Liabilities / Assets
28th percentile
Higher debt load relative to assets than 28% of similar nonprofits.
990 • Fiscal year 2021 • EIN 20-0291856
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
28th percentile
Higher debt load relative to assets than 28% of similar nonprofits.
Liabilities / Revenue
26th percentile
Higher debt load relative to revenue than 26% of similar nonprofits.
Net Margin
43rd percentile
Higher net margin than 43% of similar nonprofits.
Top Officer Pay
50th percentile
Higher top officer pay than 50% of similar nonprofits.
Top officer pay equals 7.2% of source-year revenue.
Asset Growth
54th percentile
Faster asset growth than 54% of similar nonprofits.
Revenue Growth
50th percentile
Faster revenue growth than 50% of similar nonprofits.
Assets
Up$1,060,679
Up $109,511 (+12%) from 2020
Net Assets
Up$1,052,322
Up $110,898 (+12%) from 2020
Liabilities
Down$8,357
Down $1,387 (-14%) from 2020
Revenue
Up$779,248
Up $85,382 (+12%) from 2020
Expenses
Up$709,491
Up $117,899 (+20%) from 2020
Net Income
Down$69,757
Down $32,517 (-32%) from 2020
The organizations mission is to increase education and awareness of amyloidosis, to assist patients in finding qualified medical care and to support research.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $773,961 | $783,581 | ▲ $9,620 |
| Cash and Non-Interest-Bearing Accounts | $173,913 | $274,579 | ▲ $100,666 |
| Land, Buildings, and Equipment, Net | $3,294 | $2,519 | ▼ $775 |
| Total Assets | $951,168 | $1,060,679 | ▲ $109,511 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $9,744 | $8,357 | ▼ $1,387 |
| Total Liabilities | $9,744 | $8,357 | ▼ $1,387 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $941,424 | $1,052,322 | ▲ $110,898 |
| Total Net Assets Fund Balance | $941,424 | $1,052,322 | ▲ $110,898 |
| Total Liabilities and Net Assets / Fund Balance | $951,168 | $1,060,679 | ▲ $109,511 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $2,519 | $107,261 | - |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Mary E Odonnell | President/CEO | PT | $56,160 | $56,160 |
| Name | Title |
|---|---|
| Adrienne Molteni | Director |
| Charlotte Haffner | Director |
| Dan Lenihan | Director |
| Lori Lawter | Director |
| Mark Sutherland | Chief Financial Officer |
| Dante Burchi | Treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $395,000 |
| Salaries, Compensation, and Employee Benefits | $171,202 |
| Other Expenses | $143,289 |
| Total Fundraising Expense | $48,719 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $395,000 | - | - | $395,000 |
| Other Salaries and Wages | $74,298 | $14,333 | $14,245 | $102,876 |
| Current Officers, Directors, Trustees, and Key Employees | $16,848 | $28,080 | $11,232 | $56,160 |
| Fees for Services Other | - | $8,975 | $7,235 | $16,210 |
| Occupancy | $13,594 | $1,265 | $948 | $15,807 |
| All Other Expenses | $7,654 | $1,356 | $6,176 | $15,186 |
| Other Expenses | $12,952 | $474 | $355 | $13,781 |
| Payroll Taxes | $6,973 | $3,244 | $1,949 | $12,166 |
| Office Expenses | $2,574 | $146 | $110 | $2,830 |
| Insurance | $2,259 | $210 | $157 | $2,626 |
| Depreciation Depletion | - | $775 | - | $775 |
| Travel | - | $-820 | - | $-820 |
| Total Functional Expenses | $599,566 | $61,206 | $48,719 | $709,491 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $709,491 |
| Total Expenses per Audited Statements | $709,491 |
| Total Expenses per Form 990 | $709,491 |
| Expenses Not Reported on Financial Statements | $0 |
| Expenses Not Reported on Form 990 | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Washington University | St Louis, MO | - | Research | $200,000 |
| Columbia University | New York, NY | - | Research | $100,000 |
| Brigham & Womens Hospital | Boston, MA | - | Research | $25,000 |
| Mayo Clinic | Rochester, MN | - | Research | $25,000 |
| University of Pennsylvania | Philadelphia, PA | - | Research | $25,000 |
| Karmanos Cancer Institute | Detroit, MI | - | Research | $20,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $63,728 |
| Fundraising Direct Expenses | $0 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Jeff Brenna Golf Outing | $18,793 | $18,793 | - | $18,793 |
| Virtual 5k Run | $15,500 | $15,500 | - | $15,500 |
| Total Events | $63,728 | $63,728 | - | $63,728 |
“The form 990 is electronically transfered to all board members prior to filing, requesting questions and /or comments.”
