Liabilities / Assets
38th percentile
Higher debt load relative to assets than 38% of similar nonprofits.
990 • Fiscal year 2020 • EIN 20-0291856
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
38th percentile
Higher debt load relative to assets than 38% of similar nonprofits.
Liabilities / Revenue
38th percentile
Higher debt load relative to revenue than 38% of similar nonprofits.
Net Margin
64th percentile
Higher net margin than 64% of similar nonprofits.
Top Officer Pay
69th percentile
Higher top officer pay than 69% of similar nonprofits.
Top officer pay equals 8.1% of source-year revenue.
Asset Growth
72nd percentile
Faster asset growth than 72% of similar nonprofits.
Revenue Growth
43rd percentile
Faster revenue growth than 43% of similar nonprofits.
Assets
Up$951,168
Up $194,348 (+26%) from 2019
Net Assets
Up$941,424
Up $200,664 (+27%) from 2019
Liabilities
Down$9,744
Down $6,316 (-39%) from 2019
Revenue
Down$693,866
Down $43,888 (-5.9%) from 2019
Expenses
Down$591,592
Down $92,800 (-14%) from 2019
Net Income
Up$102,274
Up $48,912 (+92%) from 2019
The organizations mission is to increase education and awareness of amyloidosis, to assist patients in finding qualified medical care and to support research.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $662,434 | $773,961 | ▲ $111,527 |
| Cash and Non-Interest-Bearing Accounts | $85,658 | $173,913 | ▲ $88,255 |
| Land, Buildings, and Equipment, Net | $8,728 | $3,294 | ▼ $5,434 |
| Total Assets | $756,820 | $951,168 | ▲ $194,348 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $16,060 | $9,744 | ▼ $6,316 |
| Total Liabilities | $16,060 | $9,744 | ▼ $6,316 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $740,760 | $941,424 | ▲ $200,664 |
| Total Net Assets Fund Balance | $740,760 | $941,424 | ▲ $200,664 |
| Total Liabilities and Net Assets / Fund Balance | $756,820 | $951,168 | ▲ $194,348 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $3,294 | $106,486 | - |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Mary E Odonnell | President/CEO | PT | $56,376 | $56,376 |
| Name | Title |
|---|---|
| Adrienne Molteni | Director |
| Charlotte Haffner | Director |
| Dan Lenihan | Director |
| Lori Lawter | Director |
| Mark Sutherland | Chief Financial Officer |
| Dante Burchi | Treasurer |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $263,273 |
| Salaries, Compensation, and Employee Benefits | $173,215 |
| Other Expenses | $155,104 |
| Total Fundraising Expense | $37,788 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $263,273 | - | - | $263,273 |
| Other Salaries and Wages | $114,010 | $1,885 | $944 | $116,839 |
| Current Officers, Directors, Trustees, and Key Employees | $16,913 | $28,188 | $11,275 | $56,376 |
| Fees for Services Other | - | $8,790 | $8,013 | $16,803 |
| Occupancy | $6,676 | $4,688 | $2,841 | $14,205 |
| All Other Expenses | $7,736 | $1,366 | $1,733 | $10,835 |
| Other Expenses | $7,190 | $1,541 | $1,921 | $10,652 |
| Depreciation Depletion | - | $9,369 | - | $9,369 |
| Travel | $4,177 | - | - | $4,177 |
| Insurance | - | $2,535 | - | $2,535 |
| Office Expenses | $791 | $720 | $680 | $2,191 |
| Advertising | $990 | - | - | $990 |
| Total Functional Expenses | $488,667 | $65,137 | $37,788 | $591,592 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $608,973 |
| Expenses per Audited Statements | $591,592 |
| Total Expenses per Form 990 | $591,592 |
| Expenses Not Reported on Form 990 | $17,381 |
| Expenses Not Reported on Financial Statements | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Columbia University | New York, NY | - | Research | $125,000 |
| Brigham & Womens Hospital | Boston, MA | - | Research | $25,000 |
| Johns Hopkins | Baltimore, MD | - | Research | $25,000 |
| Yale | New Haven, CT | - | Research | $25,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $11,987 |
| Fundraising Direct Expenses | $3,247 |
| Professional Fundraising Fees | $0 |
“The form 990 is electronically transfered to all board members prior to filing, requesting questions and /or comments.”
