Civic Intelligence

Genetic Disease Foundation Inc C/O Sax LLP

990 • Fiscal year 2020 • EIN 13-6151644

Nov 01, 2019 to Oct 31, 2020 • Filed on Aug 09, 2021

Organization ProfileWWW.GENETICDISEASEFOUNDATION.ORG
389 Interpace Parkway Ste 3Parsippany, NJ 07054

(973) 472-6250

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

55th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Liabilities / Revenue

55th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Net Margin

2nd percentile

-1125%

Higher net margin than 2% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Top Officer Pay

76th percentile

$0

Higher top officer pay than 76% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Asset Growth

8th percentile

-50%

Faster asset growth than 8% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Annualized from 2019 to 2020

Revenue Growth

60th percentile

-4.2%

Faster revenue growth than 60% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets55th percentile

Assets

Down

$96,240

Down $96,920 (-50%) from 2019

Net Assets

Down

$96,240

Down $96,920 (-50%) from 2019

Liabilities

Flat

$0

Flat from 2019

Revenue And Expenses
Liabilities / Revenue55th percentileNet Margin2nd percentile

Revenue

Down

$8,619

Down $375 (-4.2%) from 2019

Expenses

Down

$105,540

Down $118,936 (-53%) from 2019

Net Income

Up

-$96,921

Up $118,561 (+55%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth8th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2011: $664,582Liabilities 2011: $11,746Net Assets 2011: $652,8362011Assets 2012: $645,925Liabilities 2012: $0Net Assets 2012: $645,9252012Assets 2013: $852,821Liabilities 2013: $0Net Assets 2013: $852,8212013Assets 2014: $660,349Liabilities 2014: $0Net Assets 2014: $660,3492014Assets 2015: $613,873Liabilities 2015: $0Net Assets 2015: $613,8732015Assets 2016: $603,874Liabilities 2016: $0Net Assets 2016: $603,8742016Assets 2017: $573,961Liabilities 2017: $0Net Assets 2017: $573,9612017Assets 2018: $408,642Liabilities 2018: $0Net Assets 2018: $408,6422018Assets 2019: $193,160Liabilities 2019: $0Net Assets 2019: $193,1602019Assets 2020: $96,240Liabilities 2020: $0Net Assets 2020: $96,2402020Assets 2021: $95,116Liabilities 2021: $0Net Assets 2021: $95,1162021Assets 2022: $90,723Liabilities 2022: $0Net Assets 2022: $90,7232022Assets 2023: $29,333Liabilities 2023: $02023

Highlighted filing

2020

Assets$96,240
Liabilities$0
Net Assets$96,240
Open 2020 Filing

Operations Trend

Revenue Growth60th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$400K$200K$0-$200K-$400KExpenses 2011: $398,5922011Expenses 2012: $70,7782012Expenses 2013: $76,6102013Revenue 2014: $9,851Expenses 2014: $202,323Net Income 2014: -$192,4722014Revenue 2015: $6,851Expenses 2015: $53,832Net Income 2015: -$46,9812015Revenue 2016: $23,363Expenses 2016: $34,862Net Income 2016: -$11,4992016Revenue 2017: $71,072Expenses 2017: $99,799Net Income 2017: -$28,7272017Revenue 2018: $117,258Expenses 2018: $280,717Net Income 2018: -$163,4592018Revenue 2019: $8,994Expenses 2019: $224,476Net Income 2019: -$215,4822019Revenue 2020: $8,619Expenses 2020: $105,540Net Income 2020: -$96,9212020Revenue 2021: $5,071Expenses 2021: $6,195Net Income 2021: -$1,1242021Revenue 2022: $499Expenses 2022: $4,892Net Income 2022: -$4,3932022Revenue 2023: $4,702Expenses 2023: $66,092Net Income 2023: -$61,3902023

Highlighted filing

2020

Revenue$8,619
Expenses$105,540
Net Income-$96,921
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Nov 1, 2019 to Oct 31, 2020
Signed
Aug 9, 2021
Return Version
2019v5.2
Gross Receipts
$8,619
Mission and Program Overview

Mission

The organization's exempt purpose is to support education programs for the public, research, counselor(s) and health professional(s) for the prevention of genetic diseases.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$100,030$70,066▼ $29,964
Cash and Non-Interest-Bearing Accounts$93,130$26,174▼ $66,956
Total Assets$193,160$96,240▼ $96,920
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$193,160$96,240▼ $96,920
Total Net Assets Fund Balance$193,160$96,240▼ $96,920
Total Liabilities and Net Assets / Fund Balance$193,160$96,240▼ $96,920
Compensation and Service Providers
Top Officer Pay76th percentile

Board Members and Trustees

NameTitle
Elisa RossPresident
Cristina GonzalezBoard Member
Jeff EngelBoard Member
Kelly EdwardsBoard Member
Lisa EngelBoard Member
Lloyd ZinbergBoard Member
Marion YanovskyBoard Member
Chris McbrideExec. Board Member
Lorie BroserExec. Board Member
Samara HeimanSecretary
Ralph HeimanTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$8,583
Program Service Revenue
$0
Investment Income
$36
Other Revenue
$0
All Other Contributions
$8,583
Change in Net Assets
$-96,921
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$100,000
Other Expenses$5,540
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$100,000--$100,000
Fees for Services Accounting-$1,350-$1,350
Insurance-$1,065-$1,065
Other Expenses-$25-$25
Total Functional Expenses$100,000$5,540$0$105,540
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Icahn School of Medicine at Mt SinaiNew York, NY-Scholarship Program-
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“1.ralph heiman and samara heiman have a family relationship. 2.jeff engel and elisa ross have a family relationship. 3.lisa engel has a family relationship with jeff engel and elisa ross.”

