Civic Intelligence

National Fabry Disease Foundation

990 • Fiscal year 2014 • EIN 20-2944028

Jun 01, 2013 to May 31, 2014 • Filed on Mar 31, 2015

Organization Profilewww.fabrydisease.org
4301 Connecticut Ave NW Suite 40420008

(800) 651-9131

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

59th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2014 filings • NTEE G • <$500k nonprofits • Source year 2014

Liabilities / Revenue

59th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2014 filings • NTEE G • <$500k nonprofits • Source year 2014

Net Margin

70th percentile

26%

Higher net margin than 70% of similar nonprofits.

2014 filings • NTEE G • <$500k nonprofits • Source year 2014

Top Officer Pay

99th percentile

$104,000

Higher top officer pay than 99% of similar nonprofits.

Top officer pay equals 25.1% of source-year revenue.

2014 filings • NTEE G • <$500k nonprofits • Source year 2014

Asset Growth

95th percentile

305%

Faster asset growth than 95% of similar nonprofits.

2014 filings • NTEE G • <$500k nonprofits • Annualized from 2013 to 2014

Revenue Growth

76th percentile

40%

Faster revenue growth than 76% of similar nonprofits.

2014 filings • NTEE G • <$500k nonprofits • Annualized from 2011 to 2014

Balance Sheet
Liabilities / Assets59th percentile

Assets

Up

$142,146

Up $107,032 (+305%) from 2013

Net Assets

Up

$142,146

Up $107,032 (+305%) from 2013

Liabilities

Flat

$0

Flat from 2013

Revenue And Expenses
Liabilities / Revenue59th percentileNet Margin70th percentile

Revenue

$414,863

No earlier filing loaded for comparison.

Expenses

Down

$307,831

Down $7,812 (-2.5%) from 2013

Net Income

$107,032

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset Growth95th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2010: $36,838Liabilities 2010: $0Net Assets 2010: $36,8382010Assets 2011: $40,197Liabilities 2011: $0Net Assets 2011: $40,1972011Assets 2012: $39,120Liabilities 2012: $0Net Assets 2012: $39,1202012Assets 2013: $35,114Liabilities 2013: $0Net Assets 2013: $35,1142013Assets 2014: $142,146Liabilities 2014: $0Net Assets 2014: $142,1462014Assets 2015: $151,453Liabilities 2015: $0Net Assets 2015: $151,4532015Assets 2016: $232,750Liabilities 2016: $0Net Assets 2016: $232,7502016Assets 2017: $133,009Liabilities 2017: $0Net Assets 2017: $133,0092017Assets 2018: $258,930Liabilities 2018: $0Net Assets 2018: $258,9302018Assets 2019: $219,230Liabilities 2019: $0Net Assets 2019: $219,2302019Assets 2020: $370,078Liabilities 2020: $0Net Assets 2020: $370,0782020Assets 2021: $342,157Liabilities 2021: $0Net Assets 2021: $342,1572021Assets 2022: $685,818Liabilities 2022: $0Net Assets 2022: $685,8182022Assets 2023: $521,056Liabilities 2023: $0Net Assets 2023: $521,0562023Assets 2024: $413,847Liabilities 2024: $0Net Assets 2024: $413,8472024Assets 2025: $269,505Liabilities 2025: $2,608Net Assets 2025: $266,8972025

Highlighted filing

2014

Assets$142,146
Liabilities$0
Net Assets$142,146
Open 2014 Filing

Operations Trend

Revenue Growth76th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2010: $164,579Expenses 2010: $145,337Net Income 2010: $19,2422010Revenue 2011: $151,732Expenses 2011: $148,373Net Income 2011: $3,3592011Expenses 2012: $246,6772012Expenses 2013: $315,6432013Revenue 2014: $414,863Expenses 2014: $307,831Net Income 2014: $107,0322014Revenue 2015: $396,935Expenses 2015: $387,628Net Income 2015: $9,3072015Revenue 2016: $470,127Expenses 2016: $388,830Net Income 2016: $81,2972016Revenue 2017: $320,480Expenses 2017: $420,221Net Income 2017: -$99,7412017Revenue 2018: $508,472Expenses 2018: $384,145Net Income 2018: $124,3272018Revenue 2019: $394,250Expenses 2019: $433,950Net Income 2019: -$39,7002019Revenue 2020: $544,803Expenses 2020: $393,955Net Income 2020: $150,8482020Revenue 2021: $188,701Expenses 2021: $216,622Net Income 2021: -$27,9212021Revenue 2022: $572,188Expenses 2022: $228,527Net Income 2022: $343,6612022Revenue 2023: $307,957Expenses 2023: $472,698Net Income 2023: -$164,7412023Revenue 2024: $575,301Expenses 2024: $682,510Net Income 2024: -$107,2092024Revenue 2025: $592,005Expenses 2025: $738,955Net Income 2025: -$146,9502025

