Civic Intelligence

International Wagr Syndrome Association

EIN 20-1947169 • 501(c)3 • Montgomery Village, MD

Profile

The international wagr syndrome association (iwsa) is a patient advocacy organization with approximately 225 member families, engaged via a variety of support and information-sharing activities. The mission of the iwsa is to promote awareness, stimulate research, and support families affected by wagr syndrome. The iwsa believes in placing patients and families in the forefront of all activities of the organization. The iwsa hosts gatherings of families to share general information about wagr syndrome and to provide emotional support. Board members and other leaders of the organization attend conferences pertaining to rare disease research and patient advocacy.

PO Box 2875Montgomery Village, MD 20886

www.wagr.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

67th percentile

0.01x

Higher debt load relative to assets than 67% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

70th percentile

0.01x

Higher debt load relative to revenue than 70% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

31st percentile

-9.6%

Higher net margin than 31% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

88th percentile

$21,470

Higher top officer pay than 88% of similar nonprofits.

Top officer pay equals 30.5% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

42nd percentile

-8.1%

Faster asset growth than 42% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

63rd percentile

9.1%

Faster revenue growth than 63% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Assets

Down

$77,705

Down $6,852 (-8.1%) from 2023

Liabilities

Down

$884

Down $94 (-9.6%) from 2023

Net Assets

Down

$76,821

Down $6,758 (-8.1%) from 2023

Revenue

Up

$70,360

Up $5,879 (+9.1%) from 2023

Expenses

Up

$77,118

Up $13,529 (+21%) from 2023

Net Income

Down

-$6,758

Down $7,650 (-858%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$100K$50K$0Assets 2018: $50,917Liabilities 2018: $2,098Net Assets 2018: $48,8192018Assets 2019: $51,132Liabilities 2019: $176Net Assets 2019: $50,9562019Assets 2020: $56,145Liabilities 2020: $822Net Assets 2020: $55,3232020Assets 2021: $93,958Liabilities 2021: $278Net Assets 2021: $93,6802021Assets 2022: $82,940Liabilities 2022: $253Net Assets 2022: $82,6872022Assets 2023: $84,557Liabilities 2023: $978Net Assets 2023: $83,5792023Assets 2024: $77,705Liabilities 2024: $884Net Assets 2024: $76,8212024

Highlighted filing

2024

Assets$77,705
Liabilities$884
Net Assets$76,821

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$150K$100K$50K$0-$50KRevenue 2018: $111,263Expenses 2018: $101,757Net Income 2018: $9,5062018Revenue 2019: $67,983Expenses 2019: $65,846Net Income 2019: $2,1372019Revenue 2020: $63,888Expenses 2020: $59,521Net Income 2020: $4,3672020Revenue 2021: $92,192Expenses 2021: $53,835Net Income 2021: $38,3572021Revenue 2022: $55,811Expenses 2022: $66,804Net Income 2022: -$10,9932022Revenue 2023: $64,481Expenses 2023: $63,589Net Income 2023: $8922023Revenue 2024: $70,360Expenses 2024: $77,118Net Income 2024: -$6,7582024

Highlighted filing

2024

Revenue$70,360
Expenses$77,118
Net Income-$6,758

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Aug 26, 2025
Return Version
2024v5.2
Gross Receipts
$70,419
Mission and Program Overview

Mission

The international wagr syndrome association (iwsa) is a patient advocacy organization with approximately 225 member families, engaged via a variety of support and information-sharing activities. The mission of the iwsa is to promote awareness, stimulate research, and support families affected by wagr syndrome. The iwsa believes in placing patients and families in the forefront of all activities of the organization. The iwsa hosts gatherings of families to share general information about wagr syndrome and to provide emotional support. Board members and other leaders of the organization attend conferences pertaining to rare disease research and patient advocacy.

