Civic Intelligence

Crohn'S & Colitis Foundation of America Inc

EIN 13-6193105 • 501(c)3 • New York, NY

Profile

For five decades, the crohn's & colitis foundation ("the foundation") has been dedicated to its mission of finding a cure for crohn's disease and ulcerative colitis and improving the quality of life of children and adults affected by these diseases. (see sched o).

733 Third Avenue 510New York, NY 10017

www.crohnscolitisfoundation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

88th percentile

0.94x

Higher debt load relative to assets than 88% of similar nonprofits.

501(c)3 • $100M-$250M nonprofits • Source year 2024

Liabilities / Revenue

58th percentile

0.56x

Higher debt load relative to revenue than 58% of similar nonprofits.

501(c)3 • $100M-$250M nonprofits • Source year 2024

Net Margin

43rd percentile

2.0%

Higher net margin than 43% of similar nonprofits.

501(c)3 • $100M-$250M nonprofits • Source year 2024

Top Officer Pay

69th percentile

$762,198

Higher top officer pay than 69% of similar nonprofits.

Top officer pay equals 0.9% of source-year revenue.

501(c)3 • $100M-$250M nonprofits • Source year 2024

Asset Growth

10th percentile

-6.2%

Faster asset growth than 10% of similar nonprofits.

501(c)3 • $100M-$250M nonprofits • Annualized from 2023 to 2024

Revenue Growth

41st percentile

4.2%

Faster revenue growth than 41% of similar nonprofits.

501(c)3 • $100M-$250M nonprofits • Annualized from 2023 to 2024

Assets

Down

$50,647,406

Down $3,352,718 (-6.2%) from 2023

Liabilities

Down

$47,415,737

Down $4,619,577 (-8.9%) from 2023

Net Assets

Up

$3,231,669

Up $1,266,859 (+64%) from 2023

Revenue

Up

$85,182,348

Up $3,417,100 (+4.2%) from 2023

Expenses

Down

$83,504,823

Down $3,033,156 (-3.5%) from 2023

Net Income

Up

$1,677,525

Up $6,450,256 (+135%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$60M$40M$20M$0Assets 2010: $22,788,526Liabilities 2010: $17,375,842Net Assets 2010: $5,412,6842010Assets 2011: $23,007,692Liabilities 2011: $16,795,118Net Assets 2011: $6,212,5742011Assets 2012: $23,629,249Liabilities 2012: $17,228,648Net Assets 2012: $6,400,6012012Assets 2013: $26,203,655Liabilities 2013: $17,088,116Net Assets 2013: $9,115,5392013Assets 2014: $32,021,379Liabilities 2014: $21,056,497Net Assets 2014: $10,964,8822014Assets 2015: $34,825,663Liabilities 2015: $24,310,087Net Assets 2015: $10,515,5762015Assets 2016: $40,336,506Liabilities 2016: $29,800,511Net Assets 2016: $10,535,9952016Assets 2017: $46,776,925Liabilities 2017: $36,200,067Net Assets 2017: $10,576,8582017Assets 2018: $46,583,088Liabilities 2018: $37,528,315Net Assets 2018: $9,054,7732018Assets 2019: $45,274,249Liabilities 2019: $36,455,900Net Assets 2019: $8,818,3492019Assets 2020: $55,619,176Liabilities 2020: $44,552,683Net Assets 2020: $11,066,4932020Assets 2021: $57,664,028Liabilities 2021: $46,264,034Net Assets 2021: $11,399,9942021Assets 2022: $57,441,645Liabilities 2022: $51,378,795Net Assets 2022: $6,062,8502022Assets 2023: $54,000,124Liabilities 2023: $52,035,314Net Assets 2023: $1,964,8102023Assets 2024: $50,647,406Liabilities 2024: $47,415,737Net Assets 2024: $3,231,6692024

