Civic Intelligence

Copd Foundation Inc.

990 • Fiscal year 2022 • EIN 20-1048322

Jul 01, 2021 to Jun 30, 2022 • Filed on May 01, 2023

Organization ProfileWWW.COPDFOUNDATION.ORG
3300 Ponce DE Leon BlvdMiami, FL 33134

(866) 731-2673

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

62nd percentile

0.29x

Higher debt load relative to assets than 62% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Liabilities / Revenue

61st percentile

0.35x

Higher debt load relative to revenue than 61% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Net Margin

20th percentile

-6.5%

Higher net margin than 20% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Top Officer Pay

79th percentile

$300,000

Higher top officer pay than 79% of similar nonprofits.

Top officer pay equals 3.8% of source-year revenue.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Source year 2022

Asset Growth

18th percentile

-11%

Faster asset growth than 18% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2021 to 2022

Revenue Growth

25th percentile

-11%

Faster revenue growth than 25% of similar nonprofits.

2022 filings • 501(c)3 • $10M-$25M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets62nd percentile

Assets

Down

$9,619,205

Down $1,171,922 (-11%) from 2021

Net Assets

Down

$6,799,574

Down $1,176,868 (-15%) from 2021

Liabilities

Up

$2,819,631

Up $4,946 (+0.2%) from 2021

Revenue And Expenses
Liabilities / Revenue61st percentileNet Margin20th percentile

Revenue

Down

$7,994,347

Down $979,308 (-11%) from 2021

Expenses

Down

$8,513,991

Down $2,726 (-0.0%) from 2021

Net Income

Down

-$519,644

Down $976,582 (-214%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth18th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$15M$10M$5.0M$0Assets 2011: $4,583,605Liabilities 2011: $428,404Net Assets 2011: $4,155,2012011Assets 2012: $6,014,770Liabilities 2012: $395,985Net Assets 2012: $5,618,7852012Assets 2013: $4,843,625Liabilities 2013: $1,227,496Net Assets 2013: $3,616,1292013Assets 2014: $3,709,369Liabilities 2014: $1,246,214Net Assets 2014: $2,463,1552014Assets 2015: $7,157,069Liabilities 2015: $2,644,896Net Assets 2015: $4,512,1732015Assets 2016: $8,127,771Liabilities 2016: $3,402,671Net Assets 2016: $4,725,1002016Assets 2017: $9,197,961Liabilities 2017: $2,355,579Net Assets 2017: $6,842,3822017Assets 2018: $10,452,382Liabilities 2018: $3,029,575Net Assets 2018: $7,422,8072018Assets 2019: $9,184,199Liabilities 2019: $3,105,458Net Assets 2019: $6,078,7412019Assets 2020: $10,533,837Liabilities 2020: $4,002,703Net Assets 2020: $6,531,1342020Assets 2021: $10,791,127Liabilities 2021: $2,814,685Net Assets 2021: $7,976,4422021Assets 2022: $9,619,205Liabilities 2022: $2,819,631Net Assets 2022: $6,799,5742022Assets 2023: $8,911,710Liabilities 2023: $3,687,084Net Assets 2023: $5,224,6262023Assets 2024: $10,152,011Liabilities 2024: $4,715,573Net Assets 2024: $5,436,4382024Assets 2025: $12,515,154Liabilities 2025: $5,176,999Net Assets 2025: $7,338,1552025

