Civic Intelligence

Dysautonomia Foundation Inc DBA Familial Dysautonomia Foundation

990 • Fiscal year 2017 • EIN 13-6145280

Jan 01, 2017 to Dec 31, 2017 • Filed on Oct 22, 2018

Organization Profilewww.familialdysautonomia.org

View Organization Page

315 W 39th StreetNew York, NY 10018

(212) 279-1066

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

15th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2017 filings • NTEE G • $1M-$5M nonprofits • Source year 2017

Liabilities / Revenue

14th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2017 filings • NTEE G • $1M-$5M nonprofits • Source year 2017

Net Margin

8th percentile

-42%

Higher net margin than 8% of similar nonprofits.

2017 filings • NTEE G • $1M-$5M nonprofits • Source year 2017

Top Officer Pay

87th percentile

$170,831

Higher top officer pay than 87% of similar nonprofits.

Top officer pay equals 10.0% of source-year revenue.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Asset Growth

5th percentile

-26%

Faster asset growth than 5% of similar nonprofits.

2017 filings • NTEE G • $1M-$5M nonprofits • Annualized from 2016 to 2017

Revenue Growth

30th percentile

-0.4%

Faster revenue growth than 30% of similar nonprofits.

2017 filings • NTEE G • $1M-$5M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets15th percentile

Assets

Flat

$2,077,052

Flat from 2017

Net Assets

Flat

$2,077,052

Flat from 2017

Liabilities

Flat

$0

Flat from 2017

Revenue And Expenses
Liabilities / Revenue14th percentileNet Margin8th percentile

Revenue

Flat

$1,713,284

Flat from 2017

Expenses

Flat

$2,427,386

Flat from 2017

Net Income

Flat

-$714,102

Flat from 2017

Historical Trend

Balance Sheet Trend

Asset Growth5th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2011: $4,116,432Liabilities 2011: $0Net Assets 2011: $4,116,4322011Assets 2012: $4,159,897Liabilities 2012: $0Net Assets 2012: $4,159,8972012Assets 2013: $3,521,461Liabilities 2013: $0Net Assets 2013: $3,521,4612013Assets 2014: $3,124,728Liabilities 2014: $0Net Assets 2014: $3,124,7282014Assets 2015: $2,595,265Liabilities 2015: $0Net Assets 2015: $2,595,2652015Assets 2016: $2,791,154Liabilities 2016: $0Net Assets 2016: $2,791,1542016Assets 2017: $2,077,052Liabilities 2017: $0Net Assets 2017: $2,077,0522017Assets 2017: $2,077,052Liabilities 2017: $0Net Assets 2017: $2,077,0522017Assets 2018: $2,229,633Liabilities 2018: $0Net Assets 2018: $2,229,6332018Assets 2019: $1,860,719Liabilities 2019: $0Net Assets 2019: $1,860,7192019Assets 2020: $1,809,411Liabilities 2020: $55,785Net Assets 2020: $1,753,6262020Assets 2021: $2,301,553Liabilities 2021: $8,595Net Assets 2021: $2,292,9582021Assets 2022: $2,168,499Liabilities 2022: $139,650Net Assets 2022: $2,028,8492022Assets 2023: $1,503,412Liabilities 2023: $198,563Net Assets 2023: $1,304,8492023Assets 2024: $1,097,266Liabilities 2024: $263,573Net Assets 2024: $833,6932024

