Liabilities / Assets
45th percentile
Higher debt load relative to assets than 45% of similar nonprofits.
EIN 20-3733312 • 501(c)3 • Alachua, FL
Profile
The organization was established to advance research for a cure, discover effective treatments, and to promote awareness and education of the neurological movement disorder dyt1 dystonia.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
45th percentile
Higher debt load relative to assets than 45% of similar nonprofits.
Liabilities / Revenue
42nd percentile
Higher debt load relative to revenue than 42% of similar nonprofits.
Net Margin
67th percentile
Higher net margin than 67% of similar nonprofits.
Top Officer Pay
55th percentile
Higher top officer pay than 55% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
83rd percentile
Faster asset growth than 83% of similar nonprofits.
Revenue Growth
87th percentile
Faster revenue growth than 87% of similar nonprofits.
Assets
Up$446,360
Up $111,353 (+33%) from 2023
Liabilities
Up$3,306
Up $3,306 from 2023
Net Assets
Up$443,054
Up $108,047 (+32%) from 2023
Revenue
Up$746,640
Up $309,053 (+71%) from 2023
Expenses
Up$640,863
Up $176,975 (+38%) from 2023
Net Income
Up$105,777
Up $132,078 (+502%) from 2023
Most recent year
2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.
The organization was established to advance research for a cure, discover effective treatments, and to promote awareness and education of the neurological movement disorder dyt1 dystonia.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $273,248 | $412,332 | ▲ $139,084 |
| Investments in Publicly Traded Securities | $16,602 | $21,062 | ▲ $4,460 |
| Cash and Non-Interest-Bearing Accounts | $45,157 | $12,966 | ▼ $32,191 |
| Total Assets | $335,007 | $446,360 | ▲ $111,353 |
| Liabilities | |||
| Other Liabilities | $0 | $3,306 | ▲ $3,306 |
| Total Liabilities | $0 | $3,306 | ▲ $3,306 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $335,007 | $443,054 | ▲ $108,047 |
| Total Net Assets Fund Balance | $335,007 | $443,054 | ▲ $108,047 |
| Total Liabilities and Net Assets / Fund Balance | $335,007 | $446,360 | ▲ $111,353 |
| Name | Title |
|---|---|
| Richard a Staab | President |
| Alan Chatman | Director |
| Bush Dwaine | Director |
| Daniel R Galasso | Director |
| Daurine Wehbe | Director |
| Dr Kelli Ross | Director |
| Heather Parker | Director |
| John Hayes | Director |
| Kevin Griffin | Director |
| Lisa Rutenberg Kinsell | Director |
| Michele Streitmatter | Director |
| Mike Mitrook | Director |
| Patrick Banis | Director |
| Pete Seagroves | Director |
| Scott Costello | Director |
| Stephen Tanner | Director |
| Wj Rossi | Director |
| Michelle Staab | Treasurer |
| Brian Scarborough | VP Comm Affairs |
| Miles Kinsell | VP Legal Issues |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $438,429 |
| Other Expenses | $137,743 |
| Salaries, Compensation, and Employee Benefits | $64,691 |
| Professional Fundraising Fees | $0 |
| Total Fundraising Expense | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $438,429 | - | - | $438,429 |
| Other Salaries and Wages | $47,284 | $11,821 | - | $59,105 |
| All Other Expenses | $1,327 | $10,859 | - | $12,186 |
| Other Expenses | $105,315 | $5,100 | - | $5,100 |
| Payroll Taxes | $3,280 | $820 | - | $4,100 |
| Other Employee Benefits | $1,189 | $297 | - | $1,486 |
| Advertising | - | $1,360 | - | $1,360 |
| Travel | $269 | - | - | $269 |
| Fees for Services Other | $22 | $6 | - | $28 |
| Total Functional Expenses | $597,115 | $43,748 | $0 | $640,863 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| University of Florida Foundation | Gainesville, FL | 501c3 | Dystonia Research | $321,429 |
| Duke University | Durham, NC | 501c3 | Dystonia Research | $115,000 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $0 |
| Fundraising Gross Income | $0 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Tourmnt/auction | $331,006 | - | - | - |
| Season of Hope | $31,159 | - | - | - |
| Total Events | $387,236 | - | - | - |
| Liability | Amount |
|---|---|
| Amex Credit Card | $3,306 |
“Family relationships richard a. Staab - michelle staab steven m. Kinsell - lisa rutenberg kinsell”
“The completed form 990 will be reviewed by the board of directors”
“Form 990, part vi, line 19 - governing documents disclosure explanation the governing documents and financial information are made available to the public upon request.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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|---|---|---|
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| IRS990/ActivityOrMissionDesc | 0 | THE ORGANIZATION WAS ESTABLISHED TO ADVANCE RESEARCH FOR A CURE, DISCOVER EFFECTIVE TREATMENTS, AND TO PROMOTE AWARENESS AND EDUCATION OF THE NEUROLOGICAL MOVEMENT DISORDER DYT1 DYSTONIA. |
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| IRS990/AdvertisingGrp/TotalAmt | 0 | 1360 |
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| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 10859 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 1327 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 12186 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | RICHARD A STAAB |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3864625220 |
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| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | FL |
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| IRS990/Desc | 0 | CONTRIBUTE FUNDS TO ORGANIZATIONS DEDICATED TO FINDING A CURE, DISCOVER EFFECTIVE TREATMENTS, AND TO PROMOTE AWARENESS AND EDUCATION OF THE NEUROLOGICAL MOVEMENT DISORDER DYT1 DYSTONIA. |
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| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | VP LEGAL ISSUES |
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| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 18 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 19 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2005 |
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| IRS990/FundraisingAmt | 0 | 402355 |
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| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 20 |
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| IRS990/GrantsToOrganizationsInd | 0 | 1 |
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| IRS990/IndoorTanningServicesInd | 0 | 0 |
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| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 17419 |
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| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