Highlighted filing

2024

Assets$50,647,406
Liabilities$47,415,737
Net Assets$3,231,669

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$100M$50M$0-$50MExpenses 2010: $48,297,8422010Expenses 2011: $49,604,8722011Expenses 2012: $51,390,5802012Revenue 2013: $54,419,988Expenses 2013: $53,307,072Net Income 2013: $1,112,9162013Revenue 2014: $63,232,977Expenses 2014: $61,241,335Net Income 2014: $1,991,6422014Revenue 2015: $67,322,690Expenses 2015: $67,453,209Net Income 2015: -$130,5192015Revenue 2016: $70,777,945Expenses 2016: $70,904,201Net Income 2016: -$126,2562016Revenue 2017: $75,840,146Expenses 2017: $75,664,404Net Income 2017: $175,7422017Revenue 2018: $73,887,231Expenses 2018: $73,648,875Net Income 2018: $238,3562018Revenue 2019: $73,925,250Expenses 2019: $75,723,530Net Income 2019: -$1,798,2802019Revenue 2020: $76,220,042Expenses 2020: $75,670,117Net Income 2020: $549,9252020Revenue 2021: $78,027,022Expenses 2021: $78,323,556Net Income 2021: -$296,5342021Revenue 2022: $81,491,223Expenses 2022: $82,569,900Net Income 2022: -$1,078,6772022Revenue 2023: $81,765,248Expenses 2023: $86,537,979Net Income 2023: -$4,772,7312023Revenue 2024: $85,182,348Expenses 2024: $83,504,823Net Income 2024: $1,677,5252024

Highlighted filing

2024

Revenue$85,182,348
Expenses$83,504,823
Net Income$1,677,525

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$50.6$47.4$3.23$85.2$83.5$1.68
2023Summary only. Only limited summary data is available for this year.$54.0$52.0$1.96$81.8$86.5$4.77
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$57.4$51.4$6.06$81.5$82.6$1.08
2021Detailed filing. Detailed filing data is available for this year.$57.7$46.3$11.4$78.0$78.3$0.30
2020Summary only. Only limited summary data is available for this year.$55.6$44.6$11.1$76.2$75.7$0.55
2019Detailed filing. Detailed filing data is available for this year.$45.3$36.5$8.82$73.9$75.7$1.80
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$46.6$37.5$9.05$73.9$73.6$0.24
2017Summary only. Only limited summary data is available for this year.$46.8$36.2$10.6$75.8$75.7$0.18
2016Summary only. Only limited summary data is available for this year.$40.3$29.8$10.5$70.8$70.9$0.13
2015Detailed filing. Detailed filing data is available for this year.$34.8$24.3$10.5$67.3$67.5$0.13
2014Detailed filing. Detailed filing data is available for this year.$32.0$21.1$11.0$63.2$61.2$1.99
2013Detailed filing. Detailed filing data is available for this year.$26.2$17.1$9.12$54.4$53.3$1.11
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$23.6$17.2$6.40$51.4
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$23.0$16.8$6.21$49.6
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$22.8$17.4$5.41$48.3
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Feb 4, 2026
Return Version
2024v5.5
Gross Receipts
$105,303,732
Mission and Program Overview

Mission

FOR ALMOST FIVE DECADES, THE CROHN'S & COLITIS FOUNDATION of america ("CCFA") HAS BEEN DEDICATED TO ITS MISSION OF FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS AND IMPROVING THE QUALITY OF LIFE OF CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. CCFA HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD").

To cure crohn's disease and ulcerative colitis. (continued on schedule o)