“On a yearly basis the board members are to review the conflict of interest policy and sign such a document.”
“Determination of officer compensation is initiated by a member of the board and voted on by the board.”
“Financial statements are available on line via guidestar. The governing documents and conflict of interest policy are available upon request.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 9744 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 8357 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | THE ORGANIZATIONS MISSION IS TO INCREASE EDUCATION AND AWARENESS OF AMYLOIDOSIS, TO ASSIST PATIENTS IN FINDING QUALIFIED MEDICAL CARE AND TO SUPPORT RESEARCH. |
| IRS990/AllOtherContributionsAmt | 0 | 657560 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 6176 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1356 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 7654 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 15186 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | MARY ODONNELL |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2489229610 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 7151 NORTH MAIN STREET |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | CLARKSTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MI |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 48346 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 173913 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 274579 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 11232 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 28080 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 16848 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 56160 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 657560 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 395000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 57960 |
| IRS990/CYOtherExpensesAmt | 0 | 143289 |
| IRS990/CYOtherRevenueAmt | 0 | 63728 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 69757 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 171202 |
| IRS990/CYTotalExpensesAmt | 0 | 709491 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 48719 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 779248 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 775 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 775 |
| IRS990/Desc | 0 | RESEARCH AND TRAVEL GRANTS. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 3 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 395000 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 7235 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 8975 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 16210 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 30.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | MARY E ODONNELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | DANTE BURCHI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | MARK SUTHERLAND |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | CHARLOTTE HAFFNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | ADRIENNE MOLTENI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | DAN LENIHAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | LORI LAWTER |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 56160 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT/CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | CHIEF FINANCIAL OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2003 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 0 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 63728 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 40629 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 7 |
| IRS990/GrantAmt | 0 | 395000 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 395000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 395000 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 191793 |
| IRS990/GrossReceiptsAmt | 0 | 930412 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 7 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 157 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 210 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 2259 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2626 |
| IRS990/InvestmentExpenseAmt | 0 | -8476 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 17331 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 17331 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 773961 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 783581 |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 107261 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 3294 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 2519 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 109780 |
| IRS990/LegalDomicileStateCd | 0 | MI |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 151164 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE ORGANIZATIONS MISSION IS TO INCREASE EDUCATION AND AWARENESS OF AMYLOIDOSIS, TO ASSIST PATIENTS IN FINDING QUALIFIED MEDICAL CARE AND TO SUPPORT RESEARCH. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 941424 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1052322 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 40629 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 40629 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 63728 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 63728 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 49617 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 941424 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1052322 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 948 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 1265 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 13594 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 15807 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 110 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 146 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 2574 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 2830 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | PATIENT SERVICES |
| IRS990/OtherExpensesGrp/Desc | 1 | BANK AND CREDIT CARD FE |
| IRS990/OtherExpensesGrp/Desc | 2 | PRINTING AND COPYING |
| IRS990/OtherExpensesGrp/Desc | 3 | POSTAGE |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 5334 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 978 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 355 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1865 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 1303 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 474 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 41848 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 11546 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 14020 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 12952 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 41848 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 18745 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 16301 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 13781 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 14245 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 14333 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 74298 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 102876 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 1949 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 3244 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 6973 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 12166 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | MARY ODONNELL |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | EXHIBIT AT MEDICAL CONFERENCES AND RAISE AWARENESS OF AMYLOIDOSIS THROUGHOUT THE WORLD. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 162718 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | PATIENT SUPPORT SERVICES AND PUBLIC EDUCATION. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 41848 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 676410 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 263273 |