Highlighted filing

2022

Assets$9,619,205
Liabilities$2,819,631
Net Assets$6,799,574
Open 2022 Filing

Operations Trend

Revenue Growth25th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MRevenue 2011: $5,889,533Expenses 2011: $3,735,212Net Income 2011: $2,154,3212011Revenue 2012: $8,194,303Expenses 2012: $6,730,719Net Income 2012: $1,463,5842012Revenue 2013: $8,470,369Expenses 2013: $10,575,019Net Income 2013: -$2,104,6502013Revenue 2014: $7,783,902Expenses 2014: $8,916,213Net Income 2014: -$1,132,3112014Revenue 2015: $9,923,512Expenses 2015: $7,805,564Net Income 2015: $2,117,9482015Revenue 2016: $8,178,847Expenses 2016: $8,104,930Net Income 2016: $73,9172016Revenue 2017: $10,707,905Expenses 2017: $8,572,891Net Income 2017: $2,135,0142017Revenue 2018: $9,868,982Expenses 2018: $9,164,841Net Income 2018: $704,1412018Revenue 2019: $10,107,887Expenses 2019: $10,704,174Net Income 2019: -$596,2872019Revenue 2020: $9,433,584Expenses 2020: $8,894,249Net Income 2020: $539,3352020Revenue 2021: $8,973,655Expenses 2021: $8,516,717Net Income 2021: $456,9382021Revenue 2022: $7,994,347Expenses 2022: $8,513,991Net Income 2022: -$519,6442022Revenue 2023: $7,966,723Expenses 2023: $9,649,179Net Income 2023: -$1,682,4562023Revenue 2024: $10,974,474Expenses 2024: $10,855,388Net Income 2024: $119,0862024Revenue 2025: $14,381,344Expenses 2025: $12,606,054Net Income 2025: $1,775,2902025

Highlighted filing

2022

Revenue$7,994,347
Expenses$8,513,991
Net Income-$519,644
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2021 to Jun 30, 2022
Signed
May 1, 2023
Return Version
2021v4.2
Gross Receipts
$10,101,706
Mission and Program Overview

Mission

The copd foundation was established to improve the lives of people with copd, bronchiectasis, and nontuberculous mycobacterial (ntm) lung disease through initiatives that expand services and speed innovations which will make treatment more effective and affordable.we do this through scientific research, education, advocacy, and awareness with the goal of disease prevention, slowed progression, and ultimately a cure.

See schedule o.the copd foundation is a patient-centered organization committed to preventing copd, bronchiectasis, and nontuberculous mycobacterial (ntm) lung disease, and to seeking cures while improving lives and advocating for all affected.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$5,188,565$5,000,792▼ $187,773
Cash and Non-Interest-Bearing Accounts$2,474,540$1,784,276▼ $690,264
Accounts Receivable$1,672,165$1,693,965▲ $21,800
Prepaid Expenses and Deferred Charges$596,356$527,014▼ $69,342
Investments Program Related$437,452$392,412▼ $45,040
Savings and Temporary Cash Investments$401,725$197,804▼ $203,921
Land, Buildings, and Equipment, Net$20,324$22,942▲ $2,618
Total Assets$10,791,127$9,619,205▼ $1,171,922
Liabilities
Deferred Revenue$2,266,151$1,916,504▼ $349,647
Accounts Payable and Accrued Expenses$548,534$903,127▲ $354,593
Total Liabilities$2,814,685$2,819,631▲ $4,946
Net Assets / Fund Balance
Net Assets With Donor Restrictions$5,076,653$4,900,920▼ $175,733
Net Assets Without Donor Restrictions$2,899,789$1,898,654▼ $1,001,135
Total Net Assets Fund Balance$7,976,442$6,799,574▼ $1,176,868
Total Liabilities and Net Assets / Fund Balance$10,791,127$9,619,205▼ $1,171,922

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$22,942$22,761-
Compensation and Service Providers
Top Officer Pay79th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Ruth Tal-singer PhdPresident & CEOFT$300,000-$300,000
Vincent MalangaChief Information OfficerFT$209,557$16,878$226,435
Elisha MalangaChief of StaffFT$154,149$34,416$188,565
Sasha LavinChief Financial OfficerFT$161,435$8,910$170,345
Kristen WillardEvp, Public & Professional EducationFT$109,515$14,817$124,332

Board Members and Trustees

NameTitle
James D Crapo MdBoard Chair
Wayne E Withers JrVice-chair, Treasurer
Donald GrayDirector
Gerard M Turino MdDirector
Herb YardleyDirector
Leonard Fromer MdDirector
Meilan K Han Md MsDirector
Richard Casaburi Phd MdDirector
Robert Wise MdDirector
Stew Cogan EsqDirector
Jean Wright Md MbaDirector, Secretary
Byron M Thomashow MdChief Medical Officer

Highest Paid Contractors

ContractorServicesLocationCompensation
University Of North CarolinaClinical Study Contractor104 AIRPORT DRIVE STE 2200, Chapel Hill, NC 27599$339,578
Talsi Translational Medicine ConsultingContractor723 HEMLOCK ROAD, Media, PA 19063$300,000
SchedulingcomData Coordinating Center401 N MICHIGAN AVE STE 640, Chicago, IL 60611$270,747
University Of MichiganClinical Study Contractor1000 VICTORS WAY STE 1A, Ann Arbor, MI 48108$262,578
Perl PllcContractor350 E SHORT STREET UNIT 411, Lexington, KY 40507$171,500
Revenue and Support

