Civic Intelligence

Wilson Disease Association Intl

EIN 16-1154397 • 501(c)3 • New York, NY

Profile

To provide support and assistance to individuals with wilson's disease and aid in research for treatment.

224W 35th St Ste 500 676New York, NY 10001

www.wilsondisease.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

36th percentile

0.00x

Higher debt load relative to assets than 36% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

36th percentile

0.00x

Higher debt load relative to revenue than 36% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

67th percentile

14%

Higher net margin than 67% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

68th percentile

12%

Faster asset growth than 68% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

97th percentile

232%

Faster revenue growth than 97% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Assets

Up

$616,215

Up $68,247 (+12%) from 2023

Liabilities

Down

$622

Down $48,479 (-99%) from 2023

Net Assets

Up

$615,593

Up $116,726 (+23%) from 2023

Revenue

Up

$784,791

Up $548,735 (+232%) from 2023

Expenses

Up

$672,451

Up $472,233 (+236%) from 2023

Net Income

Up

$112,340

Up $76,502 (+213%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.5M$1.0M$500K$0Assets 2010: $138,516Liabilities 2010: $624Net Assets 2010: $137,8922010Assets 2011: $185,846Liabilities 2011: $2172011Assets 2012: $249,640Liabilities 2012: $9112012Assets 2013: $243,445Liabilities 2013: $02013Assets 2014: $292,281Liabilities 2014: $4502014Assets 2015: $380,474Liabilities 2015: $7702015Assets 2016: $665,746Liabilities 2016: $204Net Assets 2016: $665,5422016Assets 2017: $735,713Liabilities 2017: $526Net Assets 2017: $735,1872017Assets 2018: $898,220Liabilities 2018: $36,952Net Assets 2018: $861,2682018Assets 2019: $838,276Liabilities 2019: $9,456Net Assets 2019: $828,8202019Assets 2020: $1,390,290Liabilities 2020: $41,185Net Assets 2020: $1,349,1052020Assets 2021: $361,542Liabilities 2021: $3,101Net Assets 2021: $358,4412021Assets 2022: $460,855Liabilities 2022: $4,396Net Assets 2022: $456,4592022Assets 2023: $547,968Liabilities 2023: $49,101Net Assets 2023: $498,8672023Assets 2024: $616,215Liabilities 2024: $622Net Assets 2024: $615,5932024

Highlighted filing

2024

Assets$616,215
Liabilities$622
Net Assets$615,593

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$2.0M$1.0M$0-$1.0MRevenue 2010: $126,577Expenses 2010: $103,889Net Income 2010: $22,6882010Revenue 2011: $85,381Expenses 2011: $32,285Net Income 2011: $53,0962011Revenue 2012: $108,517Expenses 2012: $52,985Net Income 2012: $55,5322012Revenue 2013: $113,419Expenses 2013: $129,705Net Income 2013: -$16,2862013Revenue 2014: $90,381Expenses 2014: $40,470Net Income 2014: $49,9112014Revenue 2015: $178,530Expenses 2015: $77,510Net Income 2015: $101,0202015Revenue 2016: $341,008Expenses 2016: $60,111Net Income 2016: $280,8972016Revenue 2017: $319,052Expenses 2017: $260,040Net Income 2017: $59,0122017Revenue 2018: $724,960Expenses 2018: $592,608Net Income 2018: $132,3522018Revenue 2019: $856,741Expenses 2019: $904,722Net Income 2019: -$47,9812019Revenue 2020: $714,610Expenses 2020: $199,454Net Income 2020: $515,1562020Revenue 2021: $335,326Expenses 2021: $1,315,468Net Income 2021: -$980,1422021Revenue 2022: $655,804Expenses 2022: $537,994Net Income 2022: $117,8102022Revenue 2023: $236,056Expenses 2023: $200,218Net Income 2023: $35,8382023Revenue 2024: $784,791Expenses 2024: $672,451Net Income 2024: $112,3402024

