Civic Intelligence

National Fabry Disease Foundation

990 • Fiscal year 2020 • EIN 20-2944028

Jun 01, 2019 to May 31, 2020 • Filed on Sep 01, 2020

Organization ProfileWWW.FABRYDISEASE.ORG
4301 Connecticut Ave NW No 404Washington, DC 20008

(800) 651-9131

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

27th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Liabilities / Revenue

27th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Net Margin

78th percentile

28%

Higher net margin than 78% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Top Officer Pay

90th percentile

$112,476

Higher top officer pay than 90% of similar nonprofits.

Top officer pay equals 20.6% of source-year revenue.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2020

Asset Growth

86th percentile

69%

Faster asset growth than 86% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2019 to 2020

Revenue Growth

83rd percentile

38%

Faster revenue growth than 83% of similar nonprofits.

2020 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets27th percentile

Assets

Up

$370,078

Up $150,848 (+69%) from 2019

Net Assets

Up

$370,078

Up $150,848 (+69%) from 2019

Liabilities

Flat

$0

Flat from 2019

Revenue And Expenses
Liabilities / Revenue27th percentileNet Margin78th percentile

Revenue

Up

$544,803

Up $150,553 (+38%) from 2019

Expenses

Down

$393,955

Down $39,995 (-9.2%) from 2019

Net Income

Up

$150,848

Up $190,548 (+480%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth86th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2010: $36,838Liabilities 2010: $0Net Assets 2010: $36,8382010Assets 2011: $40,197Liabilities 2011: $0Net Assets 2011: $40,1972011Assets 2012: $39,120Liabilities 2012: $0Net Assets 2012: $39,1202012Assets 2013: $35,114Liabilities 2013: $0Net Assets 2013: $35,1142013Assets 2014: $142,146Liabilities 2014: $0Net Assets 2014: $142,1462014Assets 2015: $151,453Liabilities 2015: $0Net Assets 2015: $151,4532015Assets 2016: $232,750Liabilities 2016: $0Net Assets 2016: $232,7502016Assets 2017: $133,009Liabilities 2017: $0Net Assets 2017: $133,0092017Assets 2018: $258,930Liabilities 2018: $0Net Assets 2018: $258,9302018Assets 2019: $219,230Liabilities 2019: $0Net Assets 2019: $219,2302019Assets 2020: $370,078Liabilities 2020: $0Net Assets 2020: $370,0782020Assets 2021: $342,157Liabilities 2021: $0Net Assets 2021: $342,1572021Assets 2022: $685,818Liabilities 2022: $0Net Assets 2022: $685,8182022Assets 2023: $521,056Liabilities 2023: $0Net Assets 2023: $521,0562023Assets 2024: $413,847Liabilities 2024: $0Net Assets 2024: $413,8472024Assets 2025: $269,505Liabilities 2025: $2,608Net Assets 2025: $266,8972025

Highlighted filing

2020

Assets$370,078
Liabilities$0
Net Assets$370,078
Open 2020 Filing

Operations Trend

Revenue Growth83rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2010: $164,579Expenses 2010: $145,337Net Income 2010: $19,2422010Revenue 2011: $151,732Expenses 2011: $148,373Net Income 2011: $3,3592011Expenses 2012: $246,6772012Expenses 2013: $315,6432013Revenue 2014: $414,863Expenses 2014: $307,831Net Income 2014: $107,0322014Revenue 2015: $396,935Expenses 2015: $387,628Net Income 2015: $9,3072015Revenue 2016: $470,127Expenses 2016: $388,830Net Income 2016: $81,2972016Revenue 2017: $320,480Expenses 2017: $420,221Net Income 2017: -$99,7412017Revenue 2018: $508,472Expenses 2018: $384,145Net Income 2018: $124,3272018Revenue 2019: $394,250Expenses 2019: $433,950Net Income 2019: -$39,7002019Revenue 2020: $544,803Expenses 2020: $393,955Net Income 2020: $150,8482020Revenue 2021: $188,701Expenses 2021: $216,622Net Income 2021: -$27,9212021Revenue 2022: $572,188Expenses 2022: $228,527Net Income 2022: $343,6612022Revenue 2023: $307,957Expenses 2023: $472,698Net Income 2023: -$164,7412023Revenue 2024: $575,301Expenses 2024: $682,510Net Income 2024: -$107,2092024Revenue 2025: $592,005Expenses 2025: $738,955Net Income 2025: -$146,9502025

