M IN DQC GRANTS TO OUR NETWORK OF HTCS.
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IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0MISCELLANEOUS REVENUE - 2020 AMOUNT: $ 26,978. 2021 AMOUNT: $ 14,831. 2022 AMOUNT: $ 28,311. 2023 AMOUNT: $ 4,193. 2024 AMOUNT: $ 94,356.
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:
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