Balance Sheet Detail
LineBeginningEndChange
Assets
Pledges and Grants Receivable$12,397,945$16,433,532▲ $4,035,587
Savings and Temporary Cash Investments$9,517,214$11,093,876▲ $1,576,662
Accounts Receivable$2,024,846$7,567,840▲ $5,542,994
Land, Buildings, and Equipment, Net$6,000,274$4,826,301▼ $1,173,973
Prepaid Expenses and Deferred Charges$1,281,499$1,248,306▼ $33,193
Investments in Publicly Traded Securities$12,848,228$967,721▼ $11,880,507
Loans From Officers Directors-$600,000-
Inventories for Sale or Use$328,281$302,774▼ $25,507
Investments Other Securities$581,681$240,754▼ $340,927
Total Assets$54,000,124$50,647,406▼ $3,352,718
Other Assets Total$9,020,156$7,966,302▼ $1,053,854
Liabilities
Grants Payable$30,248,553$28,564,769▼ $1,683,784
Other Liabilities$8,978,528$7,885,581▼ $1,092,947
Mortgage Notes Payable Secured by Investment Property$5,989,390--
Deferred Revenue$1,750,389$5,345,469▲ $3,595,080
Accounts Payable and Accrued Expenses$5,068,454$5,019,918▼ $48,536
Total Liabilities$52,035,314$47,415,737▼ $4,619,577
Net Assets / Fund Balance
Net Assets With Donor Restrictions$8,460,721$9,531,822▲ $1,071,101
Net Assets Without Donor Restrictions$-6,495,911$-6,300,153▲ $195,758
Total Net Assets Fund Balance$1,964,810$3,231,669▲ $1,266,859
Total Liabilities and Net Assets / Fund Balance$54,000,124$50,647,406▼ $3,352,718

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$4,498,181$5,808,482$10,306,663
Equipment$104,171$1,738,951$1,843,122
Leasehold Improvements$223,949$480,633$704,582
Other Assets Org$87,107--
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Michael OssoPresident/CEO(non-voting)FT$479,255$282,943$762,198
Alan MossChief Scientific OfficerFT$450,466$13,858$464,324
Rohit SuriChief Technology OfficerFT$304,578$78,567$383,145
Sharon LungrinChief Op. Off./chief Fin.FT$267,379$70,733$338,112
Marisa MayerChief Legal OfficerFT$259,396$76,835$336,231
Allison CoffeyChief Development OfficerFT$273,205$22,804$296,009
Christy DesantisChief Mktng. & Comm. Offcr.FT$256,701$26,914$283,615
Angela DobesVice President, Ibd PlexusFT$259,396$17,475$276,871
Laura WingateChief Edu. Supp. & Advoc. OfficerFT$219,544$43,880$263,424
Leana PatelVP, People & CultureFT$202,086$26,800$228,886
Sarah WeaverVP, Clinical Quality & InnovationFT$206,702$16,415$223,117
Jack MatarassoSVP, Digital MarketingFT$202,684$15,941$218,625
Chris FidykEvp, Business DevelopmentFT$213,952$4,083$218,035

Board Members and Trustees

NameTitle
Amber BackhausChairman (as of 03/2024)
Brent Polk MdChairman (thru 03/2024)
Peter Higgins Md Phd MscNsac Chair Elect
Annette MartinezTrustee
Armin RahmanianTrustee
Audra MillerTrustee
Chase CarpenterTrustee
Cheryl GuerinTrustee
David Rubin MdTrustee
Deborah CrawfordTrustee
John CapodilunoTrustee
Kelly Issokson MsrdcnscTrustee
Kevin HarlenTrustee
Lori Siegel RabinowitzTrustee
Rhonda BoldingTrustee
Tolulope Falaiye MdTrustee
Troy VollertsenTrustee
Andrew SternTrustee (as of 03/2024)
Becky FlahertyTrustee (as of 03/2024)
Douglas Wolf MdTrustee (as of 03/2024)
Megan Riehl PsydTrustee (as of 03/2024)
Noel BrownTrustee (as of 03/2024)
Rocio CastrillonTrustee (as of 03/2024)
Sandra Kim MdTrustee (as of 03/2024)
Jonathan RoseTrustee (as of 07/2024)
Alex FunderburgTrustee (thru 03/2024)
Frank RussomanoTrustee (thru 03/2024)
Joe MonkTrustee (thru 03/2024)
Mark Murray PhdTrustee (thru 03/2024)
Michele Kissous-huntTrustee (thru 03/2024)
Sean KelleyTrustee (thru 03/2024)
Nicholas UzlTrustee (thru 06/2024)
Jeffrey MittlemanSecretary (as of 03/2024)
Jodi YellenSecretary (thru 03/2024)
Daniel StoneTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Nagarro INCProject Support1737 N FIRST STREET SUITE 590, San Jose, CA 95112$2,510,209
Srijan Technologies USA INCWeb Development Services2430 HIGHWAY 34 BUILDING B SUITE, Manasquan, NJ 08736$1,686,221
Salesforcecom INCDatabase/it ServicesPO BOX 203141, Dallas, TX 75320$969,096
Rue Clair Digital LLC Dba Streetlight DiMarketing ServicesPO BOX 75, Conifer, CO 80433$959,576
Deloitte Consulting LLPIt Support4022 BELLE DRIVE, Hermintage, TN 37076$733,714
Revenue and Support