Highlighted filing

2020

Revenue$544,803
Expenses$393,955
Net Income$150,848
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jun 1, 2019 to May 31, 2020
Signed
Sep 1, 2020
Return Version
2019v5.1
Gross Receipts
$544,803
Mission and Program Overview

Mission

To ensure that all individuals with fabry disease are identified, diagnosed and provided an opportunity for treatment in time to avoid a diminished quality-of-life and life-threatening consequences; to provide education and awareness to people with fabry disease and their families, to physicians, and to the public; to provide support and assistance to people with fabry disease and their families; and to conduct and promote research to improve management and treatment for fabry disease.

To ensure that all individuals with fabry disease are identified, diagnosed and treated in time to avoid a diminished quality of life and life threatening consequences; to provide education and awareness; and to promote research to improve treatment for fabry disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$218,486$369,665▲ $151,179
Intangible Assets$418$413▼ $5
Land, Buildings, and Equipment, Net$326$0▼ $326
Total Assets$219,230$370,078▲ $150,848
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$219,230$370,078▲ $150,848
Total Net Assets Fund Balance$219,230$370,078▲ $150,848
Total Liabilities and Net Assets / Fund Balance$219,230$370,078▲ $150,848

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$5,899$5,899
Compensation and Service Providers
Top Officer Pay90th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Gerald WalterChairFT$109,200$3,276$112,476

Board Members and Trustees

NameTitle
Derek HalbergVice Chair
Douglas WarnockDirector
Elizabeth GaffinDirector
Steven RothmanDirector
Tracey KrasnowDirector
Tracy MyattSecretary
Melanie WilsonTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$544,803
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$544,803
Change in Net Assets
$150,848
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$164,859
Salaries, Compensation, and Employee Benefits$134,145
Grants and Similar Amounts Paid$94,951
Total Fundraising Expense$5,302
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$106,852$3,374$2,250$112,476
Conferences and Meetings$98,306$1,907-$100,213
Grants to Domestic Individuals$94,951--$94,951
Fees for Services Other$18,660$150-$18,810
Office Expenses$10,527$3,735$2,379$16,641
Travel$14,895$1,725-$16,620
Other Salaries and Wages$11,426$361$241$12,028
Payroll Taxes$8,810$278$185$9,273
Fees for Services Accounting-$5,300-$5,300
Information Technology-$4,066-$4,066
All Other Expenses$25$121$240$386
Pension Plan Contributions$350$11$7$368
Depreciation Depletion-$331-$331
Other Expenses$495$255-$255
Total Functional Expenses$365,981$22,672$5,302$393,955
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 8B

“The organization does not have any committees.”

Form 990, Part VI, Section B, Line 11B

“Prior to filing, form 990 will be reviewed by the chairman and treasurer and then distributed to the full board for review.”

Form 990, Part VI, Section B, Line 12C

“The conflict of interest policy is reviewed and signed by each board member annually.”

Form 990, Part VI, Section B, Line 15A

“The salary level and benefits package of the chairman was independently reviewed and documented by the board of directors, to ensure it does not exceed comparable levels of compensation for non-profit directors with similar experience at comparable organizations.”

Form 990, Part VI, Section C, Line 19

“The three most recent form 990s, the bylaws, articles of incorporation, exempt status information, and conflict of interest policy are provided to the public upon request.”

Filing and Contact Details

Filer

Filer Name
National Fabry Disease Foundation
EIN
20-2944028
Phone
8006519131
Address
4301 CONNECTICUT AVE NW NO 404, WASHINGTON, DC 20008

Signing Officer

Name
Gerald Walter
Title
Board Chair
Phone
8006519131
Signed
2020-09-01
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Gerald Walter
Formed
2005
Legal Domicile
Va
Voting Board Members
8
Independent Board Members
7
Employees
2
Volunteers
75

