Civic Intelligence

Hidradenitis Suppurativa Foundation Inc

EIN 20-3246772 • 501(c)3 • Cary, NC

Profile

The mission of the hs foundation is to improve the lives of people affected by hs through advocacy, education and research.

964 High House Road 3064Cary, NC 27513

www.hs-foundation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on the latest valid filing.

Source year 2022

Liabilities / Revenue

20th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2022

Net Margin

48th percentile

3.4%

Higher net margin than 48% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2022

Top Officer Pay

91st percentile

$225,000

Higher top officer pay than 91% of similar nonprofits.

Top officer pay equals 19.1% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2022

Asset Growth

2nd percentile

-100%

Faster asset growth than 2% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Revenue Growth

88th percentile

74%

Faster revenue growth than 88% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / AssetsScore unavailable

Assets

Down

$0

Down $1,219,380 (-100%) from 2021

Liabilities

Down

$0

Down $86,960 (-100%) from 2021

Net Assets

Down

$0

Down $1,132,420 (-100%) from 2021

Operations
Liabilities / Revenue20th percentileNet Margin48th percentile

Revenue

Up

$1,179,185

Up $500,141 (+74%) from 2021

Expenses

Up

$1,139,182

Up $752,583 (+195%) from 2021

Net Income

Down

$40,003

Down $252,442 (-86%) from 2021

Trend Graphs

Balance Sheet Trend

Asset Growth2nd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.5M$1.0M$500K$0Assets 2015: $132,496Net Assets 2015: $132,4962015Assets 2016: $233,263Net Assets 2016: $233,2632016Assets 2017: $361,931Liabilities 2017: $0Net Assets 2017: $361,9312017Assets 2018: $485,314Net Assets 2018: $485,3142018Assets 2019: $645,685Liabilities 2019: $6,953Net Assets 2019: $638,7322019Assets 2020: $842,509Liabilities 2020: $330Net Assets 2020: $842,1792020Assets 2021: $1,219,380Liabilities 2021: $86,960Net Assets 2021: $1,132,4202021Assets 2022: $0Liabilities 2022: $0Net Assets 2022: $02022

Highlighted filing

2022

Assets$0
Liabilities$0
Net Assets$0
Open 2022 Filing

Operations Trend

Revenue Growth88th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.5M$1.0M$500K$0Revenue 2015: $53,964Expenses 2015: $30,005Net Income 2015: $23,9592015Revenue 2016: $132,652Expenses 2016: $31,885Net Income 2016: $100,7672016Revenue 2017: $244,224Expenses 2017: $115,706Net Income 2017: $128,5182017Revenue 2018: $193,817Expenses 2018: $70,434Net Income 2018: $123,3832018Revenue 2019: $460,786Expenses 2019: $307,368Net Income 2019: $153,4182019Revenue 2020: $444,806Expenses 2020: $241,359Net Income 2020: $203,4472020Revenue 2021: $679,044Expenses 2021: $386,599Net Income 2021: $292,4452021Revenue 2022: $1,179,185Expenses 2022: $1,139,182Net Income 2022: $40,0032022

Highlighted filing

2022

Revenue$1,179,185
Expenses$1,139,182
Net Income$40,003
Open 2022 Filing

Filings

Most recent year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$0
Liabilities
$0
Net assets
$0
Revenue
$1,179,185
Expenses
$1,139,182
Net income
$40,003
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2022Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00$1.18$1.14$0.04
2021Detailed filing. Detailed filing data is available for this year.$1.22$0.09$1.13$0.68$0.39$0.29
2020Detailed filing. Detailed filing data is available for this year.$0.84$0.00$0.84$0.44$0.24$0.20
2019Detailed filing. Detailed filing data is available for this year.$0.65$0.01$0.64$0.46$0.31$0.15
2018Detailed filing. Detailed filing data is available for this year.$0.49$0.49$0.19$0.07$0.12
2017Detailed filing. Detailed filing data is available for this year.$0.36$0.00$0.36$0.24$0.12$0.13
2016Detailed filing. Detailed filing data is available for this year.$0.23$0.23$0.13$0.03$0.10
2015Detailed filing. Detailed filing data is available for this year.$0.13$0.13$0.05$0.03$0.02
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Sep 5, 2023
Return Version
2022v5.0
Gross Receipts
$1,179,185
Mission and Program Overview