Revenue Composition

Contributions and Grants
$7,630,964
Program Service Revenue
$102,525
Investment Income
$260,858
Other Revenue
$0
All Other Contributions
$7,411,320
Change in Net Assets
$-519,644

Audited Revenue Reconciliation

Revenue per Audited Statements
$7,733,489
Revenue Not Reported on Financial Statements
$260,858
Revenue Not Reported on Form 990
$0
Other Revenue Adjustments
$260,858
Total Revenue per Audited Statements
$7,733,489
Total Revenue per Form 990
$7,994,347
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$5,199,038
Salaries, Compensation, and Employee Benefits$3,274,953
Total Fundraising Expense$833,073
Grants and Similar Amounts Paid$40,000
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$3,450,530$301,106$292,726$4,044,362
Other Salaries and Wages$1,607,717$691,515$342,787$2,642,019
Other Employee Benefits$252,456$120,007$58,452$430,915
Payroll Taxes$124,156$49,077$28,786$202,019
Fees for Services Legal$79,762$28,032-$107,794
Information Technology$78,764$16,095$412$95,271
Other Expenses$76,208$55,006$1,726$77,934
Office Expenses$42,618$2,135$8,050$52,803
Insurance$4,838$44,797$1,091$50,726
All Other Expenses$19,847$24,798$4,813$49,458
Travel$8,244$199$39,335$47,778
Foreign Grants$40,000--$40,000
Occupancy-$30,871-$30,871
Conferences and Meetings$11,494$745-$12,239
Depreciation Depletion-$7,783-$7,783
Total Functional Expenses$6,159,114$1,521,804$833,073$8,513,991

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$8,513,991
Total Expenses per Audited Statements$8,513,991
Total Expenses per Form 990$8,513,991
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$122,393
Fundraising Gross Income$122,393
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fundraising Event$320,220$122,393$122,393$0
Total Events$320,220$122,393$122,393$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“After review by the cfo, the draft form 990 is circulated to members of management for review and comment. The form 990 is then provided to the foundation's board of directors for review prior to filing.”

Form 990, Part VI, Section B, Line 12C

“At each board meeting the conflict of interest policy is read before the conduct of any other item. Written conflict of interest statements are obtained from all officers, board members, committee members, staff and contracted personnel annually. Failure to file the statement will result in the person being removed from service on any committee”

Form 990, Part VI, Section B, Line 15

“Salaries for copd foundation management are determined by annual surveys of comparable not-for-profit oranizations.”

Form 990, Part VI, Section C, Line 19

“The website www.copdfoundation.org includes the posting of financial statements, form 990, annual report, conflict of interest policy and whistleblower policy.”

Filing and Contact Details

Filer

Filer Name
Copd Foundation Inc
EIN
20-1048322
Phone
8667312673
Address
3300 PONCE DE LEON BLVD, MIAMI, FL 33134

Signing Officer

Name
Kaleo Curtis
Title
CFO
Phone
8667312673
Signed
2023-05-01
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Ruth Tal-singer
Formed
2004
Legal Domicile
Fl
Voting Board Members
13
Independent Board Members
13
Employees
41
Volunteers
287

Preparer

Firm
Zomma Group Llp
Address
355 ALHAMBRA CIRCLE SUITE 1100, CORAL GABLES, FL 33134
Preparer
Margarita G Lisker CPA
Phone
3054448288
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Contract services: program service expenses 3,450,530. Management and general expenses 301,106. Fundraising expenses 292,726. Total expenses 4,044,362.”

Part XII, Line 2C Explanation

“There were no changes from the prior year.”