Highlighted filing

2014

Revenue$414,863
Expenses$307,831
Net Income$107,032
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Jun 1, 2013 to May 31, 2014
Signed
Mar 31, 2015
Return Version
2013v4.0
Gross Receipts
$414,863
Mission and Program Overview

Mission

To ensure that all individuals with fabry disease are identified, diagnosed and provided an opportunity for treatment in time to avoid a diminished quality-of-life and life-threatening consequences; to provide education and awareness to people with fabry disease and their families, to physicians, and to the public; to provide support and assistance to people with fabry disease and their families; and to conduct and promote research to improve management and treatment for fabry disease.

To ensure that all individuals with Fabry Disease are identified, diagnosed and treated in time to avoid a diminished quality of life and life threatening consequences; to provide education and awarenesss; and to promote research to improve treatment for Fabry Disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$28,438$138,974▲ $110,536
Intangible Assets$6,309$2,927▼ $3,382
Land, Buildings, and Equipment, Net$367$245▼ $122
Savings and Temporary Cash Investments-$0-
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$35,114$142,146▲ $107,032
Other Assets Total-$0-
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Temporarily Rstr Net Assets-$80,000-
Unrestricted Net Assets$35,114$62,146▲ $27,032
Total Net Assets Fund Balance$35,114$142,146▲ $107,032
Total Liabilities and Net Assets / Fund Balance$35,114$142,146▲ $107,032

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$245$2,242$2,487
Compensation and Service Providers
Top Officer Pay99th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Gerald WalterChairmanFT$104,000$104,000

Board Members and Trustees

NameTitle
Derek HalbergViceChair/Treas
Douglas WarnockDirector
Tracey KrasnowDirector
Elizabeth GaffinSecretary
Revenue and Support

Revenue Composition

Contributions and Grants
$414,863
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$414,863
Change in Net Assets
$107,032
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$117,947
Other Expenses$105,922
Grants and Similar Amounts Paid$83,962
Total Fundraising Expense$3,163
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$96,720$5,200$2,080$104,000
Grants to Domestic Individuals$83,962--$83,962
Conferences and Meetings$46,295$157-$46,452
Travel$21,692$2,555-$24,247
Fees for Services Other$11,108--$11,108
Payroll Taxes$8,163$417$167$8,747
Office Expenses$8,027$108$84$8,219
Information Technology$6,412$15$776$7,203
Other Salaries and Wages$5,200--$5,200
Depreciation Depletion$3,313$137$55$3,505
Fees for Services Accounting-$1,946-$1,946
Other Expenses$383$300$1$300
All Other Expenses-$190-$190
Advertising$98--$98
Total Functional Expenses$292,436$12,232$3,163$307,831
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

“Prior to filing, the Form 990 will be reviewed by the Chairman and Treasurer, and then distributed to the full Board for review.”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“The conflict of interest policy is reviewed and signed by each Board member annually.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“The salary level and benefits package of the Chairman was independently reviewed and documented by the Board of Directors, to ensure it does not exceed comparable levels of compensation for non-profit directors with similiar experience at comparable organizations.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“The three most recent Form 990s (including financial information), the Bylaws, Articles of Incorporation, Form 1023 Application for Exemption, and Conflict of Interest Policy are provided to the public upon request.”