Highlighted filing

2017

Assets$2,077,052
Liabilities$0
Net Assets$2,077,052
Open 2017 Filing

Operations Trend

Revenue Growth30th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2011: $1,858,724Expenses 2011: $1,616,096Net Income 2011: $242,6282011Revenue 2012: $1,984,331Expenses 2012: $2,039,181Net Income 2012: -$54,8502012Revenue 2013: $1,464,527Expenses 2013: $2,276,804Net Income 2013: -$812,2772013Revenue 2014: $1,921,666Expenses 2014: $2,297,530Net Income 2014: -$375,8642014Revenue 2015: $1,261,736Expenses 2015: $1,672,655Net Income 2015: -$410,9192015Revenue 2016: $1,719,922Expenses 2016: $1,626,677Net Income 2016: $93,2452016Revenue 2017: $1,713,284Expenses 2017: $2,427,386Net Income 2017: -$714,1022017Revenue 2017: $1,713,284Expenses 2017: $2,427,386Net Income 2017: -$714,1022017Revenue 2018: $1,984,961Expenses 2018: $1,760,177Net Income 2018: $224,7842018Revenue 2019: $1,424,379Expenses 2019: $1,878,693Net Income 2019: -$454,3142019Revenue 2020: $1,813,432Expenses 2020: $1,826,476Net Income 2020: -$13,0442020Revenue 2021: $2,387,593Expenses 2021: $1,850,796Net Income 2021: $536,7972021Revenue 2022: $1,577,517Expenses 2022: $1,830,056Net Income 2022: -$252,5392022Revenue 2023: $1,215,749Expenses 2023: $1,940,535Net Income 2023: -$724,7862023Revenue 2024: $1,558,104Expenses 2024: $2,029,315Net Income 2024: -$471,2112024

Highlighted filing

2017

Revenue$1,713,284
Expenses$2,427,386
Net Income-$714,102
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Oct 22, 2018
Return Version
2017v2.2
Gross Receipts
$2,203,119
Mission and Program Overview

Mission

The dysautonomia foundation supports and operates programs focused on the medical care, research, social services, and public education for the benefit of people affected by or at risk for familial dysautonomia fd.

The dysautonomia foundation supports and operates programs focused on the medical care, research, social services, and public education for the benefit of people affected by or at risk for familial dysautonomia (fd).

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$851,789$1,130,013▲ $278,224
Land, Buildings, and Equipment, Net-$54,837-
Savings and Temporary Cash Investments-$0-
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$2,791,154$2,077,052▼ $714,102
Other Assets Total$1,939,365$892,202▼ $1,047,163
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Unrestricted Net Assets$2,791,154$2,077,052▼ $714,102
Total Net Assets Fund Balance$2,791,154$2,077,052▼ $714,102
Total Liabilities and Net Assets / Fund Balance$2,791,154$2,077,052▼ $714,102

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$54,837$2,432$57,269
Other Assets Org$1--
Compensation and Service Providers
Top Officer Pay87th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Paul SchackExecutive DirectorFT$100,000$70,831$170,831
Lanie EtkindExecutive DirectorFT$32,614$7,466$40,080

Board Members and Trustees

NameTitle
Faye GinsburgPresident
Edward BaranoffVice President
Jeffrey GoldbergerVice President
Laurent LandauVice President
Lisa NewmanVice President
Paul B WexlerVice President
Steven KietzVice President
Barbara WaldfogelDirector
David SteinerDirector
Gerald AdlerDirector
Howard WeiserDirector
Jennifer SonensheinDirector
Steven S FassSecretary
Allan CohenTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$401,813
Program Service Revenue
$0
Investment Income
$136,184
Other Revenue
$1,175,287
All Other Contributions
$401,813
Change in Net Assets
$-714,102

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded1$69,229Fair Market Value (FMV)
Total Noncash Contributions1$69,229-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,713,284
Total Revenue per Audited Statements
$1,713,284
Total Revenue per Form 990
$1,713,284
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,801,929
Salaries, Compensation, and Employee Benefits$341,644
Other Expenses$283,813
Total Fundraising Expense$45,573
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,701,929--$1,701,929
Current Officers, Directors, Trustees, and Key Employees$134,983$54,837$21,091$210,911
Other Salaries and Wages$66,574$27,046$10,402$104,022
Foreign Grants$100,000--$100,000
Fees for Services Other$28,240$64,801$296$93,337
Office Expenses$13,978$21,284$3,494$38,756
Occupancy$21,276$7,217$2,776$31,269
Payroll Taxes$12,576$5,108$1,965$19,649
Insurance$3,472$4,340$868$8,680
Other Employee Benefits$4,520$1,836$706$7,062
Travel$493$2,746-$3,239
Conferences and Meetings$3,000--$3,000
Depreciation Depletion$973$1,216$243$2,432
Other Expenses$714$894$179$1,787
Advertising$1,030$418$161$1,609
All Other Expenses$374$152$59$585
Total Functional Expenses$2,173,254$208,559$45,573$2,427,386