Preparer

Firm
Blackman & Sloop Cpas Pa
Address
1414 RALEIGH RD SUITE 300, CHAPEL HILL, NC 27517
Preparer
Elizabeth Mauch
Phone
9199428700
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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0EDUCATION AND AWARENESS: EARLY INTERVENTION IMPROVES MANY ADVERSE QUALITY-OF-LIFE SYMPTOMS AND EXTENDS PATIENTS' LIFE EXPECTANCY. OUR FAMILY AND PHYSICIAN EDUCATION PROGRAMS HELP TO ENSURE CHILDREN AND ADULTS WITH FABRY DISEASE ARE RECOGNIZED AND DIAGNOSED AT THE EARLIEST AGE POSSIBLE TO RECEIVE APPROPRIATE MANAGEMENT AND TREATMENT OF THEIR DISEASE. OUR PUBLIC EDUCATION PROGRAM IS DESIGNED TO REACH UNDIAGNOSED INDIVIDUALS BY RAISING AWARENESS OF THE SYMPTOMS OF FABRY DISEASE. WE PROVIDED EDUCATION AND AWARENESS ABOUT FABRY DISEASE IN VARIOUS FORMS SUCH AS OUR ROBUST EDUCATIONAL WEBSITE AT WWW.FABRYDISEASE.ORG; OUR ANNUAL FAMILY EDUCATION CONFERENCE; VARIOUS MATERIALS SUCH AS AN EDUCATIONAL FABRY SYMPTOMS PRESENTATION, HAND-OUT AND CALENDAR, A FABRY COMMUNITY LANDSCAPE DOCUMENT, FREQUENT (OFTEN DAILY) EDUCATIONAL POSTS ON OUR FACE BOOK PAGE OF ABOUT 3,600 FOLLOWERS, PERIODIC TWEETS ON OUR TWITTER PAGE, AND DAILY ASSISTANCE VIA EMAIL AND PHONE. WE ARE IN CONTACT WITH OVER 1,200 ADULTS WITH FABRY DISEASE BY EMAIL. OUR PATIENT-REPORTED-OUTCOMES SURVEY PROGRAM YIELDED MORE THAN 200 PARTICIPANTS IN FY19-FY20. WE FACILITATED REQUESTS BY STATE FABRY COMMUNITY REPRESENTATIVES FOR ABOUT 40 STATE GOVERNOR'S PROCLAMATIONS FOR APRIL FABRY DISEASE AWARENESS MONTH. UNFORTUNATELY ONLY 21 STATE PROCLAMATIONS WERE RECEIVED THIS YEAR BECAUSE OF COVID-19 DISRUPTIONS; PUBLISHED LITERATURE INDICATES 10-20 TIMES AS MANY PEOPLE HAVE FABRY DISEASE AS ARE CURRENTLY DIAGNOSED AND UNDERGOING TREATMENT.
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IRS990/ProgSrvcAccomActy2Grp/Desc0COMMUNITY SUPPORT: PROVIDE SUPPORT AND ASSISTANCE TO INDIVIDUALS WITH FABRY DISEASE AND THEIR FAMILIES. OUR COMMUNITY SUPPORT PROGRAM IS DIRECTED TO PEOPLE LIVING WITH FABRY DISEASE AND THEIR FAMILIES. WE PROVIDED DAILY PHONE CALLS, EMAIL AND WRITTEN CORRESPONDENCE TO SUPPORT INDIVIDUALS AND FAMILIES WITH FABRY DISEASE. WE PROVIDED PATIENTS AND FAMILIES A FREE 24/7 HOTLINE FOR COUNSELING AND REFERRALS, PURCHASED MANY JOURNAL ARTICLES TO SHARE WITH THE COMMUNITY, PROVIDED TRANSPORTATION AND OTHER ASSISTANCE TO ATTEND FABRY EDUCATIONAL MEETINGS, PROVIDED FINANCIAL ASSISTANCE FOR ONE-TIME OR SHORT TERM NEEDS NOT COVERED BY OTHER PROGRAMS, AND CONTINUED TO PROVIDE MY-HEALTH-HANDBOOK-KITS FOR EMERGENCY SITUATIONS. WE FACILITATED TESTING FOR DIAGNOSES AND ACCESS TO TREATMENT. WE CONTINUED TO ADD FABRY SPECIALISTS TO OUR FIND-A-FABRY-SPECIALIST SEARCHABLE DATABASE ON OUR WEBSITE. WE CONDUCTED AN ANNUAL CAMP FOR CHILDREN AND FAMILIES TO CONNECT AND SHARE EXPERIENCES. WE PROVIDED ASSISTANCE TO BRING 32 FAMILIES TO CAMP FROM ACROSS THE COUNTRY. BECAUSE THE DISEASE IS RARE, MANY PATIENTS AND THEIR FAMILIES DO NOT KNOW ANYONE ELSE LIVING WITH FABRY DISEASE. THE MUTUAL SUPPORT CONNECTIONS MADE THROUGH OUR CAMP PROGRAM ARE INVALUABLE WITHIN THE COMMUNITY.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0212116
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0394250
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0113905
IRS990/PYInvestmentIncomeAmt00
IRS990/PYOtherExpensesAmt0185366
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-39700
IRS990/PYSalariesCompEmpBnftPaidAmt0134679
IRS990/PYTotalExpensesAmt0433950
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0394250
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0150848
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0THE ORGANIZATION'S BOARD IS COMMITTED TO MEETING THE 33 1/3% PUBLIC SUPPORT TEST AND HAS ENACTED SEVERAL PROGRAMS INCLUDING FACEBOOK FUNDRAISING AND AMAZON SMILE TO INCREASE IT'S DONOR BASE. DUE TO THE NATURE OF THIS RARE DISEASE, THE BASE OF SUPPORT IS SOMEWHAT LIMITED TO DONORS WHO ARE KNOWLEDGABLE ABOUT THE DISEASE. OVER 95% OF THE ORGANIZATION'S DONORS ARE FROM THE GENERAL PUBLIC, MAKING CONTRIBUTIONS AVERAGING ABOUT $80 PER CONTRIBUTION. HOWEVER, THE REMAINING DONORS CONTRIBUTE SUCH LARGE DOLLAR AMOUNTS RELATIVE TO THE INDIVIDUAL DONORS WHICH MAKES IT DIFFICULT TO QUALIFY FOR THE 33% SUPPORT TEST. THE ORGANIZATION'S PERCENTAGE IN 2019 WAS 25.71% - AN INCREASE FROM 2018 AND THE BOARD REMAINS COMMITTED TO INCREASING THE DONOR BASE.
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0PART II, SECTION C, LINE 17A, FACTS AND CIRCUMSTANCES TEST:
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0544803
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0394250
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0508472
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0320480
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0470127
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02238132
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.25710
IRS990ScheduleA/PublicSupportPY170Pct00.21690
IRS990ScheduleA/PublicSupportTotal170Amt0575517
IRS990ScheduleA/SubstantialContributorsTotAmt01662615
IRS990ScheduleA/TenPctFactsCrcmstncsTestCYInd0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0544803
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0394250
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0508472
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0320480
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0470127