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| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE ORGANIZATION WAS ESTABLISHED TO ADVANCE RESEARCH FOR A CURE, DISCOVER EFFECTIVE TREATMENTS, AND TO PROMOTE AWARENESS AND EDUCATION OF THE NEUROLOGICAL MOVEMENT DISORDER DYT1 DYSTONIA. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
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| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 335007 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 443054 |
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| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
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| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 443054 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 297 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 1189 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 1486 |
| IRS990/OtherExpensesGrp/Desc | 0 | EVENTS |
| IRS990/OtherExpensesGrp/Desc | 1 | WEBSITE DESIGN |
| IRS990/OtherExpensesGrp/Desc | 2 | PROFESSIONAL FEES |
| IRS990/OtherExpensesGrp/Desc | 3 | CREDIT CARD PROCESSING |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 8000 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 5485 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 5100 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 105315 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 105315 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 8000 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 5485 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 5100 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 3306 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 11821 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 47284 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 59105 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 820 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 3280 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 4100 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | RICHARD A STAAB |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 428189 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 286462 |
| IRS990/PYInvestmentIncomeAmt | 0 | 9398 |
| IRS990/PYOtherExpensesAmt | 0 | 117534 |
| IRS990/PYOtherRevenueAmt | 0 | 0 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -26301 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 59892 |
| IRS990/PYTotalExpensesAmt | 0 | 463888 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 437587 |
| IRS990/QuidProQuoContributionsInd | 0 | 1 |
| IRS990/QuidProQuoContriDisclInd | 0 | 1 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 105777 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 273248 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 412332 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 729221 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 428189 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 373281 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 482797 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 281670 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 2295158 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 17419 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 9398 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 3260 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2941 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 120 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 33138 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1906 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 1906 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.98500 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.93250 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 2295158 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 729221 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 428189 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 373281 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 482797 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 281670 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 2295158 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 2330202 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 3306 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | AMEX CREDIT CARD |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 0 |
| IRS990ScheduleD/TotalLiabilityAmt | 0 | 3306 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 387236 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 331006 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 31159 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt | 0 | 25071 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | TOURMNT/AUCTION |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | SEASON OF HOPE |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 331006 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 31159 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 25071 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 387236 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt | 0 | 1 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 321429 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 115000 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501C3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 1 | 501C3 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 0 | 0 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 1 | 0 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | DYSTONIA RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | DYSTONIA RESEARCH |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | UNIVERSITY OF FLORIDA FOUNDATION |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | DUKE UNIVERSITY |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 590974739 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 560532129 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 1938 W UNIVERSITY AVE |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 324 BLACKWELL ST |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | GAINESVILLE |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | DURHAM |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | FL |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | NC |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 32603 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 27701 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
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