Financial Statement Notes

PART X, LINE 2:

“The organization is organized as a not-for-profit entity and is exempt from income taxes under section 501(c) (3) of the internal revenue code. Unrelated business income, of which the organization had none for the years ended june 30, 2022 and 2021, would be subject to federal income taxes. The organization's information returns filed with the internal revenue service have not been examined in the past. The organization is not aware of any uncertainties that could jeopardize its not-for-profit status. Therefore, no provision or liability for income taxes is deemed necessary. The organization follows the provisions of uncertain tax provisions addressed by fas asc 740-10 accounting for uncertainty in income taxes. The organization has no uncertain tax positions at june 30, 2022 and 2021, for which the ultimate deductibility is highly certain but for which there are uncertainty about the timing of such deductibility. The organization recognizes interest accrued related to unrecognized tax benefits in interest expense and penalties in operating expense. The organization has determined that no amount required to be accrued for taxes or related penalties and interest for any tax position taken through june 30, 2022 and 2021.”

PART XI, LINE 4B - OTHER ADJUSTMENTS:

“Interest income 16,106. Dividends 125,913. Realized gain on sales 118,839.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0SEE SCHEDULE O.THE COPD FOUNDATION IS A PATIENT-CENTERED ORGANIZATION COMMITTED TO PREVENTING COPD, BRONCHIECTASIS, AND NONTUBERCULOUS MYCOBACTERIAL (NTM) LUNG DISEASE, AND TO SEEKING CURES WHILE IMPROVING LIVES AND ADVOCATING FOR ALL AFFECTED.
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IRS990/Desc0RESEARCH & MEDICALTHE COPD360 UNIQUE RESEARCH AND THERAPEUTICS DEVELOPMENT PLATFORM INCLUDES MULTIPLE ELEMENTS SUCH AS TWO PATIENT REGISTRIES, COPD PATIENT POWERED RESEARCH NETWORK (COPD PPRN) AND THE BRONCHIECTASIS AND NTM RESEARCH REGISTRY (BRR), TWO INTERACTIVE MODERATED SOCIAL PLATFORMS ENGAGING OVER 60,000 INDIVIDUALS GLOBALLY, COPD360SOCIAL AND BRONCHANDNTM360SOCIAL, AND THE RECENTLY LAUNCHED DIGITAL AND THERAPEUTICS NETWORK, COPD360NET. COPD360NET SUPPORTS THE DEVELOPMENT AND ADOPTION OF NOVEL DIGITAL HEALTH TOOLS, MEDICAL DEVICES AND THERAPEUTICS THAT TREAT COPD, BRONCHIECTASIS, AND NONTUBERCULOUS MYCOBACTERIAL (NTM) LUNG DISEASE. IN ORDER TO ADVANCE THE DEVELOPMENT OF NEW MEDICINES, OR THE REPURPOSING OF EXISTING DRUGS, A NEW APPROACH IS NEEDED. IN ADDITION, COPD360NET IS FOCUSED ON IMPLEMENTATION SCIENCE FACILITATING DISCOVERY TO DELIVERY.COVID-19 RELATED RESEARCHAT THE ONSET OF THE COVID-19 PANDEMIC, WE FOCUSED ON LISTENING TO OUR COMMUNITY AND PROVIDING PEOPLE WITH ACCURATE, TIMELY, AND TRUSTED INFORMATION. WE LAUNCHED A SERIES OF GLOBAL SURVEYS TO CAPTURE THE EXPERIENCES OF HEALTH CARE PROVIDERS AND PEOPLE LIVING WITH COPD, BRONCHIECTASIS, ALPHA-1 ANTITRYPSIN DEFICIENCY, AND NTM LUNG