Filing and Contact Details

Filer

EIN
20-2944028
Phone
8006519131

Signing Officer

Name
Gerald Walter
Title
Chairman
Signed
2015-03-31
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Gerald Walter
Formed
2005
Legal Domicile
Va
Voting Board Members
5
Independent Board Members
4
Employees
2
Volunteers
30

Preparer

Preparer
Darren Hunicutt
Phone
9194191119
Raw XML AppendixShowing 400 of 411 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsReceivableGrp/EOYAmt00
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0To ensure that all individuals with Fabry Disease are identified, diagnosed and treated in time to avoid a diminished quality of life and life threatening consequences; to provide education and awarenesss; and to promote research to improve treatment for Fabry Disease.
IRS990/AdvertisingGrp/ProgramServicesAmt098
IRS990/AdvertisingGrp/TotalAmt098
IRS990/AllAffiliatesIncludedInd0false
IRS990/AllOtherContributionsAmt0414863
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt0190
IRS990/AllOtherExpensesGrp/TotalAmt0190
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/BackupWthldComplianceInd0false
IRS990/BenefitsToMembersGrp/TotalAmt00
IRS990/BooksInCareOfDetail/PersonNm0Gerald Walter
IRS990/BooksInCareOfDetail/PhoneNum08006519131
IRS990/BooksInCareOfDetail/USAddress/AddressLine10PO Box 366
IRS990/BooksInCareOfDetail/USAddress/City0Carrboro
IRS990/BooksInCareOfDetail/USAddress/State0NC
IRS990/BooksInCareOfDetail/USAddress/ZIPCode027510
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOfficerEntInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt028438
IRS990/CashNonInterestBearingGrp/EOYAmt0138974
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt02080
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt05200
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt096720
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0104000
IRS990/CompDisqualPersonsGrp/TotalAmt00
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt0157
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt046295
IRS990/ConferencesMeetingsGrp/TotalAmt046452
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0414863
IRS990/CYGrantsAndSimilarPaidAmt083962
IRS990/CYInvestmentIncomeAmt00
IRS990/CYOtherExpensesAmt0105922
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0107032
IRS990/CYSalariesCompEmpBnftPaidAmt0117947
IRS990/CYTotalExpensesAmt0307831
IRS990/CYTotalFundraisingExpenseAmt03163
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0414863
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/FundraisingAmt055
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt0137
IRS990/DepreciationDepletionGrp/ProgramServicesAmt03313
IRS990/DepreciationDepletionGrp/TotalAmt03505
IRS990/Desc0Education and Awareness - Provide education and promote awareness about Fabry Disease. Recent evidence indicates that 10-20 times as many people have Fabry Disease as are currently diagnosed and undergoing treatment. Early intervention has proven to extend patients' life expectancy. Our public education program is designed to reach these undiagnosed individuals by raising awareness of the symptoms of Fabry Disease. We provide various programs to educate physicians to increase recognition and diagnosis. In conjunction with the annual camp, we produce a conference to educate patients on management of Fabry disease and on strategies for living with the disease; current developments in research; advances in treatment, etc. We have over 1,600 followers on our Facebook page and reach many thousands more to include a post that was recently viewed by over 27,000 people in a week. Our comprehensive, educational social media program consists of Facebook, Twitter, a blog, and our Inspire community discussion page.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DistributionToDonorInd0false
IRS990/DocumentRetentionPolicyInd0true
IRS990/DonorAdvisedFundInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt02
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/EscrowAccountInd0false
IRS990/ExcessBusinessHoldingsInd0false
IRS990/ExpenseAmt0155926
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt01946
IRS990/FeesForServicesAccountingGrp/TotalAmt01946
IRS990/FeesForServicesLegalGrp/TotalAmt00
IRS990/FeesForServicesLobbyingGrp/TotalAmt00
IRS990/FeesForServicesManagementGrp/TotalAmt00
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt011108
IRS990/FeesForServicesOtherGrp/TotalAmt011108
IRS990/FeesForServicesProfFundraising/TotalAmt00
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt00
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/TotalAmt00
IRS990/ForeignOfficeInd0false
IRS990/Form1098CFiledInd0false
IRS990/Form8282FiledCnt00
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form8899Filedind0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt040.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt10.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt20.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt30.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt40.50
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/PersonNm0Gerald Walter
IRS990/Form990PartVIISectionAGrp/PersonNm1Derek Halberg
IRS990/Form990PartVIISectionAGrp/PersonNm2Elizabeth Gaffin