Form 990, Part VI, Section A, Line 6

“The organization has members that have the right to participate in the organization's governance.”

Form 990, Part VI, Section A, Line 7A

“The governing body has the right to elect officers on the board.”

Form 990, Part VI, Section A, Line 7B

“Some decisions are approved by the board.”

Form 990, Part VI, Section B, Line 11B

“The treasurer reviews the 990 return prior to filing.”

Form 990, Part VI, Section C, Line 19

“The organization has their documents available at the office upon request and the tax return is available on guidestar.”

Form 990, Part VI, Section B Policies.

“The organization has no employees, and is organized to fundraise for genetic disease research. The board of directors do not feel the need to have these policies in-place.”

Filing and Contact Details

Filer

Filer Name
Genetic Disease Foundation Inc
EIN
13-6151644
Phone
9734726250
Address
389 INTERPACE PARKWAY STE 3, PARSIPPANY, NJ 07054

Signing Officer

Name
Elisa Ross
Title
President
Phone
9734726250
Signed
2021-08-09
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Elisa Ross
Formed
1997
Legal Domicile
Ny
Voting Board Members
11
Independent Board Members
11
Employees
0
Volunteers
18

Preparer

Firm
Sax Llp
Address
389 INTERPACE PARKWAY STE 3, PARSIPPANY, NJ 07054
Preparer
Marqus White
Phone
9734726250
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“The foundation is exempt from federal income tax under section 501(c)(3) of the internal revenue code. There was no unrelated business income and, therefore, no accompanying tax provision for the year ending october 31, 2020 or 2019.”