INFECTIONS DURING THE COVID-19 PANDEMIC. AN IMPORTANT INSIGHT FROM THIS SURVEY SERIES WAS THE INCREASED IMPORTANCE AND RELIANCE ON TELEMEDICINE AND VIRTUAL PLATFORMS TO CONNECT WITH EACH OTHER, HEALTH CARE PROFESSIONALS, AND HEALTH AND WELLNESS PROGRAMS. BRONCHIECTASISANDNTM360 ADDRESSES THE UNMET NEEDS OF THE BRONCHIECTASIS AND NONTUBERCULOUS MYCOBACTERIA (NTM) COMMUNITIES. THE 360 FRAMEWORK OFFERS A GLOBAL ONLINE PLATFORM FOR COMMUNITY MEMBERS TO CONNECT AND INTERACT, EDUCATIONAL RESOURCES FOR PATIENTS, AND RESEARCH PROGRAMS MEANT TO ASSIST IN ACCELERATING THERAPEUTIC SOLUTIONS AND CURES FOR BOTH, BRONCHIECTASIS AND NTM. WE ARE FORTUNATE TO BE ABLE TO WORK COLLABORATIVELY AMONG ALL STAKEHOLDER GROUPS INCLUDING PATIENTS, CAREGIVERS, HEALTH CARE PROVIDERS, PHARMACEUTICAL COMPANIES, AND DEVICE MANUFACTURERS TO OFFER PROGRAMS CRITICAL TO OUR COMMON MISSION.
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IRS990/MissionDesc0THE COPD FOUNDATION WAS ESTABLISHED TO IMPROVE THE LIVES OF PEOPLE WITH COPD, BRONCHIECTASIS, AND NONTUBERCULOUS MYCOBACTERIAL (NTM) LUNG DISEASE THROUGH INITIATIVES THAT EXPAND SERVICES AND SPEED INNOVATIONS WHICH WILL MAKE TREATMENT MORE EFFECTIVE AND AFFORDABLE.WE DO THIS THROUGH SCIENTIFIC RESEARCH, EDUCATION, ADVOCACY, AND AWARENESS WITH THE GOAL OF DISEASE PREVENTION, SLOWED PROGRESSION, AND ULTIMATELY A CURE.
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IRS990/ProgSrvcAccomActy2Grp/Desc0PUBLIC & PROFESSIONAL EDUCATIONTHE COPD FOUNDATION ENSURES THAT EVIDENCE-BASED, CURRENT EDUCATION CONTINUES TO BE AVAILABLE TO ALL STAKEHOLDERS, INCLUDING PATIENTS, CAREGIVERS, AND HEALTH CARE PROVIDERS. WHILE COVID-19 WAS A CRITICAL FOCUS OF OUR FY22 EDUCATION, OUR COMMUNITY ALSO EXPRESSED THE NEED TO ADDRESS OTHER CRITICALLY IMPORTANT ISSUES, SUCH AS COPING WITH A DIAGNOSIS AND STRESS, NUTRITION, EXERCISE, DEVICE TECHNIQUE, AND MANY MORE. TO THAT END, WE BOTH UPDATED OUR EXISTING LIBRARY AND DEVELOPED NEW PRINT, VIDEO, ONLINE, AND PODCAST EDUCATIONAL CONTENT. WE ALSO BEGAN TRANSLATING THESE TO SPANISH TO IMPROVE THE ACCESSIBILITY OF OUR CONTENT.WE PARTICIPATED IN THE ANNUAL GOLD MEETING, AND THE NHLBI CONSTITUENCY GROUP, AND CREATED THE EXPERT CONSENSUS MANUSCRIPT ON NEBULIZER USE. OXYTALK, AND FACEBOOK/YOUTUBE EVENTS WERE WELL RECEIVED (DO YOU KNOW ABOUT NTM LUNG DISEASE). A NEW "PATIENT BUNDLE" INCLUDES MY COPD ACTION PLAN AND OTHER RESOURCES.
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IRS990/ProgSrvcAccomActy3Grp/Desc0COMMUNITYTHE COPD360 COMMUNITY ENGAGEMENT COMMITTEE (COPD360CENCO), A DIVERSE PATIENTS AND CAREGIVERS COMMITTEE, WAS CREATED IN SEPTEMBER 2020 TO PROVIDE THE VOICE OF PATIENTS AND CAREGIVERS TO ALL OF THE COPD FOUNDATION'S EFFORTS, AND TO SUPPORT ITS INTERACTIONS WITH OTHER HEALTH CARE AND ADVOCACY ORGANIZATIONS. THE STRUCTURE FOR THE COPD360CENCO SUPPORTS THE DEVELOPMENT OF COPD360NET, WHILE ENHANCING THE COPD FOUNDATION'S REGULAR PRACTICE OF ENGAGING INDIVIDUALS WITH COPD, THEIR CAREGIVERS, AND FAMILIES.OUR WORK WITH OPELOUSAS HEALTH OF LOUISIANA PROMOTES COPD AWARENESS AND SELF-MANAGEMENT. THIS TARGETS AN UNDERSERVED POPULATION AND CONTAINS PATIENT AND PROVIDER MATERIALS.