Civic Intelligence

Karen Wyckoff Rein in Sarcoma

EIN 20-0811343 • 501(c)3 • Fridley, MN

Profile

Our three-pronged mission: educating the public and medical community about sarcomas, supporting sarcoma patients and their loved ones, and funding research directed toward developing new treatments and finding a cure for sarcoma cancers.

7401 Central Avenue NE AFridley, MN 55432

reininsarcoma.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

47th percentile

0.05x

Higher debt load relative to assets than 47% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

54th percentile

0.10x

Higher debt load relative to revenue than 54% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

14th percentile

-21%

Higher net margin than 14% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

75th percentile

$121,105

Higher top officer pay than 75% of similar nonprofits.

Top officer pay equals 21.0% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

20th percentile

-7.0%

Faster asset growth than 20% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

29th percentile

-4.8%

Faster revenue growth than 29% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets47th percentile

Assets

Down

$1,093,636

Down $82,319 (-7.0%) from 2023

Liabilities

Up

$55,531

Up $40,251 (+263%) from 2023

Net Assets

Down

$1,038,105

Down $122,570 (-11%) from 2023

Operations
Liabilities / Revenue54th percentileNet Margin14th percentile

Revenue

Down

$577,435

Down $28,919 (-4.8%) from 2023

Expenses

Up

$697,342

Up $142,859 (+26%) from 2023

Net Income

Down

-$119,907

Down $171,778 (-331%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth20th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.5M$1.0M$500K$0Assets 2011: $213,529Liabilities 2011: $7,500Net Assets 2011: $206,0292011Assets 2012: $194,570Liabilities 2012: $0Net Assets 2012: $194,5702012Assets 2013: $325,081Liabilities 2013: $0Net Assets 2013: $325,0812013Assets 2014: $387,852Liabilities 2014: $0Net Assets 2014: $387,8522014Assets 2015: $467,639Liabilities 2015: $0Net Assets 2015: $467,6392015Assets 2016: $682,679Liabilities 2016: $0Net Assets 2016: $682,6792016Assets 2017: $773,597Liabilities 2017: $2,663Net Assets 2017: $770,9342017Assets 2018: $709,929Liabilities 2018: $2,342Net Assets 2018: $707,5872018Assets 2019: $807,937Liabilities 2019: $2,313Net Assets 2019: $805,6242019Assets 2020: $794,680Liabilities 2020: $0Net Assets 2020: $794,6802020Assets 2021: $1,229,917Liabilities 2021: $29,907Net Assets 2021: $1,200,0102021Assets 2022: $1,199,056Liabilities 2022: $90,252Net Assets 2022: $1,108,8042022Assets 2023: $1,175,955Liabilities 2023: $15,280Net Assets 2023: $1,160,6752023Assets 2024: $1,093,636Liabilities 2024: $55,531Net Assets 2024: $1,038,1052024

Highlighted filing

2024

Assets$1,093,636
Liabilities$55,531
Net Assets$1,038,105
Open 2024 Filing

Operations Trend

Revenue Growth29th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KRevenue 2011: $184,797Expenses 2011: $189,509Net Income 2011: -$4,7122011Revenue 2012: $155,447Expenses 2012: $166,906Net Income 2012: -$11,4592012Revenue 2013: $261,532Expenses 2013: $131,021Net Income 2013: $130,5112013Revenue 2014: $239,134Expenses 2014: $176,446Net Income 2014: $62,6882014Revenue 2015: $258,492Expenses 2015: $178,455Net Income 2015: $80,0372015Revenue 2016: $421,681Expenses 2016: $207,110Net Income 2016: $214,5712016Revenue 2017: $489,287Expenses 2017: $401,032Net Income 2017: $88,2552017Revenue 2018: $428,120Expenses 2018: $484,092Net Income 2018: -$55,9722018Revenue 2019: $574,526Expenses 2019: $476,489Net Income 2019: $98,0372019Revenue 2020: $445,627Expenses 2020: $488,662Net Income 2020: -$43,0352020Revenue 2021: $950,549Expenses 2021: $529,353Net Income 2021: $421,1962021Revenue 2022: $716,594Expenses 2022: $736,754Net Income 2022: -$20,1602022Revenue 2023: $606,354Expenses 2023: $554,483Net Income 2023: $51,8712023Revenue 2024: $577,435Expenses 2024: $697,342Net Income 2024: -$119,9072024