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02238132
IRS990ScheduleA/TotalSupportAmt02238132
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/EquipmentGrp/BookValueAmt00
IRS990ScheduleD/EquipmentGrp/DepreciationAmt05899
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt05899
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleI/GrantRecordsMaintainedInd00
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0INDIVIDUAL
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/NonCashAssistanceAmt094951
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/NonCashAssistanceDesc0PROVIDED GRANTS TO INDIVIDUALS FOR TRAVEL, LODGING AND MEAL ASSISTANCE TO PARTICIPATE IN EDUCATIONAL MEETINGS, MEDICAL VISITS AND OUR ANNUAL CONFERENCE AND CAMP AS WELL AS PROVIDED GRANTS TO INDIVIDUALS FOR URGENT AND UNMET MEDICAL AND LIVING EXPENSE NEEDS.
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt0198
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/ValuationMethodUsedDesc0PURCHASE PRICE
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION DOES NOT HAVE ANY COMMITTEES.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1PRIOR TO FILING, FORM 990 WILL BE REVIEWED BY THE CHAIRMAN AND TREASURER AND THEN DISTRIBUTED TO THE FULL BOARD FOR REVIEW.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE CONFLICT OF INTEREST POLICY IS REVIEWED AND SIGNED BY EACH BOARD MEMBER ANNUALLY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE SALARY LEVEL AND BENEFITS PACKAGE OF THE CHAIRMAN WAS INDEPENDENTLY REVIEWED AND DOCUMENTED BY THE BOARD OF DIRECTORS, TO ENSURE IT DOES NOT EXCEED COMPARABLE LEVELS OF COMPENSATION FOR NON-PROFIT DIRECTORS WITH SIMILAR EXPERIENCE AT COMPARABLE ORGANIZATIONS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE THREE MOST RECENT FORM 990S, THE BYLAWS, ARTICLES OF INCORPORATION, EXEMPT STATUS INFORMATION, AND CONFLICT OF INTEREST POLICY ARE PROVIDED TO THE PUBLIC UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION A, LINE 8B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION B, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART VI, SECTION C, LINE 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0219230
IRS990/TotalAssetsEOYAmt0370078
IRS990/TotalAssetsGrp/BOYAmt0219230
IRS990/TotalAssetsGrp/EOYAmt0370078
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0544803
IRS990/TotalEmployeeCnt02
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt05302
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt022672
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0365981
IRS990/TotalFunctionalExpensesGrp/TotalAmt0393955
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0219230
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0370078
IRS990/TotalOtherCompensationAmt03276
IRS990/TotalProgramServiceExpensesAmt0365981
IRS990/TotalReportableCompFromOrgAmt0109200
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0544803
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt075
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0219230
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0370078
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/ManagementAndGeneralAmt01725
IRS990/TravelGrp/ProgramServicesAmt014895
IRS990/TravelGrp/TotalAmt016620
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0318 FOX HILL FARM DRIVE
IRS990/USAddress/CityNm0HILLSBOROUGH
IRS990/USAddress/StateAbbreviationCd0NC
IRS990/USAddress/ZIPCd027278
IRS990/VotingMembersGoverningBodyCnt08
IRS990/VotingMembersIndependentCnt07
IRS990/WebsiteAddressTxt0HTTP://WWW.FABRYDISEASE.ORG
IRS990/WhistleblowerPolicyInd01
ReturnHeader/BuildTS02021-01-29 14:40:06Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0GERALD WALTER
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0BOARD CHAIR
ReturnHeader/BusinessOfficerGrp/PhoneNum08006519131
ReturnHeader/BusinessOfficerGrp/SignatureDt02020-09-01
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0NATIONAL FABRY DISEASE FOUNDATION
ReturnHeader/Filer/BusinessNameControlTxt0NATI
ReturnHeader/Filer/EIN0202944028
ReturnHeader/Filer/PhoneNum08006519131
ReturnHeader/Filer/USAddress/AddressLine1Txt04301 CONNECTICUT AVE NW NO 404
ReturnHeader/Filer/USAddress/CityNm0WASHINGTON
ReturnHeader/Filer/USAddress/StateAbbreviationCd0DC
ReturnHeader/Filer/USAddress/ZIPCd020008
ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId032ED7560156983D61D5C941DFE29E9D50EEDD940
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId092CBB6418953F528229437A486F4D50858FA3534
ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0P
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt064.88.174.3
ReturnHeader/FilingSecurityInformation/IPDt02020-09-01
ReturnHeader/FilingSecurityInformation/IPTimezoneCd0ED
ReturnHeader/FilingSecurityInformation/IPTm008:04:42
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0561304727
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0BLACKMAN & SLOOP CPAS PA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt01414 RALEIGH RD SUITE 300
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0CHAPEL HILL
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0NC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd027517
ReturnHeader/PreparerPersonGrp/PhoneNum09199428700
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0ELIZABETH MAUCH
ReturnHeader/ReturnTs02020-10-05T10:09:53-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02019-06-01
ReturnHeader/TaxPeriodEndDt02020-05-31
ReturnHeader/TaxYr02019

