Civic Intelligence

Scarring Alopecia Foundation

EIN 20-2049037 • 501(c)3 • Philadelphia, PA

Profile

The mission of Scarring Alopecia Foundation (SAF) is to provide education and patient support, raise public awareness and advance and promote research.

1900 Hamilton St Unit 503 Unit 503Philadelphia, PA 19130

www.scarringalopecia.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on the latest valid filing.

Source year 2024

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on the latest valid filing.

Source year 2024

Net Margin

17th percentile

-36%

Higher net margin than 17% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

81st percentile

$0

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

15th percentile

-71%

Faster asset growth than 15% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

35th percentile

-18%

Faster revenue growth than 35% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / AssetsScore unavailable

Assets

Down

$16,366

Down $40,909 (-71%) from 2023

Liabilities

-

No earlier filing loaded for comparison.

Net Assets

Down

$16,366

Down $40,909 (-71%) from 2023

Operations
Liabilities / RevenueScore unavailableNet Margin17th percentile

Revenue

Down

$114,835

Down $26,029 (-18%) from 2023

Expenses

Up

$155,744

Up $52,540 (+51%) from 2023

Net Income

Down

-$40,909

Down $78,569 (-209%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth15th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$200K$150K$100K$50K$0Assets 2011: $172,993Liabilities 2011: $1,078Net Assets 2011: $171,9152011Assets 2012: $142,378Liabilities 2012: $0Net Assets 2012: $142,3782012Assets 2013: $157,341Liabilities 2013: $7,445Net Assets 2013: $149,8962013Assets 2014: $114,531Liabilities 2014: $6,492Net Assets 2014: $108,0392014Assets 2015: $70,625Liabilities 2015: $8,633Net Assets 2015: $61,9922015Assets 2016: $41,895Liabilities 2016: $8,354Net Assets 2016: $33,5412016Assets 2017: $11,065Liabilities 2017: $5,380Net Assets 2017: $5,6852017Assets 2018: $14,440Liabilities 2018: $0Net Assets 2018: $14,4402018Assets 2019: $16,103Liabilities 2019: $0Net Assets 2019: $16,1032019Assets 2020: $22,408Liabilities 2020: $0Net Assets 2020: $22,4082020Assets 2021: $51,876Liabilities 2021: $0Net Assets 2021: $51,8762021Assets 2022: $59,770Liabilities 2022: $0Net Assets 2022: $59,7702022Assets 2023: $57,275Liabilities 2023: $0Net Assets 2023: $57,2752023Assets 2024: $16,366Net Assets 2024: $16,3662024

Highlighted filing

2024

Assets$16,366
Liabilities-
Net Assets$16,366
Open 2024 Filing

Operations Trend

Revenue Growth35th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$200K$100K$0-$100KRevenue 2011: $75,018Expenses 2011: $131,187Net Income 2011: -$56,1692011Revenue 2012: $98,548Expenses 2012: $128,085Net Income 2012: -$29,5372012Revenue 2013: $103,957Expenses 2013: $102,839Net Income 2013: $1,1182013Revenue 2014: $93,735Expenses 2014: $135,592Net Income 2014: -$41,8572014Revenue 2015: $52,037Expenses 2015: $98,084Net Income 2015: -$46,0472015Revenue 2016: $92,001Expenses 2016: $120,452Net Income 2016: -$28,4512016Revenue 2017: $14,645Expenses 2017: $42,501Net Income 2017: -$27,8562017Revenue 2018: $101,999Expenses 2018: $98,624Net Income 2018: $3,3752018Revenue 2019: $90,522Expenses 2019: $88,859Net Income 2019: $1,6632019Revenue 2020: $136,046Expenses 2020: $129,741Net Income 2020: $6,3052020Revenue 2021: $184,425Expenses 2021: $154,957Net Income 2021: $29,4682021Revenue 2022: $180,704Expenses 2022: $172,810Net Income 2022: $7,8942022Revenue 2023: $140,864Expenses 2023: $103,204Net Income 2023: $37,6602023Revenue 2024: $114,835Expenses 2024: $155,744Net Income 2024: -$40,9092024