“On a yearly basis the board members are to review the conflict of interest policy and sign such a document.”
“Determination of officer compensation is initiated by a member of the board and voted on by the board.”
“Financial statements are available on line via guidestar. The governing documents and conflict of interest policy are available upon request.”
“The audit commitee review process has not been changed.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 16060 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 9744 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | THE ORGANIZATIONS MISSION IS TO INCREASE EDUCATION AND AWARENESS OF AMYLOIDOSIS, TO ASSIST PATIENTS IN FINDING QUALIFIED MEDICAL CARE AND TO SUPPORT RESEARCH. |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 990 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 990 |
| IRS990/AllOtherContributionsAmt | 0 | 645530 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 1733 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1366 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 7736 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 10835 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | MARY ODONNELL |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2489229610 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 7151 NORTH MAIN STREET |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | CLARKSTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MI |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 48346 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 85658 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 173913 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 11275 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 28188 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 16913 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 56376 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 676410 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 263273 |
| IRS990/CYInvestmentIncomeAmt | 0 | 8716 |
| IRS990/CYOtherExpensesAmt | 0 | 155104 |
| IRS990/CYOtherRevenueAmt | 0 | 8740 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 102274 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 173215 |
| IRS990/CYTotalExpensesAmt | 0 | 591592 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 37788 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 693866 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 9369 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 9369 |
| IRS990/Desc | 0 | RESEARCH AND TRAVEL GRANTS. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 3 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 263273 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 8013 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 8790 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 16803 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 30.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | MARY E ODONNELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | DANTE BURCHI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | MARK SUTHERLAND |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | CHARLOTTE HAFFNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | ADRIENNE MOLTENI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | DAN LENIHAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | LORI LAWTER |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 56376 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT/CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | CHIEF FINANCIAL OFFICER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2003 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 0 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 3247 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 11987 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | -5991 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 7 |
| IRS990/GovernmentGrantsAmt | 0 | 30880 |
| IRS990/GrantAmt | 0 | 263273 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 263273 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 263273 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 144946 |
| IRS990/GrossReceiptsAmt | 0 | 848050 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 7 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 2535 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2535 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 14707 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 14707 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 662434 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 773961 |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 106486 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 8728 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 3294 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 109780 |
| IRS990/LegalDomicileStateCd | 0 | MI |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 150937 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE ORGANIZATIONS MISSION IS TO INCREASE EDUCATION AND AWARENESS OF AMYLOIDOSIS, TO ASSIST PATIENTS IN FINDING QUALIFIED MEDICAL CARE AND TO SUPPORT RESEARCH. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 740760 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 941424 |
| IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt | 0 | -5991 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | -5991 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 8740 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 8740 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 81009 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 740760 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 941424 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 2841 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 4688 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 6676 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 14205 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 680 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 720 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 791 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 2191 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | PATIENT SERVICES |
| IRS990/OtherExpensesGrp/Desc | 1 | BANK AND CREDIT CARD FE |
| IRS990/OtherExpensesGrp/Desc | 2 | PRINTING AND COPYING |
| IRS990/OtherExpensesGrp/Desc | 3 | POSTAGE |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 10381 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 0 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 3 | 1921 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 6008 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 47 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 1541 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 46291 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 5581 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 15039 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 7190 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 46291 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 21970 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 15086 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 10652 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 944 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 1885 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 114010 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 116839 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | MARY ODONNELL |
| IRS990/PriorPeriodAdjustmentsAmt | 0 | 17381 |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | EXHIBIT AT MEDICAL CONFERENCES AND RAISE AWARENESS OF AMYLOIDOSIS THROUGHOUT THE WORLD. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 179103 |