Revenue Composition

Contributions and Grants
$73,888,862
Program Service Revenue
$9,112,274
Investment Income
$1,327,009
Other Revenue
$854,203
All Other Contributions
$45,240,492
Change in Net Assets
$1,677,525

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
Yes

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded117$1,435,765Market Price
Total Noncash Contributions117$1,435,765-

Audited Revenue Reconciliation

Revenue per Audited Statements
$85,182,348
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$6,419,398
Total Revenue per Audited Statements
$91,601,746
Total Revenue per Form 990
$85,182,348
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$39,220,848
Grants and Similar Amounts Paid$23,680,607
Other Expenses$20,268,743
Total Fundraising Expense$6,004,020
Professional Fundraising Fees$334,625

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$19,050,619$4,010,286$2,531,341$25,592,246
Grants to Domestic Orgs$20,231,236--$20,231,236
Fees for Services Other$6,493,723$161,918$826,254$7,481,895
Other Employee Benefits$3,745,210$788,392$497,643$5,031,245
Current Officers, Directors, Trustees, and Key Employees$2,737,705$576,306$363,771$3,677,782
Payroll Taxes$2,724,912$573,613$362,071$3,660,596
Foreign Grants$3,449,371--$3,449,371
Information Technology$1,762,676$302,532$9,825$2,075,033
All Other Expenses$1,410,580$395,800$223,577$2,029,957
Occupancy$1,062,733$327,638$206,808$1,597,179
Pension Plan Contributions$937,172$197,281$124,526$1,258,979
Depreciation Depletion$788,398$243,664$153,803$1,185,865
Advertising$554,310$170,544$107,649$832,503
Travel$520,283$147,141$92,877$760,301
Insurance-$443,197-$443,197
Conferences and Meetings$387,340$1,235$780$389,355
Other Expenses$245,424$75,315$47,539$368,278
Fees for Services Professional Fundraising--$334,625$334,625
Office Expenses$221,403$67,092$42,349$330,844
Fees for Services Accounting-$200,380-$200,380
Interest-$127,158-$127,158
Fees for Services Lobbying$101,800--$101,800
Fees for Services Legal-$37,265-$37,265
Total Functional Expenses$67,988,912$9,511,891$6,004,020$83,504,823