Highlighted filing

2024

Revenue$114,835
Expenses$155,744
Net Income-$40,909
Open 2024 Filing

Filings

Most recent year

2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$16,366
Liabilities
-
Net assets
$16,366
Revenue
$114,835
Expenses
$155,744
Net income
-$40,909
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.16$0.16$1.15$1.56$0.41
2023Detailed filing. Detailed filing data is available for this year.$0.57$0.00$0.57$1.41$1.03$0.38
2022Detailed filing. Detailed filing data is available for this year.$0.60$0.00$0.60$1.81$1.73$0.08
2021Detailed filing. Detailed filing data is available for this year.$0.52$0.00$0.52$1.84$1.55$0.29
2020Detailed filing. Detailed filing data is available for this year.$0.22$0.00$0.22$1.36$1.30$0.06
2019Detailed filing. Detailed filing data is available for this year.$0.16$0.00$0.16$0.91$0.89$0.02
2018Detailed filing. Detailed filing data is available for this year.$0.14$0.00$0.14$1.02$0.99$0.03
2017Detailed filing. Detailed filing data is available for this year.$0.11$0.05$0.06$0.15$0.43$0.28
2016Detailed filing. Detailed filing data is available for this year.$0.42$0.08$0.34$0.92$1.20$0.28
2015Detailed filing. Detailed filing data is available for this year.$0.71$0.09$0.62$0.52$0.98$0.46
2014Detailed filing. Detailed filing data is available for this year.$1.15$0.06$1.08$0.94$1.36$0.42
2013Detailed filing. Detailed filing data is available for this year.$1.57$0.07$1.50$1.04$1.03$0.01
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.42$0.00$1.42$0.99$1.28$0.30
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.73$0.01$1.72$0.75$1.31$0.56
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 8, 2025
Return Version
2024v5.1
Gross Receipts
$114,835
Mission and Program Overview

Mission

The mission of Cicatricial Alopecia Research Foundation (CARF) is to provide education and patient support, raise public awareness and advance and promote research.

The mission of Scarring Alopecia Foundation SAF is to provide education and patient support raise public awareness and advance and promote research on scarring alopecia

Program Services

DescriptionGrantsExpenses
SAF is the only patient advocacy organization in the world dedicated to the scarring alopecia community. SAF is an active leader in patient education and support and drives research to find better treatments and a cure. SAF accomplishes this by providing educational webinars various resources virtual support groups and peer-to-peer connections. SAF participates in industry and physician meetings and speaks to the unmet needs of this growing hair loss patient base. SAF is conducting a cicatricial alopecia patient assessment and impact report by engaging patients in survey data to raise the much-needed attention to drive research forward.$0$0
SAF maintains a medically-vetted website which serves as a resource and portal to the organization and produces timely communications including a newsletter and frequent e-news blasts to keep members informed and engaged. When diagnosed with this irreversible hair loss condition being part of a community who understands and supports you is immeasurable and life-saving.$0$0
Compensation and Service Providers
Top Officer Pay81st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Kris WhartonDirector-$0--
Yolanda Lenzy MD MPHDirector-$0--
Maria K Hordinsky MDDirector-$0--
Kristen LoSicco MDDirector-$0--
Elise OlsenDirector-$0--
Courtney HarrisDirector-$0--
Andrew F Alexis MD MPHDirector-$0--
Andrea FurgalaDirector-$0--
Maryanne Senna MDVice President-$0--
Chandra KasakevichTreasurer-$0--
Jeff Donovan MDSecretary-$0--
Larraine BernsteinPresident-$0--
Filing and Contact Details

Filer

Filer Name
Scarring Alopecia Foundation
EIN
20-2049037
In Care Of
% Chandra Kasakevich
Address
1900 HAMILTON ST UNIT 503 UNIT 503, PHILADELPHIA, PA 19130

Signing Officer

Name
Larraine Bernstein
Title
President
Phone
4434653725
Signed
2025-11-08
Supplemental Narrative

Additional Explanations

Part I, line 16

“| Other Expenses:, Amount:| Credit Card Fees, $4453| Software, $9332| 2025 Conference AV & Entertainment, $1000| 2025 Conference Food & Beverage, $15665| 2025 Conference Lodging, $118| Dues & Subscriptions, $450| Industry Meetings Lodging Food Travel, $5427| Board & MSAB Expense, $2342| Fees and Permits, $395| Accounting Fees, $1700| Insurance Directors & Officers, $1952|”

Raw XML Appendix220 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/PersonNm0Larraine Bernstein
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0President
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ReturnHeader/Filer/BusinessNameControlTxt0SCAR
ReturnHeader/Filer/EIN0202049037
ReturnHeader/Filer/ForeignPhoneNum03025593954
ReturnHeader/Filer/InCareOfNm0% Chandra Kasakevich
ReturnHeader/Filer/USAddress/AddressLine1Txt01900 HAMILTON ST UNIT 503 UNIT 503
ReturnHeader/Filer/USAddress/CityNm0PHILADELPHIA
ReturnHeader/Filer/USAddress/StateAbbreviationCd0PA
ReturnHeader/Filer/USAddress/ZIPCd019130
ReturnHeader/ReturnTs02025-11-07T15:59:52-05:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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