| IRS990/PYInvestmentIncomeAmt | 0 | 8716 |
| IRS990/PYOtherExpensesAmt | 0 | 155104 |
| IRS990/PYOtherRevenueAmt | 0 | 8740 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 102274 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 173215 |
| IRS990/PYTotalExpensesAmt | 0 | 591592 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 693866 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 69757 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 721288 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 675990 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 617886 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 532968 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 747947 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 3296079 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 17331 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 14707 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 10102 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 8030 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 7689 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 57859 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.98270 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.98770 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 3296079 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 721288 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 675990 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 617886 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 532968 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 747947 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 3296079 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 3353938 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 709491 |
| IRS990ScheduleD/InvestmentExpensesNotIncldAmt | 0 | 8476 |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 49617 |
| IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt | 0 | 2519 |
| IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt | 0 | 107261 |
| IRS990ScheduleD/OtherLandBuildingsGrp/InvestmentCostOrOtherBasisAmt | 0 | 109780 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 49617 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 8476 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 770772 |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 2519 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 709491 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 779248 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 820389 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 709491 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | JEFF BRENNA GOLF OUTING |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | VIRTUAL 5K RUN |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 18793 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 15500 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 29435 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 63728 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 18793 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 15500 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 29435 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 63728 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 63728 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt | 0 | 11 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 25000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 100000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 20000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 200000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 4 | 25000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 5 | 25000 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 0 | 0 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 1 | 0 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 2 | 0 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 3 | 0 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 4 | 0 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 5 | 0 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 3 | RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 4 | RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 5 | RESEARCH |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | MAYO CLINIC |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | COLUMBIA UNIVERSITY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | KARMANOS CANCER INSTITUTE |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 3 | WASHINGTON UNIVERSITY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 4 | BRIGHAM & WOMENS HOSPITAL |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 5 | UNIVERSITY OF PENNSYLVANIA |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 410944601 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 800496512 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 381613280 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 3 | 430653611 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 4 | 043230035 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 5 | 231352685 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 200 FIRST ST SW |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 622 WEST 167TH ST |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | 4100 JOHN R |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 3 | 200 ROSEDALE AVE BOX 1000 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 4 | 73 FRANCIS ST |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 5 | 3400 CIVIC CENTER DR |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | ROCHESTER |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | NEW YORK |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | DETROIT |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 3 | ST LOUIS |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 4 | BOSTON |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 5 | PHILADELPHIA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | MN |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 2 | MI |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 3 | MO |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 4 | MA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 5 | PA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 55905 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 10032 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 2 | 48201 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 3 | 63112 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 4 | 02115 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 5 | 19104 |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 0 | THE FOUNDATION REQUIRES REGULAR UPDATES AND PROGRESS REPORTS FROM EACH GRANT RECIPIENT INCLUDING EXPENSE STATUS. |
| IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART I, LINE 2: |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE FORM 990 IS ELECTRONICALLY TRANSFERED TO ALL BOARD MEMBERS PRIOR TO FILING, REQUESTING QUESTIONS AND /OR COMMENTS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | ON A YEARLY BASIS THE BOARD MEMBERS ARE TO REVIEW THE CONFLICT OF INTEREST POLICY AND SIGN SUCH A DOCUMENT. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | DETERMINATION OF OFFICER COMPENSATION IS INITIATED BY A MEMBER OF THE BOARD AND VOTED ON BY THE BOARD. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | FINANCIAL STATEMENTS ARE AVAILABLE ON LINE VIA GUIDESTAR. THE GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION B, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION B, LINE 15 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990/SchoolOperatingInd | 0 | 0 |
| IRS990/SignificantChangeInd | 0 | 0 |
| IRS990/SignificantNewProgramSrvcInd | 0 | 0 |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | MI |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | 0 |
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Displayed year
2021 • Form 990Detailed filing. Detailed filing data is available for this year.
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