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$90,334,887
Expenses per Audited Statements$83,504,823
Total Expenses per Form 990$83,504,823
Expenses Not Reported on Form 990$6,830,064
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Infinity Biologix LLCPiscataway, NJ501(c)3Research$661,903
The Regents of the University of MichiganAnn Arbor, CO501(c)3Research$561,992
Weill Medical College of Cornell UniversityNew York, NY-Research$534,898
Mobius Care IncCleveland, OH501(c)3Research$500,000
Cedars Sinai Medical CenterLos Angeles, CA501(c)3Research$426,341
Icahn School of Medicine at Mount SinaiNew York, NY501(c)3Research$407,003
The Trustees of the University of PennsylvaniaPhiladelphia, MI501(c)3Research$388,114
The University of North Carolina at Chapel HillChapel Hill, IL501(c)3Research$384,631
CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTERCincinnati, OH501(c)3Research$375,023
Massachusetts General HospitalBoston, MA501(c)3Research$362,986
Rutgers the State University of Nj Rutgers Biomedical & Health ScienceNewark, NJ501(c)3Research$316,168
Aetion IncNew York, NY501(c)3Research$315,500
Northwestern University Feinberg School of MedicineEvanston, IL501(c)3Research$301,544
Johns Hopkins UniversityBaltimore, MD501(c)3Research$300,000
Case Western Reserve UniversityCleveland, OH501(c)3Research$288,165
The Regents of the University of California San DiegoLa Jolla, CA501(c)3Research$274,333
The Regents of the University of ColoradoAurora, CA501(c)3Research$274,064
BOSTON CHILDREN'S HOSPITALBoston, MA501(c)3Research$270,909
Harvard UniversityCambridge, MA501(c)3Research$269,495
Baylor Scott & White Research InstituteDallas, TX501(c)3Research$269,345
Washington University in St Louis (washington University)St Louis, MO-Research$267,385
The University of ChicagoChicago, AZ501(c)3Research$259,430
Cleveland Clinic FoundationCleveland, OH501(c)3Research$257,471
Ogb8 IncCincinnati, OH501(c)3Research$250,000
Mayo Clinic College of MedicineRochester, MN501(c)3Research$248,369
Enlisense LLCAllen, TX501(c)3Research$225,000
Vanderbilt University Medical CenterNashville, TN-Research$212,166
University of Colorado DenverAurora, CO501(c)3Research$210,476
Seres Therapeutics IncCambridge, MA501(c)3Research$200,000
CHILDREN'S HOSPITAL LOS ANGELESLos Angeles, CA501(c)3Research$195,000
University of Pittsburgh of the Commonwealth System of Higher EducationPittsburgh, PA501(c)3Research$194,335
University of Maryland BaltimoreBaltimore, MD501(c)3Research$179,201
The Regents of the University of California Los AngelesLos Angeles, PA501(c)3Research$171,024
Board of Regents of the University of Wisconsin System - Medical CollegeMadison, WI115Research$156,454
The University of Texas Southwestern Medical Center (ut Southwestern)Dallas, TX501(c)3Research$134,628
University of FloridaGainesville, FL501(c)3Research$130,000
Glycominds LLCSimi Valley, CA501(c)3Research$126,000
Stanford UniversityRedwood City, CA115Research$120,406
Interoperability Bidco IncBoston, MA501(c)3Research$117,659
The Regents of the University of California San FranciscoSan Francisco, CA501(c)3Research$115,830
Board of Regents of the University of Wisconsin SystemMadison, WI501(c)3Research$115,709
THE CHILDREN'S MERCY HOSPITALKansas City, MO501(c)3Research$101,684
THE BRIGHAM AND WOMEN'S HOSPITAL INCBoston, MA501(c)3Research$94,939
The University of ArizonaTucson, PA501(c)3Research$92,648
Dartmouth-hitchcock ClinicLebanon, NH501(c)3Research$91,151
Augusta University Research Institute IncAugusta, GA501(c)3Research$90,000
New York University Grossman School of MedicineNew York, NY115Research$89,244
University of California San DiegoLa Jolla, AL501(c)3Research$88,585
St Paul Place Specialists IncBaltimore, MD501(c)3Research$84,511
THE CHILDREN'S HOSPITAL OF PHILADELPHIAPhiladelphia, MA501(c)3Research$75,674
University of Texas Health Science Center at San AntonioSan Antonio, TX-Research$75,000
Massachusetts Institute of TechnologyCambridge, MA501(c)3Research$73,750
University of Alabama at BirminghamBirmingham, NH501(c)3Research$69,574
Carnegie Mellon UniversityPittsburgh, PA501(c)3Research$63,250
Albert Einstein College of MedicineNew York, NY501(c)3Research$57,915
Memorial Sloan Kettering Cancer CenterNew York, NY501(c)3Research$57,915
Texas Digestive Consultants PllcSouthlake, TX501(c)3Research$55,121
Scripps Health Research InstituteLa Jolla, CA501(c)3Research$55,000
Benaroya Research Institute of VirginiaSeattle, WA501(c)3Research$32,485
The Research Foundation for the State University of New YorkAlbany, NY501(c)3Research$32,407
University of Massachusetts Chan Medical SchoolShrewbury, MA501(c)3Research$32,100
Emory UniversityAtlanta, GA501(c)3Research$30,511
Board of Trustees of Michigan State UniversityEast Lansing, MI115Research$17,500
The Pennsylvania State UniversityHershey, PA501(c)3Research$17,413
University of DelawareNewark, DE501(c)3Research$15,913
Ssm Health St Anthony Hospital - Oklahoma CityOklahoma City, OK501(c)3Research$14,300
Palo Alto Medical Foundation Research InstitutePalo Alto, CA501(c)3Research$13,300
Medstar-georgetown Medical Center IncWashington, DC501(c)3Research$13,200
The University of UtahSalt Lake City, TX501(c)3Research$12,200
Baylor College of MedicineHouston, TX501(c)3Research$12,100
University of RochesterRochester, NY501(c)3Research$12,100
Ada Science & Research Institute LLCChicago, IL501(c)3Research$9,750
Georgia State University Research Foundation IncAtlanta, GA501(c)3Research$6,750
University of ToledoToledo, OH-Research$6,750
Gastroenterology AssociatesProvidence, RI501(c)3Research$6,600