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$2,427,386
Total Expenses per Audited Statements$2,427,386
Total Expenses per Form 990$2,427,386
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Nyu School of MedicineNew York, NY-Research & Treatment$1,539,470
Massachusett General HospitalBoston, MA-Research & Treatment$51,440
Visio-d Consultants LLCMiami, FL-Research & Treatment$43,013
University of TenesseeMemphis, TN-Research & Treatment$37,500
Montana State UniversityBozeman, MT-Research & Treatment$20,076
Emory UniversityHapeville, GA-Research & Treatment$10,430

International Summary

Spending
$100,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
IsraelGrantsResearch & Treatment00$100,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$1,534,325
Fundraising Direct Expenses$489,835
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Goldberg Concert$972,360$972,360$342,371$629,989
New York Golf$282,765$282,765$88,509$194,256
Total Events$1,534,325$1,534,325$489,835$1,044,490
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

“The organization's form 990 is reviewed by the executive director, the treasurer, the president and an independent accountant prior to filing. The form 990 is made available to all directors.”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“All directors are required to sign an annual compliance agreement.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“Compensation process for top official compensation is determined initially by a committee that establishes an employment contract. It is subsequently adjusted by the committee according to cost of living, perfpormance increases and comparison to comparable industry levels.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“Governing documents disclosure explanation documents are made available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Dysautonomia Foundation
EIN
13-6145280
Phone
2122791066
Address
315 W 39TH STREET, NEW YORK, NY 10018

Signing Officer

Name
Allan Cohen
Title
Treasurer
Signed
2018-10-22
Discuss with paid preparer
Yes

Organization Details

Formed
1954
Legal Domicile
Ny
Voting Board Members
15
Independent Board Members
0
Employees
4

Preparer

Firm
Effy Steigman CPA LLC
Address
505 Crown St, BROOKLYN, NY 11213-5126
Preparer
Effy Steigman
Phone
3475337210
Supplemental Narrative

Financial Statement Notes

Part X : FIN48 Footnote

“Tax Uncertainties - The Organization accounts for income taxes in accordance with the income tax accounting guidance, as set forth in FASB ASC Topic 740, Income Taxes, which requires that tax positions initially need to be recognized in the financial statements when it is more likely than not that the positions will be sustained upon examination by the tax authorities. It also provides guidance for derecognition, classification, interest and penalties, accounting in interim periods, disclosure and transition. As of December 31, 2017, the Organization had no uncertain tax positions that qualify for either recognition or disclosure in the financial statements. The Organization's policy is to record interest expense and penalties related to income taxes as operating expenses.”