Highlighted filing

2024

Revenue$784,791
Expenses$672,451
Net Income$112,340

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.62$0.00$0.62$0.78$0.67$0.11
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.55$0.05$0.50$0.24$0.20$0.04
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.46$0.00$0.46$0.66$0.54$0.12
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.36$0.00$0.36$0.34$1.32$0.98
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.39$0.04$1.35$0.71$0.20$0.52
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.84$0.01$0.83$0.86$0.90$0.05
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.90$0.04$0.86$0.72$0.59$0.13
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.74$0.00$0.74$0.32$0.26$0.06
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.67$0.00$0.67$0.34$0.06$0.28
2015Summary only. Only limited summary data is available for this year.$0.38$0.00$0.18$0.08$0.10
2014Summary only. Only limited summary data is available for this year.$0.29$0.00$0.09$0.04$0.05
2013Summary only. Only limited summary data is available for this year.$0.24$0.00$0.11$0.13$0.02
2012Summary only. Only limited summary data is available for this year.$0.25$0.00$0.11$0.05$0.06
2011Summary only. Only limited summary data is available for this year.$0.19$0.00$0.09$0.03$0.05
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.14$0.00$0.14$0.13$0.10$0.02
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 17, 2025
Return Version
2024v5.2
Gross Receipts
$784,791
Mission and Program Overview

Mission

To provide support and assistance to individuals with wilson's disease and aid in research for treatment.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$62,844$269,539▲ $206,695
Cash and Non-Interest-Bearing Accounts$362,354$207,255▼ $155,099
Investments in Publicly Traded Securities$95,707$103,387▲ $7,680
Accounts Receivable$6,497$33,949▲ $27,452
Land, Buildings, and Equipment, Net-$837-
Pledges and Grants Receivable$20,000$735▼ $19,265
Prepaid Expenses and Deferred Charges$566$513▼ $53
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$547,968$616,215▲ $68,247
Other Assets Total-$0-
Liabilities
Accounts Payable and Accrued Expenses$49,101$621▼ $48,480
Other Liabilities-$1-
Total Liabilities$49,101$622▼ $48,479
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$296,569$373,218▲ $76,649
Net Assets With Donor Restrictions$202,298$242,375▲ $40,077
Total Net Assets Fund Balance$498,867$615,593▲ $116,726
Total Liabilities and Net Assets / Fund Balance$547,968$616,215▲ $68,247

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$837$209$1,046
Compensation and Service Providers

Board Members and Trustees

NameTitle
Rhonda RowlandPresident
Alice WilliamsDirector
Carly AbramsonDirector
Edward TaborDirector
Jean PerogDirector
Lana Maria EscamillaDirector
Rachel AlbertDirector
Steve WalshDirector
Zulma LombardoSecretary
Carol TerryTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$760,291
Program Service Revenue
$7,675
Investment Income
$16,825
Other Revenue
$0
All Other Contributions
$752,048
Change in Net Assets
$112,340

Audited Revenue Reconciliation

Revenue per Audited Statements
$784,791
Total Revenue per Audited Statements
$784,791
Total Revenue per Form 990
$784,791
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$668,931
Total Fundraising Expense$28,624
Salaries, Compensation, and Employee Benefits$3,520
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$71,765--$71,765
Fees for Services Accounting-$20,583-$20,583
Information Technology$11,368-$4,455$15,823
Other Expenses$10,000$17,857$21,428$10,000
All Other Expenses$4,900$106$1,685$6,691
Advertising$4,071--$4,071
Other Salaries and Wages$1,471$817$981$3,269
Fees for Services Other$2,094$982-$3,076
Travel$2,537--$2,537
Insurance$2,247--$2,247
Office Expenses$406$1,181-$1,587
Payroll Taxes$113$63$75$251
Depreciation Depletion$209--$209
Total Functional Expenses$602,238$41,589$28,624$672,451

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$672,451
Total Expenses per Audited Statements$672,451
Total Expenses per Form 990$672,451
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Rounding$1
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 6

The organization has members.

