Civic Intelligence

National Association for Pseudoxanthoma Elasticum Inc

990EZ • Fiscal year 2017 • EIN 14-1704224

Jul 01, 2016 to Jun 30, 2017 • Filed on Nov 15, 2017

111 Oak Ridge DriveHawley, PA 18428

(570) 352-2536

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on this filing.

Source year 2017

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2017

Net Margin

97th percentile

82%

Higher net margin than 97% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Top Officer Pay

76th percentile

$0

Higher top officer pay than 76% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2017 filings • 501(c)3 • <$500k nonprofits • Source year 2017

Asset Growth

48th percentile

0.8%

Faster asset growth than 48% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Revenue Growth

93rd percentile

116%

Faster revenue growth than 93% of similar nonprofits.

2017 filings • 501(c)3 • <$500k nonprofits • Annualized from 2016 to 2017

Assets

Up

$489,579

Up $3,813 (+0.8%) from 2016

Net Assets

Up

$489,579

Up $3,813 (+0.8%) from 2016

Liabilities

-

No earlier filing loaded for comparison.

Revenue

Up

$4,663

Up $2,502 (+116%) from 2016

Expenses

Down

$850

Down $1,085 (-56%) from 2016

Net Income

Up

$3,813

Up $3,587 (+1587%) from 2016

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2010: $456,164Liabilities 2010: $0Net Assets 2010: $456,1642010Assets 2011: $441,893Liabilities 2011: $10Net Assets 2011: $441,8832011Assets 2012: $523,895Liabilities 2012: $10Net Assets 2012: $523,8852012Assets 2013: $508,712Liabilities 2013: $10Net Assets 2013: $508,7022013Assets 2016: $485,766Net Assets 2016: $485,7662016Assets 2017: $489,579Net Assets 2017: $489,5792017Assets 2018: $494,471Net Assets 2018: $494,4712018Assets 2019: $471,077Liabilities 2019: $0Net Assets 2019: $471,0772019Assets 2020: $456,423Liabilities 2020: $0Net Assets 2020: $456,4232020Assets 2021: $436,608Liabilities 2021: $0Net Assets 2021: $436,6082021Assets 2022: $413,537Liabilities 2022: $0Net Assets 2022: $413,5372022Assets 2023: $414,635Liabilities 2023: $25,000Net Assets 2023: $389,6352023Assets 2024: $402,953Liabilities 2024: $22,000Net Assets 2024: $380,9532024

Highlighted filing

2017

Assets$489,579
Liabilities-
Net Assets$489,579

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$150K$100K$50K$0-$50KRevenue 2010: $111,753Expenses 2010: $14,524Net Income 2010: $97,2292010Revenue 2011: $13,401Expenses 2011: $27,682Net Income 2011: -$14,2812011Revenue 2012: $109,077Expenses 2012: $27,075Net Income 2012: $82,0022012Expenses 2013: $18,9602013Revenue 2016: $2,161Expenses 2016: $1,935Net Income 2016: $2262016Revenue 2017: $4,663Expenses 2017: $850Net Income 2017: $3,8132017Revenue 2018: $5,480Expenses 2018: $588Net Income 2018: $4,8922018Revenue 2019: $3,156Expenses 2019: $26,550Net Income 2019: -$23,3942019Revenue 2020: $11,048Expenses 2020: $25,702Net Income 2020: -$14,6542020Revenue 2021: $4,492Expenses 2021: $24,307Net Income 2021: -$19,8152021Revenue 2022: $580Expenses 2022: $23,651Net Income 2022: -$23,0712022Revenue 2023: $3,274Expenses 2023: $27,176Net Income 2023: -$23,9022023Revenue 2024: $16,406Expenses 2024: $25,088Net Income 2024: -$8,6822024

Highlighted filing

2017

Revenue$4,663
Expenses$850
Net Income$3,813
Jump To
Filing Snapshot
Filing Period
Jul 1, 2016 to Jun 30, 2017
Signed
Nov 15, 2017
Return Version
2016v3.0
Gross Receipts
$4,663
Mission and Program Overview

Mission

To educate and inform those afflicted with pseudoxanthoma elasticum through newsletters, public meetings, and counseling services.