Raw XML AppendixShowing 400 of 661 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsReceivableGrp/EOYAmt00
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA (FD).
IRS990/AdvertisingGrp/FundraisingAmt0161
IRS990/AdvertisingGrp/ManagementAndGeneralAmt0418
IRS990/AdvertisingGrp/ProgramServicesAmt01030
IRS990/AdvertisingGrp/TotalAmt01609
IRS990/AllAffiliatesIncludedInd0false
IRS990/AllOtherContributionsAmt0401813
IRS990/AllOtherExpensesGrp/FundraisingAmt059
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt0152
IRS990/AllOtherExpensesGrp/ProgramServicesAmt0374
IRS990/AllOtherExpensesGrp/TotalAmt0585
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/AuditCommitteeInd0true
IRS990/BackupWthldComplianceInd0true
IRS990/BenefitsToMembersGrp/TotalAmt00
IRS990/BooksInCareOfDetail/PersonNm0LANIE ETKIND
IRS990/BooksInCareOfDetail/PhoneNum02122791066
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0315 W 39TH STREET
IRS990/BooksInCareOfDetail/USAddress/CityNm0NEW YORK
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0NY
IRS990/BooksInCareOfDetail/USAddress/ZIPCd010018
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOfficerEntInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0851789
IRS990/CashNonInterestBearingGrp/EOYAmt01130013
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt021091
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt054837
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt0134983
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0210911
IRS990/CompDisqualPersonsGrp/TotalAmt00
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt03000
IRS990/ConferencesMeetingsGrp/TotalAmt03000
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0401813
IRS990/CYGrantsAndSimilarPaidAmt01801929
IRS990/CYInvestmentIncomeAmt0136184
IRS990/CYOtherExpensesAmt0283813
IRS990/CYOtherRevenueAmt01175287
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0-714102
IRS990/CYSalariesCompEmpBnftPaidAmt0341644
IRS990/CYTotalExpensesAmt02427386
IRS990/CYTotalFundraisingExpenseAmt045573
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt01713284
IRS990/DAFExcessBusinessHoldingsInd0false
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0true
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/FundraisingAmt0243
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt01216
IRS990/DepreciationDepletionGrp/ProgramServicesAmt0973
IRS990/DepreciationDepletionGrp/TotalAmt02432
IRS990/Desc0THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA (FD).
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DistributionToDonorInd0false
IRS990/DocumentRetentionPolicyInd0true
IRS990/DonorAdvisedFundInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt04
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/EscrowAccountInd0false
IRS990/ExpenseAmt02173254
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/TotalAmt00
IRS990/FeesForServicesLegalGrp/TotalAmt00
IRS990/FeesForServicesLobbyingGrp/TotalAmt00
IRS990/FeesForServicesManagementGrp/TotalAmt00
IRS990/FeesForServicesOtherGrp/FundraisingAmt0296
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt064801
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt028240
IRS990/FeesForServicesOtherGrp/TotalAmt093337
IRS990/FeesForServicesProfFundraising/TotalAmt00
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt00
IRS990/ForeignActivitiesInd0true
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/ProgramServicesAmt0100000
IRS990/ForeignGrantsGrp/TotalAmt0100000
IRS990/ForeignOfficeInd0false
IRS990/Form1098CFiledInd0false
IRS990/Form8282FiledCnt00
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form8899Filedind0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt70.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt80.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt90.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt100.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt110.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt120.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt130.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt140.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt150.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt05.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt11.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt21.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt91.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt101.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt111.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt121.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt131.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1440.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1540.00
IRS990/Form990PartVIISectionAGrp/FormerOfcrDirectorTrusteeInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd9X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd10X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd11X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd12X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd13X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OfficerInd5X
IRS990/Form990PartVIISectionAGrp/OfficerInd6X
IRS990/Form990PartVIISectionAGrp/OfficerInd7X
IRS990/Form990PartVIISectionAGrp/OfficerInd8X
IRS990/Form990PartVIISectionAGrp/OfficerInd9X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt147466
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/PersonNm0FAYE GINSBURG
IRS990/Form990PartVIISectionAGrp/PersonNm1ALLAN COHEN
IRS990/Form990PartVIISectionAGrp/PersonNm2EDWARD BARANOFF
IRS990/Form990PartVIISectionAGrp/PersonNm3LAURENT LANDAU
IRS990/Form990PartVIISectionAGrp/PersonNm4JEFFREY GOLDBERGER
IRS990/Form990PartVIISectionAGrp/PersonNm5STEVEN KIETZ
IRS990/Form990PartVIISectionAGrp/PersonNm6LISA NEWMAN
IRS990/Form990PartVIISectionAGrp/PersonNm7PAUL B WEXLER
IRS990/Form990PartVIISectionAGrp/PersonNm8STEVEN S FASS
IRS990/Form990PartVIISectionAGrp/PersonNm9JENNIFER SONENSHEIN
IRS990/Form990PartVIISectionAGrp/PersonNm10HOWARD WEISER
IRS990/Form990PartVIISectionAGrp/PersonNm11DAVID STEINER
IRS990/Form990PartVIISectionAGrp/PersonNm12GERALD ADLER
IRS990/Form990PartVIISectionAGrp/PersonNm13BARBARA WALDFOGEL
IRS990/Form990PartVIISectionAGrp/PersonNm14LANIE ETKIND
IRS990/Form990PartVIISectionAGrp/PersonNm15PAUL SCHACK
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1432614
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt15170831