IRS990/Form990PartVIISectionAGrp/PersonNm3Tracey Krasnow
IRS990/Form990PartVIISectionAGrp/PersonNm4Douglas Warnock
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt0104000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/TitleTxt0Chairman
IRS990/Form990PartVIISectionAGrp/TitleTxt1ViceChair/Treas
IRS990/Form990PartVIISectionAGrp/TitleTxt2Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt3Director
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/Form990TFiledInd0false
IRS990/FormationYr02005
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedInd0false
IRS990/FundraisingActivitiesInd0false
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt05
IRS990/GrantAmt024603
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt083962
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt083962
IRS990/GrantsToDomesticOrgsGrp/TotalAmt00
IRS990/GrantsToIndividualsInd0true
IRS990/GrantsToOrganizationsInd0false
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0414863
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt00
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt04
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt0776
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt015
IRS990/InformationTechnologyGrp/ProgramServicesAmt06412
IRS990/InformationTechnologyGrp/TotalAmt07203
IRS990/InsuranceGrp/TotalAmt00
IRS990/IntangibleAssetsGrp/BOYAmt06309
IRS990/IntangibleAssetsGrp/EOYAmt02927
IRS990/InterestGrp/TotalAmt00
IRS990/InventoriesForSaleOrUseGrp/EOYAmt00
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt00
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt00
IRS990/InvestmentsProgramRelatedGrp/EOYAmt00
IRS990/InvestmentsPubTradedSecGrp/EOYAmt00
IRS990/InvestTaxExemptBondsInd0false
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt02242
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0367
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0245
IRS990/LandBldgEquipCostOrOtherBssAmt02487
IRS990/LegalDomicileStateCd0VA
IRS990/LicensedMoreThanOneStateInd0false
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingOtherInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0Ensure that all individuals with Fabry Disease are identified, diagnosed and treated in time to avoid a diminished quality of life and life threatening consequences; to provide assistance to individuals with the disease and their families; to provide education and awarenesss; and to promote research to improve treatment.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt035114
IRS990/NetAssetsOrFundBalancesEOYAmt0142146
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt00
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/TotalAmt00
IRS990/OfficeExpensesGrp/FundraisingAmt084
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0108
IRS990/OfficeExpensesGrp/ProgramServicesAmt08027
IRS990/OfficeExpensesGrp/TotalAmt08219
IRS990/OfficerMailingAddressInd0false
IRS990/OnBehalfOfIssuerInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OrgFiledInLieuOfForm1041Ind0false
IRS990/OtherAssetsTotalGrp/EOYAmt00
IRS990/OtherEmployeeBenefitsGrp/TotalAmt00
IRS990/OtherExpensesGrp/Desc0Payroll Processing Fees
IRS990/OtherExpensesGrp/Desc1Survey Incentives
IRS990/OtherExpensesGrp/Desc2Publications
IRS990/OtherExpensesGrp/Desc3Dues & Subscriptions
IRS990/OtherExpensesGrp/FundraisingAmt01
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01206
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2300
IRS990/OtherExpensesGrp/ProgramServicesAmt01063
IRS990/OtherExpensesGrp/ProgramServicesAmt1383
IRS990/OtherExpensesGrp/TotalAmt01206
IRS990/OtherExpensesGrp/TotalAmt11063
IRS990/OtherExpensesGrp/TotalAmt2385
IRS990/OtherExpensesGrp/TotalAmt3300
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt05200
IRS990/OtherSalariesAndWagesGrp/TotalAmt05200
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt0167
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt0417
IRS990/PayrollTaxesGrp/ProgramServicesAmt08163
IRS990/PayrollTaxesGrp/TotalAmt08747
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt00
IRS990/PrincipalOfficerNm0Gerald Walter
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgSrvcAccomActy2Grp/Desc0Community Support - Provide support and assistance to individuals with Fabry Disease and their families. Our community support program is directed to people living with Fabry Disease and their families. We provide daily phone, email and written correspondence to support individuals and families with Fabry disease. We provide patients and families a free 24/7 hotline for counseling; purchase journal articles to share with the community; and provide transportation and other resources to facilitate understanding and management of Fabry Disease and access to treatment. We conduct an annual camp for children and families to connect and share experiences. We provided assistance to bring 33 families from across the country. Because the disease is rare, many patients and their families do not know anyone else living with Fabry disease, and the connections made through our camp program are invaluable within the community. We provide financial assistance for one-time or short term needs not covered by other programs.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0136510