Form 990, Part VI, Section A, Line 7A

Organization members elect board members.

Form 990, Part VI, Section A, Line 7B

Organization's members approved changes to the Bylaws that allow the Board to approve changes to the By-laws.

Form 990, Part VI, Section B, Line 11B

All Board Members are provided the Form 990 for review and approval prior to filing.

Form 990, Part VI, Section B, Line 12C

All Board Members are required annually to report any conflicts.

Form 990, Part VI, Section C, Line 19

All related documents are provided upon request.

Filing and Contact Details

Filer

Filer Name
Wilson Disease Association
EIN
16-1154397
Phone
4149610533
Address
224W 35th St Ste 500 676, New York, NY 10001

Signing Officer

Name
Carol Terry
Title
Treasurer
Phone
7576377163
Signed
2025-11-17
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Carol Terry
Formed
1983
Legal Domicile
Ny
Voting Board Members
10
Independent Board Members
10
Employees
1
Volunteers
25

Preparer

Firm
W Stevens LLP
Address
9485 E 191st St, Noblesville, IN 46060
Preparer
Wendy Stevens CPA
Phone
3172819063
Raw XML AppendixShowing 400 of 471 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt049101
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt0621
IRS990/AccountsReceivableGrp/BOYAmt06497
IRS990/AccountsReceivableGrp/EOYAmt033949
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0TO PROVIDE SUPPORT AND ASSISTANCE TO INDIVIDUALS WITH WILSON'S DISEASE AND AID IN RESEARCH FOR TREATMENT.
IRS990/AdvertisingGrp/ProgramServicesAmt04071
IRS990/AdvertisingGrp/TotalAmt04071
IRS990/AllOtherContributionsAmt0752048
IRS990/AllOtherExpensesGrp/FundraisingAmt01685
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt0106
IRS990/AllOtherExpensesGrp/ProgramServicesAmt04900
IRS990/AllOtherExpensesGrp/TotalAmt06691
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/AuditCommitteeInd0true
IRS990/BackupWthldComplianceInd0false
IRS990/BenefitsToMembersGrp/TotalAmt00
IRS990/BooksInCareOfDetail/PersonNm0Carol Terry
IRS990/BooksInCareOfDetail/PhoneNum04149610533
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt02 Fenwick Rd Apt 104
IRS990/BooksInCareOfDetail/USAddress/CityNm0Hampton
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0VA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd023651
IRS990/BusinessRlnWith35CtrlEntInd0false
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0362354
IRS990/CashNonInterestBearingGrp/EOYAmt0207255
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt00
IRS990/CompDisqualPersonsGrp/TotalAmt00
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0false
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt071765
IRS990/ConferencesMeetingsGrp/TotalAmt071765
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0760291
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt016825
IRS990/CYOtherExpensesAmt0668931
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt07675
IRS990/CYRevenuesLessExpensesAmt0112340
IRS990/CYSalariesCompEmpBnftPaidAmt03520
IRS990/CYTotalExpensesAmt0672451
IRS990/CYTotalFundraisingExpenseAmt028624
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0784791
IRS990/DAFExcessBusinessHoldingsInd0false
IRS990/DecisionsSubjectToApprovaInd0true
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/ProgramServicesAmt0209
IRS990/DepreciationDepletionGrp/TotalAmt0209
IRS990/Desc0SUPPORT OF RESEARCH THROUGH THE WILSON DISEASE PATIENT REGISTRY
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DistributionToDonorInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DonorAdvisedFundInd0false
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt0202298
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt0242375
IRS990/DonorRstrOrQuasiEndowmentsInd0false
IRS990/ElectionOfBoardMembersInd0true
IRS990/EmployeeCnt01
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt0435615
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt020583
IRS990/FeesForServicesAccountingGrp/TotalAmt020583
IRS990/FeesForServicesLegalGrp/TotalAmt00
IRS990/FeesForServicesLobbyingGrp/TotalAmt00
IRS990/FeesForServicesManagementGrp/TotalAmt00
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt0982
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt02094
IRS990/FeesForServicesOtherGrp/TotalAmt03076
IRS990/FeesForServicesProfFundraising/TotalAmt00
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt00
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/TotalAmt00
IRS990/ForeignOfficeInd0false
IRS990/Form1098CFiledInd0false
IRS990/Form8282FiledCnt00
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form8899Filedind0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt70.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt80.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt90.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt010.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt110.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt210.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt320.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt410.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt510.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt610.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt735.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt840.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt910.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/PersonNm0Jean Perog