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc04D. POLICY & ADVOCACYTHE COPD FOUNDATION COMMUNITY WORKS WITH LOCAL, STATE, AND FEDERAL POLICY MAKERS TO INCREASE RESEARCH FUNDING, IMPROVE CARE DELIVERY, PROTECT ACCESS TO TREATMENTS, AND CREATE POLICY THAT IMPROVES THE LIVES OF THOSE WITH COPD, BRONCHIECTASIS AND NONTUBERCULOUS MYCOBACTERIAL (NTM) LUNG DISEASE. THE COPD FOUNDATION IS FOCUSING ITS 2022 ADVOCACY AND PUBLIC POLICY ACTIVITIES ON THREE MAIN AREAS:1. ACCESS TO SAFE, EFFECTIVE AND AFFORDABLE OXYGEN THERAPY2. ACCESS TO EFFECTIVE, AFFORDABLE PULMONARY REHABILITATION (IN PERSON OR VIA TELEHEALTH)3. IMPROVEMENT IN THE REGULATORY PROCESS OF QUALIFYING DRUG DEVELOPMENT TOOLS TO SUPPORT THE DEVELOPMENT OF NEW TREATMENTS FOR CHRONIC LUNG CONDITIONSIN FY22, WE FOCUSED OUR ADVOCACY STRATEGY ON THREE KEY AREAS: IMPROVED ACCESS TO AND REIMBURSEMENT OF PULMONARY REHABILITATION, SAFE AND EFFICIENT DELIVERY OF OXYGEN THERAPY, AND IMPROVED ACCEPTANCE OF NEW DRUG DEVELOPMENT TOOLS. OUR VIRTUAL IMPACT 2022 ADVOCACY EVENT DREW MORE THAN 50 ADVOCATES FROM AROUND THE UNITED STATES TO PARTICIPATE IN WORKSHOPS AND CALLS WITH THEIR ELECTED REPRESENTATIVES. PUBLICATIONS IN 2022CASABURI R, HESS M, PORSZASZ J, CLARK W, DIESEM R, TAL-SINGER R, FERGUSON C. EVALUATION OF OVER-THE-COUNTER PORTABLE OXYGEN CONCENTRATORS UTILIZING A METABOLIC SIMULATOR. RESPIR CARE. 2022 NOV 18:RESPCARE.10495. DOI: 10.4187/RESPCARE.10495. EPUB AHEAD OF PRINT. PMID: 36400446.MARTINEZ S, SULLIVAN J, PASQUALE C, CLARK B, MALANGA E, DEERING S, LIU L, STEPNOWSKY CJ. EFFECT OF TWO INTERVENTIONAL STRATEGIES ON IMPROVING CONTINUOUS POSITIVE AIRWAY PRESSURE ADHERENCE IN EXISTING COPD AND OBSTRUCTIVE SLEEP APNEA PATIENTS: THE O2VERLAP STUDY. CHRONIC OBSTR PULM DIS. 2022 JUL 29;9(3):394-412. DOI: 10.15326/JCOPDF.2022.0293. PMID: 35797447; PMCID: PMC9448010.CASABURI R, MERRILL D, DOLMAGE T, GARCIA-AYMERICH J, FAGERAS M, GOLDSTEIN R, HARDING G, KLINE LEIDY N, MALTAIS F, O'DONNELL D, PORSZASZ J, PUENTE-MAESTU L, RENNARD S, SCIURBA F, SPRUIT MA, TAL-SINGER R, TETZLAFF K, VAN'T HUL A, YU R, HAMILTON A. ENDURANCE TIME DURING CONSTANT WORK RATE CYCLE ERGOMETRY IN COPD: DEVELOPMENT OF AN INTEGRATED DATABASE FROM INTERVENTIONAL STUDIES. CHRONIC OBSTR PULM DIS. 2022 OCT 26;9(4):520-537. DOI: 10.15326/JCOPDF.2022.0331. PMID: 36066494; PMCID: PMC9718584.TAL-SINGER R, WALSH L, DEUBY T, SHAUGHNESSY A, HOTH KF, GASCON V, HINTRINGER S, HASS N, WINDERS T, MORGAN L, THOMASHOW B, MANNINO DM. TOBACCO INDUSTRY OWNERSHIP OF PHARMACEUTICAL COMPANIES: AN INTERNATIONAL SURVEY OF PEOPLE WITH RESPIRATORY DISEASE. THORAX. 2022 AUG 15:THORAXJNL-2022-219142. DOI: 10.1136/THORAX-2022-219142. EPUB AHEAD OF PRINT. PMID: 35970539.MANNINO DM, TAL-SINGER R. LONG-TERM TRENDS OF COPD MORTALITY: GAPS AND OPPORTUNITIES. RESPIROLOGY. 