IRS990/ProgSrvcAccomActy2Grp/GrantAmt059359
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0311637
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt081652
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0121789
IRS990/PYRevenuesLessExpensesAmt0-4006
IRS990/PYSalariesCompEmpBnftPaidAmt0112202
IRS990/PYTotalExpensesAmt0315643
IRS990/PYTotalRevenueAmt0311637
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt0107032
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/SavingsAndTempCashInvstGrp/EOYAmt00
IRS990ScheduleA/FactsAndCircumstancesTestTxt0Part II, Line 17b--Financial supporters for the organization are limited to individuals and organizations who are aware of Fabry Disease, so the very nature of Fabry as a rare disease limits our base of support. However, there are several indicators that the organizations support can be broadened:-The Executive Director does not have a background in raising money, so grants and contributions until now have come without benefit of skilled fundraising efforts. The E.D. is currently receiving training on individual fundraising and grant writing, and intends to seek more training in these areas. The Executive Director completed the Duke University certificate program for nonprofit management in 2014.-With the growth in newsletter sign-ups to over 1,000 subscribers and the growth of our Facebook likes to over 1,600 people we are reaching many more public donor prospects with our fundraising campaigns which should yield more individual contributions. -The E.D. has implemented a web-based fundraising campaign using Network for Good and First Giving. -While growth is slow, we have started to receive monthly recurring donations and matching gift donations in addition to our one-time contributions. -Individuals are raising funds for the organization through various initiatives such as a walk across the U.S. by a person with Fabry disease.-Three of the four largest contributors over the last five years have been pharmaceutical companies who are manufacturing or testing treatments for Fabry disease and a couple of family foundations with an interest in Fabry disease. While this will likely continue to be a significant source of support, the E.D. continues to identify potential sources of smaller contributions, and will seek grants from those sources.In addition to plans and expectations to broaden the base of support, other facts & circumstances support the organizations continued status as a public charity:-The board of directors is comprised of individuals representative of the community: a government attorney, a nonprofit director, a government employee, a psychiatrist, and the organizations own Executive Director. Other than the E.D., none of the board members have any professional connection to Fabry Disease. Of the five members, only two have Fabry. -The organizations programs have purely charitable purposes serving a community that benefits greatly from the outreach, educational, and community support work. See program service accomplishments at Form 990, Part III, Line 4.
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0414862
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0311636
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0245993
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0151732
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0164579
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01288802
IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt00
IRS990ScheduleA/OtherIncome170Grp/TotalAmt00
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.14300
IRS990ScheduleA/PublicSupportPY170Pct00.13520
IRS990ScheduleA/PublicSupportTotal170Amt0184291
IRS990ScheduleA/SubstantialContributorsTotAmt01104511
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt00
IRS990ScheduleA/TenPctFactsCrcmstncsTestCYInd0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0414862
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0311636
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0245993
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0151732
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0164579
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01288802
IRS990ScheduleA/TotalSupportAmt01288802
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt00
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/EquipmentGrp/BookValueAmt0245
IRS990ScheduleD/EquipmentGrp/DepreciationAmt02242
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt02487
IRS990ScheduleD/TotalBookValueLandBuildingsAmt0245
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt083962
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0Travel expenses to attend camp
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt0142
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0The foundation awards grants of travel expenses to individuals with Fabry Disease and their families, in order for them to attend the camp and conference that are held each year. The expenses of the grant funds are in most instances paid by the foundation directly to an airline in exchange for plane tickets for the camp and conference attendees. In some instances additional payments are made to the attendees to reimburse them for ancillary travel expenses.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0Grantmaker's Description of How Grants are Used