Mission

The hsf is a nonprofit public benefit corporation dedicated to improving the quality of life and quality of care for individuals and families affected by hidradenitis suppurativa (hs). The hsf fosters and encourages worldwide research by developing and supporting an interdisciplinary family of scientists and physicians devoted to studying the molecular and cellular basis of hs, in order to develop and deliver more effective forms of treatment and preventative measures for those with this debilitating and eminently chronic disease. The mission of the hidradentis suppurativa foundation is as follows: - to support patient care - to promote physician and patient education, and - to encourage research aimed at the control and cure of hidradentis suppurativa/acne inversa.

The hidradenitis suppurativa foundation (hsf) is a nonprofit public benefit corporation dedicated to improving the quality of life and quality of care for individuals and families affected by hidradenitis suppurativa (hs). The hsf fosters and encourages worldwide research by developing and supporting an interdisciplinary family of scientists and physicians devoted to studying the molecular and cellular basis of hs, in order to develop and deliver more effective forms of treatment and preventative measures for those with this debilitating and eminently chronic disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$1,001,427$0▼ $1,001,427
Investments in Publicly Traded Securities$98,493$0▼ $98,493
Cash and Non-Interest-Bearing Accounts$61,281$0▼ $61,281
Prepaid Expenses and Deferred Charges$58,179$0▼ $58,179
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$1,219,380$0▼ $1,219,380
Other Assets Total-$0-
Liabilities
Deferred Revenue$66,444--
Accounts Payable and Accrued Expenses$20,516--
Total Liabilities$86,960$0▼ $86,960
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,104,369$0▼ $1,104,369
Net Assets With Donor Restrictions$28,051$0▼ $28,051
Total Net Assets Fund Balance$1,132,420$0▼ $1,132,420
Total Liabilities and Net Assets / Fund Balance$1,219,380$0▼ $1,219,380
Compensation and Service Providers
Top Officer Pay91st percentile

Employees

NameTitleFull / Part TimeBaseTotal
Brent HazelettExecutive DirectorFT$225,000$225,000
Amit Garg MdDirector-$3,500$3,500
Athena GierboliniDirector-$2,500$2,500
Michelle Lowes Mbbs PhdDirector-$2,500$2,500
Stephanie Goldberg MdDirector-$2,500$2,500

Board Members and Trustees

NameTitle
Iltefat Hamzavi MdImmediate Past President
Joslyn R Sciacca Kirby MdPresident
Hadar Lev-tov MdVice President
Afsaneh Alavi MdDirector
Barry Resnik MdDirector
Christopher Sayed MdDirector
Donna AthertonDirector
Ginette Okoye MdDirector
Haley Naik MdDirector
Jennifer Hsiao MdDirector
Steven Daveluy MdDirector
Martin Okun MdSecretary
Vivian Shi MdTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$574,862
Program Service Revenue
$598,777
Investment Income
$5,546
Other Revenue
$0
All Other Contributions
$574,862
Change in Net Assets
$40,003

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,178,219
Revenue Not Reported on Financial Statements
$966
Revenue Not Reported on Form 990
$-25,207
Total Revenue per Audited Statements
$1,153,012
Total Revenue per Form 990
$1,179,185
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$805,182
Salaries, Compensation, and Employee Benefits$225,000
Grants and Similar Amounts Paid$109,000
Total Fundraising Expense$22,500
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$701,847--$701,847
Current Officers, Directors, Trustees, and Key Employees$44,298$158,202$22,500$225,000
Grants to Domestic Orgs$95,000--$95,000
Fees for Services Other$29,002$14,232-$43,234
Fees for Services Accounting-$17,886-$17,886
Advertising$15,207--$15,207
Grants to Domestic Individuals$14,000--$14,000
Fees for Services Legal-$8,730-$8,730
Other Expenses$5,835$677-$6,512
Travel$3,838$960-$4,798
Office Expenses-$3,795-$3,795
Insurance-$1,290-$1,290
Fees for Service Investment Mgmnt Fees-$966-$966
Information Technology-$917-$917
Total Functional Expenses$909,027$207,655$22,500$1,139,182