Highlighted filing

2024

Revenue$577,435
Expenses$697,342
Net Income-$119,907
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$1,093,636
Liabilities
$55,531
Net assets
$1,038,105
Revenue
$577,435
Expenses
$697,342
Net income
-$119,907
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.09$0.06$1.04$0.58$0.70$0.12
2023Detailed filing. Detailed filing data is available for this year.$1.18$0.02$1.16$0.61$0.55$0.05
2022Detailed filing. Detailed filing data is available for this year.$1.20$0.09$1.11$0.72$0.74$0.02
2021Detailed filing. Detailed filing data is available for this year.$1.23$0.03$1.20$0.95$0.53$0.42
2020Detailed filing. Detailed filing data is available for this year.$0.79$0.00$0.79$0.45$0.49$0.04
2019Summary only. Only limited summary data is available for this year.$0.81$0.00$0.81$0.57$0.48$0.10
2018Summary only. Only limited summary data is available for this year.$0.71$0.00$0.71$0.43$0.48$0.06
2017Summary only. Only limited summary data is available for this year.$0.77$0.00$0.77$0.49$0.40$0.09
2016Summary only. Only limited summary data is available for this year.$0.68$0.00$0.68$0.42$0.21$0.21
2015Summary only. Only limited summary data is available for this year.$0.47$0.00$0.47$0.26$0.18$0.08
2014Summary only. Only limited summary data is available for this year.$0.39$0.00$0.39$0.24$0.18$0.06
2013Summary only. Only limited summary data is available for this year.$0.33$0.00$0.33$0.26$0.13$0.13
2012Summary only. Only limited summary data is available for this year.$0.19$0.00$0.19$0.16$0.17$0.01
2011Summary only. Only limited summary data is available for this year.$0.21$0.01$0.21$0.18$0.19$0.00
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 17, 2025
Return Version
2024v5.2
Gross Receipts
$1,487,574
Mission and Program Overview

Mission

Our three-pronged mission: educating the public and medical community about sarcomas, supporting sarcoma patients and their loved ones, and funding research directed toward developing new treatments and finding a cure for sarcoma cancers.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$350,336$548,997▲ $198,661
Cash and Non-Interest-Bearing Accounts$580,569$505,753▼ $74,816
Pledges and Grants Receivable$7,687$11,963▲ $4,276
Prepaid Expenses and Deferred Charges$718$6,250▲ $5,532
Savings and Temporary Cash Investments$236,645$5,352▼ $231,293
Total Assets$1,175,955$1,093,636▼ $82,319
Other Assets Total$0$15,321▲ $15,321
Liabilities
Accounts Payable and Accrued Expenses$15,280$55,531▲ $40,251
Total Liabilities$15,280$55,531▲ $40,251
Net Assets / Fund Balance
Net Assets With Donor Restrictions$573,573$529,497▼ $44,076
Net Assets Without Donor Restrictions$587,102$508,608▼ $78,494
Total Net Assets Fund Balance$1,160,675$1,038,105▼ $122,570
Total Liabilities and Net Assets / Fund Balance$1,175,955$1,093,636▼ $82,319
Compensation and Service Providers
Top Officer Pay75th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Lachelle SemankoExecutive DirectorFT$115,385$5,720$121,105