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/TitleTxt0President
IRS990/Form990PartVIISectionAGrp/TitleTxt1Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt2Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt3Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt4Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt5Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt6Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt7Vice President
IRS990/Form990PartVIISectionAGrp/TitleTxt8Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt9Director
IRS990/Form990PartVIISectionAGrp/TitleTxt10Director
IRS990/Form990PartVIISectionAGrp/TitleTxt11Director
IRS990/Form990PartVIISectionAGrp/TitleTxt12Director
IRS990/Form990PartVIISectionAGrp/TitleTxt13Director
IRS990/Form990PartVIISectionAGrp/TitleTxt14Executive Dir.
IRS990/Form990PartVIISectionAGrp/TitleTxt15EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/Form990TFiledInd0false
IRS990/FormationYr01954
IRS990/FormerOfcrEmployeesListedInd0true
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingDirectExpensesAmt0489835
IRS990/FundraisingGrossIncomeAmt01534325
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt015
IRS990/GrantAmt01801929
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt00
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01701929
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01701929
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt02203119
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0true
IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt00
IRS990/IndependentAuditFinclStmtInd0true
IRS990/IndependentVotingMemberCnt00
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/TotalAmt00
IRS990/InsuranceGrp/FundraisingAmt0868
IRS990/InsuranceGrp/ManagementAndGeneralAmt04340
IRS990/InsuranceGrp/ProgramServicesAmt03472
IRS990/InsuranceGrp/TotalAmt08680
IRS990/IntangibleAssetsGrp/EOYAmt00
IRS990/InterestGrp/TotalAmt00
IRS990/InventoriesForSaleOrUseGrp/EOYAmt00
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt0136184
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0136184
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt00
IRS990/InvestmentsProgramRelatedGrp/EOYAmt00
IRS990/InvestmentsPubTradedSecGrp/EOYAmt00
IRS990/InvestTaxExemptBondsInd0false
IRS990/IRPDocumentCnt027
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt02432
IRS990/LandBldgEquipBasisNetGrp/EOYAmt054837
IRS990/LandBldgEquipCostOrOtherBssAmt057269
IRS990/LegalDomicileStateCd0NY
IRS990/LicensedMoreThanOneStateInd0false
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0true
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingCashInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA (FD).
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0true
IRS990/NetAssetsOrFundBalancesBOYAmt02791154
IRS990/NetAssetsOrFundBalancesEOYAmt02077052
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt00
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt01044490
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NoncashContributionsAmt069229
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/FundraisingAmt02776
IRS990/OccupancyGrp/ManagementAndGeneralAmt07217
IRS990/OccupancyGrp/ProgramServicesAmt021276
IRS990/OccupancyGrp/TotalAmt031269
IRS990/OfficeExpensesGrp/FundraisingAmt03494
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt021284
IRS990/OfficeExpensesGrp/ProgramServicesAmt013978
IRS990/OfficeExpensesGrp/TotalAmt038756
IRS990/OfficerMailingAddressInd0false
IRS990/OnBehalfOfIssuerInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OrgFiledInLieuOfForm1041Ind0false
IRS990/OtherAssetsTotalGrp/BOYAmt01939365
IRS990/OtherAssetsTotalGrp/EOYAmt0892202
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt0706
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt01836
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt04520
IRS990/OtherEmployeeBenefitsGrp/TotalAmt07062
IRS990/OtherExpensesGrp/Desc0Public Education
IRS990/OtherExpensesGrp/Desc1Bank Charges
IRS990/OtherExpensesGrp/Desc2Social Services
IRS990/OtherExpensesGrp/Desc3Postage and Shipping
IRS990/OtherExpensesGrp/FundraisingAmt03333
IRS990/OtherExpensesGrp/FundraisingAmt1179
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt016664
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1894
IRS990/OtherExpensesGrp/ProgramServicesAmt049303
IRS990/OtherExpensesGrp/ProgramServicesAmt113333
IRS990/OtherExpensesGrp/ProgramServicesAmt216486
IRS990/OtherExpensesGrp/ProgramServicesAmt3714
IRS990/OtherExpensesGrp/TotalAmt049303
IRS990/OtherExpensesGrp/TotalAmt133330
IRS990/OtherExpensesGrp/TotalAmt216486
IRS990/OtherExpensesGrp/TotalAmt31787
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt010402
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt027046
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt066574
IRS990/OtherSalariesAndWagesGrp/TotalAmt0104022
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt01965
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt05108
IRS990/PayrollTaxesGrp/ProgramServicesAmt012576
IRS990/PayrollTaxesGrp/TotalAmt019649
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliciesReferenceChaptersInd0true
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt00
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt01603684
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt01043955
IRS990/PYInvestmentIncomeAmt044055
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0203789
IRS990/PYOtherRevenueAmt072183
IRS990/PYRevenuesLessExpensesAmt093245
IRS990/PYSalariesCompEmpBnftPaidAmt0378933
IRS990/PYTotalExpensesAmt01626677
IRS990/PYTotalRevenueAmt01719922
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt0-714102
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0true
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt01713284
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/RelatedOrExemptFuncIncomeAmt0130797
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt0130797
IRS990/SavingsAndTempCashInvstGrp/EOYAmt00
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt01446523
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt01603684
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt01345947
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt01915663
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt01417112
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt07728929