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$1,139,182
Expenses per Audited Statements$1,138,216
Total Expenses per Audited Statements$1,138,216
Expenses Not Reported on Financial Statements$966
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The Regents of the University of CaliforniaOakland, CA-Grant Funding Provided to Researchers and Institutions to Support Their Research Advances in Hs.$75,000
The Pennsylvania State UniversityUniversity Park, PA-Grant Funding Provided to Researchers and Institutions to Support Their Research Advances in Hs.$10,000
The University of North Carolina at Chapel HillChapel Hill, NC-Grant Funding Provided to Researchers and Institutions to Support Their Research Advances in Hs.$10,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, line 11B

“A copy of the Form 990 is reviewed by the Executive Director and Board of Directors before it is filed.”

Form 990, Part VI, Section B, line 12C

“The hs foundation requires leaders to complete a conflict of interest form annually and requires members to routinely cite if they have a working relationship with a company that is being discussed.”

Form 990, Part VI, Section C, line 18

“Information will be made available upon request.”

Form 990, Part VI, Section C, line 19

“The Organization makes information available through the Organization's website.”

Filing and Contact Details

Filer

Filer Name
Hidradenitis Suppurativa Foundation Inc
EIN
20-3246772
Phone
8664412392
Address
964 High House Road 3064, Cary, NC 27513

Signing Officer

Name
Brent Hazelett
Title
Executive Director
Phone
8664412392
Signed
2023-09-05
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Brent Hazelett
Formed
2005
Legal Domicile
CA
Voting Board Members
16
Independent Board Members
16
Employees
0
Volunteers
60

Preparer

Firm
Stancil PC
Address
4909 Windy Hill Drive, Raleigh, NC 27609
Preparer
David Piscorik
Phone
9198721260
Supplemental Narrative

Additional Explanations

Form 990, Part XI, line 9:

“Transfer net assets to EIN 92-0598936 Hidradenitis Suppurativa Foundation -1,147,216.”

Form 990, Part XII, Line 2C:

“The Executive Committee oversees the review process. The process has not changed since last year.”

Financial Statement Notes

Part X, Line 2:

“The Foundation is a not-for-profit organization and is exempt from income taxes under Section 501(c)(3) of the Internal Revenue Code. Accordingly, no provision for income taxes has been made in the accompanying financial statements. The Foundation has evaluated their income tax positions and has determined that they have no uncertain tax positions. The Foundation is not currently under examination by the Internal Revenue Service or the State of North Carolina.”

Raw XML AppendixShowing 400 of 601 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt0IMMEDIATE PAST PRESIDENT
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IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
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IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
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IRS990/MissionDesc0THE MISSION OF THE HS FOUNDATION IS TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY HS THROUGH ADVOCACY, EDUCATION AND RESEARCH.
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IRS990/ProgSrvcAccomActy2Grp/Desc0AS PART OF THE TRANSLATIONAL GRANT PROGRAM, HS FOUNDATION AWARDED $95,000, WHICH CONSISTED OF $75,000 FOR HS PROGRESS AND $20,000 FOR SITE ONBOARDING. THIS FUNDING REPRESENTED THE FINAL YEAR OF SEED FUNDING FOR THE PROGRAM, AS WELL AS FUNDS FOR THE ONBOARDING OF TWO ADDITIONAL SITES.
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IRS990/ProgSrvcAccomActy3Grp/Desc0THE HS FOUNDATION HELD ITS SECOND ANNUAL EDUCATIONAL EVENT TARGETEDTOWARDS DERMATOLOGY RESIDENTS. THE PURPOSE OF THE EVENT, KNOWN AS HS ACADEMY, WAS TO EDUCATE THE NEXT GENERATION OF DERMATOLOGISTS ABOUT THE LATEST ADVANCEMENTS IN DIAGNOSIS, PATHOGENESIS, EPIDEMIOLOGY AND COMORBIDITIES, AS WELL AS MEDICAL AND PROCEDURE-BASED TREATMENTS FOR HIDRADENITIS SUPPURATIVA THROUGH LECTURE, BREAK-OUT SESSIONS, AND CASE-BASED STUDIES WITH RENOWNED EXPERTS AND PATIENTS. OVER 110 RESIDENTS ATTENDED THIS TWO-DAY EDUCATIONAL EXPERIENCE.
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