Raw XML Appendix371 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
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IRS990/MissionDesc0THE GENETIC DISEASE FOUNDATION (GDF) WAS ESTABLISHED IN 1997 BY PATIENTS AND FAMILIES AFFECTED BY GENETIC DISORDERS. THE FOUNDATION'S MISSION IS TO SUPPORT RESEARCH, EDUCATION AND THE PREVENTION OF GENETIC DISEASES.THE GDF SUPPORTS:- EDUCATION PROGRAMS FOR THE PUBLIC AND PHYSICIANS TO INCREASE THEIR AWARENESS ABOUT GENETIC DISEASES AND THE NEED FOR AND AVAILABILITY OF TESTING FOR MANY DISORDERS.- RESEARCH DESIGNED TO IMPROVE GENETIC TESTING AND TO DISCOVER WAYS TO TREAT, CURE AND ULTIMATELY PREVENT GENETIC DISORDERS.- GENETIC COUNSELORS, HEALTH PROFESSIONALS WITH A MASTER'S DEGREE AND EXPERIENCE IN MEDICAL GENETICS AND COUNSELING.THE FOUNDATION IS COMPLETELY RUN BY VOLUNTEERS, WHICH ENABLES IT TO USE ALL OF ITS FUNDRAISING DOLLARS TO DIRECTLY FIGHT GENETIC DISEASES.
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IRS990ScheduleA/FactsAndCircumstancesTestTxt0THE ORGANIZATION (GDF) WAS ESTABLISHED IN 1997 BY PATIENTS AND FAMILIES AFFECTED BY GENETIC DISORDERS. THE FOUNDATION'S MISSION IS TO SUPPORT RESEARCH, EDUCATION AND THE PREVENTION OF GENETIC DISEASES. IT IS CURRENTLY IN ITS WIND DOWN STAGES AND NO LONGER ACTIVELY SOLICITING DONATIONS. OVER THE NEXT COUPLE OF YEARS, THE BOARD WILL BE FORMULATING A PLAN OF DISSOLUTION AND WILL BE DISTRIBUTING ITS REMAINING CASH TO ELIGIBLE GRANT RECEIPTANTS.
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IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0113081
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt068402
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt020290
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt0212282
IRS990ScheduleA/TotalSupportAmt0227045
IRS990/ScheduleBRequiredInd00
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION IS EXEMPT FROM FEDERAL INCOME TAX UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. THERE WAS NO UNRELATED BUSINESS INCOME AND, THEREFORE, NO ACCOMPANYING TAX PROVISION FOR THE YEAR ENDING OCTOBER 31, 2020 OR 2019.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleI/GrantRecordsMaintainedInd00
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt0100000
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0SCHOLARSHIP PROGRAM
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0ICAHN SCHOOL OF MEDICINE AT MT SINAI
IRS990ScheduleI/RecipientTable/RecipientEIN0136171197
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0FIFTH AVENUE AT 100TH STREET BOX
IRS990ScheduleI/RecipientTable/USAddress/AddressLine2Txt01498
IRS990ScheduleI/RecipientTable/USAddress/CityNm0NEW YORK
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0NY
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd010029
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt01.RALPH HEIMAN AND SAMARA HEIMAN HAVE A FAMILY RELATIONSHIP. 2.JEFF ENGEL AND ELISA ROSS HAVE A FAMILY RELATIONSHIP. 3.LISA ENGEL HAS A FAMILY RELATIONSHIP WITH JEFF ENGEL AND ELISA ROSS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE ORGANIZATION HAS MEMBERS THAT HAVE THE RIGHT TO PARTICIPATE IN THE ORGANIZATION'S GOVERNANCE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE GOVERNING BODY HAS THE RIGHT TO ELECT OFFICERS ON THE BOARD.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3SOME DECISIONS ARE APPROVED BY THE BOARD.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE TREASURER REVIEWS THE 990 RETURN PRIOR TO FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5THE ORGANIZATION HAS THEIR DOCUMENTS AVAILABLE AT THE OFFICE UPON REQUEST AND THE TAX RETURN IS AVAILABLE ON GUIDESTAR.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6THE ORGANIZATION HAS NO EMPLOYEES, AND IS ORGANIZED TO FUNDRAISE FOR GENETIC DISEASE RESEARCH. THE BOARD OF DIRECTORS DO NOT FEEL THE NEED TO HAVE THESE POLICIES IN-PLACE.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION A, LINE 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION A, LINE 6
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION A, LINE 7A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION A, LINE 7B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PART VI, SECTION C, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc6FORM 990, PART VI, SECTION B POLICIES.
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0NY
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0193160
IRS990/TotalAssetsEOYAmt096240
IRS990/TotalAssetsGrp/BOYAmt0193160
IRS990/TotalAssetsGrp/EOYAmt096240
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt08583
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt05540
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0100000
IRS990/TotalFunctionalExpensesGrp/TotalAmt0105540
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0193160
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt096240
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt0100000
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt036
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt08619
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt018
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0193160
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt096240
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0389 INTERPACE PARKWAY STE 3
IRS990/USAddress/CityNm0PARSIPPANY
IRS990/USAddress/StateAbbreviationCd0NJ
IRS990/USAddress/ZIPCd007054
IRS990/VotingMembersGoverningBodyCnt011
IRS990/VotingMembersIndependentCnt011
IRS990/WebsiteAddressTxt0WWW.GENETICDISEASEFOUNDATION.ORG
IRS990/WhistleblowerPolicyInd00
ReturnHeader/BuildTS02022-09-23 18:48:47Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0ELISA ROSS
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/PhoneNum09734726250
ReturnHeader/BusinessOfficerGrp/SignatureDt02021-08-09
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0GENETIC DISEASE FOUNDATION INC
ReturnHeader/Filer/BusinessName/BusinessNameLine2Txt0C/O SAX LLP
ReturnHeader/Filer/BusinessNameControlTxt0GENE
ReturnHeader/Filer/EIN0136151644
ReturnHeader/Filer/PhoneNum09734726250
ReturnHeader/Filer/USAddress/AddressLine1Txt0389 INTERPACE PARKWAY STE 3
ReturnHeader/Filer/USAddress/CityNm0PARSIPPANY
ReturnHeader/Filer/USAddress/StateAbbreviationCd0NJ
ReturnHeader/Filer/USAddress/ZIPCd007054
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0812950760
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0SAX LLP
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0389 INTERPACE PARKWAY STE 3
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0PARSIPPANY
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0NJ
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd007054
ReturnHeader/PreparerPersonGrp/PhoneNum09734726250
ReturnHeader/PreparerPersonGrp/PreparationDt02021-08-03
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0MARQUS WHITE
ReturnHeader/ReturnTs02021-08-18T21:19:23-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02019-11-01
ReturnHeader/TaxPeriodEndDt02020-10-31
ReturnHeader/TaxYr02019

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$96,240
Liabilities
$0
Net assets
$96,240
Revenue
$8,619
Expenses
$105,540
Net income
-$96,921
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Summary only. Only limited summary data is available for this year.$0.29$0.00$0.05$0.66$0.61
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.91$0.00$0.91$0.00$0.05$0.04
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.95$0.00$0.95$0.05$0.06$0.01
2020Detailed filing. Detailed filing data is available for this year.$0.96$0.00$0.96$0.09$1.06$0.97
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.93$0.00$1.93$0.09$2.24$2.15
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.09$0.00$4.09$1.17$2.81$1.63
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.74$0.00$5.74$0.71$1.00$0.29
2016Detailed filing. Detailed filing data is available for this year.$6.04$0.00$6.04$0.23$0.35$0.11
2015Detailed filing. Detailed filing data is available for this year.$6.14$0.00$6.14$0.07$0.54$0.47
2014Summary only. Only limited summary data is available for this year.$6.60$0.00$6.60$0.10$2.02$1.92
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$8.53$0.00$8.53$0.77
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.46$0.00$6.46$0.71
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.65$0.12$6.53$3.99