Program Services

DescriptionGrantsExpenses
PARTICIPATION IN CLASS ACTION LAWSUIT AGAINST AMERICAN MEDICAL ASSOCIATION, OTHER MEDICAL GROUPS, AND PATIENT ADVOCACY GROUPS IN OPPOSITION TO FEDERAL GOVERNMENT PATENTS ON HUMAN GENES RESULTING IN PROHIBITION OF PATENTING "NATURALLY OCCURRING HUMAN GENES". PARTICIPATED IN 'RARE DISEASE CONFERENCE', FUNDRAISING FOR VISION RESEARCH. OFFERS COUNSELING OF PATIENTS WITH THE DISEASE VIA TELEPHONE, MAIL, AND EMAIL. THE GROUP OPERATES A WEBSITE THAT OFFERS THE GENERAL PUBLIC INFORMATION ON THE DISEASE AND RESOURCES FOR THOSE AFFLICTED AS WELL AS A MEDICAL ADVISORY BOARD OF DOCTORS SO PATIENTS CAN BE REFERRED TO LOCAL DOCTORS.--
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
LENORE SEEUWENPresident/SePT$0--
ROSEMARY ATALLIANVice PresidePT$0--
GRANT ZEUGTreasurer-$0--
CLAUDIA MCCALLISTERDirector-$0--
LINDA ZEUGDirector-$0--
Filing and Contact Details

Filer

Filer Name
Natl Assoc for Pseudoxanthoma
EIN
14-1704224
Phone
5703522536
Address
111 OAK RIDGE DRIVE, HAWLEY, PA 18428

Signing Officer

Name
Lenore Seeuwen
Title
President/secretary
Phone
5703522536
Signed
2017-11-15
Discuss with paid preparer
Yes

Preparer

Firm
Beck Gogolski Poska & Co Inc
Address
914 CHURCH ST, HONESDALE, PA 18431
Preparer
Alfred D Beck CPA
Phone
5702534612
Supplemental Narrative

Additional Explanations

Form 990-ez, Part I, Line 16

Expenses business registration fee 100 total 100

Form 990-ez, Part II, Line 24

7,071 7,071 less accumulated depreciation 5,765 5,765 securities 3,296 3,506 total 4,602 4,812

Form 990-ez, Part III

To educate and inform those afflicted with pseudoxanthoma elasticum through newsletters, public meetings, and counseling services.

Form 990-ez, Part III, Line 28

Participation in class action lawsuit against american medical association, other medical groups, and patient advocacy groups in opposition to federal government patents on human genes resulting in prohibition of patenting "naturally occurring human genes". Participated in 'rare disease conference', fundraising for vision research. Offers counseling of patients with the disease via telephone, mail, and email. The group operates a website that offers the general public information on the disease and resources for those afflicted as well as a medical advisory board of doctors so patients can be referred to local doctors.

