Ryan House

“Hospice of the valley (hov) performs payroll administration and human resource functions for the organization including filing forms w-2 under the employer name hospice of the valley. Hov invoices the organization for these services and for costs related to shared facility and equipment. Hov donates the value of unbilled costs as in-kind rent and services.”

“The executive director, outside accountant, and the audit committee review the form 990 with the cpa firm. The audit committee approves the form 990 and circulates it to the board of directors prior to filing.”

“At each board and committee meeting, if there is a discussion of selecting or engaging a vendor or service provider, all in attendance are asked to recuse themselves from this discussion if there could be a perceived conflict. Annually, the organization reviews and discusses the conflict of interest policy and requests that each board member list and acknowledge any known conflicts.”

“The executive committee reviews the compensation for all officers by comparing their compensation to the compensation of individuals in like positions in comparable organizations using forms 990, compensation studies performed by hospice of the valley, and other benchmarking sources from asu lodestar center for philanthropy nonprofit innovation and council on foundations. The committee then approves any changes in compensation based on this information. The organization does not have any employee or officer meeting the irs definition of a key employee.”

“New mexico, nevada, new york, ohio, oregon, pennsylvania, rhode island, south carolina, virginia, washington, wisconsin”

“The organization will provide, in a timely manner, financial statements and governing documents including its conflict of interest policy when requested in writing or in person.”

“Ryan house provides family respite services and end-of-life care to arizona children with life-limiting conditions from diagnosis through death, easing pain & suffering while improving quality of life for the entire family. A national leader in pediatric palliative care, we are the only facility of its kind in arizona & one of three in the country.”

“Form 990, part ix, line 5-10: the employees for the organization are obtained and paid through an affiliation agreement with hospice of the valley (hov). As these employees meet the definition of common law employees, per irs guidelines, the expenses allocable to salaries/benefits are reported on part ix, lines 5-10. Other costs associated with the leased employee arrangement not specifically related to salaries and benefits are included on part ix, line 11g.”

“Respite: ryan house provides family respite services to arizona children with life- limiting and terminal conditions. Respite care is a gift of time; short- term overnight stays allow families to take critical breaks from the physical, emotional, psycho-social stress and around-the-clock challenges of caring for a child who is medically complex. It is the solution for renewed energies, as regular "time off" is essential to prevent family fatigue and breakdown and costly emergency room visits for emergency respite. Care is concurrent with curative treatments and coordinated with the child's primary care physician. Ryan house offers resources and support programs for siblings to interact with other children whose brothers and sisters have similar needs. At ryan house, children and families can receive up to 28 days of respite care per year at no cost to the family. Six individual bedrooms and one family suite are available for family respite services. During fiscal year 2024, 127 children received family respite services and 1,322 days of respite care were provided.”

“Pediatric end-of-life care: families with a child facing end-of-life receive supportive planning and compassionate care consistent with clinical, cultural, and ethical standards and may stay as long as needed at no charge to families. The ryan house care team provides parents, guardians and siblings with a loving system of support and comfort as well as anticipatory grief and bereavement support including: a personalized memory tile in the memorial garden, family counseling, photos, and bereavement boxes filled with special keepsakes. On-going support is provided through a bi-weekly support group in partnership with new song center for grieving children. Two individual bedrooms and two family suites are available for end-of-life care. During fiscal year 2024, 36 children received end-of-life care at ryan house and 216 days of end-of-life care were provided.”

“Life-enhancing therapies program: children staying at ryan house are engaged daily in life-enhancing therapeutic activities customized for their age, conditions and developmental abilities including: hydrotherapy pool, art, pet therapy, sensory, music and legacy building. A certified child life specialist, clinical staff, and trained volunteers provide specialized activities that improve overall quality of life by providing opportunities to experience new sensations, develop skills and gain confidence, and maximize time for kids to be kids. The ryan house child life program engages the entire extended family throughout the year with themed parties and events to build community. Our child life specialist plays a critical role in providing seamless coordination of care.”