2022 NOV;27(11):914-915. DOI: 10.1111/RESP.14334. EPUB 2022 AUG 2. PMID: 35916275.SULLIVAN J, PASQUALE C, CLARK B, MALANGA E, MARTINEZ S, MANNINO D, STEPNOWSKY C. OUTCOMES IMPORTANT TO PATIENTS DIAGNOSED WITH BOTH COPD AND SLEEP APNEA: FINDINGS FROM THE O2VERLAP STUDY FOCUS GROUPS. CHRONIC OBSTR PULM DIS. 2022 JAN 27;9(1):45-54. DOI: 10.15326/JCOPDF.2021.0268. PMID: 34915602; PMCID: PMC8893966. EKSTRM M, MANNINO D. RESEARCH RACE-SPECIFIC REFERENCE VALUES AND LUNG FUNCTION IMPAIRMENT, BREATHLESSNESS AND PROGNOSIS: ANALYSIS OF NHANES 2007-2012. RESPIR RES. 2022 OCT 1;23(1):271. DOI: 10.1186/S12931-022-02194-4. ERRATUM IN: RESPIR RES. 2023 FEB 3;24(1):41. PMID: 36182912; PMCID: PMC9526909. MOLL M, HOBBS BD, MENON A, GHOSH AJ, PUTMAN RK, HINO T, HATA A, SILVERMAN EK, QUACKENBUSH J, CASTALDI PJ, HERSH CP, MCGEACHIE MJ, SIN DD, TAL-SINGER R, NISHINO M, HATABU H, HUNNINGHAKE GM, CHO MH. BLOOD GENE EXPRESSION RISK PROFILES AND INTERSTITIAL LUNG ABNORMALITIES: COPDGENE AND ECLIPSE COHORT STUDIES. RESPIR RES. 2022 JUN 17;23(1):157. DOI: 10.1186/S12931-022-02077-8. PMID: 35715807; PMCID: PMC9204872.BHUTANI M, PRICE DB, WINDERS TA, WORTH H, GRUFFYDD-JONES K, TAL-SINGER R, CORREIA-DE-SOUSA J, DRANSFIELD MT, PECH R, STOLZ D, HURST JR. QUALITY STANDAR
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Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$9,619,205
Liabilities
$2,819,631
Net assets
$6,799,574
Revenue
$7,994,347
Expenses
$8,513,991
Net income
-$519,644
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$12.5$5.18$7.34$14.4$12.6$1.78
2024Detailed filing. Detailed filing data is available for this year.$10.2$4.72$5.44$11.0$10.9$0.12
2023Detailed filing. Detailed filing data is available for this year.$8.91$3.69$5.22$7.97$9.65$1.68
2022Detailed filing. Detailed filing data is available for this year.$9.62$2.82$6.80$7.99$8.51$0.52
2021Detailed filing. Detailed filing data is available for this year.$10.8$2.81$7.98$8.97$8.52$0.46
2020Detailed filing. Detailed filing data is available for this year.$10.5$4.00$6.53$9.43$8.89$0.54
2019Detailed filing. Detailed filing data is available for this year.$9.18$3.11$6.08$10.1$10.7$0.60
2018Summary only. Only limited summary data is available for this year.$10.5$3.03$7.42$9.87$9.16$0.70
2017Detailed filing. Detailed filing data is available for this year.$9.20$2.36$6.84$10.7$8.57$2.14
2016Summary only. Only limited summary data is available for this year.$8.13$3.40$4.73$8.18$8.10$0.07
2015Summary only. Only limited summary data is available for this year.$7.16$2.64$4.51$9.92$7.81$2.12
2014Summary only. Only limited summary data is available for this year.$3.71$1.25$2.46$7.78$8.92$1.13
2013Summary only. Only limited summary data is available for this year.$4.84$1.23$3.62$8.47$10.6$2.10
2012Summary only. Only limited summary data is available for this year.$6.01$0.40$5.62$8.19$6.73$1.46
2011Summary only. Only limited summary data is available for this year.$4.58$0.43$4.16$5.89$3.74$2.15