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,077,052
Liabilities
$0
Net assets
$2,077,052
Revenue
$1,713,284
Expenses
$2,427,386
Net income
-$714,102
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.10$0.26$0.83$1.56$2.03$0.47
2023Summary only. Only limited summary data is available for this year.$1.50$0.20$1.30$1.22$1.94$0.72
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.17$0.14$2.03$1.58$1.83$0.25
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.30$0.01$2.29$2.39$1.85$0.54
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.81$0.06$1.75$1.81$1.83$0.01
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.86$0.00$1.86$1.42$1.88$0.45
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.23$0.00$2.23$1.98$1.76$0.22
2017Detailed filing. Detailed filing data is available for this year.$2.08$0.00$2.08$1.71$2.43$0.71
2017Summary only. Only limited summary data is available for this year.$2.08$0.00$2.08$1.71$2.43$0.71
2016Summary only. Only limited summary data is available for this year.$2.79$0.00$2.79$1.72$1.63$0.09
2015Summary only. Only limited summary data is available for this year.$2.60$0.00$2.60$1.26$1.67$0.41
2014Summary only. Only limited summary data is available for this year.$3.12$0.00$3.12$1.92$2.30$0.38
2013Summary only. Only limited summary data is available for this year.$3.52$0.00$3.52$1.46$2.28$0.81
2012Summary only. Only limited summary data is available for this year.$4.16$0.00$4.16$1.98$2.04$0.05
2011Summary only. Only limited summary data is available for this year.$4.12$0.00$4.12$1.86$1.62$0.24