Program Services

DescriptionGrantsExpenses
TO PROMOTE AWARENESS, STIMULATE RESEARCH AND SUPPORT FAMILIES AFFECTED BY WAGR SYNDROME.$0$58,667
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
SHARI KRANTZExecutive DirectorPT$21,470-$21,470
JOHN MORRISChairmanPT$0--
KELLY TROUTSecretary-$0--
NIKKI HOFFMANTreasurer-$0--
LINDA VAN DE SANDEDirector-$0--
ANDREA HARRISDirector-$0--
AARON CALHOUNDirector-$0--
Filing and Contact Details

Filer

Filer Name
International Wagr Syndrome Association
EIN
20-1947169
Phone
7179687703
Address
PO BOX 2875, MONTGOMERY VILLAGE, MD 20886

Signing Officer

Name
Nikki Hoffman
Title
Treasurer
Phone
7179687703
Signed
2025-08-26
Discuss with paid preparer
Yes

Preparer

Firm
Stambaugh Ness Inc
Address
220 ST CHARLES WAY STE 150, YORK, PA 17402-4663
Preparer
Nikki L Bardin CPA
Phone
7177576999
Supplemental Narrative

Additional Explanations

Form 990-ez, Part I, Line 4 - Other Investment Income

Description: interest income. Amount: 5.

Form 990-ez, Part I, Line 8 - Other Revenue

Description: other income. Amount: 525.

Form 990-ez, Part I, Line 16 - Other Expenses

Description: advertising. Amount: 639. Description: commissions and fees. Amount: 2,331. Description: conferences and meetings. Amount: 32,523. Description: dues and subscriptions. Amount: 260. Description: family support expenses. Amount: 720. Description: insurance. Amount: 1,866. Description: office expenses. Amount: 9,182. Description: organizational expenses. Amount: 175. Description: travel and meals. Amount: 1,072. Total to form 990-ez, line 16: 48,768.

Form 990-ez, Part II, Line 24 - Other Assets

Description: ertc receivable. Beg. Of year amount: 3,499. End of year amount: 3,499.

Form 990-ez, Part II, Line 26 - Other Liabilities

Description: credit card payable. Beg. Of year amount: 978. End of year amount: 884.

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IRS990EZ/PrimaryExemptPurposeTxt0THE INTERNATIONAL WAGR SYNDROME ASSOCIATION (IWSA) IS A PATIENT ADVOCACY ORGANIZATION WITH APPROXIMATELY 225 MEMBER FAMILIES, ENGAGED VIA A VARIETY OF SUPPORT AND INFORMATION-SHARING ACTIVITIES. THE MISSION OF THE IWSA IS TO PROMOTE AWARENESS, STIMULATE RESEARCH, AND SUPPORT FAMILIES AFFECTED BY WAGR SYNDROME. THE IWSA BELIEVES IN PLACING PATIENTS AND FAMILIES IN THE FOREFRONT OF ALL ACTIVITIES OF THE ORGANIZATION. THE IWSA HOSTS GATHERINGS OF FAMILIES TO SHARE GENERAL INFORMATION ABOUT WAGR SYNDROME AND TO PROVIDE EMOTIONAL SUPPORT. BOARD MEMBERS AND OTHER LEADERS OF THE ORGANIZATION ATTEND CONFERENCES PERTAINING TO RARE DISEASE RESEARCH AND PATIENT ADVOCACY.
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2DESCRIPTION: ADVERTISING. AMOUNT: 639. DESCRIPTION: COMMISSIONS AND FEES. AMOUNT: 2,331. DESCRIPTION: CONFERENCES AND MEETINGS. AMOUNT: 32,523. DESCRIPTION: DUES AND SUBSCRIPTIONS. AMOUNT: 260. DESCRIPTION: FAMILY SUPPORT EXPENSES. AMOUNT: 720. DESCRIPTION: INSURANCE. AMOUNT: 1,866. DESCRIPTION: OFFICE EXPENSES. AMOUNT: 9,182. DESCRIPTION: ORGANIZATIONAL EXPENSES. AMOUNT: 175. DESCRIPTION: TRAVEL AND MEALS. AMOUNT: 1,072. TOTAL TO FORM 990-EZ, LINE 16: 48,768.
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TransferPrsnlBnftContractsDecl/DeclarationDesc0THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.
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