International Summary

Offices
0
Employees
0
Spending
$3,449,371

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland)GrantmakingResearch00$2,659,570
North AmericaGrantmakingResearch00$601,136
East Asia and the PacificGrantmakingResearch00$188,665
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
Yes
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$6,461,774
Fundraising Gross Income$6,151,320
Gaming Gross Income$623,279
Professional Fundraising Fees$334,625
Gaming Direct Expenses$312,825

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Take Steps$9,879,469$1,086,002$450,771$635,231
Team Challenge$1,370,216$186,698$179,392$7,306
Total Events$33,126,936$6,151,320$6,461,774$-310,454
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees-$600,000-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Operating Lease Liability$7,705,586
Reinsurance Contracts$179,995
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

The form 990 was prepared by a national accounting firm in conjunction with the organization's finance department. A copy of the draft form 990 was circulated and reviewed with the audit committee for discussion and comment. A copy of the 990 is distributed to all board of trustees prior to filing.

Form 990, Part VI, Section B, Line 12C

All officers, directors, trustees, and key employees of the crohn's & colitis foundation are required to annually disclose any conflicts of interest that arise by virtue of employment, board service, or position with the foundation. The foundation monitors compliance with its conflict of interest policy through an annual questionnaire/disclosure statement that is distributed to these individuals. Potential conflicts are investigated immediately.

Form 990, Part VI, Section B, Line 15

The crohn's & colitis foundation is dependent on experienced and qualified leadership to achieve its goals. Factors such as annual gross revenues, mission expenditures, geographic location, tenure, and individual performance help determine senior leadership compensation. The president's compensation is determined on an annual basis by the chairman of the board with approval by the compensation and benefits committee using guidelines and comparable data provided in national compensation studies of executives. The foundation has an independent compensation consultant to review and validate the compensation it pays its employees. The foundation's practice will be to continue to rely on the most recent survey and other industry data comparing the compensation the foundation pays to its employees with compensation paid to employees of other not for profit organizations of similar size.

Form 990, Part VI, Section C, Line 19

The foundation makes its form 990 available to the public by retaining a copy at its place of business and on its website at www.crohnscolitisfoundation.org. The organization's financial statements are posted on its website. Governing documents and conflict of interest policy will be provided upon request at management's discretion.

Part VIII - Donated Services

The crohn's & colitis foundation ("the foundation") has utilized the services of car program, inc., an organization that receives donated vehicles, sells them and remits the net proceeds to several charitable organizations. The vehicles are not donated directly to the foundation nor does the foundation have ownership rights to them. In 2024, the foundation received $19,788 in revenues from this program. Additionally, the foundation receives considerable in-kind contributions in the form of donated public service announcements on television and radio statements and services received from physicians and health professionals that have made significant contributions of their time in furtherance of the foundation's mission. The fair value of such in-kind contributions is reflected in the statement of activities as contributed services and airtime revenue and health professional education and public information program service expense. Since donated services are not reported on the form 990, the foundation has not reported the contributed services and airtime on schedule m or part viii, line 1(g). For the year ending december 31, 2024, contributed services and airtime amounted to $7,180,862.