Raw XML Appendix145 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2TREASURER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3DIRECTOR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4DIRECTOR
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IRS990EZ/PrimaryExemptPurposeTxt0TO EDUCATE AND INFORM THOSE AFFLICTED WITH PSEUDOXANTHOMA ELASTICUM THROUGH NEWSLETTERS, PUBLIC MEETINGS, AND COUNSELING SERVICES.
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0PARTICIPATION IN CLASS ACTION LAWSUIT AGAINST AMERICAN MEDICAL ASSOCIATION, OTHER MEDICAL GROUPS, AND PATIENT ADVOCACY GROUPS IN OPPOSITION TO FEDERAL GOVERNMENT PATENTS ON HUMAN GENES RESULTING IN PROHIBITION OF PATENTING "NATURALLY OCCURRING HUMAN GENES". PARTICIPATED IN 'RARE DISEASE CONFERENCE', FUNDRAISING FOR VISION RESEARCH. OFFERS COUNSELING OF PATIENTS WITH THE DISEASE VIA TELEPHONE, MAIL, AND EMAIL. THE GROUP OPERATES A WEBSITE THAT OFFERS THE GENERAL PUBLIC INFORMATION ON THE DISEASE AND RESOURCES FOR THOSE AFFLICTED AS WELL AS A MEDICAL ADVISORY BOARD OF DOCTORS SO PATIENTS CAN BE REFERRED TO LOCAL DOCTORS.
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IRS990ScheduleA/FactsAndCircumstancesTestTxt0ALL OF THE ORGANIZATION'S SUPPORT USUALLY COMES FROM UNRELATED INDIVIDUALS OR PUBLIC COMPANIES. THERE HAS BEEN A RECENT DECLINE IN DONATIONS BUT THE ORGANIZATION IS HOPEFUL THAT DONATIONS WILL PICK UP ENABLING THEM TO ONCE AGAIN MEET THE SUPPORT TEST. THE ORGANIZATION REPRESENTS THE BROAD INTEREST OF THE PUBLIC BY DISSEMINATING INFORMATION TO INDIVIDUALS SUFFERING FROM PSEUDOXANTHOMA ELASTICUM THRU PUBLIC MEETINGS, COUNSELING SERVICES, AND THEIR WEBSITE.
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IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc2PART II, LINE 17B
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0EXPENSES BUSINESS REGISTRATION FEE 100 TOTAL 100
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt17,071 7,071 LESS ACCUMULATED DEPRECIATION 5,765 5,765 SECURITIES 3,296 3,506 TOTAL 4,602 4,812
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2TO EDUCATE AND INFORM THOSE AFFLICTED WITH PSEUDOXANTHOMA ELASTICUM THROUGH NEWSLETTERS, PUBLIC MEETINGS, AND COUNSELING SERVICES.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3PARTICIPATION IN CLASS ACTION LAWSUIT AGAINST AMERICAN MEDICAL ASSOCIATION, OTHER MEDICAL GROUPS, AND PATIENT ADVOCACY GROUPS IN OPPOSITION TO FEDERAL GOVERNMENT PATENTS ON HUMAN GENES RESULTING IN PROHIBITION OF PATENTING "NATURALLY OCCURRING HUMAN GENES". PARTICIPATED IN 'RARE DISEASE CONFERENCE', FUNDRAISING FOR VISION RESEARCH. OFFERS COUNSELING OF PATIENTS WITH THE DISEASE VIA TELEPHONE, MAIL, AND EMAIL. THE GROUP OPERATES A WEBSITE THAT OFFERS THE GENERAL PUBLIC INFORMATION ON THE DISEASE AND RESOURCES FOR THOSE AFFLICTED AS WELL AS A MEDICAL ADVISORY BOARD OF DOCTORS SO PATIENTS CAN BE REFERRED TO LOCAL DOCTORS.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990-EZ, PART I, LINE 16
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990-EZ, PART II, LINE 24
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990-EZ, PART III
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990-EZ, PART III, LINE 28
ReturnHeader/BuildTS02017-02-10 21:41:12Z
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ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt0ELASTICUM INC
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ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0914 CHURCH ST
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ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0PA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd018431
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ReturnHeader/PreparerPersonGrp/PreparationDt02017-11-15
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0ALFRED D BECK CPA
ReturnHeader/ReturnTs02017-11-15T12:09:39-05:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02016-07-01
ReturnHeader/TaxPeriodEndDt02017-06-30
ReturnHeader/TaxYr02016

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$4.03$0.22$3.81$0.16$0.25$0.09
2023Detailed filing. Detailed filing data is available for this year.$4.15$0.25$3.90$0.03$0.27$0.24
2022Detailed filing. Detailed filing data is available for this year.$4.14$0.00$4.14$0.01$0.24$0.23
2021Detailed filing. Detailed filing data is available for this year.$4.37$0.00$4.37$0.04$0.24$0.20
2020Detailed filing. Detailed filing data is available for this year.$4.56$0.00$4.56$0.11$0.26$0.15
2019Detailed filing. Detailed filing data is available for this year.$4.71$0.00$4.71$0.03$0.27$0.23
2018Detailed filing. Detailed filing data is available for this year.$4.94$4.94$0.05$0.01$0.05
2017Detailed filing. Detailed filing data is available for this year.$4.90$4.90$0.05$0.01$0.04
2016Detailed filing. Detailed filing data is available for this year.$4.86$4.86$0.02$0.02$0.00
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.09$0.00$5.09$0.19
2012Summary only. Only limited summary data is available for this year.$5.24$0.00$5.24$1.09$0.27$0.82
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.42$0.00$4.42$0.13$0.28$0.14
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.56$0.00$4.56$1.12$0.15$0.97