IRS990ScheduleI/Total501c3OrgCnt00
IRS990ScheduleI/TotalOtherOrgCnt00
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Prior to filing, the Form 990 will be reviewed by the Chairman and Treasurer, and then distributed to the full Board for review.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The conflict of interest policy is reviewed and signed by each Board member annually.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The salary level and benefits package of the Chairman was independently reviewed and documented by the Board of Directors, to ensure it does not exceed comparable levels of compensation for non-profit directors with similiar experience at comparable organizations.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The three most recent Form 990s (including financial information), the Bylaws, Articles of Incorporation, Form 1023 Application for Exemption, and Conflict of Interest Policy are provided to the public upon request.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Line 11b: Form 990 Review Process
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Line 19: Other Organization Documents Publicly Available
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/TaxableDistributionsInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TemporarilyRstrNetAssetsGrp/EOYAmt080000
IRS990/TempOrPermanentEndowmentsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt035114
IRS990/TotalAssetsEOYAmt0142146
IRS990/TotalAssetsGrp/BOYAmt035114
IRS990/TotalAssetsGrp/EOYAmt0142146
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0414863
IRS990/TotalEmployeeCnt02
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt03163
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt012232
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0292436
IRS990/TotalFunctionalExpensesGrp/TotalAmt0307831
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt035114
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0142146
IRS990/TotalProgramServiceExpensesAmt0292436
IRS990/TotalProgramServiceRevenueAmt00
IRS990/TotalReportableCompFromOrgAmt0104000
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0414863
IRS990/TotalVolunteersCnt030
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt035114
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0142146
IRS990/TransactionWithControlEntInd0false
IRS990/TravelGrp/ManagementAndGeneralAmt02555
IRS990/TravelGrp/ProgramServicesAmt021692
IRS990/TravelGrp/TotalAmt024247
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UnrestrictedNetAssetsGrp/BOYAmt035114
IRS990/UnrestrictedNetAssetsGrp/EOYAmt062146
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine104301 Connecticut Ave NW 404
IRS990/USAddress/City0Washington
IRS990/USAddress/State0DC
IRS990/USAddress/ZIPCode020008
IRS990/VotingMembersGoverningBodyCnt05
IRS990/VotingMembersIndependentCnt04
IRS990/WebsiteAddressTxt0http://www.fabrydisease.org/
IRS990/WhistleblowerPolicyInd0true
ReturnHeader/BuildTS02016-02-25 16:41:14Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0Gerald Walter
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Chairman
ReturnHeader/BusinessOfficerGrp/SignatureDt02015-03-31
ReturnHeader/Filer/BusinessName/BusinessNameLine10National Fabry Disease Foundation Inc
ReturnHeader/Filer/BusinessNameControlTxt0NATI
ReturnHeader/Filer/EIN0202944028
ReturnHeader/Filer/PhoneNum08006519131
ReturnHeader/Filer/USAddress/AddressLine104301 Connecticut Ave NW Suite 404
ReturnHeader/Filer/USAddress/City0Washington
ReturnHeader/Filer/USAddress/State0DC
ReturnHeader/Filer/USAddress/ZIPCode020008
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine10MIG MURPHY SISTROM CPA PC

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$142,146
Liabilities
$0
Net assets
$142,146
Revenue
$414,863
Expenses
$307,831
Net income
$107,032
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.70$0.03$2.67$5.92$7.39$1.47
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.14$0.00$4.14$5.75$6.83$1.07
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.21$0.00$5.21$3.08$4.73$1.65
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.86$0.00$6.86$5.72$2.29$3.44
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.42$0.00$3.42$1.89$2.17$0.28
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.70$0.00$3.70$5.45$3.94$1.51
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.19$0.00$2.19$3.94$4.34$0.40
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.59$0.00$2.59$5.08$3.84$1.24
2017Summary only. Only limited summary data is available for this year.$1.33$0.00$1.33$3.20$4.20$1.00
2016Summary only. Only limited summary data is available for this year.$2.33$0.00$2.33$4.70$3.89$0.81
2015Summary only. Only limited summary data is available for this year.$1.51$0.00$1.51$3.97$3.88$0.09
2014Detailed filing. Detailed filing data is available for this year.$1.42$0.00$1.42$4.15$3.08$1.07
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.35$0.00$0.35$3.16
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.39$0.00$0.39$2.47
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.40$0.00$0.40$1.52$1.48$0.03
2010XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.37$0.00$0.37$1.65$1.45$0.19