Filing and Contact Details

Filer

Filer Name
CROHN'S & COLITIS FOUNDATION INC
EIN
13-6193105
Phone
8009322423
Address
733 THIRD AVENUE 510, NEW YORK, NY 10017

Signing Officer

Name
Michael Osso
Title
President & CEO
Phone
8009322423
Signed
2026-02-04
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Michael Osso
Formed
1967
Legal Domicile
Ny
Voting Board Members
26
Independent Board Members
26
Employees
372
Volunteers
6,005

Preparer

Firm
Grant Thornton Advisors LLC
Address
757 THIRD AVENUE 9TH FLOOR, NEW YORK, NY 10017-2013
Preparer
Scott Thompsett
Phone
2125990100
Supplemental Narrative

Additional Explanations

REASON FOR AMENDMENT:

The foundation is amending this form 990 to reflect the accurate allocation of functional expenses in form 990, part ix, that aligns with its audited financial statements. The adjustment to expenses in part ix require a modification in the programmatic expenditures reported in form 990, part iii as well. These represent the only modifications to the originally filed form 990. Form 990, part i, line 1, description of organization mission: our goal is to improve the quality of life of children and adults affected by these diseases. The foundation sponsors basic and clinical research of the highest quality. We also offer a wide range of educational programs for patients and healthcare professionals, while providing supportive services to help people cope with these chronic intestinal diseases. These programs are supported solely through our donors, grants, fundraising efforts, and sponsors.

FORM 990, PART XI, LINE 9:

Changes in gift annuities 27,663. Refunded/rescinded grants 1,009,511. Uncollectible pledges -658,713.

Financial Statement Notes

PART X, LINE 2:

The foundation is a not-for-profit voluntary health organization exempt from federal income taxes under section 501(c)(3) of the internal revenue code (the "code") and has been classified as a publicly supported charitable organization under section 509(a)(1) of the code and qualifies for the maximum charitable contribution deduction by donors. Contributions to the foundation are tax deductible within the limitations prescribed by the code. The foundation is also exempt from state and local taxes under similar statutes. Accounting for uncertainty in tax positions taken or expected to be taken in a tax return, including issues relating to financial statement recognition and measurement, provides that the tax effects from an uncertain tax position can be recognized in the financial statements only if the position is more likely than not to be sustained if the position were to be challenged by a taxing authority. The assessment of the tax position is based solely on the technical merits of the position, without regard to the likelihood that the tax position may be challenged. The foundation is exempt from income tax under the code, however, is subject to tax on income unrelated to its exempt purposes, unless that income is otherwise excluded under the code. The foundation has determined that there are no material uncertain tax positions that require recognition or disclosure in the financial statements. In addition, the foundation has not recorded a provision for income taxes as it has no material tax liability from unrelated business income activities.

PART XI, LINE 2D - OTHER ADJUSTMENTS:

Changes in charitable remainder trusts valuation 27,663.

PART XII, LINE 2D - OTHER ADJUSTMENTS:

Uncollectible pledges 658,713. Refunded/rescinded grants -1,009,511.