| IRS990/ProgSrvcAccomActy2Grp/RevenueAmt | 0 | 0 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | PATIENT SUPPORT SERVICES AND PUBLIC EDUCATION. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 46291 |
| IRS990/ProgSrvcAccomActy3Grp/RevenueAmt | 0 | 0 |
| IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt | 0 | 0 |
| IRS990/ProgSrvcAccomActyOtherGrp/RevenueAmt | 0 | 0 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 617886 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 210000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 93212 |
| IRS990/PYOtherExpensesAmt | 0 | 311032 |
| IRS990/PYOtherRevenueAmt | 0 | 26656 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 53362 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 163360 |
| IRS990/PYTotalExpensesAmt | 0 | 684392 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 737754 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 102274 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 675990 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 617886 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 532968 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 747947 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 705124 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 3279915 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 14707 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 10102 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 8030 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 7689 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 471 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 40999 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.98770 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.98600 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 3279915 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 675990 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 617886 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 532968 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 747947 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 705124 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 3279915 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 3320914 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 17381 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 591592 |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 81009 |
| IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt | 0 | 3294 |
| IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt | 0 | 106486 |
| IRS990ScheduleD/OtherLandBuildingsGrp/InvestmentCostOrOtherBasisAmt | 0 | 109780 |
| IRS990ScheduleD/PriorYearAdjustmentsAmt | 0 | 17381 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 81009 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 693866 |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 3294 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 591592 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 693866 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 774875 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 608973 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 125000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 25000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 25000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 25000 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 3 | RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 4 | RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 5 | RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 6 | RESEARCH |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | COLUMBIA UNIVERSITY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | JOHNS HOPKINS |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | BRIGHAM & WOMENS HOSPITAL |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 3 | YALE |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 800496512 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 520595110 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 043230035 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 3 | 060332975 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 622 WEST 167TH ST |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 733 N BROADWAY |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | 73 FRANCIS ST |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 3 | PO BOX 1873 |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | NEW YORK |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | BALTIMORE |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | BOSTON |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 3 | NEW HAVEN |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | MD |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 2 | MA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 3 | CT |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 10032 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 21205 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 2 | 02115 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 3 | 06508 |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 0 | THE FOUNDATION REQUIRES REGULAR UPDATES AND PROGRESS REPORTS FROM EACH GRANT RECIPIENT INCLUDING EXPENSE STATUS. |
| IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART I, LINE 2: |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE FORM 990 IS ELECTRONICALLY TRANSFERED TO ALL BOARD MEMBERS PRIOR TO FILING, REQUESTING QUESTIONS AND /OR COMMENTS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | ON A YEARLY BASIS THE BOARD MEMBERS ARE TO REVIEW THE CONFLICT OF INTEREST POLICY AND SIGN SUCH A DOCUMENT. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | DETERMINATION OF OFFICER COMPENSATION IS INITIATED BY A MEMBER OF THE BOARD AND VOTED ON BY THE BOARD. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | FINANCIAL STATEMENTS ARE AVAILABLE ON LINE VIA GUIDESTAR. THE GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | THE AUDIT COMMITEE REVIEW PROCESS HAS NOT BEEN CHANGED. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION B, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION B, LINE 15 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PART XII, LINE 2C: |
| IRS990/SchoolOperatingInd | 0 | 0 |
| IRS990/SignificantChangeInd | 0 | 0 |
| IRS990/SignificantNewProgramSrvcInd | 0 | 0 |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | MI |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | 0 |
| IRS990/SubjectToProxyTaxInd | 0 | 0 |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | 0 |
| IRS990/TaxablePartyNotificationInd | 0 | 0 |
| IRS990/TaxExemptBondsInd | 0 | 0 |
| IRS990/TerminateOperationsInd | 0 | 0 |
| IRS990/TotalAssetsBOYAmt | 0 | 756820 |
| IRS990/TotalAssetsEOYAmt | 0 | 951168 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 756820 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 951168 |
| IRS990/TotalCompGreaterThan150KInd | 0 | 0 |
| IRS990/TotalContributionsAmt | 0 | 676410 |
| IRS990/TotalEmployeeCnt | 0 | 3 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 37788 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 65137 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 488667 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 591592 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 16060 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 9744 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 16060 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 9744 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 740760 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 941424 |
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Displayed year
2020 • Form 990Detailed filing. Detailed filing data is available for this year.
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