IRS990/Form990PartVIISectionAGrp/PersonNm1Steve Walsh
IRS990/Form990PartVIISectionAGrp/PersonNm2Rachel Albert
IRS990/Form990PartVIISectionAGrp/PersonNm3Alice Williams
IRS990/Form990PartVIISectionAGrp/PersonNm4Edward Tabor
IRS990/Form990PartVIISectionAGrp/PersonNm5Lana Maria Escamilla
IRS990/Form990PartVIISectionAGrp/PersonNm6Carly Abramson
IRS990/Form990PartVIISectionAGrp/PersonNm7Carol Terry
IRS990/Form990PartVIISectionAGrp/PersonNm8Rhonda Rowland
IRS990/Form990PartVIISectionAGrp/PersonNm9Zulma Lombardo
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/TitleTxt0Director
IRS990/Form990PartVIISectionAGrp/TitleTxt1Director
IRS990/Form990PartVIISectionAGrp/TitleTxt2Director
IRS990/Form990PartVIISectionAGrp/TitleTxt3Director
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director
IRS990/Form990PartVIISectionAGrp/TitleTxt5Director
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990PartVIISectionAGrp/TitleTxt7Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt8President
IRS990/Form990PartVIISectionAGrp/TitleTxt9Secretary
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr01983
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0false
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt010
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt00
IRS990/GrantsToDomesticOrgsGrp/TotalAmt00
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0false
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0784791
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt00
IRS990/IndependentAuditFinclStmtInd0true
IRS990/IndependentVotingMemberCnt010
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt04455
IRS990/InformationTechnologyGrp/ProgramServicesAmt011368
IRS990/InformationTechnologyGrp/TotalAmt015823
IRS990/InsuranceGrp/ProgramServicesAmt02247
IRS990/InsuranceGrp/TotalAmt02247
IRS990/IntangibleAssetsGrp/EOYAmt00
IRS990/InterestGrp/TotalAmt00
IRS990/InventoriesForSaleOrUseGrp/EOYAmt00
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt016825
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt016825
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt00
IRS990/InvestmentsProgramRelatedGrp/EOYAmt00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt095707
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0103387
IRS990/IRPDocumentCnt07
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0209
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0837
IRS990/LandBldgEquipCostOrOtherBssAmt01046
IRS990/LegalDomicileStateCd0NY
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembershipDuesAmt08243
IRS990/MembersOrStockholdersInd0true
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0TO PROVIDE SUPPORT AND ASSISTANCE TO INDIVIDUALS WITH WILSON'S DISEASE AND AID IN RESEARCH FOR TREATMENT.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NameChangeInd0X
IRS990/NetAssetsOrFundBalancesBOYAmt0498867
IRS990/NetAssetsOrFundBalancesEOYAmt0615593
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt00
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt04386
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0296569
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0373218
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/TotalAmt00
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01181
IRS990/OfficeExpensesGrp/ProgramServicesAmt0406
IRS990/OfficeExpensesGrp/TotalAmt01587
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/EOYAmt00
IRS990/OtherEmployeeBenefitsGrp/TotalAmt00
IRS990/OtherExpensesGrp/Desc0Patient Registry
IRS990/OtherExpensesGrp/Desc1Subcontractors
IRS990/OtherExpensesGrp/Desc2Research - Other
IRS990/OtherExpensesGrp/Desc3MAP - Product Donation
IRS990/OtherExpensesGrp/FundraisingAmt021428
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt017857
IRS990/OtherExpensesGrp/ProgramServicesAmt0435615
IRS990/OtherExpensesGrp/ProgramServicesAmt132142
IRS990/OtherExpensesGrp/ProgramServicesAmt223300
IRS990/OtherExpensesGrp/ProgramServicesAmt310000
IRS990/OtherExpensesGrp/TotalAmt0435615
IRS990/OtherExpensesGrp/TotalAmt171427
IRS990/OtherExpensesGrp/TotalAmt223300
IRS990/OtherExpensesGrp/TotalAmt310000
IRS990/OtherLiabilitiesGrp/EOYAmt01
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0981
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0817
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt01471
IRS990/OtherSalariesAndWagesGrp/TotalAmt03269
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt075
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt063
IRS990/PayrollTaxesGrp/ProgramServicesAmt0113