Raw XML AppendixShowing 400 of 2,246 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
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IRS990/Form990PartVIISectionAGrp/OfficerInd6X
IRS990/Form990PartVIISectionAGrp/OfficerInd7X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt0157943
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt180
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt190
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt200
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt210
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt220
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt230
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt240
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt250
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt260
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt270
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt280
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt290
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt300
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt310
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt320
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt330
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt340
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt350
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt3670733
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt3713858
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt3878567
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt3922804
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt404083
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt4126914
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt4243880
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt4316415
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt4417475
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt4576835
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt4626800
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt4715941
IRS990/Form990PartVIISectionAGrp/PersonNm0MICHAEL OSSO
IRS990/Form990PartVIISectionAGrp/PersonNm1DANIEL STONE
IRS990/Form990PartVIISectionAGrp/PersonNm2JODI YELLEN
IRS990/Form990PartVIISectionAGrp/PersonNm3JEFFREY MITTLEMAN
IRS990/Form990PartVIISectionAGrp/PersonNm4BRENT POLK MD
IRS990/Form990PartVIISectionAGrp/PersonNm5AMBER BACKHAUS
IRS990/Form990PartVIISectionAGrp/PersonNm6RHONDA BOLDING
IRS990/Form990PartVIISectionAGrp/PersonNm7NOEL BROWN
IRS990/Form990PartVIISectionAGrp/PersonNm8JOHN CAPODILUNO
IRS990/Form990PartVIISectionAGrp/PersonNm9CHASE CARPENTER
IRS990/Form990PartVIISectionAGrp/PersonNm10ROCIO CASTRILLON
IRS990/Form990PartVIISectionAGrp/PersonNm11DEBORAH CRAWFORD
IRS990/Form990PartVIISectionAGrp/PersonNm12TOLULOPE FALAIYE MD
IRS990/Form990PartVIISectionAGrp/PersonNm13BECKY FLAHERTY
IRS990/Form990PartVIISectionAGrp/PersonNm14ALEX FUNDERBURG
IRS990/Form990PartVIISectionAGrp/PersonNm15CHERYL GUERIN
IRS990/Form990PartVIISectionAGrp/PersonNm16KEVIN HARLEN
IRS990/Form990PartVIISectionAGrp/PersonNm17PETER HIGGINS MD PHD MSC
IRS990/Form990PartVIISectionAGrp/PersonNm18KELLY ISSOKSON MSRDCNSC
IRS990/Form990PartVIISectionAGrp/PersonNm19SEAN KELLEY
IRS990/Form990PartVIISectionAGrp/PersonNm20SANDRA KIM MD
IRS990/Form990PartVIISectionAGrp/PersonNm21MICHELE KISSOUS-HUNT
IRS990/Form990PartVIISectionAGrp/PersonNm22ANNETTE MARTINEZ
IRS990/Form990PartVIISectionAGrp/PersonNm23AUDRA MILLER
IRS990/Form990PartVIISectionAGrp/PersonNm24JOE MONK
IRS990/Form990PartVIISectionAGrp/PersonNm25MARK MURRAY PHD
IRS990/Form990PartVIISectionAGrp/PersonNm26ARMIN RAHMANIAN
IRS990/Form990PartVIISectionAGrp/PersonNm27MEGAN RIEHL PSYD
IRS990/Form990PartVIISectionAGrp/PersonNm28JONATHAN ROSE
IRS990/Form990PartVIISectionAGrp/PersonNm29DAVID RUBIN MD
IRS990/Form990PartVIISectionAGrp/PersonNm30FRANK RUSSOMANO
IRS990/Form990PartVIISectionAGrp/PersonNm31LORI SIEGEL RABINOWITZ
IRS990/Form990PartVIISectionAGrp/PersonNm32ANDREW STERN
IRS990/Form990PartVIISectionAGrp/PersonNm33NICHOLAS UZL
IRS990/Form990PartVIISectionAGrp/PersonNm34TROY VOLLERTSEN
IRS990/Form990PartVIISectionAGrp/PersonNm35DOUGLAS WOLF MD
IRS990/Form990PartVIISectionAGrp/PersonNm36SHARON LUNGRIN
IRS990/Form990PartVIISectionAGrp/PersonNm37ALAN MOSS
IRS990/Form990PartVIISectionAGrp/PersonNm38ROHIT SURI
IRS990/Form990PartVIISectionAGrp/PersonNm39ALLISON COFFEY
IRS990/Form990PartVIISectionAGrp/PersonNm40CHRIS FIDYK
IRS990/Form990PartVIISectionAGrp/PersonNm41CHRISTY DESANTIS
IRS990/Form990PartVIISectionAGrp/PersonNm42LAURA WINGATE
IRS990/Form990PartVIISectionAGrp/PersonNm43SARAH WEAVER
IRS990/Form990PartVIISectionAGrp/PersonNm44ANGELA DOBES
IRS990/Form990PartVIISectionAGrp/PersonNm45MARISA MAYER
IRS990/Form990PartVIISectionAGrp/PersonNm46LEANA PATEL
IRS990/Form990PartVIISectionAGrp/PersonNm47JACK MATARASSO
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt0604255
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120

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