Board Members and Trustees

NameTitle
Eric LienPresident
Conner O'BrienVice President
Andrea Espejo Freire MDBoard Member
Blake HastingsBoard Member
Brendan DillonBoard Member
Colin RyanBoard Member
Dr David LargaespadaBoard Member
Jason PatalonisBoard Member
John Charlson MDBoard Member
Laura GagneBoard Member
Maureen Anderson DNPBoard Member
Scott Okuno MDBoard Member
Stephanie Terezakis MDBoard Member
Aaron HalbeSecretary
Mitch AthertonTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$539,554
Program Service Revenue
$5,000
Investment Income
$18,940
Other Revenue
$13,941
All Other Contributions
$358,360
Change in Net Assets
$-119,907
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$393,671
Grants and Similar Amounts Paid$209,783
Total Fundraising Expense$138,259
Other Expenses$93,888
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$78,663$61,970$88,039$228,672
Grants to Domestic Orgs$209,783--$209,783
Current Officers, Directors, Trustees, and Key Employees$58,130$38,754$24,221$121,105
Office Expenses$9,761$25,137$8,783$43,681
Payroll Taxes$9,483$6,973$7,648$24,104
Information Technology-$20,556-$20,556
Other Employee Benefits$6,808$5,363$7,619$19,790
Fees for Services Other$1,792$5,650$721$8,163
Occupancy$3,990$855$855$5,700
Travel$1,123$3,877$373$5,373
Fees for Services Accounting-$4,862-$4,862
Conferences and Meetings$1,395$1,451-$2,846
Insurance-$1,287-$1,287
All Other Expenses-$777-$777
Advertising$643--$643
Total Functional Expenses$381,571$177,512$138,259$697,342
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Aveni FoundationSanta Monica, CA501(c)(3)Sarcoma Research$76,666
University of Minnesota FoundationMinneapolis, MN501(c)(3)Sarcoma Research & educating medical students about Sarcoma, who, in turn, educate peers with long-lasting impact.$62,500
University of MichiganAnn Arbor, MI501(c)(3)Sarcoma Research & educating medical students about Sarcoma, who, in turn, educate peers with long-lasting impact.$7,500
University of Wisconsin FoundationMadison, WI501(c)(3)Educating medical students about Sarcoma, who, in turn, educate peers with long-lasting impact.$6,000
Mayo ClinicRochester, MN501(c)(3)Return of Sarcoma Research funds awarded in 2023$-12,883
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$92,835
Fundraising Direct Expenses$81,763
Gaming Gross Income$2,385
Gaming Direct Expenses$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Sunflower Soiree$186,885$65,884$1,303$64,581
Party in the Park$48,166$12,361$5,311$7,050
Total Events$274,029$92,835$81,763$11,072
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, line 2

“Maureen Anderson, Blake Hastings, and Colin Ryan have a family relationship. All are volunteer Board member positions with no compensation or influence.”

Form 990, Part VI, Section B, line 11B

“Upon completion of the Form 990 by the CPA firm, it is reviewed with the Finance Committee, who votes to approve our tax document and send it on to the Board of Directors for review before a meeting. The form is discussed at a quarterly Board meeting. The Board votes to approve upon any suggested edits being made.”

Form 990, Part VI, Section B, line 12C

“At every first quarter Board meeting, RIS reviews the conflict of interest policy and sends it out to every Board member to review, sign, and return to the office digitally or via paper. During votes, if there is a conflict of interest, the voting member recuses themselves from that vote.”

Form 990, Part VI, Section B, line 15

“The Executive Director position is paid an annual salary that is aligned to the Nonprofit Salary and Benefits Survey published by Minnesota Council of Nonprofits. All other employees also have salaries aligned with the Nonprofit Salary and Benefits Publication. The ED performance and salary are reviewed by the Board of Directors annually.”

Form 990, Part VI, Section C, line 18

“The Form 990 is available on the Organization's website and upon request. The Form 1023 is available upon request.”