IRS990/PayrollTaxesGrp/TotalAmt0251
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt020000
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0735
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0566
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0513
IRS990/PrincipalOfficerNm0Carol Terry
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/BusinessCd0611710
IRS990/ProgramServiceRevenueGrp/Desc0Rare Affair
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt07675
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt07675
IRS990/ProgSrvcAccomActy2Grp/Desc0MAINTAIN INFORMATIVE WEBSITE, PROVIDE MEDICATION ASSISTANCE, PUBLISH/MAIL NEWSLETTERS. SUPPORT LOCAL PATIENT MEETINGS. ANNUAL CONFERENCE FOR PATIENTS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0166623
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt0425184
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0195903
IRS990/PYExcessBenefitTransInd0false
IRS990/PYInvestmentIncomeAmt03153
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0108695
IRS990/PYProgramServiceRevenueAmt037000
IRS990/PYRevenuesLessExpensesAmt035838
IRS990/PYSalariesCompEmpBnftPaidAmt091523
IRS990/PYTotalExpensesAmt0200218
IRS990/PYTotalRevenueAmt0236056
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt0112340
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0true
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt0342781
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt062844
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0269539
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0767966
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0195903
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0651037
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0233931
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0670761
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02519598
IRS990ScheduleA/GovtFurnSrvcFcltsVl170Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt016825
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt03153
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt02915
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt03599
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt03885
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt030377
IRS990ScheduleA/OtherIncome170Grp/TotalAmt00
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.98810
IRS990ScheduleA/PublicSupportPY170Pct00.98920
IRS990ScheduleA/PublicSupportTotal170Amt02519598
IRS990ScheduleA/SubstantialContributorsTotAmt00
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0767966
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0195903
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0651037
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0233931
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0670761
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02519598
IRS990ScheduleA/TotalSupportAmt02549975
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt00
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/EquipmentGrp/BookValueAmt0837
IRS990ScheduleD/EquipmentGrp/DepreciationAmt0209
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt01046
IRS990ScheduleD/ExpensesSubtotalAmt0672451
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt01
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0Rounding
IRS990ScheduleD/RevenueSubtotalAmt0784791
IRS990ScheduleD/TotalBookValueLandBuildingsAmt0837
IRS990ScheduleD/TotalExpensesPerForm990Amt0672451
IRS990ScheduleD/TotalLiabilityAmt01
IRS990ScheduleD/TotalRevenuePerForm990Amt0784791
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0784791
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0672451
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The organization has members.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Organization members elect board members.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Organization's members approved changes to the Bylaws that allow the Board to approve changes to the By-laws.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3All Board Members are provided the Form 990 for review and approval prior to filing.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4All Board Members are required annually to report any conflicts.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5All related documents are provided upon request.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, Line 6
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section A, Line 7a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section A, Line 7b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part VI, Section B, Line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Form 990, Part VI, Section C, Line 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0NY
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxableDistributionsInd0false

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 501(c)3 • $500k-$1M nonprofits