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$370,078
Liabilities
$0
Net assets
$370,078
Revenue
$544,803
Expenses
$393,955
Net income
$150,848
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.70$0.03$2.67$5.92$7.39$1.47
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.14$0.00$4.14$5.75$6.83$1.07
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.21$0.00$5.21$3.08$4.73$1.65
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.86$0.00$6.86$5.72$2.29$3.44
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.42$0.00$3.42$1.89$2.17$0.28
2020Detailed filing. Detailed filing data is available for this year.$3.70$0.00$3.70$5.45$3.94$1.51
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.19$0.00$2.19$3.94$4.34$0.40
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.59$0.00$2.59$5.08$3.84$1.24
2017Summary only. Only limited summary data is available for this year.$1.33$0.00$1.33$3.20$4.20$1.00
2016Summary only. Only limited summary data is available for this year.$2.33$0.00$2.33$4.70$3.89$0.81
2015Summary only. Only limited summary data is available for this year.$1.51$0.00$1.51$3.97$3.88$0.09
2014XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.42$0.00$1.42$4.15$3.08$1.07
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.35$0.00$0.35$3.16
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.39$0.00$0.39$2.47
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.40$0.00$0.40$1.52$1.48$0.03
2010XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.37$0.00$0.37$1.65$1.45$0.19