Form 990, Part VI, Section C, line 19

“The organization makes its governing documents, conflict of interest policy, and financial statements available to the public upon request. Additionally, the annual reports can be found on the organization's website.”

Filing and Contact Details

Filer

Filer Name
Karen Wyckoff Rein in Sarcoma
EIN
20-0811343
Phone
7632051467
Address
7401 Central Avenue NE A, Fridley, MN 55432
Doing Business As
Rein in Sarcoma

Signing Officer

Name
Lachelle Semanko
Title
Executive Director
Phone
7632051467
Signed
2025-11-17
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Mitch Atherton
Formed
2004
Legal Domicile
Mn
Voting Board Members
14
Independent Board Members
14
Employees
4
Volunteers
117

Preparer

Firm
BWK Rogers PC
Address
431 South 7th Street Suite 2424, Minneapolis, MN 55415
Preparer
Melissa J Baraibar
Phone
6123325446
Raw XML AppendixShowing 400 of 604 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0Rein in Sarcoma (RIS) was started in 2001 by Karen Wyckoff, a 25-year-old Synovial Sarcoma patient. As she fought this rare cancer, she thought there were things that needed doing to increase the quality of life and odds of survival for all sarcoma patients. As she started the organization, she developed the mission as it still remains today: We are dedicated to educating the public and medical community about sarcoma, supporting sarcoma patients and their loved ones, and funding research directed toward developing new treatments and finding a cure for sarcoma cancer. Research for Sarcoma Cancer: RIS has partnered with many top-notch research institutions including: University of Minnesota, Mayo Clinic, Children's Minnesota, University of Calgary, Case Western Reserve, University of Michigan, and Aveni Foundation. RIS has funded seed money of more than $2.5M in high impact and collaborative research, which has generated more than $13M in additional support. Ninety-one research funding awards have been made to date. Education: RIS has established and expanded its Sarcoma Scholar Program to educate Medical Students and Advanced Practice students about sarcoma. This program began in 2009 with 2 scholars participating from the University of Minnesota and has now grown to 16 scholars from across the country in 2024, participating from University of Minnesota, Mayo Clinic Alix School of Medicine, University of Florida, University of Michigan, University of Iowa, Winona State University, Medical School of Wisconsin, and University of Wisconsin-Madison. Scholars educate their peers and public about sarcoma, complete sarcoma related projects, and go through a year-long sarcoma education program offered by RIS and sarcoma experts, specialists, and mentors. In addition, RIS provides free Patient Education Sarcoma Guidebooks to newly diagnosed patients and their caregivers. Guidebooks are also sent to sarcoma centers across the nation for distribution and are available for free download on the RIS website. The 9th Edition Guidebook was completed in 2024. Other educational activities include RIS participation in annual sarcoma related conferences, presenting and tabling opportunities to increase education. RIS has a YouTube channel that houses patient stories and educational videos. Patient and Family Support: Each year, RIS holds a Party in the Park event which is free to sarcoma patients, family members and those who have lost a loved one to sarcoma. Other patient and family support activities include peer to peer mentorship from other sarcoma survivors, Tote Bags of Hope filled with items for newly diagnosed and/or hospitalized patients, an active social media group for sarcoma patients and loved ones, Microgrants for patients in need of financial support during treatment and an in person monthly support group. Rein in Sarcoma is the largest and most well-known sarcoma foundation in the Midwest and continues to expand their services and reach nationwide.
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IRS990/Form990PartVIISectionAGrp/PersonNm4Jason Patalonis
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IRS990/Form990PartVIISectionAGrp/PersonNm6Stephanie Terezakis MD
IRS990/Form990PartVIISectionAGrp/PersonNm7Andrea Espejo Freire MD
IRS990/Form990PartVIISectionAGrp/PersonNm8John Charlson MD
IRS990/Form990PartVIISectionAGrp/PersonNm9Dr David Largaespada
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IRS990/Form990PartVIISectionAGrp/PersonNm12Conner O'Brien
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